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Hi Markku,did you ever hear anything back?Would have been nice to have had a bit of feedback from the one person who seemed to have a positive result from this

Hi Telis,i have a high frequency noise like yourself i found one on you tube helped me ,try either headphones or speakers,type in high frequency noise six hours,start off low and see how you get on,as i say it seems to help mine

Hi Steve i can assure you it is just a coincidence,i just about have the tech know how to send an email! As you say even though its not on your channel it seems to have benefitted a lot of people on there which can only be a good thing? Did you say their was a technique to listening to this?I...

Hi guys, just thought you may want to try this, if you type the title of this thread into YouTube you get a 30 min clip, it involves a series of different notes, I just found it seems to help me in a way by changing the tone, I only have to listen to a few minutes and it seems to work. Maybe be...

Hi guys,just letting you know received a letter from Birmingham University today telling me i had the placebo! I presume all participants will be told,is anyone still in touch with Corrine Dwyer as this seemed to work 100 per cent for her,would like to know it wasn't just placebo effect!

Hi guys,just thought id let you know i find out which pill i got in March 2016

Your not wrong,must have loads left over,might go sniffing round the bins at head office!:):)

I was on the trial at Birmingham,spoke to the staff running the trial today with regard to finding out what i took. I,ll be receiving some information from Autifony quite soon ,but was,nt made clear about what exactly I did mention about corrines positive outcome with the drug and was told...

It has actually featured in national and local newspapers,the hospital i went to were inundated with calls when the story came out, but very few were eligible due to having it too long

The way things are going i may offer to do it again for them!

I would wait for a statement from Autifony,i spoke to a nurse on the trial about a month ago who knew nothing about another phase Does anyone know if the list of questions has been answered?

As of now it seems to just be Corrine,but her experience was so positive ,that they must be on the right path

Hi Dan,no problem,ive learnt something new,may of been helpful to have been told this during the trial!

Alright mate ,calm down!Sorry im not an auditory expert!Just looking at it from a laymans point of view,30 people after this amount of time seems pretty slow,i,ll go and do a Masters Degree in Audiology before i comment again!:)

Its amazing really,its taken 8 MONTHS to find 30 people after it being featured in the national press! How long the other 90?Just dont see how the hearing is taking so many people out of it,having been through the trial myself and can say ive never really had problems with hearing in daily life...

Just dont get this,i finished this trial almost six months ago,and still cant find 150 people! Theirs over 60 million people on this island! Corrine had this huge improvement ,drop the damn hearing criteria and please get on with it!

Well,i know for certain 5 of those were on the trial, only one being Corrine and she seems pretty genuine But as you say 6 is too small to draw a conclusion,patience is a virtue Lets hope we get more Corrines appearing soon!

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Well its only worked in 1 person out of 6 so far,bearing in mind 50 per cent chance of getting the real thing!

Bear in mind,you could do all that,and still have a 50 per cent chance of getting the placebo!Might be easier to hold on a little while longer and wait for results to be published

10 per cent possibly 20 on a good day

It has,nt probably a placebo effect at the time

No,youve go it the other way round:)Myself and chamferman and these three people have showed a mild improvement,Corrine had the good result,wish it was five to one the other way!

I spoke to someone running the trial,another three people have only showed a "mild improvement" Thats now a ratio of five to one ,20 per cent,maybe just works better on some people? Also asked about a phase three and no one at this site has been informed of one,hopefully us five have been the...

Hi Corrine,do you have a name of who offered you this?I took part in the trial and never heard anything back from them since the final day of going to the hospital

Are you not still in contact with Corrine on the other site?Has she made anymore postings recently?I thought it would be big news on there

I dont understand the agreeing to do stage three?Ive never heard back from them since the trial,and we wont be told what we took,surely would be across the board for all participants?

I found out another trialist has had no results,thats three of us now,is someone able to work out the odds on that? Also found out we may now be told what we were given,due to many participants wanting to know

Id be wary of high impact aerobic exercise,i got mine through skipping a rope There has been a study showing the jarring nature of high impact exercise causes the calcium crystals in the ear to dislodge

Hi guys,just after a bit of advice,they do a pack of 84 200mg,was thinking,first week 200mg per day,then up to 400mg for 35 days,last week back to 200mg,is this a reasonable idea,or better to try the tapering more gradual?Thank you

Could i cut a 2oomg in half and taper up and down this way?Imean per 1oomg rather than the 50mg,was thnking of a box of 84 200mg,thank you

Hi amandine,are you based in France?Just wondered if youve been across the border to get some from a chemist there?

