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I’m currently at 100 mg of Clomipramine, with a target of 150 mg. Here are some things I’ve noticed: Sustained release is significantly more tolerable than regular clomipramine. The difference was astounding for me. Regular Clomipramine gives me heartburn and some other issues, but none of that...

I recently had the trans nasal Botox procedure for pain hyperacusis. 10 mg of Botox on each side of the TVP. It didn't really do much, I'm afraid.

Thanks for the update. I don't think the initial success should be attributed to a placebo. It was most likely the pain medication that reduced your symptoms. I saw a similar thing happen to another guy, but it turned out to just be the Fentanyl that they gave him post-surgery which reduced his...

I cannot point you to what you are asking for as it does not exist. There have been no such studies, unfortunately. It is important to note that this paper (and similar papers on this surgery) considers the symptoms simply as otalgia rather than 'pain hyperacusis' or 'noxacusis'. Honestly, it...

I haven't found anyone else who had the surgery. However, the literature clearly shows that more people have, and Professor Bance has confirmed that it has been successful with some patients. The procedure in the paper is not related to the Silverstein surgery. The tympanic neurectomy consists...

It's weird that it is so difficult to find a doctor who will administer Botox to the middle ear in Europe. Even Professor Bance doesn't seem comfortable administering this procedure even though he is an expert in middle ear surgery. Is there anything Botox would do that removing the muscle...

My understanding is that revision surgery seems quite normal for this procedure either due to regrowth or just not cutting enough of the nerve away. There are many, many papers on this procedure, many of which discuss the need for revision surgery. I'm at the point now where I'm thinking I may...

Quite a handful! I remember I took it for the first time during the day and literally felt like I was on some heavy drugs. I was completely spaced out and just looking around at all the different colours and lights. The following days I took it at night and it seemed to help me sleep. However, I...

What were the main side effects that you experienced? I was getting really bad heartburn, although the doctor said my vitals were normal.

I don't know if you have seen this paper on the tympanic neurectomy, but it is very interesting. It seems that many of the participants most likely had a form of pain hyperacusis. It shows them as having hyperacusis + pain-related symptoms. One of the candidates later had a reemergence of...

I didn't do so great and gave up after around 5 days due to some side effects. I'm really considering it again though.

You have noxacusis, right? Would you consider the tympanic neurectomy? I'm seriously considering it at this point as it doesn't seem like there is much to lose.

I'm really glad Clomipramine worked for you. I'm considering trying it again myself. Did you have loudness hyperacusis, noxacusis, or both? BTW, I'm not doom and glooming here. Ask anyone who has been on these forums for several years. Almost everyone recovers within 6 - 18 months and never...

Are you saying your hyperacusis went away after the first surgery? Did you have loudness hyperacusis, pain hyperacusis or both? What is the second surgery that you have scheduled with Professor Bance? What procedure is it and what are its aims?

Ah, okay. The fact that you had hyperacusis for only 6 months makes it difficult to determine if the Clomipramine actually was the reason for your improvement. Most people see drastic improvement around 6 - 18 months of careful conduct. Either way, I'm glad you are doing much better!

Brilliant! Did you experience many side effects on Clomipramine? How long did you have hyperacusis before starting Clomipramine?

When you say it helped with your neuropathic pain, does that mean your pain hyperacusis improved from taking Clomipramine? Has there been a substantial improvement from taking Clomipramine? Or has it been minor?

Any reason you stayed on such a low dose? My understanding is that most people do not have any substantial improvement until they hit around 100 mg.

This is really great news. I am absolutely ecstatic for both you and the community as a whole. Professor Bance recommended a similar procedure to me last year, but I was hesitant as I had not heard of anyone receiving a tympanic neurectomy. Some more questions: 1) How long did you have to...

@Olly132, did you get the surgery? I am also considering it. How much did the surgery cost, out of curiosity?

@Aaron91, regarding the first paragraph, if hyperacusis is caused by accumulative noise exposure which causes damage to the inner or middle ear, I'm not sure how it could move from one ear to the other. If your hyperacusis is a result of damage to your right ear, then surely the symptoms should...

@Aaron91, I notice that you immediately jump to physical causes in your search for understanding. However, there doesn't always need to be a physical explanation. For instance, fibromyalgia can often have no physical explanation for why a patient is experiencing pain in their right arm one day...

Day 7 update on Clomipramine I went to the doctor as I have been experiencing regular pain/burning in my heart area since starting Clomipramine. The doctor took my blood pressure, checked my heartbeat, and all looks fine. They advised me to stop taking the medication to see if the pain stops...

@Jerad, I have moderate pain hyperacusis where a range of sounds bothers me. No, Clomipramine did not affect my tinnitus. From what I understand, it seems that antidepressants worsening tinnitus might actually be anxiety-induced, kind of like a nocebo effect. I was never really concerned with...

I'm always confused by the 'hearing things louder'. I have hyperacusis but I don't perceive noises as being louder. Is it perhaps recruitment that you are experiencing?

Day 5 update on Clomipramine Experiencing quite bad heartburn. This is quite normal on these types of medications but if it doesn't subside, I'll have to stop taking the medication. If the heartburn goes away, I will definitely be able to continue as the other side effects are not that bad...

@chinup, an element of your hyperacusis is definitely 'psychosomatic' then, although I prefer the term 'mind-body syndrome' which comes from Curable. I have learned some interesting things from Curable. For instance, the reason some people recover from hyperacusis and others get worse could be...

