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  1. BellaMia

    Sorry to report that after almost 2 years my Tinnitus has spiked up to severe levels again. I am...

    Sorry to report that after almost 2 years my Tinnitus has spiked up to severe levels again. I am struggling and scared.
  2. BellaMia

    @RunningMan I'm happy to hear that you have less intense days. This condition is wild.

    @RunningMan I'm happy to hear that you have less intense days. This condition is wild.
  3. BellaMia

    It's loud today. I hate spike days.

    It's loud today. I hate spike days.
  4. BellaMia

    @Bob3382 You'll get there. Mine didn't start getting easier until 6 months.

    @Bob3382 You'll get there. Mine didn't start getting easier until 6 months.
  5. BellaMia

    17 months in and doing okay. Keep positive, stay positive. ❤️

    17 months in and doing okay. Keep positive, stay positive. ❤️
  6. BellaMia

    @RunningMan I want to do more research but what they specialize in could (possibly) be a benefit...

    @RunningMan I want to do more research but what they specialize in could (possibly) be a benefit with the recent finding of this malformation I was apparently born with. This malformation can also cause Tinnitus but ultimately it was probably that medication. They're hard to find though. I bet U...
  7. BellaMia

    I have Chairi Malformation of the brain. So it's not completely clean. Which is what sparked my...

    I have Chairi Malformation of the brain. So it's not completely clean. Which is what sparked my interest into seeing one.
  8. BellaMia

    Has anyone ever seen a Neurotologist yet?

    Has anyone ever seen a Neurotologist yet?
  9. BellaMia

    @SamRosemary Anytime! Hopefully you have a successful flight!

    @SamRosemary Anytime! Hopefully you have a successful flight!
  10. BellaMia

    @Zigs I received my advice and therapy plan from the University of Michigan and had a...

    @Zigs I received my advice and therapy plan from the University of Michigan and had a hyperacusis test. Took around 9 months to get back to almost normal. Some noises can cause spikes but no longer painful. I don't live wearing earplugs anymore.
  11. BellaMia

    @Zigs I remember the alarms in hospitals killed me but I still exposed myself. You have to...

    @Zigs I remember the alarms in hospitals killed me but I still exposed myself. You have to expose yourself to these noises a little more each day. Even if you start off at night on YouTube videos. You have to teach your brain that sounds aren't painful. Do it safely, listen to your body, don't...
  12. BellaMia

    @Zigs The noises that really bother you for example dishes clanking together or fans, listen to...

    @Zigs The noises that really bother you for example dishes clanking together or fans, listen to that 5 mins everyday without protection. Take earplugs breaks throughout the day. Listen to your toddler in small amounts and use ginger/turmeric tea for pain and inflammation management.
  13. BellaMia

    @RunningMan Thank you! I bought those earplane ear plugs which helped with the pressure changes...

    @RunningMan Thank you! I bought those earplane ear plugs which helped with the pressure changes and nasal spray, ginger tablets and sucked on mints. I'm sure that helped a bit.
  14. BellaMia

    Vacation went fine. No issues on the airplane. A little discomfort when landing but overall...

    Vacation went fine. No issues on the airplane. A little discomfort when landing but overall fine. Back to the daily grind.
  15. BellaMia

    @RunningMan That was a good call! You just never know what is gonna happen around this time.

    @RunningMan That was a good call! You just never know what is gonna happen around this time.
  16. BellaMia

    @gameover Yeah they celebrate it for months here in Detroit.

    @gameover Yeah they celebrate it for months here in Detroit.
  17. BellaMia

    @RunningMan Like my mom always said "we can't live in fear" I'm going to take every precaution...

    @RunningMan Like my mom always said "we can't live in fear" I'm going to take every precaution that I can. I have 5 hours on this flight and hope for the best. I've talked to lots of T suffers including my brother and all was fine. Hopefully we hear an update on that shore device.
  18. BellaMia

    I hope everyone had a wonderful and safe 4th of July! I spent it cleaning and lighting sparklers...

    I hope everyone had a wonderful and safe 4th of July! I spent it cleaning and lighting sparklers with my daughter.
  19. BellaMia

    @RunningMan Thank you my dear friend. We leave in 4 days and while I'm super nervous to go with...

    @RunningMan Thank you my dear friend. We leave in 4 days and while I'm super nervous to go with just my daughter now and the airplane... I'm going to put on my brave face and do it. Wish me luck! I will report back. How have you been?
  20. BellaMia

    @ellees I had ear fullness, pain and loudness. I make ginger/tumeric tea to make that go away. I...

