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Is there only one person who has taken part in this trial please? I am interested in others somatic tinnitus. This is a description of my tinnitus. It sounds like cymbals and at the best wind I describe it like someone plucking a guitar string in the back of my throat and it resonates to my...

Is there anyone from this group who is one of the twenty who trialled this please? I have horrendous somatosensory tinnitus. I can do many many movement to change the loudness, pitch and tone.

Has anyone tried trigger point therapy for somatosensory pulsatile tinnitus and been successful? Apparently it is caused by dysfunction of the neck and jaw muscles feeding into the auditory pathway.

I have been following your posts from the beginning. Pleased you are in a better place. i am interested in the fact that a steroid made your tinnitus go away for 2 days. Indicating inflamation. is your somatosensory tinnitus pulsatile in nature? lots of advice here for everyone. would you...

It has nothing to do with ear infection whatsoever. Not anything to do with the ear apparatus. I have no hearing loss either. It is somatic tinnitus. Was just wondering whether anyone had tried a chiropractor or any other successful treatment. I can stop it with neck positions.

I have had every scan possible for pt and have been assured by four experts that there is no vascular cause. I am not sure how i got pt. I can do many jaw and neck movements to manipulate it.

I have now had disabling tinnitus which sychronises with my hearbeat for 2 years. I have had every imaging possible and the many best eyes look at them and they are all reported as normal. I was diagnosed with somatosensory tinnitus. I can alter the volume with my neck muscles at the back of...

Thank you for your kindness. I am pleased you agree that it is not blood flow related. Yes I have done extensive research and wanted to satisfy myself that nothing could be found on scans. I have seen the best consultant in UK and have sent my scans for review by De Eisenman who is very...

Thank you very musch Billie43. I have had everything done as well except angiogram and if I had that I dont think anything would be found. Why do you think yours started? Have you tried anything to make it go away. Whooshers have been very supportive and have been my lifeline. But there is...

Yes i bought oasis sound machine from bta the first week it started. My pt is way above that. It is good for t. I was given a sleep pillow which connects to pillow which was given to me at tinnitus clinic. Again my pt is way above. I have tvs on in various rooms but again my pt is way above...

My pt has nothing to do with my carotid artery. I have ad two mris and 2 ct with contrast. I have had the best consultants look at my scans. I have somatosensory pulsatile tinnitus which has nothing to do with blood flow. I do not have tmj, neck problems in fact I have no pain in my body! I...

Until 5 june 2014 i enjoyed my life and had taken care of myself. On that day i discovered i could hear a noise in my left ear and neck that sychronised to my heartbeat. It is 24/7 high pitched and sounds like sleighbells. It fluctuates in volume for no reason throughout the day and night. I...

Thank you for this info. I have this debilitating condition since June 2014. Are you a member of the facebook group called pulsatile tinnitus?

Thank you. I have had mine for 14 months without any let up. I have now had mri,mra,mrv,ct,cta,ctv and lp and nothing found. But this pt gets very loud and i can feel the pulses.

Has anyone here tried the suggested treatment in the paper and it is successful?

Kaelon and Pilot have you ever thought that a blood vessel/artery could be compressing on a neck bone and conducting the noise via the bone to the ear? I saw a consultant yesterday who said that bone conducts noise.

I would be interested to know whether anyone has explored a blood vessel compressing on their bone in the neck and the bone conducting the noise to the ear please.

We need a cure

Yes he sent me this link as well. What are your thoughts?

Yes I match to the reported circumstances. It sounds like a high pitched cymbal/sleigh bells/balloon synchronised to my pulse. I can lower the volume by clenching my teeth, moving my jaw in various directions, bending my head to my chest, turnjng my head to the left I can make it louder by...

I would be interested in the response. I match this as well. You are welcome. I have been researching for 11 months. My noise has not changed in this time.

There is a good report on tia.sagepub.com Somatosensory pulsatile tinnitus syndrome. I have never had any pain in my neck or jaw before and now. I thought that it could be compression of blood vessels. I beleive my started with overflexing my neck over a sink. I have no headaches...

Take a look at Somatosensory pulsatile tinnitus Syndrome by Robert Levine.

Has anyone ever been diagnosed with this syndrome and been treated sucessfully. Robert Levine has written research papers on this syndrome. Also has anyone ever been to his clinic in Tel Avi in Israel?

How did it go with the Skype session? Have found them helpful?

yes I agree that the medical profession dont particularly care. I have become my own researcher. I have now been referred to another hospital but I am waiting for an appt. Are you a member of whoosher.com on facebook I have found this very supportive? I recently has an appt with...

Yes it changes with every movement i make. I originally thought it was my body position but it is when mu neck moves and it is in the front in the middle of my neck where i can manipulate the noise. When it is very loud i can feel the pulses at the back of my head at the base. i can make it...

I had a free t4 back in Sept which was normal but i have never had a t3 test. I had the ct scan with contrast yesterday eve which was a little weird and today but unwell today. It is more the volume than the tone i change and yes my voice is amplified when i speak some words, this is more...

