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  1. Kste Adams

    Tinnitus Does Not Interfere with Auditory and Speech Perception

    And here's me no longer able to hear sounds that I could just five years ago when my tinnitus wasn't so loud. Good thing we have such studies to point out that it isn't the tinnitus that's to blame, it's... what? Aliens from outer space? Sonic weapons from hostile countries? Delusional...
  2. Kste Adams

    Tinnitus & The Body: Take the Survey

    I had the same experience with the question about hearing loss. Mine is in the mid-frequencies, but the options were only for low and high frequencies. I added this as a comment at the end. Another thing I noticed was that the survey only wanted to know about other conditions that had been...
  3. Kste Adams

    Can Having Cold Sores Cause Tinnitus?

    I recently went through a bout of vertigo (also known as vestibular neuritis or labyrinthitis). According to what I read, these conditions are often caused by a virus that inflames and damages nerves in the inner ear, and herpes simplex 1 (ie. the cold sore virus) is a common culprit...
  4. Kste Adams

    What Pain Reliever Should I Take for Hyperacusis Pain?

    I take Tylenol frequently (migraines) and have never had a problem with it.
  5. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    Still haven't had the new audiogram, and it's probably about time to do so. Thanks for the reminder!
  6. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    NR gives me palpitations as well, although NMN does not. Regular exercise seems to help. I try to alternate the two supplements but on an irregular schedule (I like to keep my body guessing).
  7. Kste Adams

    Hello! Glad I Found You All! Developed Tinnitus and Vision Issues Due to Nerve Damage

    Yes, many people have improved over time. It's very early days for you, so in your place I would be very hopeful. Since your tinnitus has an identifiable cause (nerve damage), I suggest taking steps to promote nerve healing. For example, research diets that provide high levels of nutrients...
  8. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    I haven't yet, I'm waiting until I think that my hearing has stopped improving. I'll definitely post the results when I have a new audiogram.
  9. Kste Adams

    False Hope and Reality

    I don't think anyone is claiming there is a conspiracy. What I'm hearing from tinnitus sufferers is frustration with a certain... blindness... to things that fall outside one's expectations. That's not a criticism of the medical profession specifically - it's the human condition. And I'm...
  10. Kste Adams

    False Hope and Reality

    I would hesitate to make any blanket statements about what any medication will or will not do, especially in relation to as heterogeneous a condition as tinnitus. There are always outliers. One of my main peeves with a good deal of the medical establishment is that when confronted with...
  11. Kste Adams

    Scientists Have Discovered a Shape That Blocks Sound

    Very exciting discovery: Scientists have discovered a shape that blocks all sound–even your co-workers This could be a godsend for hyperacusis sufferers and all of us who have to live or work in noisy environments.
  12. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    Alive by Nature. You can order directly from the company or from Amazon. They have sublingual tablets that are more convenient than the powder, but the tablets have stevia in them which I don't want or need. I think the powder tastes fine by itself. I'll check out GenEx, though.
  13. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    I vary the dosage, and even skip several days from time to time. I started with 125 mg of NR twice a day, but I take the sublingual NMN powder four times a day up to around 100 mg per dose. In my experience, both seem to have similar benefits, although there are differences - for me, NMN has...
  14. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    I get NR from Amazon or from the TruNiagen web site. As someone noted, TruNiagen sells 150 mg capsules and Basis has only 125 mg. In addition, Basis also contains pterostilbene (a chemical related to resveratrol), so their capsules contain even less NR. (Some studies have shown that...
  15. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    I've been taking the recommended doses of NR or NMN (a related compound, also a NAD precursor) for about a year and a half. I had slight hearing loss in both ears (10 dB or so) and complete loss of a small range of frequencies in my right ear due to a car backfiring right next to me. I'm now...
  16. Kste Adams

    Patient Involvement in Tinnitus Research — What Can Be Improved?

    It could be an interesting group project to develop something like Tinnitus for Dummies or What Tinnitus Sufferers Wish Their Doctors Understood. No amount of medical knowledge can substitute for actually living with the condition, but I think we could help close the gap. The worst part of...
  17. Kste Adams

    Is It Illegal to Drive with Your Earmuffs on in Canada?

