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Some good news for me - about 6 months ago, I was diagnosed with intracranial hypotension due to a CSF leak (CSF venous fistula). I got treated in the hospital 2 weeks ago, got that vein embolized with medical glue, and the pressure around my brain went back to normal, with a bit of rebound...

I agree that a potential 6 dB reduction provides hope. But in my book, it will be "proven to work" only when I see the cascade of enthusiastic user reviews on Tinnitus Talk joyfully announcing that their tinnitus was halved and it doesn't bother them anymore.

Interesting. Napping is a common insta-trigger for me so I can relate to that too.

It's still just speculation on my part but this is something I've observed in these past 2 years with tinnitus and I'm seriously starting to sense a pattern. So for context, my tinnitus is extremely variable in volume. It can go from near silence to extremely loud and intrusive in a matter of a...

Are some tones more maskable than others? How do they account for day-to-day fluctuations or natural spikes that can be weeks or even months long?

I'm not implying that the more we wait, the more Auricle will be a silver bullet. It may very well turn out to be a disappointment and it will certainly not work on everyone. But it's been the only truly promising tinnitus-specific treatment in the pipeline since my onset and the only one giving...

I personally don't mind them taking their sweet time. My worst fear is not waiting 3-5 more years for the device. It's trying it and being disappointed and falling into hopelessness and despair again. Despite being on the brink of suicide 2 years ago when my tinnitus started and I discovered...

Reading your post made me concerned about that and I want the answer too, but I see no indication that she dodged the question. The problem with the highlighted part is that it is not a question but a statement. Not only that but one in a long list of statements ending in a non-specific...

I've had tinnitus for 2 years, it's 2 years too long and yet recent enough that I can remember just relaxing in the countryside at night in winter with zero external noise and hearing that faint hissing, thinking "huh, interesting, silence isn't really silence". It wasn't tinnitus because I...

I don't mind flying to the USA to buy the device either but I'm concerned multiple trips per year might be needed for follow-ups and adjusting the settings and that kind of stuff.

All I want is to reduce my tinnitus loudness, I did my own habituation. So far only Auricle is promising in that aspect. Lenire isn't meant to reduce loudness, neither is TRT.

Just so you know, your story is very close to mine as to the insomnia, got prescribed Zopiclone and Benzos (Oxazepam) after a string of nights with zero sleep. Oddly enough, I did not have any problems sleeping for the first couple weeks as I thought my tinnitus was going to go away. It was the...

Hi Mangels, I gave up on it after my last update due to lack of noticeable effect. The capsules are still sitting in my drawer.

@marcjrf, I got one box at the pharmacy in terminal 4 of Madrid Barajas airport. You can email them beforehand, in my experience they answer pretty quickly. I emailed them in Spanish.

Update: After a 1 week pause, I've been taking Sulodexide again for the last 3 days. Tinnitus has been high the whole time regardless. I'm starting to think the respite I had during my first week with Sulodexide may have been a coincidence. (Part of my normal tinnitus cycle.) I'll try to double...

So I made the round trip to Spain and bought a box of Sulodexide (Aterina, 15 mg per capsule). I took 2 capsules per day over the past week, along with 3.8 mg of Melatonin in the evening for sleep. (I did not want to take Melatonin in the morning so as not to get sleepy during the day). So far...

I'm really hoping this can work for long-term tinnitus. I'm 3 months in and the idea that the window of opportunity is going to slowly pass and be gone by the time the drug is commercialized is terribly sad. Gives me a feeling of powerlessness.

I know Dr. Shore's device is no cure but even a mere 50% volume reduction would be night and day for me and would probably allow me to sleep without meds again. If it does turn out to be effective on me I can see myself using the device permanently, or at least until a real cure is found...

Hi Chris, I'll try not to depend on the meds, unfortunately I'm not quite there yet. They keep me afloat but the sound itself is progressively getting louder. I'm worried but so far the meds kept me off having further panic / insomnia attacks. The doctors are advising me not to try and get off...

It means "lost soul". I registered here after 2 days of no sleep and I sincerely thought about dying to escape tinnitus but I'm afraid of death at the same time. So it felt like my soul's sole purpose was to suffer and so "lost soul" was the first thing that came to my mind.

Well, the meds are helping right now and I slept well for the second night in a row, despite a bad spike. I fear the rebound but we'll see. I'll take good care to stay on the doctor's watch. I'm so glad to have access to competent docs where I live. @superworm, the advice she gave was not for...

I actually gave up on the idea of ignoring it, it's just impossible to ignore when it spikes anyway. I'm instead trying to come to terms with it and I think I'm starting to get some moderate success. Even the spikes don't bother me as much as a few weeks ago. I think I rather quickly habituated...

I wonder if headphone-associated hearing loss and tinnitus may be mostly the result of shutting off the ear canal from the outside environment. Rather than the sound from the headphones itself, at least in part. That may be the reason why it's dangerous even at low volume. Like the hearing part...

Hi fellow sufferers. Life was okay a month ago, enjoying my last weeks of remote work at my parents' countryside home. I woke up almost completely deaf from the left ear. Impacted earwax. No big deal I thought, just go see an ENT and get it removed. Scheduled the appointment for 5 days later...