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Hi all, I just wanted to update now with my story in case it helps with any of the new sufferers out there and in case I don't go on this board too much in the future. I got T about six months ago after listening to music too loudly. For several months I wasn't sure I'd be able to go on with my...

hi dr. nagler, just a note to say that i'm very glad that you are feeling better after your T spike. thank you for giving us so much support here on this forum. i hope that you're fully habituated (re-habituated) soon.

Hi Rob, I just wanted to say that I started researching S techniques when I first got T. Now 6 months on it has gone from that to my not really being bothered. I think it has decreased, but even if I put in earplugs to give it its maximum effect, I find I'm not that bothered, it is just a weird...

Hi Dr Nagler, I spent a long time researching AM-101 and even signed up to the trial. However, after keeping the diary for a couple of weeks I am more and more struck by how much I'm not currently bothered by my tinnitus. I first got it around 5 months ago and was so distressed I was on anti...

Hi all, Just wanted to give you guys an update on my experience on the Autifony trial. I went through screening today and failed (passed?) the hearing test. Across frequencies I only have a hearing loss of 6db. The good news (well maybe for some of you) is that the Prof running the study tells...

@Hudson and @Mark662 Wombat's doing well, thanks for asking :) A referral has been sent for me to the study coordinator, and they are going to email me with an appointment time. At this stage I think that if I'm eligible I'll do the trial, so long as I am able to successfully do frequency...

Hey everyone, I hope you're all having a quiet day. I've noticed in the past week or so my tinnitus has got quieter. I couldn't say why - nothing had changed in my regular schedule, except being *totally* obsessive about wearing earplugs most times when I leave the house (necessary in London)...

The London trial have had 3 people before me, some of whom have gone in for initial screen appointments. So, presumably people will be starting soon

That's interesting @PhilB - the people I spoke to said the placebo group wouldn't get anything. Maybe you spoke to someone nicer :)

i am an australian but i'm currently on a scholarship in london

@Shaun and @PhilB great news. hope you both get the active treatment. in case it is of interest to anyone i've attached the participant info sheet i got sent from autifony. hopefully you can read it. i'm eligible to come in for a screening appointment, here's hoping my hearing is worse than i...

@tomm and @ChrisC I'm so glad to hear I'm not the only one plugging up down there religiously. This city really is louder than Australia - on my main street an ambulance/police car goes by about every 10 minutes so I've taken to plugging whenever I leave the house! @James White thanks for...

Hi everyone - trying to get in on this trial as well. I've been in contact with UCL by email - they said they'd phone me in early January for pre-screening on the phone. Wondering: for anyone who lives in London - I've just moved here and have noticed that the tube is SO loud. I wear 34db...

Dear Dr. Nagler, Thanks in advance for your help. I went to get custom ear plugs fitted today and I fainted when the putty was put in both my ears. Googling my symptoms (sudden extreme tiredness, nausea, feeling of 'hotness' in the head) I read that fainting comes from loss of oxygen supply to...

you can't be on benzos

@NewGuy thanks for keeping us informed on how you're going so you were allowed to drive home from the test site yourself?

i think it is actually stage 3 - results from stage 2 have already been published

@OddV aah ok - I thought the reason they asked about infection was as an exclusion criterion. I see that it wasn't.

@amandine i spoke today with the AM101 trial doctor: 1. think it is designed for anyone with T, of any loudness/intrusiveness level 2. forgot to ask. i'd look at the scientific papers. there are a few cases of 'clinically significant' hearing loss. no cases of going deaf. 3. I asked about...

@NewGuy thanks for all your posts here they're so encouraging. I'm not freaking out about the needle anymore. Thanks @attheedgeofscience for your advice. I can't get to my test site in the UK for another month sadly so I'll be just past the acute stage - they're still happy to take me but who...

Hello everyone, I read the clinical trial paper from phase 2 of the study. At the conclusion of the study (I think 100 days), they noted that in a minority of participants, 10% reported increased T. Of course this was on a subjective measure only, and it is likely that T severity was shifting on...

Hey all, just another question about Autifony: Does anyone have access to results of the first trial where they show the drug doesn't have side effects on healthy volunteers? If it alters potassium channels which presumably the whole brain uses, one would expect side effects. Thanks. Thinking...

I'd also note that I've found Dr. Nagler's posts on this forum so encouraging too - for similar reasons.

I went to see an ENT trained in TRT. After I saw him I could see why the counselling aspect is important. It is not just about demystifying the phenomenon of T so that we learn to react in a benign manner. It is also, I think, about helping the patient to begin the process of learning to not...

@amandine I was struggling to cope with my T until just the past few days. The first step is to get out of panic mode long enough that you can sort out a treatment plan. To do that you need some anti anxiety medication (not long term, just for now) and white noise as others suggest. I like...

Hi Gabrielle, I'm sorry you are struggling so much with your T. I've had it for a couple of months and over the past week I stopped caring - but the only reason it happened is because I started getting intense jaw pain, possibly from something called TMJ. It was horrible pain and somehow...

