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It’s pretty wild when I hear recreations of various tinnitus sounds. It’s somewhat reassuring since very few of us experience the typical single tone that most people imagine when they think of tinnitus. Instead, there’s often a blend of sounds like conflagrations or wave-like distortions that...

Hi everyone. I’ve been having a rough few days. I know things have been left a bit up in the air, but are there any upcoming studies aimed at advancing this research? Like many of you, I’m genuinely excited about potential treatments that address the physiological basis of tinnitus rather than...

Hey @Hazel, I know you're likely busy with life and everything, but I was wondering if you could share a sentence or two about any promising news that might be coming from Tinnitus Quest in the near future?

2026 seems realistic.

Is 4 points a big deal?

I’m assuming it’s when a sound occurs and the tinnitus diminishes. Mine does this when I drop an Allen wrench on a tile. My tinnitus goes away completely for about half a second, then comes back.

I’d like to know if, since the clinical trial includes participants with normal hearing, the implant is expected to affect any residual hearing. I wouldn’t want to participate if it might destroy residual hearing, and it’s unclear whether this is a cochlear implant or another type that isn’t...

If any Dutch speakers could help inquire, I’d be very grateful—I’m extremely curious whether the implant destroys residual hearing. The criteria for joining the study suggest it might not, but my attempt with Google Translate in Dutch seems to have been ignored.

Some of these studies have unrealistic parameters, though it’s understandable to a degree. For example, excluding anyone with depression or anxiety is unrealistic, as severe sufferers are more prone to these conditions simply because it’s a difficult experience. Parameters like “idiopathic only”...

Your advice that they shouldn’t see a psychiatrist, especially at the recommendation of their ENT, is irresponsible and should be moderated or removed from this website. Even if a psychiatrist cannot directly address auditory hallucinations, they can certainly help manage the depression and/or...

To effectively study treatment outcomes, an objective standard of measurement is essential. Take CBT as an example. A new patient’s Tinnitus Handicap Index might be assessed at both the beginning and end of treatment. The Tinnitus Handicap Index, however, is subjective, and it could naturally...

Competition is beneficial. Ideally, we’d see multiple devices undergoing concurrent studies, rather than the current trend where one device fails and all similar variants disappear. I was encouraged to see a major player taking interest. If the research yields positive results, it could attract...

Evaluating How a Tinnitus Implant Affects Tinnitus Loudness in Adults with Chronic Tinnitus and Varying Levels of Hearing Loss It looks like this clinical trial was posted 2 weeks ago. The study mentions cochlear implants, but I’m not sure if there’s a specific placement for this device that...

Virtual Reality and Subjective Tinnitus (ReVA2) This one seems like hot garbage to me; a form of CBT that would just be a waste of time.

Lenire and Dr. Shore's devices are not the same. Dr. Shore’s device relies on the precise timing of electrical impulses, developed through years of research, to attenuate specific aspects of the dorsal cochlear nucleus.

There is no data that exists one way or another.

I wonder how much benefit there is in receiving any treatment. For example, it would be embarrassing to admit, after countless appointments and excused absences from work or life, that I had not gained any benefit from tinnitus treatment. That’s how it feels with CBT for tinnitus.

Mirtazapine is no longer sedating at 30 mg or above. In fact, it's activating.

You didn’t respond to anything in the post you quoted. Nothing in that post changes whether I had tinnitus in 1603, 1967, 1999, or any other time. This isn’t a “Suffering Olympics.” There are no gold stars for how long someone has had tinnitus. I’m pretty sure anyone with moderate to severe...

Another Q&A session would be completely pointless and a waste of resources from Auricle's perspective. The company has already explained why they won't be providing updates and has shared everything that can reasonably be expected from a business developing such a device. For instance, why...

I would still recommend speaking to a psychiatrist, as suggested by your ENT. Please avoid relying on random internet advice or selecting only the comments that seem most favorable. A psychiatrist can properly document your symptoms and track them over time. No doctor will be monitoring your...

