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  1. dolphinskin

    Never been a concert goer ever in my fucking life and the one time I go my life is ruined and...

    Never been a concert goer ever in my fucking life and the one time I go my life is ruined and everyone blames me for it yeah fuck me
  2. dolphinskin

    Gotta love victim blaming. Been told yet again my t is my fault. My is it legal for concerts to...

    Gotta love victim blaming. Been told yet again my t is my fault. My is it legal for concerts to be so loud? Why aren't there laws?
  3. dolphinskin

    Idk how my problem could even show up there when this only manifested right after a concert. I...

    Idk how my problem could even show up there when this only manifested right after a concert. I guess my PT has to be noise or stress induced somehow. I've already had my CT scan w/contrast looked over by Dr. P. Just have minor stenosis on the opposite side to where most my PT is.
  4. dolphinskin

    @makeyourownluck likewise I am beyond broke now from spending literally thousands on this stupid...

    @makeyourownluck likewise I am beyond broke now from spending literally thousands on this stupid BS with nothing to show for it. I can't take the financial strain anymore and the suffering
  5. dolphinskin

    @makeyourownluck tbh because I'm terrified. I've had 6 CT scans and 1 MRI in less than 3 years...

    @makeyourownluck tbh because I'm terrified. I've had 6 CT scans and 1 MRI in less than 3 years and I'm scared of getting normal t over my PT from a MRA/MRV since I've already suffered hearing loss and hyperacusis from the event that gave me PT.
  6. dolphinskin

    Every day just solidifies my future plans for suicide, I just can't fucking take this shit anymore

    Every day just solidifies my future plans for suicide, I just can't fucking take this shit anymore
  7. dolphinskin

    Severe Pulsatile and Regular Tinnitus with Hearing Loss — Should I Get a CT Angiography (CTA)?

    I had no idea about the CTA. Guess I'm fucked since I've had 6 in my lifetime, head and neck, with them finding nothing. 4 of those in less than 3 years. How do these doctors get away with this shit. I have pulsatile tinnitus in both ears too. A neurointerventional radiologist read my CTA and...
  8. dolphinskin

    @Wrfortiscue How does acoustic trauma cause PT?? I never had PT until I got an acoustic trauma...

    @Wrfortiscue How does acoustic trauma cause PT?? I never had PT until I got an acoustic trauma from a concert. That's so horrible, I don't know what to think.
  9. dolphinskin

    @Forever hopeful I never had PT until I had an acoustic trauma. I can't explain it either and...

    @Forever hopeful I never had PT until I had an acoustic trauma. I can't explain it either and don't get it :(
  10. dolphinskin

    Dr. P said that PT can be caused by an acoustic trauma but that ENT would have caught it?? I...

    Dr. P said that PT can be caused by an acoustic trauma but that ENT would have caught it?? I don't really understand...
  11. dolphinskin

    Slight venous stenosis on right side, which was the side I usually don't have as much PT in...

    Slight venous stenosis on right side, which was the side I usually don't have as much PT in. Although knock on wood that's where it's been lately...
  12. dolphinskin

    I am thinking I'm one of the unlucky few with untreatable pulsatile tinnitus:(

    I am thinking I'm one of the unlucky few with untreatable pulsatile tinnitus:(
  13. dolphinskin

    Had my appt with Dr. P. No answers for me. :( He says get a MRA/MRV but I'm guessing it won't...

    Had my appt with Dr. P. No answers for me. :( He says get a MRA/MRV but I'm guessing it won't show anything. That and blood work.
  14. dolphinskin

    My Hyperacusis Is Cured & I Barely Have Tinnitus Anymore

    Not who you're asking, but I use good quality external USB speakers and microphone for my computer and it works great.
  15. dolphinskin

    No change sadly

    No change sadly
  16. dolphinskin

    I hope PT can just go away on its own :( 5 months out now and still feeling empty and hopeless

    I hope PT can just go away on its own :( 5 months out now and still feeling empty and hopeless
  17. dolphinskin

    @Jerad Yeah but not as bad now 5 months on. Was pretty bad before with stuff like faucets...