    Personally I wouldn't drive with ear muffs - I want to hear what's going on around me. For example, I always hear emergency vehicles before I see them. On the other hand, I don't think it would hurt to contest the ticket unless you have to pay to do so. You may even get some helpful...
  18. Kste Adams

    Your Questions for Dr. Josef Rauschecker Interview

    Adding to this, have you uncovered connections between tinnitus and other neurological conditions such as migraines or restless leg syndrome? If so, do these conditions share similar brain dysfunctions? Is it possible that treating one such condition would help with treating tinnitus (or...
  19. Kste Adams

    Preventative Supplements for NIHL (Noise-Induced Hearing Loss) & Ototoxicity

    Take a look at nicotinamide riboside (NR), which is a form of vitamin B3. It has been shown to prevent noise induced hearing loss in mice. I started taking it last summer because I had complete loss of a small range of frequencies in one ear (result of a car backfiring). I'm now able to hear...
  20. Kste Adams

    Will Losing Weight Help Me with My Tinnitus?

    Losing weight can reduce inflammation, which may also help calm your tinnitus. As long as you lose weight sensibly, it can only help with all sorts of health problems, so you have nothing to lose.
  21. Kste Adams

    Relation Between Noise Exposure and Acoustic Neuroma

    Acoustic neuromas are non-cancerous and pretty uncommon. The good thing about them is that they are treatable, and if your tinnitus is a result of the tumor then there is a good chance your tinnitus can be cured.
  22. Kste Adams

    Pre-Diabetes

    I've heard stories of people on low-carb diets being able to get rid of diabetes medication and lowering their glucose levels. I had a friend who was unable to control her blood sugar even with medication until she removed almost all carbs from her diet. But I agree with the comments to talk...
  23. Kste Adams

    American Tinnitus Association's Board Chair on NBC TODAY: Is This the Right Message to Send Out?

    I can understand them wanting to reassure new patients, but I think this kind of a message discourages potential researchers or investors - why put your time and money into a condition that mostly resolves itself? And I'm not sure that I believe them. I think what happens is that the majority...
  24. Kste Adams

    GE Silent Scan MRI

    If I were worried about metal toxicity, I'd look for an open-minded doctor who understands that such things are real and who can treat the problem. Hopefully the doctor can set your mind at rest.
  25. Kste Adams

    GE Silent Scan MRI

    Good point, although I would think that potential issues could be obscured by MS symptoms.
  26. Kste Adams

    GE Silent Scan MRI

    Yes, and I refused to use the dye. I'm allergic to a number of meds (generally the stuff that's well tolerated by others - the really dangerous stuff I usually handle with no trouble).
  27. Kste Adams

    GE Silent Scan MRI

    The FDA always says that. It reflects what happens to the population as a whole - it says nothing about what happens to individuals. For some unlucky folks the risks actually outweigh the benefits, and you won't know if you're one of them until you ingest whatever it is. People who are...
  28. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    I've been taking NR for about 15 months now. Had complete hearing loss in a small range of frequencies in one ear - a car backfired as I walked past it many years ago. After a month of taking NR, I started to hear very faint sounds in the lost frequencies, and the sounds have steadily gotten...
  29. Kste Adams

    Acetaminophen (Tylenol) — Is It Ototoxic? Can Tinnitus Sufferers Safely Take It?

    I take Tylenol/acetaminophen all the time (allergic to NSAIDs) and have done so for many years. Doesn't affect my tinnitus one way or the other.
  30. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    I had an audiogram in late 2013 that showed a complete loss of hearing at 7500 MHz in my right ear. (This was a surprise since I hadn't noticed anything wrong - the left ear is fine.) Afterwards I played around on my home computer, and my right ear could hear nothing in the range of around...
  31. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    Even though the names are similar, nicotinamide is not related to nicotine in tobacco and the two substances have very different effects on the body: https://www.livestrong.com/article/481405-niacin-nicotine/
  32. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    All of the NR is produced by a single company (ChromaDex). ChromaDex sells the product to other companies such as LifeExtension or HPN, but they also sell it under their own brand name TruNiagen. I started with HPN brand, now taking TruNiagen. The only difference between them should be the...
  33. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    Yes, confirmed by audiograms. I started taking NR last year after reading reports that it protected mice from noise-induced hearing loss. My hearing was damaged by a car backfiring while I walked past it, it sounded like a gun shot. This happened over 30 years ago, and my hearing was still...
  34. Kste Adams

