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  1. B

    @DimLeb I should add that I also have a history of neck pain and burning pain in my hands, arms...

    @DimLeb I should add that I also have a history of neck pain and burning pain in my hands, arms and shoulders. The pain has been off and on throughout the last 5 to 10 years. The twitching and vibrating has been there constantly since it started in December of 2023. The MEM comes and goes. My...
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    @DimLeb I have multiple herniated discs and bone spurs in my neck causing moderate to severe...

    @DimLeb I have multiple herniated discs and bone spurs in my neck causing moderate to severe spinal stenosis. About 15 months ago, I started to get constant twitching and vibrating on the left side of my body along with MEM with my left ear. Was finally referred to a neurologist and then an MRI...
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    @Yellowblue44 Most days, I would say that it is moderate (the intensity and the tones change...

    @Yellowblue44 Most days, I would say that it is moderate (the intensity and the tones change hour to hour). I've had tinnitus for nearly half of my life and at this point, I think it probably would be strange not to have it. I've gotten quite used to it.
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    @Yellowblue44 I do have a degree of hyperacusis. I know it's not recommended but I usually wear...

    @Yellowblue44 I do have a degree of hyperacusis. I know it's not recommended but I usually wear cotton in my right ear. I would say that my tinnitus has ranged anywhere from moderate to severe over the entire time that I've had it.
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    I just saw the neurologist today. He is now referring me to a surgeon and to an EMG test.

    I just saw the neurologist today. He is now referring me to a surgeon and to an EMG test.
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    Over the weekend, I came down with a sore throat and runny nose. Out of curiosity, I used an...

    Over the weekend, I came down with a sore throat and runny nose. Out of curiosity, I used an expired Covid rapid test and it came back positive with two solid red lines.
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    My MRI shows that I have one bulging disc and two herniated discs in my neck along with bone...

    My MRI shows that I have one bulging disc and two herniated discs in my neck along with bone spurls and moderate to severe spinal stenosis. My next appointment with the neurologist is in March.
  8. B

    I just got an MRI done. Sounds do seem a little softer compared to before the MRI but so far my...

    I just got an MRI done. Sounds do seem a little softer compared to before the MRI but so far my tinnitus is still the same as before.
  9. B

    Thank you for asking. My ears have been pretty stable this past year. I still have twitching and...

    Thank you for asking. My ears have been pretty stable this past year. I still have twitching and tingling down the left side of my body but it's been pretty mild lately (it tends to wax and wane in intensity). I just got an MRI done today and will hopefully have a follow up appointment with the...
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    @ECP I know you asked back in June but I just got the MRI done an hour ago (there was a wait of...

    @ECP I know you asked back in June but I just got the MRI done an hour ago (there was a wait of around nine months). It was about 30 minutes long and very noisy but I had double ear protection on. Sounds do seem softer for the moment but so far my tinnitus is still the same as it was before.
  11. B

    I finally got to see a neurologist. He believes that my symptoms are psychosomatic but he'll...

    I finally got to see a neurologist. He believes that my symptoms are psychosomatic but he'll refer me to an MRI of my brain and neck anyway.
  12. B

    @RunningMan I was able to see an audiologist right away in December 2022. Unfortunately, it can...

    @RunningMan I was able to see an audiologist right away in December 2022. Unfortunately, it can take months to years to see any medical specialists in my area.
  13. B

    @BrOKeN_1 and @gameover I'm in Canada.

    @BrOKeN_1 and @gameover I'm in Canada.
  14. B

    My PCP referred me to an ENT in December 2022. This week, I got a letter saying that my first...

    My PCP referred me to an ENT in December 2022. This week, I got a letter saying that my first appt with this ENT takes place in June 2025.
  15. B

    I now have an appointment scheduled with a neurologist but it's another 3 months away.

    I now have an appointment scheduled with a neurologist but it's another 3 months away.
  16. B

    The muscles on the left side of my body are still twitching and jumping non stop 24/7. I've been...