    @Jerad Yeah but not as bad now 5 months on. Was pretty bad before with stuff like faucets, shower, toilet flushing. Didn't know there was a name for it. No doctor mentioned that. Thank you for letting me know!
  18. dolphinskin

    @Jerad What's nox?

    @Jerad What's nox?
  19. dolphinskin

    Idk how to fix my PT. Praying even if I never get dx, that somehow I will heal regardless. Wish...

    Idk how to fix my PT. Praying even if I never get dx, that somehow I will heal regardless. Wish I knew what to do. No answers many drs later
  20. dolphinskin

    Hyperacusis is improving, but it's a very, very slow road. I am ok with it if it takes years to...

    Hyperacusis is improving, but it's a very, very slow road. I am ok with it if it takes years to go, but it's definitely a slow burn.
  21. dolphinskin

    Hope I'll get answers but kind of prepared not to. Every day is a huge struggle. No one gets it...

    Hope I'll get answers but kind of prepared not to. Every day is a huge struggle. No one gets it. Not sleeping well, wake up every few hrs.
  22. dolphinskin

    I sure hope I don't have IIH, but I guess it lines up with my vision and PT symptoms. I'll be...

    I sure hope I don't have IIH, but I guess it lines up with my vision and PT symptoms. I'll be happy to get answers either way.
  23. dolphinskin

    Getting looked at next month by a neurointerventional radiologist, thanks to @NYCGuy for the...

    Getting looked at next month by a neurointerventional radiologist, thanks to @NYCGuy for the recommendation. Feel blessed to have you guys!
  24. dolphinskin

    @Steph1710 aaa no, I'll post it again, it works for me when I press the play button...

    @Steph1710 aaa no, I'll post it again, it works for me when I press the play button https://www.checkhearing.org/pulsatiletinnitus.php?rangePitch=5&rangeHz=0.686&rangeLoudnessVari=0&toneType=buttonHum
  25. dolphinskin

    I get big b&w blurs in my vision, esp my peripheral, when moving my head or eyes. Apparently...

    I get big b&w blurs in my vision, esp my peripheral, when moving my head or eyes. Apparently this is part of IIH?? Which also causes PT???
  26. dolphinskin

    Man I read about someone elsewhere having the same vision symptoms I do, and they have IIH?? I...

    Man I read about someone elsewhere having the same vision symptoms I do, and they have IIH?? I wonder if that's causing my PT too?? OMG.
  27. dolphinskin

    An ENT listened with a stethoscope and couldn't hear it, so maybe it isn't PT??

    An ENT listened with a stethoscope and couldn't hear it, so maybe it isn't PT??
  28. dolphinskin

    Thanks for the link! The closest I could get it to what I hear is this. The sound is different...

    Thanks for the link! The closest I could get it to what I hear is this. The sound is different, but the pattern is correct (it just shifts depending on my pulse): https://www.checkhearing.org/pulsatiletinnitus.php?rangePitch=5&rangeHz=0.686&rangeLoudnessVari=0&toneType=buttonHum
  29. dolphinskin

    Like laying down was the only thing that could stop me from feeling like I was on a boat and...

    Like laying down was the only thing that could stop me from feeling like I was on a boat and stop patterns moving as much, but laying down just makes my PT worse aa.
  30. dolphinskin

    @Marshall people will be angry with me, but it's honestly not very loud at all. It's extremely...

    @Marshall people will be angry with me, but it's honestly not very loud at all. It's extremely disorientating though on top of my vision issues though with post-trauma vision syndrome and poor vision in general.
  31. dolphinskin

    @kingsfan What does whooshing sound like exactly? I went onto the whooshers site, but none of...

    @kingsfan What does whooshing sound like exactly? I went onto the whooshers site, but none of the sound files sound like what I have. Mine reminds me more of like a bit of water being sucked through a straw, if that makes sense? It goes tsst. tsst. tsst.
  32. dolphinskin

    @Wrfortiscue I'm starting to think a good portion of people with PT don't have structural issues...

