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How long did you have yours?

Gosh! 0 hum? :eek: Did it just happen or did you find something that worked? And how long did it take? Soon 2 years since I got it from the lumbar puncture...

Interesting. My low-frequency tinnitus also starts back up a few minutes after I lie down on an OFF-day. And if it's a good day where it's hardly noticeable, it will still increase when I lie down. I've tested sitting in the bed for various amounts of time before finally lying down to sleep, so...

Yes, you can find others with similar symptoms. I had it as well after the health care system ruined me with a lumbar puncture (they did not disclose tinnitus and other related things could be a side effect.. NEVER agree to a lumbar puncture...) Voices sounded metallic and robotic, I had severe...

Hi Syhala! When was your CSF leak? First several months were absolute terror for me after the lumbar puncture that caused my leak, the noises were so loud pretty much 24/7. Last couple of months have been significantly better, so I'm hoping this is a good sign. Now it's been eight months for me.

All of that. Cranial nerves can be stretched or pinched, since if you have a big enough csf leak (or they harvest too much) your brain will literally sag. So cranial nerves can be bruised. And it can affect the pressure in your ears. Also, those chambers in the cochlea contains CSF as well.

The doctors I've talked to think it should go away eventually since the rest has... Except two doctors that didn't really listen, they had me in their office about ten minutes and said well, if it's tinnitus, you're screwed, basically... Doctors did an auditory brainstem response test and...

I had no prior tinnitus or noise damage. For me it started after a lumbar puncture in February which gave me a CSF leak... I got many "side effects" --- especially with my ears. Hyperacusis, some hearing loss in one ear, everything sounded like coming out of a broken speaker, several different...

I had a lumbar puncture in February which left me with horrible side effects, the ear problems being the worst. I had no previous issues... There is a low-frequency oscillating noise that persists. At first there were several high pitch noises as well, but they have disappeared all except one...

They found a papillary edema in my right eye and to rule out different illnesses, they did a lumbar puncture on me. I asked for potential side effects, but was only told that I might get a mild headache. Instead I got a handicapping headache, nausea, different kinds of tinnitus, dizziness, some...

@Padraigh Griffin, you don't happen to know of any experts in Sweden? I got high pitch tinnitus from a lumbar puncture in February, and they think MEM as well. There is fluttering and buzzing in my ears... I got SOLU-MEDROL (Cortisone) IV about a month ago for the papillary edema that prompted...