Have you gone yet. Do you have support at home.

Really sorry to hear this. Have you been to ent yet. have you tried lying down and taking deep breaths.

Mine changes all day with jaw, neck movements. It gets incredibly loud around 5 to 8 in the evening and reacts incredibly loudly to noise. Impossible to habituate to this noise.

Ihad an appt with a tinnitus specialist who has informed me that my tinnitus will go in months. HE wanted to know whether I have had a t3 blood test and also wants me to have a ct scan with a dye. My tinnitus nois seems to come from my neck region and clashes with my pulse when I speak now...

FOr information. On Tuesday I had a much long awaited appt with a tinnitus specialist. I have already had appts with ent at my local hospital where I have been given three diagnosises. he straight away cleared my ears of crackling due to hairs wrapping around my eardrum. He wants me to go...

This condition is life changing and it it needs to be brought to the public s attention.

Mine is the opposite, how bizaar.

I also have somatic t and am interested as to why it started for everyone with somatic. Please post if you wish to post on the forum. It is devestating and life changing.

I am interested in anyone who has somatic tinnitus. I need t understand more about this. My tinnitus changes by body movements, neck movements and teeth and jaw movements.

I am also from gb and struggling too. It has been a life changing situation.

Just thought I would share this. I talking to the checout lady in my local Asda store who said that her sister had tinnitus for a year and her sister was beside herself during this time. She said that drs didnt take her seriously. Iasked her about the word had. The checkout lady said it went...

YOu are the first person I have come accross with this condition. What ca you do. Just discovered the info about susan shore. This is interesting stuff but just dont understand why this has happened to me and what is happening.

MIne changes from 10 to 1 every dayand with body, neck and jaw movements.

THIS HAPPENS TO ME EVERY DAY. MY TINNITUS IS IN MY LEFT EAR BUT IF I PRESS ON MY BOTTOM LOWER RIGHT TEETH OR TILT MY HEAD OR WRIGGLE MY JAW IT GOES INTO MY RIGHT EAR AND WHEN I RELEASE IT GOES BACK TO MY LEFT EAR. SCAREY

Thanks for this where did you obtain this information from. Do you have the same condition. When I move my head or jaw the volume changes.

Yes went to dentist who assured me I dont have tmj. Thanks for that.

By moving my jaw, clenching my teeth and neck movements I can change my tinnitus. When I am walking and bending it changes throughout the day. Can you throw some light why this happens. I have no pain whatsoever. Thank you.

IS there anyone who has somantic tinnitus. IF so can you throw some light on it. WITH JAW AND NECK MOVEMENTS I CAN CHANGE THE LOUDNESS OF MY TINNITUS. Thanks

I am struggling with pulsatile somatic tinnitus. Is there anyone who has this condition and found a cure for it?

ACCUPUNCTURE, has anyone had any success with this treatment please?

THANKS FOR THAT. I HAVE BEEN INFORMED THAT I MAY NOT get aN APPT UNTIL JAN. EVERYTHING WORKS DIFFERENTLY HERE IN UK. I need the appt now. It is just frustrating.

RThanks Karenstrangely enough I had a check up at the dentist yesterday and asked whether I had this and she assured me that I didnt so I can now erradicate that one. I was so distressed yesterday evening with the very loud noise.

THANKS KAren for th info on mra etc. I live in gb and wonder whether we call them something else here. I get very frightend about pt. I just keep waiting for my appt with john phillips but he is very popular. JUst wished this had never happend to me feels like a dream. We have the nhs here...

THANKS FOR YOUR REPLIES. IT DEFINITELY GOES WITH MY PULSE. IT SEEMS TO CHANGE WITH MY HEAD POSITIONS. IT OCCASSIONALLY GOES TO A TICK BUT ONLY FOR ABOUT HALF HOUR A DAY. WHEN IT GETS LOUD I CAN FEEL THE PULSES AT THE BACK OF MY HEAD. WHEN IT IS AT MAXIMUM IT IS VERY DISTRESSING AND HARD TO...

THANKS thegeen. I was given an mri and that came back as normal. BEFORE MY FIRST APPT I had a hearing test which came out as normal apart from the very high frquency loss which normal for my age. I had a hearing test about 10 years ago when I didnt have t and it was the same as it is now! I...

THANKS FOR THAT Billy was starting to beleive that I was the only one who has these symptoms the bottom has fallen out of my world. I have been to ent twice but the Consultant didnt want to listen to my symptoms and told me on the first appt that I didnt have enough air in my eustachiun tube...

I developed pt three months ago and it has changed my life. I am not sure how it started but leading up to it I took calcium tablets for a month. I also had a wisdom tooth filled and was given local aneathetic when the follwoing day I developed an earache but it was quite mild. during this...

So pleased I have discovered this forum and discovered there are other suffers like myself. I first discovered I had pt on the 3 June 2014. I always beleived that tinnitus was a ringing noise on your ears and thought that you got it from being subjected to a lot of noise. HOw wrong was I. It...