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I'll take a 0.5 mg today. I'll keep ya updated.

I'm looking forward to it, yes, but honestly I would prefer DBS if I'd had the choice, not because of its risks, but because of its efficacy, and believe me, I'd rather get my brain wired with electrodes than ending up going mad and appeal for euthanasia (god I don't want that it gets that far)...

How about CBD oil for the jaw?

I fear life. Yeah and for the majority of people it is, not for me apparently, so I'll have to go then... I still have not given up all hope, honestly, but I kinda know that there is no significant treatment or even a cure around the corner. 3 years is unrealistic, 5 years is a maybe, 10 years...

Many years... Long enough to know that nothing is going to be changing if there won't be a treatment/cure in a few years.

To be honest, we have to look at tinnitus as a neurological condition. People who have other neurological conditions, for example Parkinson's or epilepsy, have you seen anybody say it's just a seizure, calm yourself with psychological therapy, or that they are just tremors, you cannot eat nor...

Has anyone who has visual snow syndrome induced tinnitus tried Gabapentin here? I would consider Gabapentin together with a higher dose of Clonazepam but I'm not quite sure, at least yet.

A Potential Treatment for Visual Snow? Noninvasive Vagal Nerve Stimulation for Visual Snow Researchers at the Mayo Clinic utilized the theory of cortical hyperexcitability as a mechanism for VS, making nVNS a potential treatment. In this retrospective case series, 3 patients trialed nVNS by...

Trial one was completed: Pilot Study of Deep Brain Stimulation (DBS) in Area LC for Chronic Tinnitus I heard Phase 2 is starting soon. The Maastricht trial is concluding in December this year: Deep Brain Stimulation for Tinnitus

I do still give them 3-5 years for a cure/treatment in terms of invasive things (I really would undergo surgery e.g., Deep Brain Stimulation). If not, I'll throw in the rope, I will not continue with tinnitus for decades, I'd rather undergo euthanasia instead of this. I just asked for a normal...

They also investigated other settings and stimulation patterns, e.g., one trial targets the medial geniculate body whilst the other targets the caudate nucleus. And as mentioned, they already completed Phase 1 and enroll for Phase 2 soon so they are major steps ahead and they are basing their...

That would be awesome. I just hope he can give some information about when it will be available for severe tinnitus, and what are his expectations. I would, like I said before go for it right away if I knew it can eliminate tinnitus, and surprisingly it can :) It's a shame that it's not...

If you have a chance to meet him again, please ask him about this treatment. I would honestly consider this but got no timeline whatsoever. I would really want to know his plans with it and his timeline.

Interview with Prof. Cheung about tinnitus and Deep Brain Stimulation (DBS) would be an amazing opportunity since he is the main investigator of the mind blowing treatment. https://www.ucsfhealth.org/providers/dr-steven-w-cheung

So far they have completed Phase 1 and will start Phase 2 soon from what I got told. They have published a report about further work at UCSF. They will investigate it further until they reach Phase 3 and FDA approval. Probably anywhere in early 2030s. New Tinnitus Research Focused on Neural...

Can anyone give me some expectations? Will Dr. Shore's device be helpful for visual snow syndrome induced tinnitus? It's somatic so it would meet the criteria I guess, but I have no clue why I got it honestly, it's comorbid with TMJ/D, neck and ETD issues.

When is it supposed to be out?

The best would probably be a high dose of e.g., Methylprednisolone, trying to relax a few days in silence without putting your ears/brain under too much noise. If that doesn't help, you can as well look into this: https://www.brai3n.com

I'll try 0.5 mg over the next days. Maybe it will do something but who knows. If not, I'll try the Gabapentin.

Well, I'm more confident on the trial in Maastricht and in the US by Dr. Cheung (Phase 2). If we're lucky, we'll have some decent results by end/beginning of next year in PubMed. For universal use, I'd expect at least 5-10 years, sadly. I mean, I don't know, it's not something I can go for and...

I honestly do not know, maybe inflammatory, since I had this issue from age 3 or even earlier on. VSS included. I'm quite skeptical since VSS seems to be majorly a GABA issue: Visual Snow: Updates on Pathology

The point is actually that tinnitus is created in the brain, not in the ear. There are dozens of causes for tinnitus that doesn't include hair cell damage. Sound gets created in the brain, not in the ear, the ear is a sort of relay station that is just responsible for transmitting it to the...

I took 0.25 mg but it does nothing for my tinnitus/Visual Snow Syndrome. Any ideas why?

Nothing happened lol, I dunno.

Hey, I tried Clonazepam today, 0.25 mg, it did nothing lol.

You got no proof, so.

Yep, it has been debunked, there were "no dead monkeys" lol. That is misinformation.

I think so too. We have on the list | Invasively: - Deep Brain Stimulation (DBS) - Neuralink - Neurosoft Soft Implantable Electrodes - Synchron

Yea, I'm quite hyped for DBS honestly. Just gimme back my silence (no joke, I would do the surgery).

