Search results for query: *

I have both tinnitus and MEM. I’m supposed to be put on Doxycycline for 10 days for Lyme disease. Sounds like a bad idea, for someone who’s already suffering from these conditions in my ears? Another options are Phenoxymethylpenicillin and Amoxicillin. But I don’t know if they are less...

Do they help? Which ones are you taking? Sorry if you already told me, I haven’t slept in weeks so my brain isn’t exactly working as it should...

I would love to know the same and which meds people have found helpful!

Yes middle ear myoclonus, a type of tinnitus. <3

I have no idea, if i understood it correctly it has to be done by a neurologist and the ones I've spoken to so far haven't been very helpful. I will keep looking into that tho, thank you!

Thank you for your reply! I’m in the same boat, I need something quick or I doubt my body will be able to handle the lack of sleep. =( But doctors here in Sweden are SO restrictive with meds. I’m glad you found something that worked for you!

Oh gosh how I feel for you and relate to you. I’m so sorry. People who get to sleep have no idea how lucky they are. It’s same for me, noise triggers my tinnitus so masking it often comes with a price. I’ve heard of Benadryl before, is it helping with your MEM at all? It’s not available in my...

Here’s another suicidal one because of MEM. =( I can’t take it and I’m scared. Everyday I live in fear of my own body and my whole life is about chasing sleep. Hang in there guys =(

I’m so sorry you have those type of spasms too! Are you diagnosed with MEM and has a doctor ever said anything about it being able to cause these ”outer” spasms? Or any other explanation? My doctor says it’s impossible for MEM to cause the outer ear to twitch but I just find it so hard to believe.

Hi everyone, I realize this is a very old thread. How are you guys doing today? Any luck? I’ve read all of the posts and I am basically having all the same symptoms as most of you, with it getting worse from burping etc. I have jaw and neck issues, that I’m unfortunately not able to fix due to...

Thank you for that, I will write those down and hopefully I will find some kind of help soon.

No, my regular ringing tinnitus I can mask to some degree, but not the MEM. Sound seems to set it off even more to be honest. It’s absolute HELL. I’m doing all I can to find some doctor who can help in any way but yeah, I’m in the wrong place. Wish I lived in the UK or so. Thanks for listening...

Yes I have and they said I’m already on the strongest ones (no idea if that’s true). Doctors are quite against medication in my country in general =/

Yes, I’m on Zolpidem (Ambien) but unfortunately the noise is so loud in my ears I still wake up. Thank you for caring!

No, it’s very random and irregular and wakes me up all night. I haven’t slept in about 2 weeks now. In the past 4 days not at all.

This is so extremely sad and there really needs to be more research done on this awful condition. I’m struggling with suicidal thoughts myself due to my tinnitus, especially my MEM.

A few months ago I developed MEM, though I’m not sure which muscle is the problem. But I have a pretty much constant flutter inside my ears that get worse after burping and I also wake up from it at night a lot. Sometimes it’s more of a ”thump” kind of sound. It’s escalated the past 2 weeks...

Hi Joe, thanks for your reply! I’m sorry to hear your tinnitus affected you so much, but glad you’ve found some things that seems to be working for you. Mine used to have a very negative impact on me as well, until I simply got ”used to it” somehow. But the MEM I doubt I’ll ever manage. It’s...

I also recently got MEM and am so hoping it will go away. It’s been crazy for about 2 weeks. I’m already on Diazepam so it’s hard to tell how much it helps or if at all. I just want it to stop. The nights are the worst for me. I do have TMJ as well.

My name is Emma and I live in Sweden. I’m new here and thought I’d say hi. I’ve had ringing in my ears since 2016 which can be tough at times. But just recently I’ve developed MEM, which is honestly ruining my life and sleep. Very little is known about this condition in my country. So a bit...