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  1. jimvee

    @SarahMLFlemmer Haha, but that sucks though.. I hope you'll soon find a way to manage it at its...

    @SarahMLFlemmer Haha, but that sucks though.. I hope you'll soon find a way to manage it at its root cause! I don't have much good advice, maybe there's some good older threads on here.
  2. jimvee

    I feel you. Hang on in there. I've been going through this too. Do you also get nauseous from...

    I feel you. Hang on in there. I've been going through this too. Do you also get nauseous from the sound+pain combination sometimes? I was wondering if other people experience this too.
  3. jimvee

    Are you? I've decided to wait for a bit after release. Have not yet seen or read much today...

    Are you? I've decided to wait for a bit after release. Have not yet seen or read much today. What are your impressions?
  4. jimvee

    Bad day. Good day to keep practicing to not have any emotional reaction to all the sounds and...

    Bad day. Good day to keep practicing to not have any emotional reaction to all the sounds and pain. I've become quite good at it.
  5. jimvee

    Update: the rapid 'ticking' multiple times per second lasted about an hour, after which it...

    Update: the rapid 'ticking' multiple times per second lasted about an hour, after which it started to break up into bigger intervals. Multiple ticks every 5 seconds, every 10 seconds, every minute, every 2 minutes, etc. Faded away completely about 12 hours later.
  6. jimvee

    3 months. Proud of myself for everything I've done and how I'm coping. Will soon try to get...

    3 months. Proud of myself for everything I've done and how I'm coping. Will soon try to get normal life back step by step. Looking forward.
  7. jimvee

    Just did some neck exercises/stretching. Now 5 min later really fast and high pitched TTTS that...

    Just did some neck exercises/stretching. Now 5 min later really fast and high pitched TTTS that I've never had. Any experiences/explanation?
  8. jimvee

    Not much improvement as far as I can tell, still unmaskable and multitonal, but the amount of...

    Not much improvement as far as I can tell, still unmaskable and multitonal, but the amount of time I'm actively bothered has been declining.
  9. jimvee

    @Mo8409 I feel you, that sucks. More so with fun activities. Did you have fun meeting...

    @Mo8409 I feel you, that sucks. More so with fun activities. Did you have fun meeting celebrities today? Don't know if this is welcome advice and easier said than done, but what helps me on bad days is try to only 'measure' at set moments. I track twice a day, then try to stop the constant 'this...
  10. jimvee

    Laying in bed while a mosquito keeps flying near and onto my ear. Like come on bro: occupied...

    Laying in bed while a mosquito keeps flying near and onto my ear. Like come on bro: occupied! These ears already have a tenant.
  11. jimvee

    Sorry to hear that. Hope it gets better for you soon! Are you able to get some moments of...

    Sorry to hear that. Hope it gets better for you soon! Are you able to get some moments of distraction from T and enjoy your vacation apart from the spike?
  12. jimvee

    That's awful. I feel so sorry for you. Are there any other options to consider or do you fully...

    That's awful. I feel so sorry for you. Are there any other options to consider or do you fully depend on them for stuff like this?
  13. jimvee

    Hahaha I love the specific topics, interesting!! Sounds like you have a really diverse taste. Is...

    Hahaha I love the specific topics, interesting!! Sounds like you have a really diverse taste. Is there a specific reason you're getting into Celtic culture? Such a great goal to see the Wicked musical one day!! I'm looking up all the titles you mention and they look really cool. I don't have...
  14. jimvee

    That sounds disappointing. Was there any specific treatment that you were hoping to get? And do...

    That sounds disappointing. Was there any specific treatment that you were hoping to get? And do you have other major appointments in the coming times?
  15. jimvee

    I love the positive vibes and that you're finding fun in reading again! What is it you're...

    I love the positive vibes and that you're finding fun in reading again! What is it you're currently reading and what would you look for at the library? Personally I'm a big non-fiction guy: history, biographies, politics, you name it!
  16. jimvee

    Hey, have you already had your appointment? If so, how did it go?

    Hey, have you already had your appointment? If so, how did it go?
  17. jimvee

    @Tryn2BHopeful Thanks for the tips! I read your comment while laying with ice on my ear. Great...

    @Tryn2BHopeful Thanks for the tips! I read your comment while laying with ice on my ear. Great minds think alike! :-)
  18. jimvee

    So happy to hear that you were able to enjoy it! This is also one of my disappointments. Just a...

    So happy to hear that you were able to enjoy it! This is also one of my disappointments. Just a few weeks before I got tinnitus I even got a new ereader with tons of books. Then it got nearly impossible to read more than a few pages. Gonna give it another try soon inspired by you!
  19. jimvee

    So grateful for the loving people in my life. Since my onset, friends, family and coworkers have...

    So grateful for the loving people in my life. Since my onset, friends, family and coworkers have been sending love, texts, cards and gifts.
  20. jimvee

    Still spiking, still abstract. Like electric radiation with hissing, a low tone, ringing and...