I mean silence is a big word, it scientifically doesn't exist, but to hear nothing or just noises far away, is what I would wish to be able to do, "undisturbed from the noise."

What exactly did he say? Please ask him next time how tinnitus happens in detail, I'm sure he has no answer as well lol. A cure isn't impossible but it's not around the corner, I'd say a solid 5 to 10 years away at least.

How many % has your tinnitus reduced from the Clonazepam?

Thanks brother, this kind of gives me hope, it just sometimes feels so far away :(

That's not entirely true. DBS is very successful in eliminating symptoms of Parkinson's, depression, neurogenic pain and so on that are all a form of thalamocortical dysrhythmia and, TCD can be treated with neurosurgical interventions as such as DBS. It's just not approved for tinnitus, that's...

No, but I know how it sounded like, nothing, just hearing far away sounds and peace.

My tinnitus is not related to gaming lol, I've been one of the biggest COD addicted folks around here lol. So it may was too loud or you have other issues e.g., muscular, Eustachian tube etc.

It's the quietness, for example, mine fluctuates and sometimes, rarely, I'm able to have a bit of quiet time (or at least I had those memories) and it's just so peaceful and beautiful and that I cannot experience that makes my skin crawl because mine is most of the time pretty loud and debilitating.

Visual snow: Alarming and not uncommon Visual Snow Syndrome is affecting 2.2% - 3% of the general population and therefore is not an uncommon disorder like recent research suggests. 1 in 27 has visual snow and 1 in 40 has the syndrome.

Hi, I'm having a very difficult time at the moment, especially with my thoughts that constantly run through my mind. I've had tinnitus since I was very young, although I cannot remember it exactly because there was always some sort of noise in quiet environments. I have tinnitus and visual snow...

Do you also have visual snow syndrome and what did your QEEG indicate?

@erik, well, I was just visiting a chiropractor recently who said to me mehh, your nerves in the neck/jaw cannot be responsible for your tinnitus/visual snow syndrome. I try to treat my TMJD and neck issues with physical therapy but I'm clueless if I can change anything on the severity. It's in...

Well, the question remains: Could this work for neurological tinnitus e.g., visual snow syndrome induced? It doesn't have to do anything with the cochlear, instead primary with the brain e.g., thalamus, cortex.

That's so ridiculous. Why is there medication that makes tinnitus worse instead of better? Like there are tons of medications but so few seem to have even a tiny effect. I don't know mate, what are you looking forward to? Feels like tinnitus isn't taken seriously enough, it's so rude...

Does it have any bad side effects? I don't know honestly, how should it stop the tinnitus? Is it some kind of anti-inflammatory? I can't find information about it.

I have to agree. Let's say this treatment costs around $3,000 to $5,000, we will still have a huge advantage over conventional Deep Brain Stimulation that costs around $50,000 to $70,000 but is mainly covered by insurance so, we'll see how it goes. I don't think it will be very expensive...

That's me :) hope you like it <3

Oha yea, fuck off with the Promethazine. It seemed to make mine like 5x worse while on it. Has yours gone back to baseline?

Hm, I never noticed a change lmao, even after doing it like 5 times a day to distract myself from tinnitus XD

Hm, has it helped you? 2 mg is quite a lot. I take 0.5 mg occasionally as needed and it does prevent anxiety and depression when taken. I was incredible suicidal a few months back, but we have to focus on life, there are so many good people trying to find a solution.

2027-2029 is my guess for DBS.

I just think it's a bit complicated since in visual snow syndrome the visual pathway is also affected. From my understanding the visual (LGB) and auditory pathway (MGB) are interconnected by the (TRN) to the neocortex a.k.a the visual and auditory association cortex where information is actually...

Hm, my dentist confirmed TMJD and neck issues so yea I see the correlation. Mine is as well somatic and fluctuates throughout the day — sometimes louder in left/right ear and sometimes it's the same.

I'm 100% confident about Musk, honestly. My man :) DBS works kind of well for tinnitus if used at correct spots in the auditory pathway, so I don't see why Neuralink would not work as well, and yea, Elon is the richest guy in the world, so if one can push the treatment/cure, it's surely him...

I have heard bad stuff about Amitriptyline, especially for Visual Snow Syndrome. How are you @DoesItStop?

Yeah I honestly just need a little bit of rest from tinnitus. I don't care about the visual stuff, although it isn't mild but it ain't a shit compared to the reactive tinnitus. I get them fixed and then try Klonopin. We'll see. I set my deadline to 2029, by then the tinnitus hopefully is gone...

I understand tinnitus being chronic if you have had it for more than 3-6+ months. But I honestly can't answer what "stable" means because mine fluctuates a lot so I'm not quite sure about this. I also found Dr. Dirk De Ridder's Tinnitus Talk Podcast very insightful. Tinnitus, Ingrained in the...

Anyone have a clue if Dr. Shore's will work for Visual Snow Syndrome induced tinnitus? It's purely neurological since it's a neurological disorder but it seems to be somatic so I'm not sure.