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OU Neurosurgery.

I am so glad my life no longer revolves around searching for obscure tinnitus treatments, clinical trials, or reading this forum. I had MVD surgery for left-sided tinnitus and hyperacusis in December 2023, and I now consider myself healed from the torture of these horrible conditions. I went...

Yes, my tinnitus was reactive. I heard it no matter the environment. After I started 0.5 mg Klonopin and 300 mg Gabapentin twice a day, my tinnitus is super low. I cannot hear it with any background sound going on. It is no longer in the forefront of my thinking. Sound sensitivity is gone...

I trust that not a single thing has touched my tinnitus in, well... too damn long.

Hey everyone, I had no idea of the Shulman protocol. But I recently had my psychiatrist prescribe 0.5 mg Klonopin and 300 mg Gabapentin twice a day. Today is the best day I’ve had in 16 months. My tinnitus is super quiet. I was out in the garage projecting and listening to music. Something I...

Any more to be had?

I agree

Properly stored but expired none the less

I imagine what you got in 2020 was expired but still had effect

Did Trobalt provide you a lasting benefit?

Why does an MRI eliminate most of us? Many of us could plug up and sit an MRI. I have. I would again if had the chance to try a med that could help. The sponsors told me no due to travel distance to Houston for XEN1101. I could sit a few MRIs if a med could help this.

I tried to get in on the XEN1101 MDD trial as well. Same response. Never mentioned tinnitus, just leaned on MDD co-diagnosis.

Did you submit your request to Biohaven?

You should definitely submit your request. Strength in numbers.

Below is the answer to my doctor's request for compassionate use of BHV-7000:

Has you doc submitted your request yet? Thought it would interesting that Biohaven receives more than just one request at the same time.

We put the email together as a team. Unfortunately we missed the . between expanded & access. So we resent the email today. you?

She's a Neurologist. Link regarding Knopp Pharmaceuticals: https://ir.biohaven.com/static-files/88ee0514-2c7e-4deb-90f7-cb4a6ec460cc Read page 6.

She cited all the work done by the many names we all know here, the promising accounts of Ezogabine (aka Retigabine) patients, my hearing tests including tinnitus matching results (65 dB @ 3000-4000 Hz) and everything I've attempted in the past 13 months. She also included an online document...

My doctor requested compassionate use for of BHV-7000 from Biohaven on Wednesday, September 20th.

Your opinion on Disufenton sodium please? @Jonno02

Did I read correctly that you are a R&D chemist? @Jonno02