    The muscles on the left side of my body are still twitching and jumping non stop 24/7. I've been finally referred to a neurologist.
  17. B

    I'm not certain about her compressed nerve diagnosis as I have no pain or tingling, just a...

    I'm not certain about her compressed nerve diagnosis as I have no pain or tingling, just a strong jerking and twitching sensation that has lasted 24/7 for the last 3 weeks. She hasn't even sent me in for a scan of my neck or spine.
  18. B

    I do agree that I need to see a neurologist but I need to be referred to one by my PCP. Right...

    I do agree that I need to see a neurologist but I need to be referred to one by my PCP. Right now, it feels like my PCP is just guessing while throwing drugs at me.
  19. B

    My PCP thought I had strained a muscle and so prescribed baclofen, which didn't make a...

    My PCP thought I had strained a muscle and so prescribed baclofen, which didn't make a difference. Now she thinks I have a compressed nerve and so has prescribed gabapentin, which hasn't helped either.
  20. B

    The jerking is strong enough that it makes me feel off balance when walking or standing. It's...

    The jerking is strong enough that it makes me feel off balance when walking or standing. It's destroying my ability to sleep. I'm also getting trembling in my head and vibration down my arm.
  21. B

    I've already been taking magnesium for the last couple of years (I've never heard of l-lysine)...

    I've already been taking magnesium for the last couple of years (I've never heard of l-lysine). I'm not sure if this has anything to do with stress or a lack of sleep. This just came on suddenly out of the blue. I can't think of any trigger.
  22. B

    I think I have myoclonus. My left ear thumps and my left shoulder and left side of my neck have...

    I think I have myoclonus. My left ear thumps and my left shoulder and left side of my neck have been jerking non stop for the last 3 weeks.
  23. B

    Episodes of Sudden Hearing Loss Followed by Pulsatile Tinnitus, Intense Pressure and Ringing Ear

    I was washing the dishes tonight. When I was nearly finished with them, my hearing in my left ear suddenly dropped and I got some ringing. A few minutes later, I started to hear rhythmic whooshing and buzzing in my left ear. I also had a slight sense of pressure and muffled hearing. In the...
  24. B

    @cjbhab It often sounds like either bagpipes or an accordion playing the same four or five notes...

    @cjbhab It often sounds like either bagpipes or an accordion playing the same four or five notes over and over again. I hear the same "melody" all the time but the melody will change octaves and speed throughout the day.
  25. B

    My musical tinnitus began one year ago this week. I had a lot of anxiety for the first 6 months...

    My musical tinnitus began one year ago this week. I had a lot of anxiety for the first 6 months but I would say I'm coping much better now.
  26. B

    Do You Remember Your Last Day of Silence?

    My tinnitus began on April 15th, 2007. Before this date, I would occasionally get fleeting tinnitus here and there but that was it. I was able to experience silence whenever I wanted. I had been experiencing severe insomnia for months before the onset of my tinnitus. On April 14th, 2007, I was...
  27. B

    Good question. I've had it since I was 18 and I'm now 35. I'm afraid what my tinnitus will be...

    Good question. I've had it since I was 18 and I'm now 35. I'm afraid what my tinnitus will be like in 20 years (it has gotten worse since the onset). For now, I try my best to habituate and hope for better days.
  28. B

    The psychiatrist thinks that I should see an ENT specialist while the ENT specialist thinks that...

    The psychiatrist thinks that I should see an ENT specialist while the ENT specialist thinks that I should see a psychiatrist.
  29. B

    @sakrt I got the prescription filled but I never took any more than the first dose. According to...

    @sakrt I got the prescription filled but I never took any more than the first dose. According to the pharmacist, the doctor didn't prescribe me a proper taper (the ER doctor wanted me to take 50 mg for 9 days and then 10 mg for another 9 days). After doing research, I decided not to finish the...
  30. B

    Episodes of Sudden Hearing Loss Followed by Pulsatile Tinnitus, Intense Pressure and Ringing Ear

    So I took a chance and checked out another town's ER. The doctor there looked at my left ear. He said that there is some fluid in there and that my eardrum is slightly retracted. He couldn't see any middle ear inflammation and so he wondered if I was experiencing inner ear inflammation. He...
  31. B

    @sakrt I'm in Ontario.