It’s amazing that posts like these weren’t moderated. It turns out that my suggestion from two months ago almost exactly mirrors the ENT’s recommendation. Seeing a psychiatrist isn’t necessarily a bad thing; they may be able to provide a clearer diagnosis, whether positive or negative, for the...

No one accused you of harassing Auricle. However, posts like yours, which criticize the lack of daily, weekly, or monthly updates and frame it as if they are killing people or being intentionally apathetic, disincentivize Auricle from engaging with the community. Several people who have posted...

Like it or not, this forum has gained a reputation due to certain members’ actions and their interactions with Auricle, which have led to Auricle having little incentive to engage with members or administrators. Many people are unaware of why Auricle is reluctant to share information with...

You can't imagine? If you scroll back through previous pages, you'll find instances of people contacting employees on LinkedIn and Facebook. These are people desperate enough to overstep boundaries, with no hesitation. Some, when informed that the process is more complicated than they realize...

Sentiments like this discourage companies from sharing information with Tinnitus Talk or with individuals who try to "cleverly" stalk company members and then post their findings here. It is unrealistic to expect anyone here who is completely uninvolved in the development or accreditation of...

I've noticed that when I'm experiencing a tinnitus spike or am particularly bothered by my tinnitus, my perception of floaters seems to increase. I don't necessarily have more floaters; I just think the gating mechanism for tinnitus is similar to that of eye floaters. So, when my perception of...

I know we’re getting a bit off topic as we go deeper into this, but six months after developing tinnitus, I was diagnosed with benign fasciculation syndrome—essentially benign muscle twitching. It’s theorized to potentially be related to potassium channelopathy. I’m sure there’s a connection...

You could make a similar call for epilepsy studies. I realize this is a tangential outreach angle, likely outside the scope of Tinnitus Quest. However, I like the idea of deriving data from other studies. With the growth of AI-driven and machine-learning research, those inputs could lead to...

For a couple of reasons: An MRI isn’t used to diagnose tinnitus; it’s done to rule out other pathologies that might be contributing to or causing it. I think you’re referring to an fMRI, which may be able to identify certain brain areas that are activated and may or may not contribute to...

I feel like that's a necessary disclaimer. Many people experience strong anxiety related to their tinnitus, and a reduction in volume might not seem significant to everyone. Additionally, since we cannot measure the extent of damage in individuals, it’s reasonable to hypothesize that those with...

Gabapentin is sometimes used to treat muscle twitching and is also used off-label for anxiety.

The Good: You are at a very early stage. Tinnitus isn't considered chronic until at least 3 months, and some doctors say 6 months. The Bad: Sometimes it sticks around, and as each of those deadlines approaches, it can lead to unnecessary anxiety. It's best to make peace with the possibility...

Assuming you’ve seen a neurologist and had an EMG (the procedure only hurts minimally, though the soreness afterward can be worse and last a few days) for the muscle twitching, the best thing you can do is try to let it go. I was diagnosed with benign fasciculation syndrome (BFS)—which involves...

What are you expecting to find from these questions? Even if some individuals were tested and found to be deficient in certain nutrients, would it truly matter since it would still be anecdotal evidence? The reality is that this is a condition where even the brightest minds don’t fully...

Can anyone give me a reason to be hopeful? I have a beautiful life—a great job, a wonderful wife, and two baby girls. I have no right to feel this way when others are dealing with so much more. My hyperacusis has calmed, and with ear protection, I can even help with our newborn, who is another...

I've mentioned this in other threads, but a few of the drugs used in the protocol are prescribed off-label for anxiety, which could explain some of the improvements. I think it's still too early to draw conclusions, but in studies on auditory migraines, you'd expect to see some lesions or...

My insurance will cover hearing aids if they are deemed medically necessary, which may or may not help. I have mild hearing loss between 3-8 kHz, so it would likely require weeks of back-and-forth between my audiologist and the insurance company before they agree to cover it. Unfortunately, my...

For me, the frustration stems from feeling like I never received a thorough "first look" from an audiologist (AuD), ENT, or specialist who truly understands my individual case of tinnitus, instead of being quickly dismissed. This happened even with a group of highly-rated doctors from a...