@chinup, have you tried incorporating Curable into your recovery program? I feel like it has helped me a lot. At a minimum, if it doesn't improve your symptoms, it makes you understand the nature of hyperacusis and what is going on with your nervous system. Furthermore, it provides you with...

I've now started on 20 mg of Clomipramine. At 20 mg, I'm not expecting much to happen but I will slowly work my way up. Perhaps increase the dose by 20 mg every 2 weeks or something. My GP said that Clomipramine can go up to 250 mg per day. However, I expect I will know way before then whether...

@Trafalgar D, how are you getting on with Clomipramine? Are you still improving? What about the side effects? Would be nice to hear an update.

Interesting. It does appear that this procedure has a high success rate for otalgia. It also seems that the side effects are not too bad. I will keep this in consideration for the future.

@Brian Newman, I think at this point in time it is unlikely I will go through with it unless I get much worse and have tried everything. My noxacusis seems to have improved quite a bit but I am by no means out of the water. The past couple of days I have been able to listen to music from a...

Hi folks, I recently had a consultation with a leading researcher in ear implants who has a significant number of publications relating to otalgia, tinnitus, and hyperacusis. He is aware of TTTS and the pain that it can cause and has treated such patients. During my consultation, he ruled out...

Hi folks, I experience facial pain on the right side of my face along what I am assuming is the trigeminal nerve. What I've noticed is that my right ear starts pulsing before the pain along my face starts. When I put my finger straight into my ear I can feel a rapid sort of pulsing and I...

Hi everyone, Some of you may have seen my previous posts, but I have pain hyperacusis, loudness hyperacusis, and tinnitus. When it comes to foam earplugs, I can put one in all the way into my left ear, but experience pain if I push a foam earplug all the way into my right ear. A stranger...

@Josh59, I have been taking Amitriptyline for a couple of months now and have certainly not had it worsen my symptoms. Like you, my hyperacusis comes from headphone usage. I have not noticed an improvement from taking 10 mg and then 20 mg over the first 2 months. Going on to 30 mg and will try...

@chinup, since you have seen so much improvement, I wouldn't let it get you too down. I was reading a book on recovery and it described setbacks as being speedbumps on the way to recovery which are trying anything to stop the pain from disappearing. They will slow you down, but should not stop...

@chinup, thanks for posting! This is very helpful. Like you, I also work from home and luckily am in a small town so can go for walks without much bother. It's really hard trying to work out what noise to block out. For instance, my computer has a fan which gives me a slight tingle on my...

@Aaron91, this is a very interesting finding. In what way was ginger causing your TTTS to flare up? Increased pain or clicking/thumping sensations? Does turmeric or pepper also cause flare-ups?

@chinup, could you please post a more detailed account of what you did to improve so much? Your story really is interesting and it could help others in a similar situation. Did you avoid sound for a while by any chance?

Thank you so much for this information. Regarding histamines, would taking anti-histamines potentially help?

If you don't mind me asking, what is the link between liquid Magnesium and potential issues with the middle ear? Also, what is the recommended dosage? I have nothing to lose so may as well try it at this point. Also, after looking some more into 'tonic tensor tympani muscle and the trigeminal...

Yes, an achy jaw is one of my primary symptoms. Also tingling in my ears and the side of my head. Every now and again a stabbing feeling coming from deep in my ear as well.

I do agree with Ace. There can likely be multiple issues at play. Since you are a mild case, I would assume if you continue to avoid headphones, loud noise, etc., and use earplugs during trips to the dentist or when exposed to loud noise then I think you will get better within the next couple of...

Hyperacusis and misophonia are very different. My understanding is that misophonia is an emotional response to certain sounds e.g., people chewing, chalk on the blackboard etc. It can invoke quite a strong feeling of disgust, anger or other emotion. Hyperacusis is an intolerance to loud or...

I have tried many supplements but none really seem to help. I'm taking B12, Ginger, Turmeric, Lion's Mane, Ginkgo biloba and have tried others in the past. I always wondered if supplements were BS, to be honest, but now I think it might just be me. Even before hyperacusis, I never noticed any...

Regarding my tinnitus, it's not so noticeable. It does seem to be reactive though which is worrying. If the noise that is causing my tinnitus to spike is also making my hyperacusis worse, then I'm probably not really in such a good position for recovery. Regarding distortion, I don't...

Hi folks, After developing hyperacusis 2 years ago, it has progressively gotten worse and worse. My timeline is as follows: April 2020 - Develop minor loudness hyperacusis with little to no implications on everyday life. April 2021 - Loudness hyperacusis gets slightly worse but still has no...

Did you have any difficulty in tolerating the white noise treatment? Where you using one of those ear devices or a regular speaker? Would you be willing to provide a bit more info about your white noise treatment and how it made your symptoms better? I have tried playing pink noise out of a...

Can I ask what medication you went on that helped?

Your story is definitely interesting and helpful. The one thing I am consistently seeing on these forums is the importance of rest. This is the opposite of what was suggested by my audiologist but I do not believe my audiologist is a specialist in hyperacusis. I have booked a consultation...

Thanks for the reply. I suspected that pushing through the burning is not the way to go. I feel much better when I have avoided problematic noise for a few days. I think I will go down the route of short exposure rather than listening all day as suggested by the audiologist.

I've read many success stories about hyperacusis patients introducing noise, listening to music etc. etc. While I have had a few setbacks and little sign of recovery, my hyperacusis is not preventing me from going out, working etc. but it does make social situations awkward and unwanted. I...