    @sakrt I'm in Ontario.
  32. B

    Episodes of Sudden Hearing Loss Followed by Pulsatile Tinnitus, Intense Pressure and Ringing Ear

    I feel stuck. I also feel terrified since the hearing loss, pressure and ringing is still persisting after 15 hours. My left ear normally feels at least a little better by now. I talked to a nurse over the phone this morning and she suggested that I see a doctor. Unfortunately my only option...
  33. B

    The ear pressure, ringing and hearing loss have gotten worse and I really don't know what to do...

    The ear pressure, ringing and hearing loss have gotten worse and I really don't know what to do. I'm really terrified.
  34. B

    @Juliane I went through testing back in the late 2000s and everything came back normal. I...

    @Juliane I went through testing back in the late 2000s and everything came back normal. I haven't been able to receive a diagnosis of any kind despite seeing multiple ENTs over the years.
  35. B

    I'm feeling so lopsided and dizzy and I can't stop throwing up. The whooshing is gone but...

    I'm feeling so lopsided and dizzy and I can't stop throwing up. The whooshing is gone but hearing loss, ringing and pressure r still there.
  36. B

    Episodes of Sudden Hearing Loss Followed by Pulsatile Tinnitus, Intense Pressure and Ringing Ear

    My left ear was pretty stable over the summer. I experienced no sudden hearing loss episodes since last spring. That is until tonight. Tonight I was watching TV when my hearing in my left ear suddenly dropped. I experienced loud ringing right away. A minute later, I started to hear rhythmic...
  37. B

    It's nearly 2am on a saturday and I just lost my hearing in my left ear. I'm also experiencing...

    It's nearly 2am on a saturday and I just lost my hearing in my left ear. I'm also experiencing loud ringing and rhythmic whooshing.
  38. B

    No, I still hear my musical tinnitus over everything. I've just gotten used to it.

    No, I still hear my musical tinnitus over everything. I've just gotten used to it.
  39. B

    For me, habituation means hearing the noise but not panicking about it. I still get annoyed at...

    For me, habituation means hearing the noise but not panicking about it. I still get annoyed at my musical tinnitus from time to time but I no longer experience intense anxiety over it. My reaction to the noise has gotten more neutral over time.
  40. B

    I developed regular T in 2007 and musical T last November. I wouldn't say that my musical T has...

    I developed regular T in 2007 and musical T last November. I wouldn't say that my musical T has gotten better. It's still just as loud and still changes tones second to second. Fortunately I'm able to tolerate it better than initially.
  41. B

    I developed musical tinnitus after taking a single dose of prednisone. My hearing has tested...

    I developed musical tinnitus after taking a single dose of prednisone. My hearing has tested normal the entire time that I've had tinnitus.
  42. B

    Today is my 35th birthday.

    Today is my 35th birthday.
  43. B

    I've had new tones appear with sinus infections. Many times these tones have gone away or have...

    I've had new tones appear with sinus infections. Many times these tones have gone away or have gotten quieter as the inflammation clears up.
  44. B

    My musical tinnitus began 6 months ago.Even though I still have it, I would say I'm coping much...

    My musical tinnitus began 6 months ago.Even though I still have it, I would say I'm coping much better with it these days compared to before
  45. B

    Tinnitus Onset Coincided with Getting Pfizer COVID-19 Vaccine

    My right ear (the one with the chronic tinnitus) rang quite loudly the day after my second Pfizer shot. I was also experiencing fever, muscle aches and nausea at the same time. Fortunately, the ringing and my other symptoms went away after 24 hours.
  46. B

    Musical Tinnitus, Deep Pressure and Ear Pain Following Sinusitis

    I thought I would do an update since it's been 6 months since I've developed musical tinnitus. I would say that my musical tinnitus is about the same as it was when it suddenly came on 6 months. I still hear bagpipes/accordion like sounds playing the same 3 to 5 note melodies that I've grown...
  47. B

    @EternalRinging I have never had an official extended hearing test. I did do an extended hearing...

