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  1. Hengist

    So... Anyone Here Got Tinnitus From Listening to Death Metal at Max Volume? Lol

    Yep, not even max but from pagan death metal.
  2. Hengist

    Using Minoxidil / Rogaine for Hair Loss — Impact on Tinnitus?

    I don't think so as I was not even focused on that it was just when I started noticing that my tinnitus is not so high as usual. This thread should not be in the alternative treatment as Minoxidil is a hard drug comparable to things in treatments thread and nowhere along the lines of massage...
  3. Hengist

    Using Minoxidil / Rogaine for Hair Loss — Impact on Tinnitus?

    I have tried Minoxidil for hair growth and I noticed my tinnitus got quieter, after a while I researched about it and found it is a potassium channel modulator like other stuff that is tested for tinnitus treatment. I recommend people to try it out and use 1ml-2ml a day rubbing in their face...
  4. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Can someone post what is the situation with this and other meds and research on the cure?
  5. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Are you joking or trying to make him leave? His posts are understandable, period
  6. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    I don't think it is "edging closer" to anything. Sideeffects should go down over time that is the rule. I am pretty sure that things will get better because the body produces antibodies specifically in target parts of it where sideeffects appear. I think we should all give our support to him and...
  7. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    From statistics. Just google it. They might get upset less but their pain and quality of life goes down the same and they do not have the positive emotional reinforcement that other people get from being hopeful, optimistic and supported by their family and friends. You might see special...
  8. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    You see, even if there would be certain evidence that sure cure would come in a year... your tinnitus could become 2 times worse, or 3 times, or 10 times... it could get to the point where you cannot take it for 1 second more. Tinnitus is almost universally well handled, we on this forum are...
  9. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    It is nice to hear that @Mpt is now without tinnitus but how can we be sure that it is entirely due to retigabine and that he is an example of average person here. It does not seem that anybody else who has tried retigabine has had such an excellent reaction to the drug. On the other side of...
  10. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    @Zimichael I am doing alright, but that is primarily because I am now on dexamethasone, it seems that it reduces my tinnitus most effectively and it also reduces a pain in a part of my face just above a tooth root so that might be connected as less face pain less tinnitus both react on...
  11. Hengist

    Earplugs Making Tinnitus Worse?

    I am not sure that my tinnitus volume is back, it has been hours.
  12. Hengist

    Earplugs Making Tinnitus Worse?

    I bought earplugs so that I can go to events a bit louder than I would like, like moves etc. These earplugs are from a pharmacy and really fill up the ear, when I put them the only thing (almost) that I can hear is tinnitus. That is why I never used them for more than 5 minutes. It is unbearable...
  13. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Yes, here it is: a few users tried it so far, one had great results, 2 had worsening and other 5-6 had significant improvements, the sideeffects were mostly bearable except for the 2 who got worsening of tinnitus. So far the effect of retigabine is quite random so the discussion is about how and...
  14. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    I am not sure because I thought that my issue was with the 50mg being a bad sort or corrupted as everyone else except me and now you have had positive experiences. It is weird that me and you do not have a no-effect case but direct worsening.
  15. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    My posts are short so I do not know how did you not see that I told about me stopping to take it.
  16. Hengist

    Tinnitus for 2 Weeks — This Is My Life Now?!

    nac, dexamethasone, hbo, shae clinic, retigabine, magnesium
  17. Hengist

    Yesterday's MRI Made My Tinnitus and Hyperacusis Worse - What To Do?

    Take steroids the worsening is in the ear injections.
  18. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Both me and @Zimichael had worsening, I am still in acute stage and he is in really long chronic so the only thing that is same for me and him is taking 50mg while others started with 100mg and I have read that 50mg are made in different place than others. It is possible that one of the...
  19. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    I don't think there is any progress to update really, I have stopped taking retigabine and my spikes are very much down, a friend of mine who does not have tinnitus has tried 2 pills of 50 mg and he got a bout of tinnitus for 20 minutes but says that it was very low in sound and would not be...
  20. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    I also had an 8th tooth removed and that seems to have calmed my tinnitus by maybe 20% but I have a lot of f***** up teeth and I do not plan to crank away half my mouth, especially teeth that are in front. I do not have the resources to replace those teeth with those things celebrities put in...
  21. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Yes it can but my tinnitus was immediately after a headphones with loud music event and that inflammation was present before it but did not seem problematic enough for me to consider going to dentist about it.
  22. Hengist

