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I experience clicking when swallowing or yawning or whatever movement I do with my jaw for as long as I can remember. Is this not normal? Ive seen dozens of doctors, however not one of them ever checked for ETD. Maybe I too should look this up, although what happened to us does seem to be more...

Yeah man, whats the deal with this? I also had tinnitus from 2008-2013, totally manageable I lived my life just fine. Then it all started going downhill fast. I suspect I have a rare condition called SSCD, I need to get tested but there arent many good doctors in my country for something so...

Oh I forgot... maybe its worth mentioning that I felt asleep and woke up 4 hours later. My tinnitus was at is lowest since 2013 (when I had my big spike). I remained still and silent trying to not make it come back. Of course it did... so I continued sleeping. At that point I still had the...

It happened last Sunday, almost a week ago. So it was like this: - Got to my apartment, got fleeting T for 2/3 minutes on my bad ear (left) and went away. - Spent one hour before going to bed, still unease about the feeling the fleeting T had left me with. Took my medicine during that hour...

@shasta0863 Yes, I went to bed and all of a sudden the fullness (or whatever) and the high pitch noise appeared, very loud and very disturbing. I dont know how you coped at the moment, but I was terrified, it was nothing like other things I experienced. The ringing calmed down eventually...

Wow, this exact same thing happened to me a week ago. I really freaked out, but didnt post anything about it because I didnt think this could happen to someone else... and besides I didnt know how to describe it. In my case, the rubbing against the opposite good ear, resulted in an instantaneous...

Completely agree with you @PaulBe . Ill push forward on ruling this in our out. I had grown tired os so many fruitless doctor appointments, I had kind of lost any hope for it. I've been on the Meniere's path too, but inconclusive. Ill put myself together again and continue the search for a...

Thank you @lymebite ! I already joined the group, very helpful indeed. Very good info on SBUTT, what you describe is very similar to what happens to me. I have never heard of that. Sorry to keep asking questions, but were the tests for SCDS very harsh on you? I've read that they make you listen...

Thank you @lymebite, Im requesting access now.

Thank you @Aaron123, I guess this is what most resembles my symptoms after all. Anyone here has been diagnosed with Superior Semicircular Canal Dehiscence?

Hey @PaulBe, thank you so much for responding. SCDS, aka Semicircular Canal Dehiscence, I found that online and took it to some doctors, also sent emails about it. SCDS is not very well known in my country, at least regular ENTs, they were oblivious to this condition. And of course, they weren't...

Hi, I started with mild tinnitus and dizziness back in 2008, then on 2013 I started worsening. I've had the following symptoms for some time now, and slowly worsening. I'd like to know if anyone shares some of these and if they have a diagnosis : Intrusive tinnitus (2 tones on left ear, just...

@billie48 Thank you so much for your kind advice. I've read your success story, I can relate to some of your dark moments. Specially the feelings of hopelessness and projecting a bad future...I will try my best to manage my negativity, it is hard though, I've always been pessimistic and very...

Hi everyone, I finally decided to stop lurking and participate actively. This forum is extremely helpful, from the support you give each other to the very knowledgeable people and the brave ones that take part on trials and report back. It is simply amazing. We would be quite on our own...