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Dr. Hamid Djalilian is relying on a study conducted at his own university to sell his protocol for $5,000. See the study below. It is also referenced in his reactive tinnitus information sheet on his website. https://pubmed.ncbi.nlm.nih.gov/31786960/ This study has purposely selected...

I have been taking a very low dose of Quetiapine, 7 mg (a quarter of a 25 mg pill), for sleep for a couple of years. My doctor had previously prescribed Mirtazapine, but it only kept me awake. Recently, I managed to wean off Quetiapine, but after experiencing noise trauma, my hyperacusis and...

Hi @Lorna46, I heard that your tinnitus is more stable now. Do you have any tips on how you achieved that? You asked about music. I can listen at a very low volume for a couple of minutes, but my tinnitus mimics all music, so I’m not sure if that’s a good or bad thing. I also wanted to ask...

@marqualler, when you started his protocol, what symptoms of your tinnitus and hyperacusis led the doctor to determine that they were the same as a silent migraine? Dr. Hamid Djalilian doesn’t take on UK patients, so I will be following his protocol through my doctors here. Any information you...

Dear fellow hyperacusis and tinnitus friends, I have faced many ups and downs in my life, but this year has been incredibly hard and nothing else compares. Ironically, this experience has taught me just how fortunate I was before hyperacusis and tinnitus entered my life. These conditions have...

I am thinking about starting the migraine program as well. Three months in, how has your loudness hyperacusis and reactive tinnitus improved? Are you able to do anything now that you could not do three months ago? Thanks!

For about eight weeks now, I have been experiencing a white noise-like external sound when I watch TV on volume levels 1 to 3. It feels like background noise that overpowers people talking, so I have to increase the volume a bit to hear clearly. A lot of people say audio quality is bad for them...

@Lorna46, that's great to hear there's been some improvement. Thanks for the tips! I've been lucky that I have some family visiting from abroad, so they've been taking care of my daughter most days. That means I'm home alone much of the time. How are the kitchen sounds for you? What about...

Thanks, @MindOverMatter, for your reply. During your major setback or when this happened to you, did you notice any improvement within the first three to four months? I’m not asking about major improvement, just small changes, like some sounds dialing down a little. I don’t use ear protection...

@ECP, did you try Clomipramine? Has your loudness hyperacusis improved since your last setback?

I will keep this short. In March, after attending a party with a DJ, my mild tinnitus became loud, and I experienced hyperacusis for a few days. Things improved after that. However, following a plane ride, catching COVID-19, and taking antibiotics all around the same time, I developed reactive...

@Lorna46 have your kids broken up for Christmas? I hope you have seen much improvement. I've seen none.

@gameover, thanks for replying! It’s great to hear that you were feeling okay while flying, and even better that you’ve noticed some improvement. I really hope it continues for you. Out of curiosity, how long were you in the mountains? My neighbor’s builders have been banging away for almost...

Dear @Lorna46, Thank you for your thoughtful message. I really appreciate it. Sorry for not replying sooner; I am trying not to come on here as often. Yes, I think we are in the same boat. Before the setback, I used to love going for walks, but now the heavy white noise from the air itself...

I just oiled two creaky doors that had been annoying me for weeks. It took one minute—I wish I’d done it earlier. I didn’t have any other oil, so I used extra virgin olive oil. (Yes, really!) I’ve been thinking about how you approach DNSR after exposure. For example, when you hear the sound of...

Hi @Lorna46, Thanks for your response. I love your post. Despite your difficulties, you remain so positive. I try my best to stay positive too, but I often have sad thoughts throughout the day and forget to do the “stop stop stop” or retrain myself. It is a shame we cannot connect directly to...

Hey! I’d love to hear an update from you. I hope you’re doing well. 🙏

@Lorna46, I’m so sorry no one has responded to you. I’m in the same boat. I have a 6-year-old, and I won’t be able to attend things like family meals outside, her nativity play, or a visit to Santa. However, I’ve made a list of activities we can do together at home. Currently, after school, we...

That’s great—I’m dealing with the same issue. Does this mean you can now start TRT treatment? For example, do you listen to low-level music or other background sounds, and has it helped?

Who knew plastic containers can sound like a bomb when opening them. And no I'm not on any drugs or alcohol!

I’m sorry you haven’t seen any improvement; it can take some time. May I ask what your symptoms are? I’m tempted to try Topiramate, as it is an actual migraine medication, and the theory behind it makes sense to me. Do you know why they haven’t suggested that one yet?

Hi @MindOverMatter, I wanted to get your opinion on something. I know everyone's experiences are different, but I am asking out of concern. I developed hyperacusis and reactive tinnitus after a DJ party, and then had a second setback when my house alarm went off. That was two months ago. Since...

@MiaVIL, how are you getting on?

Did Carbamazepine work for you?

@Nick47, thanks for sharing it. I logged on to do the same. Finally, reactive tinnitus is being recognized as a serious condition. WE ARE NOT MAKING THIS UP! WE NEED TO BE HEARD! @Karl Tallman, did you continue with the diet? Did you see any improvements?

Hi! I would love to hear updates from anyone who has tried the full protocol, with or without medication. I have reactive tinnitus and hyperacusis.

@MindOverMatter I have reactive . At what point did you wear the ear sound generators? Did it not impact your Rt? Thanks.

@haha ear go eeee, are you back to living again? What medications did you try in the end?

Hey. How are you now. How is the H? Are you getting out at all?

Hi im new to this condition. Can i ask when you were servere. How did you cope with rain when bashing on the windows? I have vulux windows so its worse. Any tips?

In the uk its soon going to be winter . I have vulux windows. And when it rains it is so loud. Even ear muffs doesnt cover it?

Thank you so much for your help. I know you did EMDR as well. Did you do it through Zoom? Can you recommend the person you worked with?

How does one live like this? Minute to minute? Hour to hour, year by year. Mentally how do you do it?

4 months in being stuck in doors surrounded by buildingwork is too much. There are many people who have lived like this for years alone

Miniute by minute suffering. I havw a family and supportive friends yet im struggling

Have you ever tried brain retraining like Marin? Did it help.