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Quick update - I've been following some instructions from my dentist while I await to see Max Fax about further treatment, and last night I performed some TMJ/Eustachian tube exercises/massages. I felt my jaw relax last night and drifted off to sleep but I awoke to really tight neck muscles and...

Hey all, I’m new here. I’m dealing with this too. I actually developed high pitched tinnitus in my right ear about 1.5 years ago (this could’ve been due to a couple things like IHH or CSF leak from lumbar puncture). I managed to habituate and it didn’t seem loud anymore. However, in December...

Thank you for this! It’s very detailed. I was actually at the emergency dentist today because I thought I had a tooth infection. My face was tingling, head tingling, ear rumbling, shoulder all tight. The X-Ray showed I had the beginning of an infection in the root canal tooth - it was very...

This is word for word what I've been dealing with. I'm so devastated because I know it isn't an easy fix. Have you looked into MEM/TTTS? Are you feeling any better? Even when it calms down there is always the fear of doing something of making it return to a worse state. It's so impossible to...

Interesting. Did you ever have facial numbness or tingling? Any neck involvement, etc? Sorry if I asked before, rough night. ‍♀️

Thanks @Greg Sacramento. It does seem possible. I’ve ignored TMJ issues for years. I do know my jaw swells and hurts every day. I also have a tooth which had root canal many years ago that seems to be dying and hurting - could this be a cause? I’m guessing my lower lip biopsy can’t be it...

Thanks for sharing @Rockman. How long did it last before it eased? I sometimes feel other parts of my body vibrating with this but it’s mostly from my neck and jaw I believe. My left side lower jaw feels so hot and inflamed, all down my neck to my shoulder and chest. So weird. I’ll update...

I’m glad it’s not as intrusive now for you at least. Keep us updated! Did you try anything to help or just waited?

Hey @Greg Sacramento, thanks for your reply. Of course, see below: - I’ve had dental treatment in the past but I was told many times I have TMJ/D and need treatment. My jaw and face has been inflamed for the past 1.5 years. - No I haven’t had any procedures where metal was placed, unless...

Thank you @Rockman. I hope it fades too. It actually went away for a few weeks but after my ear popping, it returned. It's very intrusive and alarming, almost difficult to ignore when it's bad. It woke me up one night and I felt like my entire head was vibrating. Do you know what this type of...

I, too, have been told I have TMJ but I haven't been offered any treatment so far. The dentist said I should enquire about botox in my jaw as it's that bad. I now have pain, inflammation, rumbling, vibrating, etc. I hope I haven't left it too long! :(

Hi all, I have quite an extensive history but I will try and keep to the point. Please read and skip to the end if you have to :sour: May 2020 I developed the worse headache I'd ever experienced. I had tingling in my left jaw, tingling in my nose and forehead, swollen neck, etc. Rushed to...