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@Nick47 I’m so sorry, the variability is maddening and would drive the most mentally stable person crazy. Give your ears some time from those ear plugs, first time I did that it took like 6-7 months. This time seems quicker but my job is so stressful and kicking my butt, which kicks up my T.

@yeezysqueezy I’m aware there are two very strong sides about benzos, but when meds like that allow those with epilepsy or T like mine function and you’ve tried MANY other avenues, it’s what I’ve got and I stayed disciplined with it.

@yeezysqueezy only this summer with major spike from deep ear plugs and a travel did my psych and I decide to switch to Klonopin to try it and he said with me leaving my job beginning of January and looking to wean off while I’m not working, it is easier to wean from something with longer half life.

@yeezysqueezy hey thank you for your comment. I was on low dose Ativan daily for two years since onset and not only did it save me mentally but it, along with other things, allowed me to generally function again and go back to work full time in a school last March and do things I hadn’t done in...

@Cmspgran it wouldn’t be every time, but even during my spike I would notice an hour after taking it most days me saying “well at least it took the high frequency down some” which is honestly huge for me. I don’t find myself saying the same thing with the Clonazepam at this point. And I did not...

@Nick47 i know every brain is different and even from male to female, but I don’t know how Brian Fargo takes 1mg a day. I know I’m not even 3 weeks in yet but even .5 -.75mg a day is giving me issues with some short term memory loss and just not as alert. Maybe I’m still adjusting.

@Nick47 yes I remember reading that, and when you're taking it 1-3 times a week I am sure that affect is more noticeable rather than a small daily amount? I don't know, I am just trying to tell myself I'm temporarily spiked more so, so don't judge now but my goal is to just take .25mg in am and...

@Cmspgran currently spiked due to hormone fluctuations, stress at work, and a little more noise exposure recently. I took .25mg this afternoon and .75mg this evening and honestly, still suffering and no lowering of frequency like I would get often with Ativan.

@Cmspgran now I’m clear of infection as of 4-5 days ago, and I have to say I do not actively notice a relief like I did an hour after taking the Ativan. This may be more of a gradual set in relief rather than the fast acting Ativan, therefore it’s so gradual I can’t always put my finger on it...

@Cmspgran it’s honestly hard to say. I started taking it about 3 1/2 weeks ago, then the very next day got hit with awful upper respiratory viral infection that lasted for 14-15 days. Ears honestly held somewhat stable through all of that despite my awful spike in August that made me switch to...

hey @ZFire so sorry for my very late response! Thank you for your comments and compliment I vey much appreciate it. Mast day is January 3rd, so much paperwork and craziness with the holidays approaching but almost there! Mixed emotions of course, but it is the right decision and move for me at...

@Nick47 also currently doing .25mg during day and .5mg at night just from illness and very hectic work week. I will also say the mindset of keeping myself occupied/distracted very much helps me. Distortions are much quieter and crazy sounds that came on in August have calmed down a lot.

@Nick47 last weekend I went out to dinner with a friend Saturday night at a medium level noise restaurant and was there for 3ish hours, then Sunday was at my sisters for a small gathering for her husbands birthday. Monday and Tuesday were exacerbated, but rebounded to more tolorable levels. I...

Hey @Nick47 sorry I had a very busy week at work and wasn’t coming on much. Yes illness is gone and thankfully no significant setback from that. All in all, I’m managing okay and better than 4 weeks ago. I have moments where it’s a lot and reactivity is still super sensitive, but it’s not nearly...

I'm telling you @Nick47 , my most significant spikes/worsenings followed using them. I'm one of the last people on this forum to tell someone what to do, but if someone like me who has reactive T and not loudness or pain H, and I am too sensitive for in ear protection, I can't help but think...

@k9 the exacerbation from the LumoMed specifically was short lived but it is so hard to say exactly because I had/have very reactive tinnitus and driving, traveling, etc all effected that.

Hey @K89 I could only do about 2-3 sessions at half power because it was spiking me. I was very bummed because I believe in the benefits such as mitochondrial repair with red light therapy, but with my reactive tinnitus and very sensitive nerves, it was just too much for me at the time.

I am convinced the occlusion effect along with vibrations significantly exacerbate the nerves in my ear canals and into my inner ear. I truly did and do better in louder environments without those ear plugs than in quieter environments with them in. On top of the distortions, I would get bad...

The worst distortions have happened after I wore generic musician ear plugs that look like little screws and I made sure they were snug, then went about talking with them in and being in an environment where others were talking/low to moderate background sound.

Hey @delta784 .. when it comes to these conditions and symptoms it is hard to say “this one thing caused x-y-z to happen”. However here are the situations that I have come to notice bring on sound distortions: deep inserted ear plugs, very prolonged exposure to loud sounds, and stress/spiraling.

