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Yes, that's definitely not happening in the UK, that's for sure! I just reread his thread and realized how much Gabapentin he's taking. With that much in my system, I’d be hoping for near silence, let alone just managing to cope. I'm really pleased to have been the 'test subject' for the reboot...

Jeez Louise, and here I am worried about taking 0.025 mg of Clonazepam a day and running out of Gabapentin. I have a box of Pregabalin that was given to me to try, but I haven’t used it yet. Those are some hefty doses, mate. Be careful! I’m glad it’s helping your symptoms, but I’m honestly in...

I’m going through a rough patch at the moment, mate. Clonazepam has lost some of its effectiveness, and I’m hesitant to increase the dosage. I have a question you might be able to help with. The original study mentioned that after a certain number of weeks, the TFI (Tinnitus Functional Index)...

A dose of 0.75 mg is fairly high. I usually manage on 0.25 mg per day and only increase to 0.75 mg twice a week.

Glad to read this report! I told you it wasn’t just a placebo effect. As for its practicalities and costs, that’s another issue—it does have side effects, but that’s a separate matter as well. Just try not to end up in A&E like I did, thinking you’ve got sudden sensorineural hearing loss after...

I completely agree with this, and it aligns perfectly with the mission statement of Tinnitus Quest, doesn’t it? We already know there's some solid science behind those molecules, and I think some of them truly embody the concept of high risk, high reward. Without sounding pedantic, beyond...

I can't remember the exact timeframe, but it was fairly soon—within about half a week. I was surprised myself, to be honest, as I hadn't expected anything from it.

I’m not sure. If I could be assured that the temporary hearing drop was just related to channels and not causing permanent damage, I would have continued. I’m in an awkward predicament now because I felt that Gabapentin helped me by complementing Clonazepam and improving my sleep. However, I...

I completely understand that feeling of panic. For me, it's the helplessness that’s the most frightening. My hospital is in Merseyside, and I have a follow-up session next week. I'm just taking advantage of what's available while I can. Interestingly, when this whole nightmare started, I paid...

Hi @Nick47, I gave up on it after the hearing drop incident, which is a shame because it was working. However, it also made me nauseous, which wasn’t pleasant. How did you get on? I’m sorry to hear about your birthday celebrations. Happy 50th, by the way, but I’m really sorry that this awful...

I've experienced the exact same sound distortions shown in that video. They can be both frightening and alarming. Some practitioners believe it's related to hyperacusis, but no one really knows for sure. The good news is that these distortions tend to improve over time. Mine have gotten better...

Yes, it really is a huge amount compared to what the body naturally produces. I’ve researched this, and certain experts in the field of sleep suggest that you only need a crumb-sized amount, even from a 1 mg pill. From my own experience, I used to think that more is always better (silly me)...

It sounds like you have symptoms very similar to mine. The latest research suggests that Tinnitus Retraining Therapy (TRT) doesn’t do much beyond potentially masking the noise. If you have reactive tinnitus and Tonic Tensor Tympani Syndrome (TTTS), it could aggravate your condition. However...

Hi Pierre, Your story is truly heartbreaking in every way, and you have my deepest sympathies. For what it’s worth, I’m glad your girlfriend found you that evening and that you’re still here. There’s every chance you can make some improvements and get your life back on track. I can relate, as...

I’d rather try Dr. Shore’s device first and see what happens with it than have an implant fitted. From everything I’ve read, I believe Dr. Shore’s device will hit the market before any of these electrical stimulation devices anyway.

Ciprofloxacin actually comes with a black box warning, as so many people have been done in by it. I’ve been prescribed it before and refused to take it, specifically asking for Doxycycline instead.

I'm sorry to hear about your struggles; it sounds truly awful. @MindOverMatter has offered great advice, as always, and I, too, have found comfort in many of his past posts. Getting out in nature, even with earplugs, is one of the best things you can do. Don't be hard on yourself—none of us...

Hi @Louise_M_78. I'm sorry you're going through this—it sounds awful. Normally, pulsatile tinnitus is related to an organic cause. Did they suggest it could be related to hearing damage and that the tone of your tinnitus is causing this, or is it literally a thumping beat? A private consultation...

I'm really impressed by these videos. I hope this really comes off in a big way.

I just wanted to chime in and say that it sounds like TTTS. I experienced something similar: I had tinnitus, and after an additional acoustic shock, I developed multi-tonal reactive tinnitus, dysacusis, mild hyperacusis, and TTTS. The TTTS is still present—I can feel it vibrating when my head...

I remember him writing about ectatic conduction in relation to Carbamazepine, mentioning it as the best drug for that condition. I tried researching it further, but it quickly became too scientific for me to follow. It's interesting that you had an IBS flare-up. I wonder if there's any...

At peak concentration, it is probably just as good, yes, but bear in mind this was the rigmarole of applying patches with tape for weeks compared to popping a pill and then two hours later getting relief. I’ve felt nauseous on and off recently. It could be related, but it might not be. Who...

I gave Ambroxol a go. It did nothing for my tinnitus. You can easily buy it on German online pharmacy websites.

This is definitely not a placebo, mate. I've suffered long enough and tried every supplement under the sun to know the difference. Only two things have ever improved my tinnitus: Clonazepam (which was almost a miracle for me) and now, Lidocaine patches. I believe the drop in hearing is proof...

I've stopped for now because the hearing loss in my right ear really freaked me out. Honestly, I'm in a tough spot. I had to stop taking Gabapentin because it was causing stomach issues and didn't help much, aside from aiding sleep. Now, I basically just look forward to taking Clonazepam twice a...