Dear Dr. Nagler, I had a question about safe exposure to noise. Trying to work out possible causes of my tinnitus, it seems to me that a possible culprit is a temporary hearing threshold change after exposure to loud noise... the ones I can think of corresponding to onset include listening to...

Thanks @cullenbohannon

Thanks @cullenbohannon I just deleted my post - worried about sounding negative about AM101 when so many on here are hopeful that it will help them. Did the needle hurt? Could you feel it? Did it sound really loud? I read that it is 1mm wide.

Hi Hudson and everyone, Just interested in your thoughts. I saw my ENT for the first time yesterday, went through all the standard tests and got hearing check and so on. He is big on TRT and said after we eliminate any curable causes we need to work on my reaction to the T. I described the...

Elena Rose Parker

Hi Ilija, I've been worrying about all this stuff too, I've had T and hyperacusis since about August too. It seems to me that many people on here learn to 'deal' with their tinnitus psychologically and this really does affect their perception of noises (phantom or otherwise). So, it seems...

http://www.samharris.org/blog/item/adventures-in-the-land-of-illness

I took prednisone and have just finished my course. It has not improved my tinnitus. I don't think it has made it worse. I think if you are ok with the side effect profile the risk is worth it as it might improve things. I am glad I took it because taking a proactive step in the acute stage felt...

Hey all, I know a lot of us here are really distressed by our tinnitus and others not so, I guess I'm trying to work out if I'm blowing all this out of proportion..... I've had mine a month and a half now and have spent most of it scouring the internet for cures.... I'm wondering do others know...

Amandine, maybe if you have to travel or go to London or Bangkok to get away from your partner it will be stressful but it sounds like it is going to be impossible for you to stabilise while you are with him. In time you can work out how to manage the tinnitus, as well as negotiate your...

yeh i know what you mean. i couldn't believe the pizza place i was in was 90db. i guess they want you in and out fast! how did you get etymotics in australia?

Thanks all. yonkapin - i used to live in melbourne - so many great restaurants!! which musician plugs have you got? I see they are available in 9, 15, and 25. Can you still hear other people with the 25s?

Taken from http://www.racgp.org.au/afp/2013/september/sudden-onset-hearing-loss/ The mainstay of treatment is early initiation of oral steroids (prednisolone at a dose of 1 mg/kg/day to a maximum of 60 mg/day) unless contraindicated. The use of steroids should be tailored to the individual...

Barrowww and anyone else interested: I'm taking steroid orally one month in. I feel like it has made the T quieter for me, but this effect maybe disappear as soon as I stop taking the drug. I'm not experiencing any side effects from 60mg for about a week. Oh, aside from a huge amount of energy...

Does anyone have thoughts on whether sounds around 85-95 db (like a loud bar, blaring speakers at the gym) is bad if you wear good plugs and you're there just for an hour? Seems like all of us, if we want to live a half normal life will have to deal with 1 or 2 hours at times in an environment a...

Hi everyone, Thanks so much for the support I really appreciate it!!!! I've read a lot of people here saying don't overprotect too but I've gone into that mode a bit - wearing earplugs all the time seems to be helping, but my T started a month ago so I think it is good to do this at the moment...

Hi everyone, My hearing problems started pretty recently and I went to a restaurant and bar for the first time since the tinnitus to see if I could handle it. I felt like I was literally in a torture chamber of sound --- I could hear the conversation but everything felt way too loud and I just...

Hello all, I've got a pretty recent case of T and have been reading up on here. Some people say taking Prednison in the early stages can help so I went to a GP asking for a prescription. She said my ears looked a 'little swollen' (probably from the acoustic damage - the usual too loud music...

Dear Dr Nagler, Firstly thanks so much for your involvment on this forum. Your 'letter to a tinnitus sufferer' has given me hope that if my tinnitus never goes away, that still I might be able to live with it. I have a question: I see an ENT doctor in 10 days, but right now I am noticing that...

Michael I'm so sorry to hear that. That makes me feel like mine is nothing to worry about (at least for now). nonetheless i'm worrying. that's why I did the quiz -- it sounds like people are suffering symptoms at such different levels. A professor at my uni just quit because he has Meniere's...

Hey all, thanks so much for sharing your experiences and answering my questions, it really helps. This is such a supportive community. I have no idea how people coped with this before online forums. Thanks Markku I will for sure! It's great you can still be in bars though I'm sorry to hear the...

Hi all, thanks for all this information, I just got an email offer to do the AM101 trial. I'm actually an Australian but studying in the UK so if they will allow that - I still have to ask - I might go ahead. I've got tinnitus for the past month, it was mild but has been getting worse, I think...

Hi Lorenzo I just joined this forum. Did you try this? I want to go on a retreat next month but just got tinnitus and am at the high anxiety phase - I need valium to get to sleep. Meditation is making it worse. A meditation retreat might be easier with white noise on headphones just in case the...

Hi everyone, I'm so grateful to have found all of you guys here on this forum -- I've had tinnitus for the past month and it has been increasing and driving me crazy. I used to sleep pretty well but I've been lying awake at night just freaking out about it. I went to the GP and she just said...