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Isn’t this the whole premise of bimodal stimulation? The neurons in the DCN have become hyperactive, possibly for one of the reasons you mentioned, @BB23, or for other reasons. Regardless, the treatment works by bringing those neurons back to a non-excitable state through hessian spike timing...

How are you doing now? Sorry to hear about your ongoing struggles. If your additional tone is being caused by the cold, it could be due to fluid or pressure in the ears. I’ve had two severe colds recently, and both times the tone in my right ear changed, but it went back to its usual, more...

Where are you up to old friend? I’m struggling at the minute, a variety of other health issues like you and no real tinnitus improvement. How you managing to cope?

Has anyone else noticed this? Ion channel modification comes up again, but I couldn't find any reference to it from these guys after a quick forum search. Sea Pharmaceuticals Advancing Oral Neurotherapeutics as Potential Medicines for Tinnitus, Epilepsy, and ALS in Collaboration with TCG GreenChem

Reactive tinnitus sufferer here, @Petey04. I’m sorry to hear about your sister’s tinnitus worsening. The same happened to me 18 months ago after decades of relatively stable tinnitus. I’ve tried every supplement and sound therapy known to man, but the only things that have had any effect for me...

I believe so, yes. I experience dips in my hearing, and when I went to see a private ENT at the start of this nightmare, he didn’t seem interested in those dips. He sat in front of me and said, “So... you have idiopathic tinnitus; it’s been worsened by an MRI, but it’ll improve over time.” He...

Subjective tinnitus refers to nearly all cases except for the rare 2% in which a surgeon can actually hear the tinnitus or when it can potentially be treated with surgery. Noise-induced tinnitus almost always falls into the category of subjective tinnitus. When you visit an ENT and they can’t...

I switched to this approach because I was tired of the high-to-low depression swings caused by sporadic use. The sedative effects have long since worn off for me, as documented in the literature, so it's no longer an issue. Often, I wake up at 5 a.m., and if that happens, I'll take it then and...

Hi @ErikaS, I take it the minute I get up. I instinctively know how bad the day will be, so I decide between 0.025, 0.5, or 0.75 mg in one go. If I take it the night before, I don't get as good of an effect. FYI: if you're really struggling, 0.5 mg just before bed, followed by the same dose...

I'm not an audio engineer, but I used to dabble in Logic and made my own notched noise using Audacity. In terms of actual steps, it doesn't sound too difficult; someone into audio could probably do it easily. Maybe we could reach out to Dale Snale to create a guide video? Some of his videos...

Good shout. I hadn’t realized how potent it was. Although I was cleared to go up to 1200 mg of Gabapentin when trialing it, I found that repeated doses gave me stomach issues. A single 300 mg dose of Pregabalin doesn’t seem to cause the same problem. I can’t take it every night, though, as it’s...

Yes, I am. It’s the first thing I take upon waking. I found that combining it with 300 mg of Gabapentin boosted the effect somewhat, but I’m hesitant to go back to the GP, as you understand. However, a friend gave me a box of Pregabalin, which was prescribed for their back pain, and it seems to...

This is exactly my position (sadly), but as @Nick47 points out, it’s what we do to stay functional and pay the bills. None of us asked to be in this situation; misfortune and circumstance brought us here. As @Nick47 mentioned, my plan is to wait for Dr. Shore’s device and observe results from...

I cut it in half. Using just a quarter didn’t have any effect. To keep it in place, you’ll need to cover it with cheap white medical tape.

I finally listened to the Dirk De Ridder podcast today. Thanks, @Hazel, for letting it run on and for asking such a broad range of questions. I noticed your question, @Nick47, about the patches—thanks for asking that! It seems he wasn’t really in favor of long-term use due to potential...

I think this is one of the most sensible posts I've read on benzodiazepine use and the reality of the severe symptoms people face, weighed against the benefits that medications like Clonazepam can provide. For many, the choice comes down to being unable to function or go to work, which was...

I wore it for three days, about 8 hours a day, and noticed some improvement. However, it wasn’t as effective as Aspercreme, which, as you know, I was wearing 24/7 for days on end. The strangest thing is that the Salonpas completely numbs my neck, while Aspercreme didn’t numb it at all. Yet...

The back of my neck! I must've said this about 100 times in this thread! 🤣 Good for you, @Nick47. Update on the Salonpas brand: it numbs the neck more effectively than Aspercreme, but it doesn’t seem to have as much of an effect on the tinnitus. Go figure...

Yes, that's definitely not happening in the UK, that's for sure! I just reread his thread and realized how much Gabapentin he's taking. With that much in my system, I’d be hoping for near silence, let alone just managing to cope. I'm really pleased to have been the 'test subject' for the reboot...

Jeez Louise, and here I am worried about taking 0.025 mg of Clonazepam a day and running out of Gabapentin. I have a box of Pregabalin that was given to me to try, but I haven’t used it yet. Those are some hefty doses, mate. Be careful! I’m glad it’s helping your symptoms, but I’m honestly in...

I’m going through a rough patch at the moment, mate. Clonazepam has lost some of its effectiveness, and I’m hesitant to increase the dosage. I have a question you might be able to help with. The original study mentioned that after a certain number of weeks, the TFI (Tinnitus Functional Index)...