    @EternalRinging I have never had an official extended hearing test. I did do an extended hearing test through an app on my phone and it showed hearing loss in both ears in the extended range.
  48. B

    I went to a family BBQ today and I couldn't hear any of my tinnitus tones at all. It was amazing...

    I went to a family BBQ today and I couldn't hear any of my tinnitus tones at all. It was amazing and quite the nice break.
  49. B

    @EternalRinging I'm not sure if I'll ever know the cause of mine. I've had countless hearing...

    @EternalRinging I'm not sure if I'll ever know the cause of mine. I've had countless hearing tests over the years and they have always come back normal. My last hearing test showed that I have slightly better hearing in the ear with the tinnitus than the one without.
  50. B

    @EternalRinging I originally gave up in 2010 but then my symptoms worsened at the end of 2019...

    @EternalRinging I originally gave up in 2010 but then my symptoms worsened at the end of 2019. So I sought medical help again only to get no where still I finally got an MRI in 2020 and that showed nothing. When I first developed unilateral tinnitus in 2007, I did fear that I had a tumor...
  51. B

    @EternalRinging Over the years I have learned that tinnitus is tinnitus to an ENT regardless of...

    @EternalRinging Over the years I have learned that tinnitus is tinnitus to an ENT regardless of its characteristics, and unfortunately nothing can be done about it. GPs also keep referring me to them even though it hasn't helped. No one knows what else to do.
  52. B

    The same thing happened to me when I was 18. I'm now in my mid thirties and still have no answers.

    The same thing happened to me when I was 18. I'm now in my mid thirties and still have no answers.
  53. B

    It feels like my head is under water. Also can't hear low tones in my right ear and am getting...

    It feels like my head is under water. Also can't hear low tones in my right ear and am getting loud humming and rumbling. Also can't sleep.
  54. B

    I miss having just simple tinnitus.

    I miss having just simple tinnitus.
  55. B

    Episodes of Sudden Hearing Loss Followed by Pulsatile Tinnitus, Intense Pressure and Ringing Ear

    I just had another sudden hearing loss episode tonight. I was watching a movie when I suddenly noticed that my left ear was ringing. The ringing faded away and so I didn't think much of it at first. About 15 minutes later, my hearing became muffled and I started to get this reactive ring. I also...
  56. B

    I was just watching a movie and the hearing in my left ear suddenly dropped and was followed by...

    I was just watching a movie and the hearing in my left ear suddenly dropped and was followed by ringing, pressure and rhythmic whooshing.
  57. B

    @TindalosKeeper My hearing actually keeps testing normal although though I do feel that the...

    @TindalosKeeper My hearing actually keeps testing normal although though I do feel that the musical tones interfere with my hearing. My musical tones have never faded not even once suddenly developing nearly 6 months ago. During my sudden hearing loss episodes, I get pulsatile tinnitus. In this...
  58. B

    @TindalosKeeper I pretty much have my own personal soundtrack playing in my ear during all my...

    @TindalosKeeper I pretty much have my own personal soundtrack playing in my ear during all my waking hours. It is interesting to listen to but I'd rather have just the simple whistling and hissing. At least I could mask the hissing and whistling unlike my other sounds that just compete with...
  59. B

    I never thought I would have bagpipes, an accordion, screeching tires, a fire alarm and a...

    I never thought I would have bagpipes, an accordion, screeching tires, a fire alarm and a helicopter all trapped in my right ear.
  60. B

    Musical Tinnitus, Deep Pressure and Ear Pain Following Sinusitis

    This is to add 'a beginning' to my tinnitus story. It was 16 years ago this week that my tinnitus began suddenly. One week before my onset, I had gotten sick. After a day, I felt better overall but then I started to experience sound distortion, dizziness and fullness in my right ear. I saw my...