    @Wrfortiscue I'm starting to think a good portion of people with PT don't have structural issues either. I didn't realize that noise could cause PT. Hopefully yours goes away :(
  33. dolphinskin

    I don't have the strength to keep fighting and guessing forever. I wish I could take back...

    I don't have the strength to keep fighting and guessing forever. I wish I could take back everything that happened that horrible day.
  34. dolphinskin

    Maybe it isn't even PT...in sync with heart, but only happened after acoustic trauma?? Maybe...

    Maybe it isn't even PT...in sync with heart, but only happened after acoustic trauma?? Maybe happened because of stress alone?? No answers.
  35. dolphinskin

    I feel so alone in this. I don't even know why I have PT. It's so hard. Is there any hope it'll...

    I feel so alone in this. I don't even know why I have PT. It's so hard. Is there any hope it'll go away on its own? Drs say it's forever. :(
  36. dolphinskin

    Really sussed out about getting MORE imagining when I've had so many MRIs and CT scans within...

    Really sussed out about getting MORE imagining when I've had so many MRIs and CT scans within the past 3 years.
  37. dolphinskin

    Thanks a ton for the rec, I've been looking for a neurointerventional radiologist, and it's...

    Thanks a ton for the rec, I've been looking for a neurointerventional radiologist, and it's especially good if he doesn't need a rec from a Dr. I only have a recent CT scan w/contrast from <2 months before I got PT, I hope that's enough?
  38. dolphinskin

    @NYCGuy there's nothing drs can do for tmj?? That's horrible. :( I've worn a fitted night guard...

    @NYCGuy there's nothing drs can do for tmj?? That's horrible. :( I've worn a fitted night guard for years and still have jaw pain (not dx w/tmj btw just bruxism) so I totally get that. Is there jaw surgery possible for you??
  39. dolphinskin

    I wonder if it's an anxiety/possible tmj/iih thing because I think I've read acoustic trauma...

    I wonder if it's an anxiety/possible tmj/iih thing because I think I've read acoustic trauma can't cause PT? But mine is definitely synced with my pulse.
  40. dolphinskin

    @Steph1710 no, I can't stop it by pressing or turning my neck or head, although that does make...

    @Steph1710 no, I can't stop it by pressing or turning my neck or head, although that does make it worse. Are there specific places to push down on? My PT is in time with my heartbeat and came after acoustic trauma from concert.
  41. dolphinskin

    How to Protect Ears at a Carnival?

    What's a good brand to use? I saw reviews that current Mack's ones are far less quality than they used to be, so I wasn't sure. I've never put in foam earplugs before and it honestly terrifies me to try since my friend burst their eardrum that way...
  42. dolphinskin

    I have really horrible anxiety, but that keeps you from getting better. I've been trying gentle...

    I have really horrible anxiety, but that keeps you from getting better. I've been trying gentle vagal exercises to calm down my nervous system. Keep strong. I honestly think you'll get better.
  43. dolphinskin

    Hey there. Nobody ever warns you about this stuff with t. Have you had a look at success...

    Hey there. Nobody ever warns you about this stuff with t. Have you had a look at success stories? There are people who go back to 100% normal years later. It looks like it's good to eat a good diet, calm down your nervous system, sleep well, etc, to promote that healing.
  44. dolphinskin

    Said whooshers is full of shit, in so many words. I think she's the one full of shit.

    Said whooshers is full of shit, in so many words. I think she's the one full of shit.
  45. dolphinskin

    Is there any hope the Susan Shore device will work for PT that changes with neck and jaw movement??

    Is there any hope the Susan Shore device will work for PT that changes with neck and jaw movement??
  46. dolphinskin

    Literally got into a big argument. I feel deeply hopeless being told yet again that there's no...

    Literally got into a big argument. I feel deeply hopeless being told yet again that there's no hope for me. Suicidal.
  47. dolphinskin

    Just got out of another useless Dr appt with a supposed tinnitus specialist. Said PT is usually...