    How My Life Has Changed

    I'd say that, all things being equal, a counselor with tinnitus will be more effective. One of the hardest things about this condition is the feeling of being exiled from a normal life. A counselor who is "in the trenches" with the patient will have more credibility and will make the sufferer...
  35. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    I take 250 mg. per day, divided into 125 mg. in the morning and again in the evening. My hearing has continued to improve. It started with very faint sounds, and now I estimate that my hearing is about 50% of normal after about 10 months of taking NR. Unfortunately I haven't noticed any...
  36. Kste Adams

    Diagnosed with GERD & Laryngopharyngeal Reflux. Feeling Sad. Have Some Questions.

    I agree with @linearb and @Kita1. I took anti-GERD medication for only 3 weeks, and it turned a barely-noticeable condition (no heartburn ever, the dentist spotted some erosion on my teeth) into a raging case of heartburn, all day every day, reflux so bad I was afraid I'd upchuck in public...
  37. Kste Adams

    It's a Noisy Planet Website

    What really annoys me is that every store nowadays seems to be playing loud music for their customers' "enjoyment". I guess it's time to push back and complain to management. I won't go into the local Bed Bath & Beyond store without earplugs anymore - they play a painfully loud blast of noise...
  38. Kste Adams

    A Health Survey for Those with Chronic Conditions (for My Graduate Program)

    I added a comment that the answers to the questions are dependent on the condition(s) that a person has. Things like depression and anxiety can carry a stigma that make people less willing to talk about them to anyone, and the conditions themselves can make communication difficult. Since the...
  39. Kste Adams

    The Best Advice I Ever Had re: Tinnitus...

    I think the lack of compassion comes from the fact that others have no clue what tinnitus is like. We can sympathize with pain because we've all experienced it. We can sympathize with illness because we've all been there. We can sympathize with life-threatening conditions because we all know...
  40. Kste Adams

    Poll: Noise-Induced Tinnitus: What Is the Sound of Your Tinnitus?

    That's exactly how mine started. I developed other, minor neurological complaints around the same time, so I suspect the real problem is in my brain and not in my ears. NR is supposed to be neuro-protective and it seems to be helping in that department, so I'm keeping my fingers crossed.
  41. Kste Adams

    Poll: Noise-Induced Tinnitus: What Is the Sound of Your Tinnitus?

    NR is nicotinamide riboside, related to vitamin B3 and a precursor to NAD+ which is essential for cellular metabolism and which lessens as we age. There is a discussion about it in the Alternative Treatments section. It is apparently starting to reverse some of my hearing loss, as well as...
  42. Kste Adams

    Poll: Noise-Induced Tinnitus: What Is the Sound of Your Tinnitus?

    OK, that outdoes me. :) At least mine's not reactive. On the other hand, I used to get a low-pitched humming sound in both ears when I shook my head vigorously. That's disappeared since I started taking NR.
  43. Kste Adams

    Poll: Noise-Induced Tinnitus: What Is the Sound of Your Tinnitus?

    I have multiple sounds, some tonal, some hissing/electrical, some clicks and pops, some constant and some intermittent, in varying degrees of loudness, in both ears. Always was an overachiever... :wacky:
  44. Kste Adams

    Help! Dizzy/Lightheaded/Imbalanced Non-Stop for 3 Weeks

    I have similar symptoms. I talked to an ENT to rule out Meniere's, and he said it's migraine-associated vertigo. I get vestibular migraines, which often start with olfactory hallucinations (smelling things that aren't there) and inability to think straight. And the symptoms can occur off and on...
  45. Kste Adams

    Theory About Tinnitus Fluctuations (Sleep)

    Agree. The only thing that always quiets down my tinnitus is getting 10 hours of sleep. Unfortunately the only way I can force myself to get 10 hours of sleep is by getting only 3-4 hours of sleep for a few days in a row... :)
  46. Kste Adams

