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@kingsfan My covid started at the end of december, had a fever for 4 days, when i got better...
@kingsfan My covid started at the end of december, had a fever for 4 days, when i got better from covid my T got worse.- Leine
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@kingsfan @Tryn2BHopeful Thanks for the reply. Either way, no understanding of my plight or...
@kingsfan @Tryn2BHopeful Thanks for the reply. Either way, no understanding of my plight or desire to help in the best possible way back to a functioning life. The funny thing was that doctor himself had T, but probably mild and stable. I think my doctor would also have felt very bad if his T...- Leine
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Back as a nurse. Back to all the responsibilities and stress. Hard to concentrate because of T...
Back as a nurse. Back to all the responsibilities and stress. Hard to concentrate because of T and depression. Afraid I'm endangering other people's health, giving wrong meds, making wrong decisions. Getting rid of my nurse's license. The doctor also refused to let me slowly come back. So 100%...- Leine
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You have to be healthy to be sick. incredibly hard to fight to get right in the healthcare...
You have to be healthy to be sick. incredibly hard to fight to get right in the healthcare system when you can't even take care of yourself.- Leine
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Doctor refused sick leave. Despite S-thoughts, not getting out of bed, H, crying, anxiety, he...
Doctor refused sick leave. Despite S-thoughts, not getting out of bed, H, crying, anxiety, he told me I am not depressed. 100% Back to work.- Leine
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Today is a tough day. Hard to even get out of bed. Hear new tones over my already 15-20. Wish...
Today is a tough day. Hard to even get out of bed. Hear new tones over my already 15-20. Wish they could just disappear.- Leine
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@AfroSnowman Every time my T has worsened I have managed to habituate and get my life back, my H...
@AfroSnowman Every time my T has worsened I have managed to habituate and get my life back, my H has also decreased. But now my T is much, much louder and so many, many more sounds. Damn, how I miss my old life and my old T. But I hope that in time I can be happy again. Wish you the same.- Leine
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My Acoustic Trauma (Jackhammer) Induced Tinnitus Has Got Much Better
Hej @Mymlan! På ren svenska, tack för din fantastiska berättelse! Thank you for your amazing success story! Sorry that you also had to join the tinnitus club, but fantastic that you got your tinnitus quieter and your life back. When everything feels difficult, I think of your story and try to...- Leine
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- Forum: Success Stories
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Voluntary Assisted Dying / Euthanasia for Tinnitus Patients (Pegasos Swiss Association, Switzerland)
None of us chose to be born into this world. We definitely did not choose to suffer from tinnitus. It should be everyone's right to choose their own death with dignity if you have tried everything but life is still a great chronic pain. Unfortunately, it is the case that decision-makers, who... -
Do you believe there will ever be a cure? Or something that reduces T? I pray for Susan Shore...
Do you believe there will ever be a cure? Or something that reduces T? I pray for Susan Shore device.- Leine
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I feel the same. Miss my old T so much. I could live like that forever.
I feel the same. Miss my old T so much. I could live like that forever.- Leine
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What does your T sound like? Mine sounds like the whole head is a computer and a fridge beeping...
What does your T sound like? Mine sounds like the whole head is a computer and a fridge beeping and being sanded and rained heavily on.- Leine
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@AfroSnowman @BrOKeN_1 Exactly, we can't remove the sounds but we can try help the brain reduce...
@AfroSnowman @BrOKeN_1 Exactly, we can't remove the sounds but we can try help the brain reduce anxiety about the sounds.- Leine
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Sad to hear @kingsfan. Maybe there is a book or some tinnitus CBT on the internet you can try?
Sad to hear @kingsfan. Maybe there is a book or some tinnitus CBT on the internet you can try?- Leine
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I imagine a cabin in the woods on a cold snowy winter evening. Sitting in front of a warm fire...
I imagine a cabin in the woods on a cold snowy winter evening. Sitting in front of a warm fire. My T is a beeping and humming fridge and a beeping radiator in that cozy cabin, and the wind blows through the chimney.- Leine
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My CBT exercise is to imagine a place that feels peaceful. Think about that you visit this...
My CBT exercise is to imagine a place that feels peaceful. Think about that you visit this place, how it looks, smells, feels, etc. Then listen to your T and imagine that your T is some other sound in that environment, something more peaceful (maybe something similar to what it sounds like)...- Leine
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Below, I will describe a CBT exercise I started with at the Tinnitus clinic. Have you tried this...
Below, I will describe a CBT exercise I started with at the Tinnitus clinic. Have you tried this one? I hope it will work to reduce my anxiety.- Leine
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@gameover So it may be. Hoping for a cure in the near future.
@gameover So it may be. Hoping for a cure in the near future.- Leine
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@BrOKeN_1 Yes I think so too. Hope it will work to feel little better.
@BrOKeN_1 Yes I think so too. Hope it will work to feel little better.- Leine
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@AfroSnowman Hope it have helped you cope better. Feels like it's one of the few things you can...
@AfroSnowman Hope it have helped you cope better. Feels like it's one of the few things you can do because there's no cure. Learn to live with it as best you can.- Leine
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Me too, lived with it since childhood and got worse over the years. But now it's crazy.. Trying...
Me too, lived with it since childhood and got worse over the years. But now it's crazy.. Trying to accept the situation but it's hard. Feeling so sad.- Leine
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Good to hear @Tryn2BHopeful I have also downloaded the OTO app. Hope it can help.
Good to hear @Tryn2BHopeful I have also downloaded the OTO app. Hope it can help.- Leine
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@kingsfan @Tryn2BHopeful Sad to hear, but I understand you. Have also gone through CBT/met a...