I probably will, even though the drop in hearing in the right ear scared me a bit. However, from my very rudimentary understanding of the science, I don’t think it was due to ototoxicity; it was more likely messing with channels/auditory pathways. With the hearing returning so quickly the next...

I wish you the best of luck with it. I would’ve gone for a few boxes and given it at least three weeks of consistent use. It wasn’t until about week two of 24/7 use that I began noticing real improvements.

Thinking of you dear friend, still about on here and noticed how much you’re suffering. You’re in my thoughts and pray for us all.

I was inspired by a comment @linearb made about just taking the medication and getting on with his life. I realized I had been spending too much time worrying about using the medication rather than just 'using it' at the lowest dose possible and getting on with my life. In answer to your...

I had planned on writing a full update after a few weeks more. Of course, I’d share it with everyone—that goes without saying—but I wanted to give it a proper run. It was more than 10 dB, more like 20 dB, focused around 2 kHz and, to some extent, 3 kHz. I’m 99% sure it was the Lidocaine. I’d...

So, I thought I’d bump this thread as I’ve been trialling Lidocaine patches on the neck. After a couple of weeks, they were undoubtedly helping quite significantly, especially the reactive element. Alarmingly, this weekend, my hearing suddenly dropped at 2 kHz and 3 kHz, and I feared SSHL; I...

I feel your suffering from your posts @RunningMan. I’m praying for you, myself, and many others that Dr. Shore's device returns some form of quality of life.

However, over 100 guinea pigs have already been used, and Dr. Shore has confirmed that not one worsened due to the treatment itself. The single worsening was caused by attending a rock concert while enrolled in the clinical trial. What is unsubstantiated hype? Two clinical trials have been...

Hi @beefling and @ellees. I apologize for the delay in my reply. First of all, in answer to your question @ellees, I’ve tried Gabapentin several times with no benefit to my reactive tinnitus or distortions; the only benefit I found for Gabapentin is that it gave me better night sleep. Literally...

It was @linearb, who was in the original trial, who said it was just a wide-band tone and all of his tinnitus tones lowered in volume synchronously. From everything I’ve read, I don’t think it’s going to be a case of trying to match the perfect tinnitus tone. It’ll either be a wide-band noise...

Well, I just watched the HHF live webinar with Dr. Shore and thought it was fantastic. I learned a little more about the science, which reinforced my confidence that the device really does work. We had some excellent questions at the end. I’m absolutely confident that this device, when...

I still suffer from the after-effects a year later. I experienced reactive tinnitus, dysacusis, and electrical zaps down the ear. It was the worst year of my life, bar nothing. As you said, I will never get another MRI unless it is a matter of life and death. I complained to the radiology...

I’ve read this story, and with respect as I understand it, Hubert Lim knocked up some specialist machine that @kelpiemsp was miraculously cured by, went on to work with Neuromod’s Lenire instead, and we heard no more about his invention? The whole thing sounds like fan fiction to me. I don’t...

@linearb was in the first clinical trial and stated how well the device worked for him. You can find his posts, and he wasn’t the BS type. Two double-blinded clinical trials have proven it to work. What else could Dr. Shore actually do? It really is getting silly.

I'd take it with a pinch of salt. He makes unfounded comments about Dr. Shore's device that aren't accurate or fair, in my opinion, and almost dismisses her idea of bi-modal stimulation as a treatment. Yet he and his buddy from another university are putting together something that looks like it...

I had the exact same scenario with the MRI scan. Congratulations on toughing it out the first time and coping with it. It’s early days. It may settle back down for you. Don’t blame yourself; I blamed myself for the MRI incident.

This is what I always thought, but if you refer back to @RunningMan's post, he states several who dropped out of the trial did so due to worsening.

What are people's theories as to the mechanism behind those people whose tinnitus was made worse by Dr. Shore's device? Was it incorrect timing? Was the tone matched incorrectly? Were the electrodes placed incorrectly?

What an inspirational, brave, and honest post; you have a maturity way beyond your years and are one brave guy. Your post gave me hope and inspiration in equal measures, and I commend the insane amount of resilience you have shown and continue to show in the face of such adversity. I hope you...

I couldn’t agree more it’s time to look beyond that paradigm now, and rightly so; Pawel Jastreboff had had his day. I lost complete respect for the guy when he referred to severe sufferers as ‘flag wavers’ and ‘claim makers.’ His whole house of cards was proved as BS by a study anyway; he has no...

I'm really sorry you are going through all of this; trust me when I say I can relate to your distress. I remember saying you were in your 50s. Are you retired? I hope so, as it's one less stress. My biggest fear after the tinnitus itself is losing the ability to work. I don't understand why...

I think @Jupiterman has again made a good post on the contradictory advice given here about reactive tinnitus; it doesn’t help newcomers at all. I’d consider myself one of the small number of unlucky regulars that suffer from this horrible version along with distortions; as a tonal stable...

I think it’s a double-edged sword; I know I’ve been taking it too often, and I’m convinced it’s causing a rebound effect. I would have been really interested to see the difference in progress over the last year since obtaining reactive tinnitus/distortions had I not used Clonazepam. Sadly, I’ll...

I don’t want to jump all over this, but @Travis Henry, you are not being helpful at all. I’d have lost my job without the judicious use of benzos last year. Clearly, people need to educate themselves on their use, but referring to them as rat poison, etc, isn’t helpful to scared and confused...

I didn’t realise you had the reactive Morse code beeps over white noise sounds, too @Nick47. It's a total nightmare, isn’t it? Have you found anything else medication-wise that helps? It saddens me to say this, but Clonazepam is definitely losing its effectiveness for me, and I take it three...