    Still spiking, still abstract. Like electric radiation with hissing, a low tone, ringing and pulsating crickets. I can feel it and it hurts.
  21. jimvee

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    This Friday I had my final 4 mg/1 ml Dexamethasone intratympanic injections. I started at two months in, and had oral Prednisolone 7 x 50 mg in the week of my onset without noticeable effect. I now had a total of 20 injections (10 x 2 ears) at daily intervals except for Saturdays and Sundays. So...
  22. jimvee

    Many friends go to raves weekly. Not me. I was always the buzzkill that asked to turn the music...

    Many friends go to raves weekly. Not me. I was always the buzzkill that asked to turn the music down, in car or at party. Now the one with t
  23. jimvee

    For years one of my biggest fears was tinnitus. I couldn't even stand the thought. Never went...

    For years one of my biggest fears was tinnitus. I couldn't even stand the thought. Never went anywhere loud without earplugs. Yet here I am.
  24. jimvee

    And that's a wrap! Had my final injections today and then the long journey home. Time to get...

    And that's a wrap! Had my final injections today and then the long journey home. Time to get some rest at last. Then we'll see what's next.
  25. jimvee

    I've been staying at multiple hotels in the past two weeks and this also made me uncomfortable...

    I've been staying at multiple hotels in the past two weeks and this also made me uncomfortable. Always kept earmuffs and plugs within reach and had no issues.
  26. jimvee

    I haven't had an alcohol induced spike myself, but from what I've read from others it will go...

    I haven't had an alcohol induced spike myself, but from what I've read from others it will go down again. Hang on in there, stay strong!
  27. jimvee

    Was it continuously low? I sometimes feel like the moment I put on my earmuffs it's quieter, but...

    Was it continuously low? I sometimes feel like the moment I put on my earmuffs it's quieter, but then it quickly creeps back up again
  28. jimvee

    Do you have any idea what caused your spike?

    Do you have any idea what caused your spike?
  29. jimvee

    Final injections on Friday. Then, after treatment since onset, it will be out of my hands. Kinda...

    Final injections on Friday. Then, after treatment since onset, it will be out of my hands. Kinda scary, but let's see what the future holds.
  30. jimvee

    Interesting, I found the article. Thanks for sharing!

    Interesting, I found the article. Thanks for sharing!
  31. jimvee

    Debating what's worse: that NAC capsule flavor or a little dexamethasone leaking into your mouth...

    Debating what's worse: that NAC capsule flavor or a little dexamethasone leaking into your mouth while not being allowed to swallow.
  32. jimvee

    Back home after 12 intratymp. injections in the past week, after a month of HBOT. Treatment's...

    Back home after 12 intratymp. injections in the past week, after a month of HBOT. Treatment's been a fulltime job. Have a good weekend all!
  33. jimvee

    @Mo8409 Absolutely! It was worth it. The lake, the fields, the forest, made me realize I (can)...

    @Mo8409 Absolutely! It was worth it. The lake, the fields, the forest, made me realize I (can) still love life!
  34. jimvee

    Maybe 50% of what I was hearing were my head crickets, but the other 50% were real and close to...

    Maybe 50% of what I was hearing were my head crickets, but the other 50% were real and close to me! Unfortunately afterwards I also took them back with me, but I guess this was a good learning experience.
  35. jimvee

    Had the most beautiful, spontaneous sunset hike, enjoying nature and life. Now back at the hotel...

    Had the most beautiful, spontaneous sunset hike, enjoying nature and life. Now back at the hotel with a hike-spike. Ups and downs.
  36. jimvee

    So I'm out of the country, got some food and pulled over at a random lake. First time in ages I...

    So I'm out of the country, got some food and pulled over at a random lake. First time in ages I hear crickets, like in my masking video. Joy
  37. jimvee

    Typing this as I'm laying on my side with dexamethasone in my right ear. I have to say each...

    Typing this as I'm laying on my side with dexamethasone in my right ear. I have to say each injection has gotten easier and less painful!
  38. jimvee

    Welcome to the crew, please mind your head! I keep knocking into stuff when I become a...

    Welcome to the crew, please mind your head! I keep knocking into stuff when I become a hammerhead shark due to my Peltors
  39. jimvee

    I have no affiliation but the Spectroid app really helps me verify if sounds are real or in my...

    I have no affiliation but the Spectroid app really helps me verify if sounds are real or in my head! Sometimes good news, sometimes bad.
  40. jimvee

    Happy birthday!!

    Happy birthday!!
  41. jimvee

    @just1morething Sure did! It was a lot better my second time today, one ear at a time and longer...

    @just1morething Sure did! It was a lot better my second time today, one ear at a time and longer time for the anesthesia. Did the injections do anything for you?
  42. jimvee

    Past weeks I've been strong, positive, laughing. Now unexpectedly letting all tears out. Will be...

    Past weeks I've been strong, positive, laughing. Now unexpectedly letting all tears out. Will be okay but what a rollercoaster this has been
  43. jimvee

    Had my second round of dexamethasone injections today. Not as bad as the first! Will be getting...

    Had my second round of dexamethasone injections today. Not as bad as the first! Will be getting them daily from now on.
  44. jimvee

    Tinnitus from Motorcycle Riding, TMJ/Bruxism, Stress/Anxiety, Blood Pressure or Exhaustion?