@Nick47 it was a week or two after that when I developed raging ear infection in R ear that lead to SSNHL and reactive T. If she would have given me a steroid and/or antibiotic when I called her and asked for them shortly after the hyperacusis calmed and R ear started to feel full, probably...

@Nick47 ENT used microsuction for a total of like 3-5 seconds in each ear to remove an ear drop oil that adhered to my ear drums and created like a membrane on the ear drums. For the next 24 hours I experienced mild to moderate loudness hyperacusis but I honestly think it's because my eardrums...

@Nick47 never pain hyperacusis (knock on ALL wood), and the ONLY time I experienced true loudness hyperacusis was before I had the SSHL and developed tinnitus…

@kingsfan a close friend of mine just told me tonight if I am just resigning and not going to another school district, they can’t hold me for 60 days. I will meet with my union president on Monday and find out for sure what it will/can look like.

@Zigs I would try it! Trileptal is basically the same just less side affect profile and I was told I don't have to get blood draws to check sodium levels or something. So you could start with the oxcarbazepine and If no relief, try the carbamazepine and go from there?

@grate_biff so I am doing some research now and may delay the Trileptal to give the Nurtec a try this weekend. @Nick47 what are your thoughts on this? Do you think it’s worth giving Nurtec a try?

@grate_biff anyway, after telling him about the Dr Hamid migraine protocol, he wants me to try a sample of Nurtec this weekend, which is a CGRP inhibitor. He knows both nortriptyline and Topamax and was wary about the use of them, especially together, just as my psych was..

@grate_biff interesting thing happened today though.. I had an ENT appointment and, thankfully, I have an ENT who is very sympathetic toward my condition and wants to try to help in any way, he even did intradermal lidocaine shots in my ear canal after I sent him studies..

@grate_biff i am actually taking 300mg at night and scheduled to be on this for 3 weeks then reassess! It’s safe to try- it did not worsen me when I took it before and things like Augmentin and Doxy spike me, even gabapentin spiked me I feel like..

I felt better about trying this anti-convulsant again at higher levels and for longer period due to very low side effect profile as compared to the two mentioned above. Will update as I take it.

I summarized the migraine protocol for him. Although he liked to comprehensive approach, he was wary about Nortriptyline and Topamax with their said success in the trials due to “these drugs being so frequently prescribed and used, if they really helped with these auditory symptoms, you would...

@Zigs those with facial pain and/or Hyperacusis as well as TTTS, and typewriter/morse code have had varying benefits. Wanted to mention that to you.

@Zigs I spoke with my psych today and I am going to try Trileptal again (oxcarbazepine). I only took it for very short time and at such low dose, and after reviewing it with my psych and looking it up I definitely want to try again..

@Zigs my most intrusive and severe sound came after wearing ear protection. Basic musician ear plugs that look like little screws. Well they “screwed” me with occlusion effect and too much for my nerves in my ears. I had this sound before and it went away, but it’s even more prominent now. Not...

Ugh sorry it’s being so inconsistent @Zigs ! It can do that though, the brain and its shifts day by day can cause the smallest shifts in what we hear sometimes, especially if our T is in a spike or unstable state.

@MindOverMatter If I could stop working tomorrow and tend to this for at least 2 months with mental and auditory rest, reset, and restore, I feel it could improve. From your spike experiences, do you think this still has a chance to calm down if I can make adjustments soon?

@MindOverMatter I am struggling. I have been in my current spike for 7 weeks now, and I am starting to fear that the longer it stays, and if I keep going to work every day and endure the stresses and sounds, the more likely this will become my new baseline...

@MindOverMatter it was about a year ago that I went on Doxy for about 11-12 days following tick bite, was able to stop as soon as I found out tick was negative for all tested diseases and coinfections. I remember the Doxy spiking me for sure, but cannot recall how long it took to calm after...

@MindOverMatter I do not do well not working at all, as it is said "an idle mind is the devil's workshop".. well my biggest "devil" is my T and an idle mind gives it too much power! So like you said, all about balance.

@MindOverMatter Once again, I agree :) .. Even though I am not happy in my current role and need something that is less stressful and more conducive to not only my current state with my condition, but allow me to more likely reach my dreams and goals in the next 5 years, working is one of very...

I appreciate the caution <3. Please list below all of your current symptoms and what is debilitating you the most. I see you said you felt you were making some progress, in what area was that?

@Zigs During times when I was stable, not spiked, I truly never really heard it. But as soon as my stress would rise, or get sick, it would show its face. Its hanging around a lot longer these days, all because of work. I know it is hard, but try to label it as a tone that will notably lessen...