A dose of 0.75 mg is fairly high. I usually manage on 0.25 mg per day and only increase to 0.75 mg twice a week.

Glad to read this report! I told you it wasn’t just a placebo effect. As for its practicalities and costs, that’s another issue—it does have side effects, but that’s a separate matter as well. Just try not to end up in A&E like I did, thinking you’ve got sudden sensorineural hearing loss after...

I completely agree with this, and it aligns perfectly with the mission statement of Tinnitus Quest, doesn’t it? We already know there's some solid science behind those molecules, and I think some of them truly embody the concept of high risk, high reward. Without sounding pedantic, beyond...

I can't remember the exact timeframe, but it was fairly soon—within about half a week. I was surprised myself, to be honest, as I hadn't expected anything from it.

I’m not sure. If I could be assured that the temporary hearing drop was just related to channels and not causing permanent damage, I would have continued. I’m in an awkward predicament now because I felt that Gabapentin helped me by complementing Clonazepam and improving my sleep. However, I...

I completely understand that feeling of panic. For me, it's the helplessness that’s the most frightening. My hospital is in Merseyside, and I have a follow-up session next week. I'm just taking advantage of what's available while I can. Interestingly, when this whole nightmare started, I paid...

Hi @Nick47, I gave up on it after the hearing drop incident, which is a shame because it was working. However, it also made me nauseous, which wasn’t pleasant. How did you get on? I’m sorry to hear about your birthday celebrations. Happy 50th, by the way, but I’m really sorry that this awful...

I've experienced the exact same sound distortions shown in that video. They can be both frightening and alarming. Some practitioners believe it's related to hyperacusis, but no one really knows for sure. The good news is that these distortions tend to improve over time. Mine have gotten better...

Yes, it really is a huge amount compared to what the body naturally produces. I’ve researched this, and certain experts in the field of sleep suggest that you only need a crumb-sized amount, even from a 1 mg pill. From my own experience, I used to think that more is always better (silly me)...

It sounds like you have symptoms very similar to mine. The latest research suggests that Tinnitus Retraining Therapy (TRT) doesn’t do much beyond potentially masking the noise. If you have reactive tinnitus and Tonic Tensor Tympani Syndrome (TTTS), it could aggravate your condition. However...

Hi Pierre, Your story is truly heartbreaking in every way, and you have my deepest sympathies. For what it’s worth, I’m glad your girlfriend found you that evening and that you’re still here. There’s every chance you can make some improvements and get your life back on track. I can relate, as...

I’d rather try Dr. Shore’s device first and see what happens with it than have an implant fitted. From everything I’ve read, I believe Dr. Shore’s device will hit the market before any of these electrical stimulation devices anyway.

Ciprofloxacin actually comes with a black box warning, as so many people have been done in by it. I’ve been prescribed it before and refused to take it, specifically asking for Doxycycline instead.

I'm sorry to hear about your struggles; it sounds truly awful. @MindOverMatter has offered great advice, as always, and I, too, have found comfort in many of his past posts. Getting out in nature, even with earplugs, is one of the best things you can do. Don't be hard on yourself—none of us...

Hi @Louise_M_78. I'm sorry you're going through this—it sounds awful. Normally, pulsatile tinnitus is related to an organic cause. Did they suggest it could be related to hearing damage and that the tone of your tinnitus is causing this, or is it literally a thumping beat? A private consultation...

I'm really impressed by these videos. I hope this really comes off in a big way.

I just wanted to chime in and say that it sounds like TTTS. I experienced something similar: I had tinnitus, and after an additional acoustic shock, I developed multi-tonal reactive tinnitus, dysacusis, mild hyperacusis, and TTTS. The TTTS is still present—I can feel it vibrating when my head...

I remember him writing about ectatic conduction in relation to Carbamazepine, mentioning it as the best drug for that condition. I tried researching it further, but it quickly became too scientific for me to follow. It's interesting that you had an IBS flare-up. I wonder if there's any...

At peak concentration, it is probably just as good, yes, but bear in mind this was the rigmarole of applying patches with tape for weeks compared to popping a pill and then two hours later getting relief. I’ve felt nauseous on and off recently. It could be related, but it might not be. Who...

I gave Ambroxol a go. It did nothing for my tinnitus. You can easily buy it on German online pharmacy websites.

This is definitely not a placebo, mate. I've suffered long enough and tried every supplement under the sun to know the difference. Only two things have ever improved my tinnitus: Clonazepam (which was almost a miracle for me) and now, Lidocaine patches. I believe the drop in hearing is proof...

I've stopped for now because the hearing loss in my right ear really freaked me out. Honestly, I'm in a tough spot. I had to stop taking Gabapentin because it was causing stomach issues and didn't help much, aside from aiding sleep. Now, I basically just look forward to taking Clonazepam twice a...

I probably will, even though the drop in hearing in the right ear scared me a bit. However, from my very rudimentary understanding of the science, I don’t think it was due to ototoxicity; it was more likely messing with channels/auditory pathways. With the hearing returning so quickly the next...