    Just got out of another useless Dr appt with a supposed tinnitus specialist. Said PT is usually not curable. Has never heard of whooshers.
  48. dolphinskin

    Really really sorry for the question bombing I just feel hopeless. So super grateful for...

    Really really sorry for the question bombing I just feel hopeless. So super grateful for everything, what you've told me so far is of way more value than the hours and $$$$ I've lost to drs over this so far
  49. dolphinskin

    Is it the case that they'd see something that would cause PT less than 2 months before I got PT...

    Is it the case that they'd see something that would cause PT less than 2 months before I got PT from CT scan with contrast? I've gotten 3 CT scans and 2 MRIs in the past 3 years and don't want more.
  50. dolphinskin

    I have a question too. I had to have a CT scan with contrast less than 2 months before I gained...

    I have a question too. I had to have a CT scan with contrast less than 2 months before I gained 24/7 PT bc I lost central vision in one eye while waking up and Dr made me get that done. CT scan came up normal.
  51. dolphinskin

    I've looked at the whooshers site but don't understand it at all. I saw there are sound files...

    I've looked at the whooshers site but don't understand it at all. I saw there are sound files but none of the sounds sound like what I have. Really sorry for ignoring your posts before, thanks a ton for advising about stuff. I don't know what doctor to turn to, it feels hopeless getting...
  52. dolphinskin

    I also had a hearing loss and gained hyperacusis afterward the concert. So I don't know what I...

    I also had a hearing loss and gained hyperacusis afterward the concert. So I don't know what I have. It follows my pulse though. I live in the US and am out four figures so far. ENT listened to around my ear and couldn't hear anything. When I press around my neck it doesn't stop it, but moving...
  53. dolphinskin

    @Steph1710 really sorry, I didn't get notified of them. Neuro-optometrist and RS told me I...

    @Steph1710 really sorry, I didn't get notified of them. Neuro-optometrist and RS told me I couldn't have IIH bc my eye pressure was normal. Have had big black blotches in my eyes when moving them or my head for years after a head injury, every Dr was dismissive about it. I didn't get PT until...
  54. dolphinskin

    I don't see any success stories of PT spontaneously clearing up or getting better when they...

    I don't see any success stories of PT spontaneously clearing up or getting better when they don't see a cause for it. I feel so scared.
  55. dolphinskin

    I can't believe that this is it, that one mistake can just destroy your entire life like this.

    I can't believe that this is it, that one mistake can just destroy your entire life like this.
  56. dolphinskin

    @NYCGuy Did the MRA help diagnose your TMJ and neck issues? I really hope it's given you answers...

    @NYCGuy Did the MRA help diagnose your TMJ and neck issues? I really hope it's given you answers for further treatment. :( Thank you a ton for weighing in. Don't like how the contrast appears to permanently hang around your body once it's been injected though...
  57. dolphinskin

    Also I got a CT scan with contrast less than two months before I got PT for vision going black...

    Also I got a CT scan with contrast less than two months before I got PT for vision going black. They said it was normal. I wonder if that is as good as MRA. Maybe showing it to neurointerventional radiologist would help. Idk.
  58. dolphinskin

    I kind of suspect IIH but the eye Dr took my pressure measurements and said it's normal. I have...

    I kind of suspect IIH but the eye Dr took my pressure measurements and said it's normal. I have history of concussion and whiplash injury so idk. Can't get help.
  59. dolphinskin

    @Wrfortiscue thank you, I really really appreciate it. I saw that MRAs can cause tinnitus...

    @Wrfortiscue thank you, I really really appreciate it. I saw that MRAs can cause tinnitus though, and that the contrast used is very dangerous. I was scheduled for one but I'm thinking it's not worth it at this point, especially since my PT showed up the day after a concert
  60. dolphinskin

    I have no idea what specialist to see...have wasted four figures trying to get help for PT...

    I have no idea what specialist to see...have wasted four figures trying to get help for PT...
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