    @ellees I had ear fullness, pain and loudness. I make ginger/tumeric tea to make that go away. I had symptoms of TTTS for awhile but that went away. Try making that tea . It sounds like inflammation. Are you new to T?
  21. BellaMia

    No, since mine was med induced I stay away from meds and use herbals and vitamins.

    No, since mine was med induced I stay away from meds and use herbals and vitamins.
  22. BellaMia

    @MadeleineHope This is my new profile. How have you been??

    @MadeleineHope This is my new profile. How have you been??
  23. BellaMia

    @RunningMan I'm sorry to hear there's no improvement. I seem to be dealing with a spike again. I...

    @RunningMan I'm sorry to hear there's no improvement. I seem to be dealing with a spike again. I can feel inflammation. Yes, vacation is coming up in 2-3 weeks. I'm very nervous to travel as the only adult and with this condition. I really hope I won't have any spikes during this. Hopefully...
  24. BellaMia

    About 14/15 months in and it has improved but also can struggle some days. Keep pushing forward.

    About 14/15 months in and it has improved but also can struggle some days. Keep pushing forward.
  25. BellaMia

    Take vitamin c and zinc! I work in a hospital and it's my go to. Feel better.

    Take vitamin c and zinc! I work in a hospital and it's my go to. Feel better.
  26. BellaMia

    @cjbhab I know and they stink!

    @cjbhab I know and they stink!
  27. BellaMia

    @Robert Ospina Well thank you. It did eventually go back down but spikes can certainly wreck...

    @Robert Ospina Well thank you. It did eventually go back down but spikes can certainly wreck your day/week.
  28. BellaMia

    @kingsfan I'm sensitive to caffeine and I know better. You're lucky is has a good effect on you.

    @kingsfan I'm sensitive to caffeine and I know better. You're lucky is has a good effect on you.
  29. BellaMia

    A spike today after 3 good days, ugh. Caffeine didn't help that anxiety level either. This is...

    A spike today after 3 good days, ugh. Caffeine didn't help that anxiety level either. This is going to be a long life man.
  30. BellaMia

    Vacation in 4 weeks, hello west coast.

    Vacation in 4 weeks, hello west coast.
  31. BellaMia

    @BB23 I barely took any of the medicine. I'd split the lowest dose in half and no it had zero...

    @BB23 I barely took any of the medicine. I'd split the lowest dose in half and no it had zero effect on my eyes. I still have perfect hearing even with extended testing.
  32. BellaMia

    I hate this condition. Really so.

    I hate this condition. Really so.
  33. BellaMia

    Shore is having an online webinar June 11th. Sign up if you're interested.

    Shore is having an online webinar June 11th. Sign up if you're interested.
  34. BellaMia

    It will hurt at times but as long as the sound is safe keep pushing through the discomfort. I no...

    It will hurt at times but as long as the sound is safe keep pushing through the discomfort. I no longer have pain or discomfort from hyperacusis. It took a few months for it to settle. You just have to retrain your brain that noise isn't harmful. Listen to sounds on low with YouTube videos 5...
  35. BellaMia

    I work a ton so I get it. It helps to stay busy. I went through the University of Michigan for...

    I work a ton so I get it. It helps to stay busy. I went through the University of Michigan for hyperacusis therapy. I had both pain and loudness hyperacusis. I slowly started to introduce sounds that bothered me. Like dishes clanking together. I'd put the dishes away and listen to the noise...
  36. BellaMia

    @HearingHell Hello, I had both pain and loudness.

    @HearingHell Hello, I had both pain and loudness.
  37. BellaMia

    @SharonBell My hyperacusis is about 95% gone with therapy. How are you holding up?

    @SharonBell My hyperacusis is about 95% gone with therapy. How are you holding up?
  38. BellaMia

    Hello @SharonBell My T has been better since the onset of last March. I still have my bad days...

    Hello @SharonBell My T has been better since the onset of last March. I still have my bad days that seem unbearable from time to time though. I started off as catastrophic with hyperacusis but now bounce between mild and moderate and my spikes are severe.
  39. BellaMia

    I ❤️ you all!

    I ❤️ you all!
  40. BellaMia

    @MindOverMatter You put a triangle cone in your ear and their specialized machine sends out...

    @MindOverMatter You put a triangle cone in your ear and their specialized machine sends out certain sound waves. The cone detects how your little tensor tympani muscle responds to it. It sends the information back to the machine to see if working correctly.
  41. BellaMia

    @cjbhab Does it come and go? Have you been diagnosed with anything? Hearing loss? Etc?

    @cjbhab Does it come and go? Have you been diagnosed with anything? Hearing loss? Etc?
  42. BellaMia

    @Ngo13 That's how I ended up with T to begin with! They said my heart acting up was anxiety...

