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So here's an update. I got Botox (2.5 units on each side of the soft palate), and it's honestly a god damn life changer. The pain is completely gone; I didn't know that was a thing, the day after the procedure I woke up scared that something went wrong because I thought I couldn't feel my head...

Hey so update. I'm getting botox at the end of the month, and then I'm getting an MRI because the Dr I saw is worried my myoclonus is caused by brain tumors. I don't have any new information about working treatments, I'm just scared. I've been scratching the base of my skull until it bleeds...

Hey, So palatal myoclonus is hell, slowly driving me crazy(er). When I was first diagnosed I was prescribed Clonazepam and that sorta worked, but in the sense that I couldn't feel anything anymore. couldn't stay awake for longer than 3 hours, and I lost my memory for 4 months forcing me to drop...