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Thank you!!

@Zigs Of course, anytime! And thanks :)

@BrOKeN_1 @snizzleberry @kingsfan Thanks everyone!

@tpj @4Grace Thank you!!

Sorry to hear you’re feeling similar to how I felt last year ;( I think what helped me on my worst days was doing things that could offer distraction from my T even if it was only for a few moments at a time. Video games (low volume), reading outside, watching vids from my fav youtubers (on...

@kingsfan And sorry that we both have to be a part of the super fun tinnitus club

@kingsfan Thank you. It definitely sucks :( Looking back, I think I’ve had mild T for a long time. I remember thinking “silence is so loud” when I’d go to the bathroom at night. Just sucks that it got worse very suddenly. But it brings me less anxiety these days altho I still hear it often. I...

@TheCapybara Thank you :) How are you doing? I hope you’re doing alright.

I feel like I’m going to have a huge breakdown over it any minute now :,(

@GG_Ear I do, I have TMJ issues and clench my jaw pretty bad at night. Recently started using a gua sha to massage my sore facial muscles and am going to incorporate some TMJ exercises as well to see if it helps anything. Not sure if my T or TTTS are related, but it seems reasonable.

@snizzleberry My tinnitus is actually worse than it was at onset; I had periodic worsening every 3 months for the first year. However, for the most part, I cope with it better. The distortions have lessened over time as I mentioned. My TTTS was bad for the first year; it’s been mostly...

I’ve had that for a little over a year. Fans and running water (toilet flush, shower, etc) especially. It has lessened over time though, the distortions/beeping becoming quieter

@SamRosemary Ugh I’m sorry, it’s the worst :( I’ve noticed when I wake up lately, my jaw is so sore from how tight I’ve been clenching it in my sleep. So I’m wondering if there’s a correlation for me

Obviously, I was hoping for a full fix, but I’ve exhausted all options; had thorough scans of my arteries and veins, had them scoped with a camera and scanned some more, had a CT of my temporal bones. Nothing else has been found. But some relief is better than none.

Given the hell I’ve gone thru w my PT - the years of trying to get the right doctor, the many scans & painful diagnostic procedures, the hell of the 2 surgeries & ICU stays, the first surgery not working, the nightmare month following the 2nd surgery where it was thought I had a stroke, brain...

@eldudebro Unfortunately not gone entirely. But I think the 2nd surgery thankfully helped a decent amount, since the 1st surgery didn’t do much at all. Over all, I think I hear the pulsatile T less frequently than I did before my 2nd surgery.

@sakrt Not sure about reactive T but I do get distortions over certain sounds like fans. Sounds like sporadic, low pitched beeping. I still have my pulsatile T unfortunately, no change there. Not much improvement from my surgery :(

@TheCapybara Thank you. It’s really scary and stressful :( I’ve been in a massive depression episode ever since my surgery, and even more now that I’ve learned there is something officially wrong with my throat.

I haven’t noticed anything either way

Symptoms: difficulty speaking and swallowing (which have improved maybe 85% since onset). Also nasal regurgitation - water goes up my nose when I drink and sometimes fully drips out my nostrils. This has not improved.

Going through some grief right now while also having tinnitus. It’s hard. Hang in there :,)

@Marshall It hasn’t settled for me yet. How long does it usually take for you?

@HearingHell Hey! I actually just left a comment about that on @BB23 page if you want to read that. But TL;DR, yes for the most part it has. I still get flare ups maybe once every month or two and it lasts for a few days to a week. But in comparison to how it was this time last year, that aspect...

I’m not sure if this will be of any hope or not, but for the most part my TTTS has settled. I’m actually having a bit of a flare up right now, which still happens every month or two for a weekish, but other than that it’s not there. I have seen other people say the same and when I was in the...

That’s so great to hear! <3

@sakrt The angiogram showed a small aneurysm but nothing to be concerned about. I had a balloon occlusion test done in my jugular because I have a diverticulum (outpouching). But sadly the test didn’t indicate that fixing that diverticulum would solve my PT ;( so I’m having even more testing...

I did! I was stented because I had Venous Sinus Stenosis. Unfortunately it didn’t work for me in regards to getting rid of the sound. I had more testing done which lead to a dead end, and now I have scans scheduled for March 3 - getting scans of my temporal bones to test for dehiscence. Are you...