The tinnitus clinic at Cleveland Clinic is in my state and is also in-network with my insurance. My local audiologists admit they don't know what to do; it took them a week to refer me to Treble Health, presumably after a quick Google search. So, I haven't had a proper consultation with a true...

A higher level of care. My local Audiology clinic said, "We don't know how to treat hyperacusis since it isn't our specialty." The bar is exceptionally low.

If there is interest in navigating the complex process of obtaining U.S. government funding through the NIH, I'm willing to explore ways to make this challenging process easier. While I understand that Tinnitus Quest is already well into its initial work—securing fundraising and establishing...

I couldn't find it when searching for it! It includes Susan Shore, Martel, and Lieberman (Mass Eye and Ear), among others.

→ From hidden hearing loss to supranormal auditory processing by neurotrophin 3-mediated modulation of inner hair cell synapse density From before, → here's a similar thread. Basically, increasing Neurotrophin 3 could possibly help alleviate synaptopathy that many of us suffer from.

I mean this sincerely, and it may be related in some way, but you might need to consult a psychiatrist. It's possible you're experiencing something beyond tinnitus or hyperacusis. Tinnitus and hyperacusis typically don't cause that kind of sound recall, so you could be having auditory...

Does anyone else get Billy Mays vibes from Dr. De Ridder and Dr. Djalilian? They seem to have so many products: Neuromed "migraine therapy," UCI CBT, and now a middle ear implant? Dr. De Ridder announces a neuromodulation device at the same conference where he states that only a third of people...

What exactly are you expecting me to produce for you here? There seems to be significant cognitive dissonance in this forum at times. Hyperacusis research is still in its infancy, and the quality is far from ideal, yet people seem to expect fully comprehensive articles without contributing any...

I'm feeling a bit frustrated at this point. It's been 24 hours, and I still don’t have access to the information I need to schedule my appointments. I knew it would cost $200 just to book the specialists, but come on. The appointment was already scheduled a month out. It feels like the...

Just like tinnitus, most people improve in that time frame.

If it works, why not? When they first became available, cochlear implants were dismissed. Now, imagine how many hundreds of thousands of people could have heard from a young age if they had access to this technology sooner. I'm increasingly convinced that cyborg-like adaptations are more...

Congratulations! You found a personal, anecdotal way to help yourself habituate! Perhaps next, you can share this wisdom with a forum for people with ALS. Unless, of course, we want to avoid blaming those individuals or suggesting they suffer from mental illness because they can't find the...

I had the web seminar today. Unfortunately, if you've been dealing with tinnitus for more than a month, I’m not sure the information provided is very helpful. They did share some good insights about the areas in the brain where tinnitus is generated, possible causes, and a few outdated vignettes...

Dr. Polley at Harvard/Mass Eye and Ear follows a similar approach. He is less focused on finding a cure and more interested in discovering ways to "hack" the feedback loop that causes our issues. In fact, they have conducted some of their own research, with findings released in the spring of...

What did this look like and, if you looked into it, were there providers nearby?

I'm not sure how to ask this question in a politically correct way, but it's valid. It certainly seems that a fair number of tinnitus researchers have many irons in the fire, to the point where they likely can't devote enough time to fulfill all their responsibilities. It's hard not to speculate...

I strongly encourage anyone to try this before writing themselves off. Like many of you, I’ve looked into it, and the surgery itself seems not only low-risk but also entirely reversible if more effective procedures come along in the future. I understand the challenging part is gathering the...

You know, I think I’d have to say no. I don’t think I could do that to my wife. I have two young daughters at home (both under 3 years old). Being gone for five years during those crucial formative years and being unable to support my wife would be incredibly hard. But it also gets a bit...

I mean either way, if it works, sign us up, right? Just have to figure out the regulatory hurdles.

I do wonder how difficult it will be to prove safety. The fact that the ear doesn't regenerate is the reason it's virtually cancer-free. If you activate regeneration, there could be unintended consequences that might not become apparent for decades.

Ah, I meant my questions for the Q and A. I should have prefaced that :)