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i have not updated because I do not feel any relief yet, in any regard. However my condition is very severe, and it is normal to take 4 weeks to start feeling an improvement. Again, I am doing this for a chronic daily 24/7 headache (3 years), and Dysautonomia. Tinnitus is an added symptom of...

But also I understand that your neurologist is sending you for a regular MRI to check structural issues

@Blackbird26 if I get any relief from this I will post as much info as possible so that you too may get this treatment done and get relief! Sounds like we are similar. I totally understand about hesitating to do a(nother) MRI.. man those things are loud. Unfortunately this fMRI was the worst of...

I appreciate the kind words, guys. Here are some updates regarding my future rTMS treatment! As a reminder, we are first and foremost targeting the intractable headache. My next biggest concern is the T, followed by mood issues (which are really from the pain more than anything else). I met...

Snow86, I read your posts about rTMS making your T much more severe and I am so sorry. My heart truly goes out to you. I know how bothersome it must be to read my post with enthusiasm for starting rTMS when you regret doing it every day. When I read about people starting treatments that either...

What literature? I have read so many articles about rTMS being one of the only things to ever give people with tinnitus relief, whether it is long lasting or not. Unfortunately, because I am going through my neurologist in private practice and it is not FDA approved for headaches/chronic pain...

Hello all. I have had an intractable 24/7 headache for 3 years, coupled with tinnitus that started over a year ago (no known cause), and of course debilitating depression and anxiety (you can just imagine how being a 20 something year old with debilitating health issues feels..). I have been out...

Much appreciated, will look into. Thanks

One word: NEUROPLASTICITY- "The brain's ability to reorganize itself by forming new neural connections throughout life." For those of you who aren't aware, tinnitus IS an example of how neuroplasticity works. There was a point in almost all of our lives where we didn't this ringing...

Thanks for the response. That's what I thought, however, my tinnitus was not caused by (loud) sound, and it seems like the magnetic pulse may reach the auditory cortex? It's hard to tell. But for example in this video you can see where it affects the brain (fast forward to 1 minute in)

Hi everyone. 1 year with tinnitus now. I have just ordered the eNeura device "Spring TMS", a transcranial magnetic stimulator that is FDA approved for migraines and depression, and often used off label for tinnitus. I am very much looking forward to getting it. I try not to get too hopeful but...

You can read about the device here. I also want to add one of the only contraindications for this device is NOT to use if you have Meniere's Disease. Once it started my tinnitus I thought that must be what I have.. but I did an audiology test a few months ago and the doctor said I don't have MD...

My tinnitus started last November in an effort to relieve my constant headache I have had since April 2013 (29 months straight now, no answers or any medicines that have helped it). A family member from Canada brought me a "CEFALY" device (FDA finally approved it in USA but it's very difficult...

I'm assuming many of you have already seen the article posted by science daily yesterday but if not: http://www.sciencedaily.com/releases/2015/09/150923133521.htm This is particularly fascinating and relevant to me as I have had a constant headache for 30 months, and constant tinnitus for 10...

@I who love music thank you. I'll try that but don't really understand it By the way everyone I am (re)starting Neuro feedback tomorrow (for both the migraines and T, and hopefully anxiety etc). Will update if I get relief after several sessions. It takes a while.

Thank you. It doesn't look like I'll be taking it anyway :/

I can't take Clonazepam. Long story.

Regarding #3, I meant at the time my tinnitus started I wasn't on any medication. The Cefaly TENS unit caused my tinnitus.

THANK YOU for your questions. 1. Just read the hearing test report b/c I had forgotten.. it says "mild hearing loss at 6,000 Hertz AU", my doctor told me he believes this isn't hearing "loss", but where my tinnitus is located, which masks sound.. 2. According to the ENT that did the hearing...

thank you. I use valium & xanax. helps the headache and tinnitus 5%, I only take it as needed for anxiety. I have TMJ, was given a very expensive & well-constructed custom mouthguard a year ago. I wear it every night. Again no help

Street spirit, I am sorry to hear that. I understand. I just didn't understand why people were putting words in my mouth? Again I am on this forum because T is a serious issue & I need support for it. I am on other forums for my headache and other issues. T is no joke. yes I have tried...

Has anyone else on here had success with Retigabine? Should I have another one of my doctors prescribe it for me or are the "permanent blindness" warnings truly something to take into consideration? This is the reason my mom doesn't want me to take it. I have been on several dozen medications...

chose my words fine, I called it a real issue. not sure what your problem is looking for people who can offer information on tinnitus help.

If my headache magically went away tomorrow, I would still have the T to deal with, which is almost as bad. On some days it IS as bad, or worse. No end in sight.

@snow86 @Street Spirit ..???I said I envy those who only have T and no OTHER real health issues.. meaning T is a HUGE issue, but I envy those who have T and the rest of their general health. I'm obviously on this blog because my T is making me suicidal & I need help. But thanks…. @Gosia Yes...

Well, never mind on the Retigabine… my doctor said he won't prescribe it because he doesn't know anything about it. My mom doesn't want me to take it because of the scary warning signs…… It's my body and I want it, but I guess i can't get it. Any help??

Gosia- actually my mom and I just skyped with one of the top surgeons in the US that does that migraine surgery. I seemed like a perfect candidate… he told me if I have a positive response to nerve blocks (AKA if my pain goes away 50%+ temporarily after a few injections) then the surgery...

Thank you all I appreciate it. I will call my neurologist tomorrow to write an Rx for Retigabine. (I've suffered for so long that my doctors will prescribe anything to me at this point, shouldn't be a problem). There isn't much info on RGB, but everything I read sounds extra promising for me…...

I appreciate it but I don't feel the same way. I can't live every day in pain and agony. The headache is bad enough. The tinnitus is just extra cruel. My mind and body are falling apart.

22 y/o F. Dropped out of university Dec 2013 due to health problems, mainly a daily headache. I have had a constant headache (24/7, no break) for 27 MONTHS. As if that wasn't enough to make me suicidal, I had tinnitus start 8 MONTHS ago, again 100% constant. I have no diagnosis for the headache...

Does anything help anyone? What should I do right now while Im still in the acute stage? I take magnesium 400mg and butterbur 50mg daily. I'm going to be hospitalized for my dysautonomia on Wednesday as they'll be giving me heart medications and I'm worried it'll worsen my T :/ it's so lou

New here. 21 yo female. I have a long history of health problems so I'll make it short- I've had a headache every day for 20 months and instead of getting better I've been developing more and more symptoms. My nervous system has completely fallen apart and my doctors have diagnosed me with...

I have a long history of health problems so I'll make it short- I've had a headache every day for 20 months and instead of getting better I've been developing more and more symptoms. My nervous system has completely fallen apart and my doctors have diagnosed me with general dysautonomia. I have...