    New Member

    It seems to be related to your bloodstream, and if you can make it stop there is certainty it can be solved if you can get some professionals to find out exactly where the cause is. Just be patient as pulsing tinnitus is not made worse by passage of time and becoming chronic like typical...
  23. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Maybe my spike is related to my poking my inflamed tooth root which I did about the same time I started taking retigabine.
  24. Hengist

    My Onset of Tinnitus

    This is a weird case, I do not think that there is 100% chance that your tinnitus is caused by that old brain damage, it might just be from something else or idiopathic as many others are. Also it would be bad to do suicide so quickly as you might adjust, it may go away or you may find ways to...
  25. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    As I was involved in various questionable activities concerning drugs I know for a fact that some drugs which are close or past expiration can cause weird sideeffects, they can even be used as a weapon if you can get expired version of a drug someone actually uses into their system.
  26. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Same here, 2v5y serie?
  27. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    When will your trobalt expire?
  28. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    It is very low dosage 3x50mg but I do not see any positive effect, but immediate sideeffects! It was not an hour after I took it and I experianced sideeffects... maybe the batch is corrupted. I said I have another friend with tinnitus so I will give him a try with the medicine, the drug will...
  29. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    It would be interesting to hear what others have to say about this as all have reported experiances only after a week or more, maybe they also had this worsening. I also planned to wait longer but just could not keep it to myself. I am frustrated about this idiotic turn of events.
  30. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    I have been taking it for only a couple of days but I have feeling of cold on left side of my body, sudden bouts of tiredness which come and go and it seems that my tinnitus got worse and is in constant spike ever since the first pill and prior to taking it I had a whole week at least of fairly...
  31. Hengist

    So What Is Life with Tinnitus to You?

    It is not a generalized potassium channel disfunction as that would lead to epilepsy and a host of other problems but you have probably heard of tinnitus sufferers who have visual disturbances or vertigo. Depending on the severity and type of irritant one or both ears can be affected leading to...
  32. Hengist

    So What Is Life with Tinnitus to You?

    rofl where did you get that info? yeah sure lol, there are there are 2 centers in my 200,000 city and no in germany retigabine, dexamethasone, NMDA because the problem is not sound, the problem is potassium channel disfunction and sound is just one of the problems.
  33. Hengist

    So What Is Life with Tinnitus to You?

    My life was shit before and after tinnitus so there is only a turn for the worse, however I was not a party animal, an athlete, or a very socially active person before. The only real difference along with the time wasted on trying to solve this problem is the increase in annoyance and the need...
  34. Hengist

    I Don't Remember When It Started

    Do you see a connection of your onset of tinnitus with anything stressful, loud or a period where you had frequent dental, neck or immunity issues?
  35. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Of course we are not scientists but since we would like to see your problem go away we have an urge to tell what we see is a cause of it and how it can be changed positively. I would not play around with dosages as they suggested but I would consider returning benzodiazepine dosage and uptake to...
  36. Hengist

    Right Ear Only

    is there anything that you can identify could cause your tinnitus? is it more of pulastile type or not?
  37. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Ain't that interesting... so you calculated him being more valuable and should be given special treatment not to be upset at all costs even if he might upset a lot of other members by his dismissive and rude tone towards friendly and possibly helpful advice? While the interest of others was...
  38. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    You were tapering off benzodiazepines recently. Return to your normal dosage and it will probably return tinnitus to where it was. Stop complaining about being a lab rat you knew that as soon as you read the first post about this drug the whole point is to speculate about how this works and how...
  39. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    It does not say that alcohol is a definitive no, but only that taking retigabine together with alcohol is not recommended due to visual problems that may and may not happen as a result. However I do not see a particular problem with general alcohol intake and a drug designed to be taken for a...
  40. Hengist

