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  1. SteveO

    MuteButton

    They said March 2015 before. Now 2019. Do they not appreciate we all hang off every single piece of information and how we suffer - so these dates and times become crucial. It's all so wishy washy AGAIN from them. How are we meant to take what is neuromodulation and tongue stimulus...
  2. SteveO

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    I contacted Neuromod in 2015 asking many questions. They had my excitement up but did tell me back then it would be released in March 2015 in the UK. Awaiting publication of papers... then nothing. Then to add to misery a few people back then who had purchased it, had nil effects and looked to...
  3. SteveO

    New University of Michigan Tinnitus Discovery — Signal Timing

    Been following Susan Shore for sometime. I have ridiculously loud tinnitus after coping for ten years it soared after dental work. Noise trauma originally but with... tooth issues. I have spoken to her a few times also and been sooooo hopeful on news and this is exciting. From biting my jaw I...
  4. SteveO

    Chiropractor

    (Note my T is noise induced, 50 decibel in volume, both ears, mainly right. But spiked heavily 9 months back post dental work (root canal on lower, and wistom tooth removal upper jaw). Could have been the drill nose. Or the other weird link (sensory nerves that cross with audio nerves in the...
  5. SteveO

    MuteButton

    There information is lacking agreed. Not arguing that. Just the science makes a lot of sense. Even in the blind, the touch nerves go haywire and try to fill in the optic nerves with... the wrong nerves. Makes no sense directly but im with the science on that and its proven quite heavily. And...
  6. SteveO

    MuteButton

    It is a summary given its about 20 hours of reading around muti sensory analysis. If you buy me some wax crayons maybe i can draw you a basic picture that you need. In some mutli sensory for dummies guide. Given all the positives via PM i will ignore your dumb comment. Skip it if you dont want...
  7. SteveO

    MuteButton

    All this is blowing my mind. Proof again post hearing loss, the touch nerves go hyper, regrow, and actually gain some form of auditory input. But they cant make use if it. Like code. Hence comes out as hyper cross wires Again mutebutton actually relays a users auditory loss as a map... On the...
  8. SteveO

    Participant Experience: Vagus Nerve Stimulation (VNS) Paired With Tones for Tinnitus

    Agree unless some form of forced nerve plasticity as seen in animals tests I mean not sure why this is merited right.... This and notched sound states to remove t freuency, to somehow move neurons off the heavy t area and around to the other freuencies. Aka re wire Why not A) get an in ear...
  9. SteveO

    MuteButton

    This is massive. Never saw this link up. This is 110 percent the reason for my t. Touch nerves filling the void. Weird but alot of reading for me. Note also the potassium modifier article bottom of link http://www.jneurosci.org/content/32/45/15791.abstract Touch nerves thereforce, post noise...
  10. SteveO

    MuteButton

    http://www.uofmhealth.org/news/archive/201312/u-m-tinnitus-discovery-opens-door-possible-new-treatment Wow ok... So exact same idea as mutebutton and theory now makes sense. Fyi when i bite my t soars, made worse by facial nerves etc.... All this matches my issues i have. She mentions...
  11. SteveO

    MuteButton

    Check this. Maybe why mine soared to horrific levels post dental work... But after i had t via noise induced loss t for 10 years. Plus link with tongue nerve stimulus... http://www.tinnitusformula.com/library/facial-nerves-overactive-contribute-to-tinnitus-intensity/ Maybe not co incudence i...
  12. SteveO

    MuteButton

    Good data mate. Confused though as read very tip of tongue connects to vagus (taste) vs other parts. The actual sound differs also. Vns being acrn, stimulating around tinnitus sound. So draw back, if your like me, you have multiple and no single tone. I prefer the broadband amplifed noise idea...
  13. SteveO

    Non-Invasive Do-It-Yourself Vagus Nerve Stimulation

    US20150051659 Methods, systems, and devices for treating tinnitus with vns pairing 02/19/2015 US20150051658 Methods, systems, and devices for treating tinnitus with vns pairing 02/19/2015 US20150051657 Methods, systems, and devices for treating tinnitus with vns pairing 02/19/2015 US20150051656...
  14. SteveO

    Going on Four Months Now

    Cindy stay positive. You will learn to relax and sleep even with noise. My t is above 50 decibels so i now hear it at meetings, tv noise, outside, on a train... In a loud pub. Cinema!! So trust me. Best thing is A) excerise if you dont. I train hard 5 times a week. If time an issue just try...
  15. SteveO