    I appreciate your insight and apology. I truly meant and mean it when I say I'm sorry to hear about your struggle, which is why wondered if that could be a reason for the way you wrote your reply. It must be very difficult, and I'm impressed by the fact that you're already almost at twenty years...
  45. jimvee

    Tinnitus from Motorcycle Riding, TMJ/Bruxism, Stress/Anxiety, Blood Pressure or Exhaustion?

    You know what, your reply actually came to mind a couple times today, even though it was an eventful day including traveling abroad for my first intratympanic Dexamethasone injections. I live for critical notes and questions, but in hindsight I was really surprised and caught off guard by your...
  46. jimvee

    I'm in the car outside the clinic where I just had my first two intratympanic dexamethasone...

    I'm in the car outside the clinic where I just had my first two intratympanic dexamethasone injections. Happy, but it was nightmarish!
  47. jimvee

    N-Acetylcysteine (NAC)

    Thanks! Yes, that's the smell. Mine are capsules too, so it looks like it can differ. Good to know!
  48. jimvee

    N-Acetylcysteine (NAC)

    Does everyone's NAC taste truly awful, or is it something that differs by brand? I'm already almost through my bottle of 100 and most of the time I had to first take a sip of water or juice and then add the pill, to prevent just not being able to keep it down. I will have to buy a new bottle...
  49. jimvee

    Tinnitus from Motorcycle Riding, TMJ/Bruxism, Stress/Anxiety, Blood Pressure or Exhaustion?

    Update: Unfortunately not that much has changed. Still not any wiser in understanding my tinnitus, and it is still fluctuating around 7/10 most days. HBOT is over now after 20 sessions, and I can conclude that my tinnitus did change, but not in loudness, more in the way it sounds. Still it was...
  50. jimvee

    1000mg taurine pills just arrived. May contain: eggs, milk, nuts, crustaceans, soy, wheat and...

    1000mg taurine pills just arrived. May contain: eggs, milk, nuts, crustaceans, soy, wheat and fish. This will be a complete dinner!
  51. jimvee

    Taurine and Tinnitus

    I have Taurine coming in the mail today. I'm already taking all other major supplements for my tinnitus, but will implement this into my daily routine. I think I will start at 2 x 1000 mg from what I've read. Will report back!
  52. jimvee

    After two weeks of searching, emailing and calling doctors/hospitals for intratympanic...

    After two weeks of searching, emailing and calling doctors/hospitals for intratympanic injections, it looks like it will pay off very soon
  53. jimvee

    Anyone else ever struggle with pinpointing their T? Mine is loud but often indescribable and not...

    Anyone else ever struggle with pinpointing their T? Mine is loud but often indescribable and not a clear sound. It's the craziest experience
  54. jimvee

    Sounds like quickly walking up my creaky stairs is one of the rare things that masks. Looks like...

    Sounds like quickly walking up my creaky stairs is one of the rare things that masks. Looks like I'm gonna be burning some serious calories
  55. jimvee

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    I'm almost two months in and seriously considering intratympanic steroid injections. I have been looking for and contacting hospitals/ENTs in the Netherlands (where I'm from), Belgium, Germany and the UK. So far not much luck with either willingness or waiting times. Does anyone have good...
  56. jimvee

    Tinnitus from Motorcycle Riding, TMJ/Bruxism, Stress/Anxiety, Blood Pressure or Exhaustion?

    Hi all! To celebrate this week's 2 month anniversary of my tinnitus, I've decided to make this thread. I've been really trying out different things and treatments, but also to understand what exactly causes and sustains my tinnitus. Some properties about my tinnitus and onset really keep me...
  57. jimvee

    That moment when you're having the best morning of the week ('am I habituating?') but then...

    That moment when you're having the best morning of the week ('am I habituating?') but then sneeze and it becomes the worst
  58. jimvee

    Weird: Pitch Matching Tinnitus Causes Temporary New Tones

    Ah, thanks for sharing your experience! Wow! This definition is definitely spot on! After a quick search I'm still not too sure about the real connection as mine really seems to be related to my tinnitus and the specific tones, but you're definitely on to something! I'm going to research it...
  59. jimvee

    @Wrfortiscue Thanks! Have tried as much silence (no *loud* noises) as possible. Sick leave since...

    @Wrfortiscue Thanks! Have tried as much silence (no *loud* noises) as possible. Sick leave since week 0.5 and only left house for medical appts, with earplugs. Dilemma as I don't want to become oversensitive to sound and plugs make T 2x louder, but I'd rather be too careful and give my hair...
  60. jimvee

    @Joe Cuber Thanks! I'm completely baffled that even though I have pretty unmaskable, multitonal...

    @Joe Cuber Thanks! I'm completely baffled that even though I have pretty unmaskable, multitonal, oscillating and 6-8/10 tinnitus, I have been averaging about 7,5 hours of sleep except for the first two hellish weeks (with 3mg melatonin!). I even napped like 3 times last month. Triggers: I seem...