    Screaming Children

    Since you choose not to act upon your distress than you should accept that for the rest of your life you will have this problem with small children. Children on the beach also annoy me because of their illogical need to scream instead of talk about the minute details of their beach experiance so...
  41. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    The point of taking this is to be as normal as you can be, acting abnormally might confuse your metabolism and lead to some weird outcomes that would not have happend if you would to act normally even if that means having a drink every once in a while.
  42. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    If you were taking benzodiazapines and are tapering off them than that is causing tinnitus spikes, those dugs can cause tinnitus by themselves.
  43. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    A kilogram is obviously going too far, on a dosage of 0.6g you would only need perhaps a 200g for a year. Still 4700$ is much less than the price of it in USA but a lot more than the price in EU.
  44. Hengist

    Retigabine (Trobalt, Potiga) — User Experiences

    New User Information Gender: Male Age: 24 How Long Have You Suffered From Tinnitus? (Date of Onset): 08 July 2014 How Did You Get Tinnitus?: Acoustic Trauma Is Your Tinnitus in Which of the Following?: Both Ears What Kind of Tinnitus Do You Experience?: Hissing The Severity of Your...
  45. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Ask them how pure is it and other details.
  46. Hengist

    Thank You Message for Everyone :)

    I don't know why do people talk about tinnitus as if it is only a sound, it is not only a sound, it is a potassium channel neuropathy that affects more than just your auditory system. For instance comparative study on tinnitus sufferers who reported no anxiety or depression due to tinnitus...
  47. Hengist

    My Personal Story About Tinnitus Gone

    I am happy that your tinnitus is gone but for some people, a 15% to be more specific, it just goes away on it's own which does not mean that it will not come back. For some people it goes than comes back, I know of a guy who had it for 3 weeks than it went away, than he went to train and during...
  48. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    You mean buy some "2c-b" online... most of chinese stuff is trash, if their food is poison than their pharmaceuticals are a cathegory I do not even wanna think about.
  49. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    Nope and even if there would be a island nation in the middle of the ocean, who would go there to work and how would you smuggle your stuff into more populated areas? I mean it would be an easier job just making illegal stuff in normal countries.
  50. Hengist

    Top 5 Treatments/Aggravators List?

    Lol if drinking aggravates that waht does make it better, alcohol is best!
  51. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    There are no countries that have free market.
  52. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    This information is wrong as it is available in Croatia.
  53. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    They will probably subside and unless it is serious and you cannot get the urine out there is not a significant danger of kidney water. I mean the sideeffects reported on this drug are very small compared to what most commonly used drugs can do like sudden heart failure or internal bleedings.
  54. Hengist

    NATO Headed for the Ukraine

    To Poland and Romania it is not but to Hungary it might be as their leaders are anti-west. The trading restrictions can have an opposite effect, that usually happens where there is an ideology behind it like in Cuba, Iran or Nazi Germany, but Putin does not have an ideology he is just a...
  55. Hengist

    NATO Headed for the Ukraine

    None of that is hawk talk, as I see it this is small scale warfare by proxy, I do not understand why people are afraid of this war, russia and putin are a ticking time-bomb and the sooner the west realizes that the better. The only thing holding this regime together is the money gained by trade...
  56. Hengist

    NATO Headed for the Ukraine

    Putin and Napoleon are about the same hight but I do not think that the root of the problem. The issue with thisr east European view of the world which is prevailing in Russia where debate (a foundation of democracy) is frowned upon and "unity" (singlemindednes and lack of choice and difference)...
  57. Hengist

    NATO Headed for the Ukraine

    I am all for action, Putin must be stopped from his reactionary, anti-russian, anti-gay backward cleptocratic style of leading russia. If the west can shake him away from power a right wing take over will happen and russia will rise again as something the west can work with.
  58. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    It is not super expensive, it is medium expensive and I am saying this because my medical covered my testosterone replacement therapy, and I planned to have some chemotherapy but in the end did not get approval. If you compare prices of generic hormone replacements etc you will find that...
  59. Hengist

    Loosing It!

    It seems like a cruel random turn of events, but it seems like inflammatory reaction, what you should do is take NAC and dexamethasone and see how much it reduces your tinnitus, in the mean time accept that your situation is horrible and that it will probably be fixed by potassium channel...
  60. Hengist

    Retigabine (Trobalt, Potiga) — General Discussion

    I will and thanks.