Surely not for an anti epilepsy drug?Unless it came via Columbia!:)

Hi mate,when you say no problems,do you mean you just walked past them,or they had a look in your bags?

Is that what you done?And is it ok to bring through customs?

Oh ok,so what website can i get it from?

Hi Danny,i recently done the autifony trial,didnt feel a great effect from it,and will never be told if i got the placebo Was just thinking, might be an idea if i could try a 400mg trobolt as a comparison,im in the Uk ,how would i get hold of it?Or could i buy a one off from you?

A mild improvement,but of course this could be down to anything! Unfortunately they will never let me know!

Hi amandine,the frequencys between 6000khz and 8000khz i showed an improvement of roughly 20db

Hi amandine,the frequencys between 6000khz and 8000khz i showed an improvement of roughly 20db

Sorry,i thought this was only open to patiants on the NHS?

Hi Robb your correct ,thats spot on

Hi Robb your correct ,thats spot on

Hi Robb,i do agree with you,but for a definitve answer someone needs to take this and experience silence We can say 2,3,4 whatever ,its all different for everyone,the only guideline i think i could go by would be the hearing test ,where i got a good result last week,and will be re tested again...

I find jokes don,nt work very well when you have to explain it was a joke,but it was indeed a joke,maybe lost in translation:)

Well thats neither the colour of pill i was taking,or the same bottle,hope i was on the right trial! :)

Hi Robb,as i said earlier their has been a mild improvement but this could well be placebo 1 I felt the dosage of four at once was better,if it was the real drug i tolerated it very well,so could imagine i could handle more! 2I felt pretty good whilst taking it,not estatic,but just fine...

Hi Robb,as i said earlier their has been a mild improvement but this could well be placebo 1 I felt the dosage of four at once was better,if it was the real drug i tolerated it very well,so could imagine i could handle more! 2I felt pretty good whilst taking it,not estatic,but just fine...

First day of trial i was a 6,last two weeks ive been between 4,3,2,mostly 3,today im a 4,which may be down to spending time in a soundproof room with headphones on,not recommended!:)

First day of trial i was a 6,last two weeks ive been between 4,3,2,mostly 3,today im a 4,which may be down to spending time in a soundproof room with headphones on,not recommended!:)

Hi Rube, its still the same really,the hearing was,nt put down to error,just a good day?Not sure,was only a brief conversation,having another hearing test there in a couple of weeks

Hi Rube, its still the same really,the hearing was,nt put down to error,just a good day?Not sure,was only a brief conversation,having another hearing test there in a couple of weeks

Hi guys,took my final dosage at the hospital today,just a couple a points i thought may be of interest The hearing test produced pretty good results,i had a 20db improvement in the high pitch range,6000 t0 8000,although the audiologist said these fluctuations can happen, Also the hearing test...

Hi guys,took my final dosage at the hospital today,just a couple a points i thought may be of interest The hearing test produced pretty good results,i had a 20db improvement in the high pitch range,6000 t0 8000,although the audiologist said these fluctuations can happen, Also the hearing test...

Ive not met anyone else,the hospital im visiting only has time to see one person each week

Ive not met anyone else,the hospital im visiting only has time to see one person each week

Just regarding side effects,and basing placebo or real drug on them, this is what the information sheet says of phase 1 The most common side effects were mostly mild in nature,included headache,feeling a bit sleepy or tired,feeling a bit nauseous.At most 1 in 1o felt these effects Also 4 out of...

Just regarding side effects,and basing placebo or real drug on them, this is what the information sheet says of phase 1 The most common side effects were mostly mild in nature,included headache,feeling a bit sleepy or tired,feeling a bit nauseous.At most 1 in 1o felt these effects Also 4 out of...

Hi,not sure i was habituated,when i first got this a year ago it was very somatic,i dont seem to be affected by noise at all!Like yourself could be variable,but if it did stay with a light buzz it wouldnt be too bad

Hi,not sure i was habituated,when i first got this a year ago it was very somatic,i dont seem to be affected by noise at all!Like yourself could be variable,but if it did stay with a light buzz it wouldnt be too bad