@kingsfan @Tryn2BHopeful Sad to hear, but I understand you. Have also gone through CBT/met a psychologist where they had no understanding of T and the suffering. Hope it will be better this time. In any case, it feels good that they only work with T patients.- Leine
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@RunningMan No, they have not offered me those, but may ask them on the next visit if there is a...
@RunningMan No, they have not offered me those, but may ask them on the next visit if there is a possibility. Am also afraid of aggravating my T as it is very reactive. Have you tried TRT?- Leine
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Today I started CBT with tinnitus specialists. Anyone tried CBT and been helped to better learn...
Today I started CBT with tinnitus specialists. Anyone tried CBT and been helped to better learn to live with T?- Leine
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After T and H worsened, my body is my prison and my world is a wall. An innocently convicted...
After T and H worsened, my body is my prison and my world is a wall. An innocently convicted prisoner with a life sentence.- Leine
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I have seen so much suffering due to work in healthcare. But could trade lives with many of them...
I have seen so much suffering due to work in healthcare. But could trade lives with many of them if only my T could calm down.- Leine
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@BrOKeN_1 I didn't know about it either until they showed a documentary at school about T...
@BrOKeN_1 I didn't know about it either until they showed a documentary at school about T. Remember coming home and listening to the silence and realizing it could go away.- Leine
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I know how it feels, and im sorry for your new sound. I also have a new tone over my 15-20 new...
I know how it feels, and im sorry for your new sound. I also have a new tone over my 15-20 new tones. Its hard. This T sucks.- Leine
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@streifzug I have a lot of them. I think my messy brain loves them so it want me to listen to...
@streifzug I have a lot of them. I think my messy brain loves them so it want me to listen to them too. What does your T sounds like?- Leine
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When I was a child I was afraid of being paralyzed or getting tinnitus. Was only 14 y.o, at my...
When I was a child I was afraid of being paralyzed or getting tinnitus. Was only 14 y.o, at my first disco on a language trip. Glass ears.- Leine
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Daily suicidal thoughts but I dont dare to take my own life. Walks around like a shell. Finding...
Daily suicidal thoughts but I dont dare to take my own life. Walks around like a shell. Finding no joy. Everything is dark.- Leine
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My latest morse code tea kettle/beep tone makes me feel nauseous and cold sweaty. Heard...
My latest morse code tea kettle/beep tone makes me feel nauseous and cold sweaty. Heard everywhere. Is it possible to get used to it?- Leine
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@gameover Yes, Covid is very sneaky. Good you are having better days despite the suffering and...
@gameover Yes, Covid is very sneaky. Good you are having better days despite the suffering and that your T is calming down during the day, that is a step in the right direction. I hope with time you get well again, despite T and H.- Leine
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@RunningMan I agree, I was so afraid of covid because of T, but after this I'm terrified. Sorry...
@RunningMan I agree, I was so afraid of covid because of T, but after this I'm terrified. Sorry to hear that nothing you tried worked. Missing falling asleep in peace and waking up refreshed.- Leine
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@streifzug I don't wish T on my worst enemy or getting chronically ill in any other way. Thank...
@streifzug I don't wish T on my worst enemy or getting chronically ill in any other way. Thank you for your concern, I also hope you feel better soon. Although it is very, very difficult, we are not alone.- Leine
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Guten Abend @streifzug I understand how you feel living with your T, its hard. Life will not be...
Guten Abend @streifzug I understand how you feel living with your T, its hard. Life will not be the same as before with loud T. Have read your thread and I am very sorry to hear that you also suffer from schizophrenia. I don't have it myself, but have people close to me and have also worked with...- Leine
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Hi @Marshall great to hear you can sleep well. Not easy with loud T. When you sleep well, I...
Hi @Marshall great to hear you can sleep well. Not easy with loud T. When you sleep well, I think it is little bit easier to manage your T during the day. Hope I can get there too despite my new terrible T level.- Leine
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Hi @RunningMan, thanks for reply. Sorry to hear you suffer from sleep problems too. It's not...
Hi @RunningMan, thanks for reply. Sorry to hear you suffer from sleep problems too. It's not easy when you can't sleep like you used to. I also take sleeping pills but sleeps restlessly and wakes up several times at night. Hard to fall asleep. I hope our sleep will get back to normal in the future.- Leine
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Hi @gameover Had T since I was 14, have been mild for many years and mostly lived a good life...
Hi @gameover Had T since I was 14, have been mild for many years and mostly lived a good life despite T. Now, 33 years old, it has greatly increased after covid and stress by 15-20 new tones, I can hear some of them most of the time. It feels like T has no limit. Just getting worse and worse. I...- Leine
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I feel so, so tired but impossible to rest. Hard to fall asleep. Wakes up several times at...
I feel so, so tired but impossible to rest. Hard to fall asleep. Wakes up several times at night. since Dec 21 2023, goodbye life.- Leine
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My life was beautiful before this severe. Fuck this T and H. You have destroyed everything. I...
My life was beautiful before this severe. Fuck this T and H. You have destroyed everything. I cant live like this.- Leine
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Yesterday a new tone on my 15-20 other terrible tones. Sounds like beeping in the distance...
Yesterday a new tone on my 15-20 other terrible tones. Sounds like beeping in the distance. Heard everywhere. Can't handle this.- Leine
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After covid my T just gets worse and worse. More and more tones. I can hear my T everywhere...
After covid my T just gets worse and worse. More and more tones. I can hear my T everywhere. This hyperacusis is killing me. How to survive?- Leine
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