    @Ngo13 That's how I ended up with T to begin with! They said my heart acting up was anxiety related and the med they gave me, gave me T. My guess is that it's inflammation because something is going on right now and I have a spike that's been going on for awhile now and I feel inflammation in my...
  43. BellaMia

    @Ngo13 I was tested for TTTS at U of M and my test came back clean. It comes and goes and they...

    @Ngo13 I was tested for TTTS at U of M and my test came back clean. It comes and goes and they said it was anxiety related. Not everything is anxiety related!
  44. BellaMia

    Does anyone have a rumble in their ear when you touch your cheek bone? I'm wondering if it's...

    Does anyone have a rumble in their ear when you touch your cheek bone? I'm wondering if it's inflammation or nerve damage? No TTTS
  45. BellaMia

    That's very sweet of you to say. You are too!

    That's very sweet of you to say. You are too!
  46. BellaMia

    My muscles are so sore from bootcamp I can barely bend my arms. No pain, No gain! Haha Hope you...

    My muscles are so sore from bootcamp I can barely bend my arms. No pain, No gain! Haha Hope you all are doing great. ❤️
  47. BellaMia

    Hey, life is going okay. I recently joined a gym and am doing bootcamp to get fit and toned. I'm...

    Hey, life is going okay. I recently joined a gym and am doing bootcamp to get fit and toned. I'm just working on myself and my health while picking up hours at work. I'm figuring this new life out and think I'll be just fine. Thank you for checking in. How have you been? Any summer plans?
  48. BellaMia

    Happy end of the world day. Come onnnnn Jesus! Haha

    Happy end of the world day. Come onnnnn Jesus! Haha
  49. BellaMia

    @4Grace You'll be okay too. Keep your head up. ❤️ @Anomalous Life is too short. Eat the...

    @4Grace You'll be okay too. Keep your head up. ❤️ @Anomalous Life is too short. Eat the chocolate. Lol
  50. BellaMia

    Here comes the lovely spike from hell. I'd like to thank caffeine (probably) and emotions!

    Here comes the lovely spike from hell. I'd like to thank caffeine (probably) and emotions!
  51. BellaMia

    @RunningMan That's so awesome! Don't you wish days like that could last forever? That's what I...

    @RunningMan That's so awesome! Don't you wish days like that could last forever? That's what I always say when it's super low..... Like I wish this was as bad as it got.
  52. BellaMia

    @RunningMan That's awesome to hear! What made it good?

    @RunningMan That's awesome to hear! What made it good?
  53. BellaMia

    @MindOverMatter I hope you had a great Easter.

    @MindOverMatter I hope you had a great Easter.
  54. BellaMia

    Happy Easter everyone ❤️ I'm thankful for each and everyone of you ❤️

    Happy Easter everyone ❤️ I'm thankful for each and everyone of you ❤️
  55. BellaMia

    Unfortunately I just want him. Maybe in time it will get easier. Thanks @RunningMan my heart...

    Unfortunately I just want him. Maybe in time it will get easier. Thanks @RunningMan my heart breaks all over again seeing him. The reality of not having what I wanted for the rest of my life is hard. I can't see past the storm right now. Maybe one day I will.
  56. BellaMia

    Never pictured myself to be single & starting over at 39 & turning 40 by myself. That's kind of...

    Never pictured myself to be single & starting over at 39 & turning 40 by myself. That's kind of depressing. Wonder if I have a soulmate?
  57. BellaMia

    @RunningMan Maybe if I ever date again the Bluetooth headset would come in handy so I don't...

    @RunningMan Maybe if I ever date again the Bluetooth headset would come in handy so I don't disturb the other person when sleeping with my weird Tinnitus soundtrack haha
  58. BellaMia

    @RunningMan I haven't used it yet. I just tried it out the 1st day I got it and it's pretty...

    @RunningMan I haven't used it yet. I just tried it out the 1st day I got it and it's pretty cool. I should test it out at night. It seems a lot of my stress from this condition comes from the middle of the night and early morning when waking. I just don't have the tolerance for the noise at...
  59. BellaMia

    @Stayinghopeful I do have a few. Right now I'm just repairing and repainting my house so it...

    @Stayinghopeful I do have a few. Right now I'm just repairing and repainting my house so it looks like new again. Then the gym because why not make myself feel good and look good. I don't like sitting around especially now with Tinnitus lol
  60. BellaMia

    Moving on w/life the best I can. Going to work on myself & health during this time of...

    Moving on w/life the best I can. Going to work on myself & health during this time of transition. I contacted a personal trainer.