    From Dry Eye to Tinnitus

    Dry eye can be really unpleasant, I'd rather listen to my noisy ears. (Can I say that on a tinnitus forum? ;)) I also discovered that the more I used eye drops, the more I had to use them. My doctor didn't believe it, but a lot of bodily processes have feedback loops where intervention...
  47. Kste Adams

    From Dry Eye to Tinnitus

    I also have dry eye. What I found to be helpful: 1) adding fish oil to my diet; 2) cutting way back on sugar; and 3) getting enough sleep (stops the bouts of burning, stinging eyes). I rarely use eye drops anymore. And I agree with the other responses: stay away from loud noises and quit...
  48. Kste Adams

    Has Anybody Tried Tinnitivix?

    If you want a chuckle, check out the Amazon reviews by George Takei, who played Sulu on the original Star Trek series. I wonder what he'd make of Tinnitivix...??
  49. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    Not sure, although I'd guess sensorineural only. I just uploaded my audiogram, hope you can make more sense of it than I can. The only thing I really see is that my ears are pretty evenly matched (except for the right ear at 750 Hz), and air and bone conduction match closely. All of my...
  50. Kste Adams

    Vitamin Supplement (Nicotinamide Riboside) Successfully Prevents Noise-Induced Hearing Loss

    In late August I began taking this supplement. Experiments in mice show that it can prevent and even reverse noise induced hearing loss. According to my 2014 audiogram, I have some minor hearing loss in the range of 750 - 2000 Hz, and almost total loss at 750 Hz in the right ear only. This...
  51. Kste Adams

    Math Problem You Will Fail

    Oops, misread the multiplication. However, in math multiplication is always done before addition unless you put the addition operation in parentheses. So 5+2*10 = 5+(2*10) = 25. If you want to come up with 70, you have to write it (5+2)*10. I'm hungry...
  52. Kste Adams

    Do You Think I Could Sue Rock Concert Organizer for Causing My Tinnitus?

    In the US, anyone can sue just about anyone else for just about anything. The bottom line is: would you win? Trying to hold someone else accountable for the results of a voluntary activity with known risks is probably a waste of time. And if you win? Money won't buy silence (although it...
  53. Kste Adams

    Math Problem You Will Fail

    17 drink = 10 burger = 5 fries = 2 So a burger with a drink and fries = 10+5+2 = 17 (or way too many calories)
  54. Kste Adams

    Habituation for High Pitched Tinnitus

    Yes, have habituated. Once in a while I catch myself listening for it, but mostly I kinda hear it and don't hear it at the same time. Weird, isn't it? :confused:
  55. Kste Adams

    Habituation for High Pitched Tinnitus

    I also have high-pitched tinnitus in both ears, and I also made myself habituate. I used a combination of mindfulness meditation and sheer, bullheaded determination - since my tinnitus is steadily getting louder, I figured habituating wasn't going to get any easier if I waited, so I just got on...
  56. Kste Adams

    Lightheadedness

    I have vestibular migraines, and your symptoms sound a lot like what I experience. I smell things that aren't there a few days before, followed by dizziness and motion sickness, followed by light sensitivity and headache which often includes sinus pain. I tend to get them in summer when the...
  57. Kste Adams

    A Few Questions on Habituation

    YES to questions 1, 2 and 3, NO to question 4 (I'm never careless about my hearing now), and YES to question 5 (although once in a while I miss experiencing complete silence and I'm occasionally concerned that the tinnitus is starting to mask sounds that I want to hear). About 18 months ago I...
  58. Kste Adams

    My Little Grandson Put Something Plastic Deep Down in His Ear

    My younger brother got a piece of soybean inside his ear, and my mother found out when the bean sprouted. The ENT said that everytime he thinks he's seen it all, one of his patients comes up with something new. :)
  59. Kste Adams

    Sleeping Well Makes Tinnitus Louder?

    My tinnitus gets louder if I lie flat on my back, quiets down if I lie on my side (probably related to position of jaw). So it may not be sleep that's causing the increase in tinnitus loudness, but your sleep position.