    Non-Invasive Do-It-Yourself Vagus Nerve Stimulation

    Correct silvio. Fyi from vagus nerve patent details: The pairing as it relates to tinnitus is notably unique. We are not pairing just random sounds. We are not doing some kind of auditory training or improving perception of one sound over another. The key is that we are deliberately pairing the...
  16. SteveO

    Participant Experience: Vagus Nerve Stimulation (VNS) Paired With Tones for Tinnitus

    In the detailed patent reports its quite clear the tech. But they state The pairing as it relates to tinnitus is notably unique. We are not pairing just random sounds. We are not doing some kind of auditory training or improving perception of one sound over another. The key is that we are...
  17. SteveO

    MuteButton

    Ok one more. From most recent vagus nerve details sent (very detailed). As shown in FIG. 6, an implant system 100 may include an electrode 130, typically a cuff electrode. The electrode 130 is connected by a lead 120 to an implantable pulse generator (IPG) 110. The electrode 130 provides the...
  18. SteveO

    Participant Experience: Vagus Nerve Stimulation (VNS) Paired With Tones for Tinnitus

    US20150051659 Methods, systems, and devices for treating tinnitus with vns pairing 02/19/2015 US20150051658 Methods, systems, and devices for treating tinnitus with vns pairing 02/19/2015 US20150051657 Methods, systems, and devices for treating tinnitus with vns pairing 02/19/2015 US20150051656...
  19. SteveO

    MuteButton

    https://patentscope.wipo.int/search/en/detail.jsf?docId=WO2015028549 Better one shows drawings. Click at top for other items http://www.google.com/patents/US20150051659 Latest Feb update of vagnus nerve work to prove dirct simularities Stay positive brother. I dont work for mutebutton! Just...
  20. SteveO

    MuteButton

    Vagus nerve simply tries to get to brain to fire plasticity. This does the same. Firing electric through any nerve will do the same thing. Vagus maybe more effective given you use tongue for taste etc also. But principle is the same. All nerves are connected. Its the same idea. Neuromonics and...
  21. SteveO

    MuteButton

    http://www.sumobrain.com/patents/wipo/Method-system-generation-customised-sensory/WO2015028549A1.html Here. But not on website. I has to dig for it. But planning european and usa launch. Its not like they are hard selling. Just limited ireland release waiting for journals and country approvals...
  22. SteveO

    MuteButton

    I posted the link to the trails yes. Rest is being reviewed. Was approved 5th march 2015 Science makes sense. Basic broadband sound adjusted to hearing loss while firing nerves to set brain plasticity. Same as vagus nerve but just stimulus via tounge etc. simples.
  23. SteveO

    HIFU (High-Intensity Focused Ultrasound) Surgery

    Nills you are awesome mate. Keep us informed, i pray, hope, this works for you bud. Eventually for all of us.
  24. SteveO

    Hearing Aids

    Cheers bud. Will try Keppra. But yeah essentially as soon as frequencies go above 4000 it bombs. So Im guessing hearing aid will help, over time. But expense... so any tips people let me know. (And prefer a hidden one). Note Danny - how can you not have hearing loss with T? and it is a question...
  25. SteveO

    Notch Inhibition Induces Cochlear Hair Cell Regeneration of Hearing After Acoustic Trauma

    Yeah I wouldn't take it! - if you read however they can place it to get the exact frequencies that are lost. So not only help deafness, but totally clean up any frequency loss. Hope they speed this one up. By all means buy some and test out on some mice mind... The acoustic trauma WAS fresh...
  26. SteveO

    Hearing Aids

    Question to the room. Ive recently explored this route and have perfect hearing .... Ok....well.... Until 4000 hertz where classic noise induced chart spiking down below 55 decibels. Its a very sharp decline. And my tinnitus is definatly the gap. T is v loud. Above conversation level now and can...
  27. SteveO

    MuteButton

    If you do a search on the limited research notes on the website you can find the full and detailed clinical trial. But this sounds to me that it will work. Basics 1) play broadband noise etc amplifying essentially where you have noise induced hearing loss.... Basic basic 2) electrode and...
  28. SteveO

    Notch Inhibition Induces Cochlear Hair Cell Regeneration of Hearing After Acoustic Trauma

    https://www.xcessbio.com/products/small-molecules/LY411575.html Well thats the potential miracle drug..
  29. SteveO

    MuteButton

    Agree with nills. The doubts are a bit OTT before the launch and really not constructive. I get why. But still. So 2 days back i emailed the firm again but stated the lack of data is really effecting reputation pre launch. I even sent a link to this thread so they could see. It worked. They...
  30. SteveO

