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Okay, so to update you, I had my Botox injection on 17 April. I also had 50 units of Dysport injected into my right tensor veli palatini using an EMG-guided needle. It's now been 12 days since the injection, so that should be enough time to reach peak effects. By the 3rd day, I noticed a...

Predominantly delayed burning/searing open wound like pain. Well, this is unknown territory. Firstly, we don't know if Botox will work at all. Secondly, I would think it is likely that a repeat injection may be required after a few months. My hope would be long-term I would need the injection...

Unless I'm missing something here, I'm not too sure where you're going with this. You're being quite cryptic. The source you posted referred to tinnitus. My tinnitus was completely unchanged after I had the Lidocaine injection. Lidocaine can be injected into trigger points of a muscle as a...

In my case though the Lidocaine wasn't injected like an IV, it was intramuscular directly into the peritubal muscles via the soft palate. Effectively a local anaesthetic, I don't see any mechanism how that could block pain in the cochlea, and Prof. Bance thought the same. Therefore I don't think...

I went to a rave in Augugust 2022. I didn't feel anything out of the ordinary at the time. The symptoms started about 4 days later. I sometimes have a crackle when I swallow but that's not so bad these days. I'm pretty sure it's the Eustachian slapping about though. I don't see what else it...

Hi all, many apologies for not keeping up with a regular update but there really hasn't been a lot to report on. My condition is no different at all; it is still severe. Some positive news from today: I visited a university hospital Birmingham. There was a team of people who were all very...

4 weeks post-op update: I had my post-op follow-up appointment with Professor Bance two days ago. Sadly there still isn't really any improvement in my condition. However, in the consultation I mentioned the Botox trials that are currently underway in Belgium and France. One of the precursors to...

Sorry for the delayed response, but to be honest, things haven't been going quite so well for me since my last post. I may have been too quick to my judgement on the success of the surgery and need to give it much more time. I have had a bit of setback from trying to push my noise exposure too...

Time for an update on how my surgery went. 4 days ago I had my tensor tympani and stapedius sectioned, tympanic neurectomy and round and oval window reinforced. This was in an attempt to alleviate symptoms of pain hyperacusis/noxacusis. Beforehand my symptoms became extremely severe, no sound...

Hi Colvis, what were your symptoms before you had the tensor tympani cut, were you in pain in response to sound? If so, how much pain and was it instant or delayed burning pain? Which of your symptoms has it resolved? If you only and the tensor tympani cut recently then I have heard it can take...

Just to give an update. I was not prescribed Carbamazepine in the end, but Gabapentin instead. I was on the drug for 7 days. It was clearly not a drug that agreed with me. I tapered up to 900 mg by the 7th day, as prescribed, I woke up after an hour of sleep that night with a nasty spike in...

Our cases sound remarkably similar. Right ear only for me, but now tinnitus in both since this latest setback. Maybe try some neck exercises for your neck. I haven't started Carbamazepine yet, waiting for prescription. I will be starting on 200 mg per day. If I don't feel any effect, I will move...

No, he has carried out this procedure a lot for MEM, TTTS and maybe other conditions that would warrant a tenotomy. And 99% of the cases have been without any side effects. Not necessarily successful. Basically implying it's low risk to give it a go. But only because my situation is so dire. It...

I have been suffering with noxacusis for a little over a year now, initially caused by acoustic shock. There's been lots of ups and downs and it has drastically changed my life. The past month it has got significantly more severe. I had an appointment with Professor Bance in the UK and as my...

Thank you. Yes, keep me updated. Good idea with getting the referral. I'm just going through the list of top ENTs in my country and emailing them until I find someone who is at least prepared to entertain the idea. Responses so far have been disheartening but I will persevere.

I'm no expert, but I suffer with noxacusis and doing my own research into potential treatments. It certainly sounds like some sort of middle ear disorder and maybe Eustachian tube dysfunction. It doesn't ound like noxacusis. At least not yet. I'm currently trying to find an ENT who will...

@Nick47, very interesting. I wonder if this could also be a treatment for noxacusis?

I have loads of the stuff, I just eat it raw. Not to everyone's liking I guess. It normally gives me hiccups for a few minutes but it certainly helps. The more, the merrier, if you ask me. I have a large chunk about every 3-4 hours with no side effects (I think).