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I use the brand Teva. It has a nice fresh smell (and taste) of citrus.

Yep, I PM:ed him to give me the name of the doctor.

He is my third ENT since I got T. I think doctors in Sweden are very careful with Trobalt overall, much due to this: http://www.lakemedelsverket.se/Alla-nyheter/Nyheter-2013/EMA-rekommenderar-begransad-anvandning-av-Trobalt/ That recommendation pretty much sank two of my ships so far.

I tried again to get a prescription for Trobalt but the doctor didn't think it was a good idea. Too dangerous he said. He also told me he had been an expert for over 10 years and everything else had failed. Ugh...

You write very well and I thank you for sharing your story. I'm entirely convinced that we all need to communicate our feelings in a constructive way if we want to find peace within. Tinnitus, this subjective torment that we cannot share without words, makes this even more urgent, at least for me.

Yup I know. But he said: "Now, the big difference between retigabine and AUT00063 can be seen here, as retigabine opens a whole family of sodium-gated potassium channels - Kv2 through Kv5 - and AUT00063 moderates exactly one - Kv3.1." And I wonder if he had a source on that.

Where did you get the information that they work on Kv2 through Kv5 channels? A source would be nice. Because that is not what I've read.

Yup you are right. I've tried that approach with utter failure as a result. Great tip on the time-schedule. I will include that in my next attempt. Maybe 6-8 weeks? And yes, I really do want to try this (Retigabine) as it makes sense from a biochemical standpoint and people here responded...

Thanks guys, I will look it up. I agree Dan, although the doctors I've met didn't want to discuss any quote "theories". They wanted me to drop it all and get on with my life. Well, we all know how easy that is when you can't even sleep properly anymore.

That is amazing! :D Btw, was your Tinnitus caused by acoustic trauma or something else?

What I don't understand is why does AUT00063 target the Kv3 channels if Retigabine works targetting the Kv7 channels? I have a hard time explaining this to my doctor.

It would be very useful to collect all links in a post so that people have something to show their doctor.

Thank you Christian! But do they really help you? I would really like to try. This is hell as we all know.

Hi Christian, I'm a fellow Swede. May I ask how you did get ahold of the Trobalt?