    MuteButton

    "I think I could even learn to read with my butt.....nothing special about tha" hahaha
  31. SteveO

    MuteButton

    Sjored, As my post I agree - but the research (which has been years in the making from what they say)- have said should be out by March. It has been delayed but its "being agreed". By who I am not sure but it seems they are making it 100% official, which is a good sign, vs existing "cures"...
  32. SteveO

    Participant Experience: Vagus Nerve Stimulation (VNS) Paired With Tones for Tinnitus

    phrra thanks for that - I read the Vagus could be essentially triggered also via Tougne but no expert and thats not direct. Essentially both promise to breakdown the rewiring around the brain and thus actually make neuromonics work. Mutebutton needs the literature out as despite the CE...
  33. SteveO

    MuteButton

    FYI from my email (And I WONT be going in for this until the Science is published just nerve stimulation makes sens e to me) Quote (use strong Irish accent in your head) "....We aim to launch the device in the UK in March and the rest of Europe in the months following. Our papers are...
  34. SteveO

    MuteButton

    Many of you may knowthis. But Mutebutton that stimulats the tongue - effectively it is almost... vagnus nerve stimulation. Just not direct on the nerve, but ultimatley using the same idea (tongue being one way into the nerve, to create plasticity of the brain / rewire) So this looks to me to...
  35. SteveO

    Participant Experience: Vagus Nerve Stimulation (VNS) Paired With Tones for Tinnitus

    Vagus nerve stimulation can also occur via the Tongue (as in non direct to the nerve but a pathway right)- which is what I think "mutebutton" (only realised they release in March, including literature on tests if approved) are doing. Its just attacking plasticity via the tongue vs directly onto...
  36. SteveO

    Retigabine (Trobalt, Potiga) — General Discussion

    Kv7 modulators are far from kv3.1. Fyi one kv3.1 modulator is SKA 31 which u can get online. Isnt that AUT00063 ? So targeting that area Fyi http://www.aurorabiomed.com/download/presentations/pres09/Heike_Wulff.pdf One online retail for bulk sciencetesting etc...
  37. SteveO

    Xanax: Uses and Risks

    Davidj are you worried your t will increase if you come off? And in the 12 years did you have drug breaks. Like a dry january etc to detox the addiction. Or just carry through? Good if you kept same level and didnt have to up dose etc oh...Thats if my gp carries on giving me them...i have...
  38. SteveO

    Xanax: Uses and Risks

    Due to relapse being so so loud ive started yesterday (resisted 2 months). on one 0.250 at night to gauge sleepness then will up dose. Was trying to resist. I will post findings and follow yours also.
  39. SteveO

    Stellate Ganglion Nerve Block

    Hi all, I have a heavy tinnitus relapse (as per intro). Tinnitus can have a link with nerves. Especially given the vagus nerve work which focuses on brain rewiring. What happened to stellate ganglion nerve blocks? I read from W1 dentists that essentially dead teeth, root canals, that leave any...
  40. SteveO

    Tinnitus Veteran Back to Hell

    Hard right now. Ive taken the xanax which i was trying to avoid. Im sure sure sure alot of T is connected to nerve damage. Yes there is loud noise etc but the nerves are key. The fact mine was after a tooth abycess. Then now post the wisdom tooth next door. Ive read from a top dentist that...
  41. SteveO

    Quiet Room That Drives — Even Non-Tinnitus Sufferers — Mad

    Thinking about it seriously for a minute. A VERY quiet room, so you can hear yourown organs. T will be ringing away, but its volume will be now seem louder, vs the surroundings. As the brain starts focusing on internal organ noises (as new and scary) it may shift focus (but shift it to a new...
  42. SteveO

    Quiet Room That Drives — Even Non-Tinnitus Sufferers — Mad

    Some of you will know about this. Im tempted to do something like this, it may convince my brain, when it starts hearing my own blood move in my body, that the ear ringing is part of that internal noise. Not for the volume its randomly set it at.... (hey could make everything worse)...
  43. SteveO

    Relapsed...Hard

    Relapsed...Hard
  44. SteveO

    Tinnitus Veteran Back to Hell

    Well here is my story in brief. The Original Tinnitus (Mod - Severe level) 10 years ago...age 26, clubbing in Falaraki. One particular club had the speaker on at extreame volume, mainly to play music some 20 metres into the street. Friend of mine alway shouting in my right ear. Always on x10...