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@fixedgear808 It was inevitable that the Tinnitus Terminator websites would finally go offline. I'm so glad that people will not be lured in any longer for this bogus 'cure'.

Welcome! It sounds as if you are exploring a lot of possibilities for helping your T. Be sure to keep us informed of any treatment that has positively influenced your condition. I have reactive T with hearing loss in both ears and it has been a difficult journey. In case you are unfamiliar...

@Barliman I'd sure call it a scam based on my personal experience with it. Granted, I didn't use it for a year but after a few weeks I could tell it wasn't going to work. You would think that on this site there would be at least one person who posted that it does what it describes it will...

@al3xisnic0le Mine never went away. I've learned to deal with it but am not able to socialize as much as is so stressful trying to decipher speech but I force myself to interact because being around people is part of my self prescribed mental health program. For me, isolation is not good as...

@Fabio Moraes Your advice is spot on. Some days I just want to be alone and not have any interaction with people as it is so challenging to understand speech and the T gets louder with any noise at all. However, I realized that a part of my mental health in dealing with this condition is to be...

I do miss music a lot. I think music can connect us to others and is just plain fun to listen to. It is now just gibberish and hurts my ears so haven't listened to anything since 2008. I have learned to ignore my T when on walks in nature but at the beginning it was very hard to ignore the...

@kioakviz It's funny you should ask about remembering silence. I've had reactive tinnitus with hearing loss since 2008 and every morning I have about 3 seconds between being asleep and being awake that it is silent. It used to make me sad because I was focused on how life used to be but now...

@serendipity1996 I liked your description "brain is always straining and labouring". Right now its so bad I can't think of being around people as it makes me so edgy I'd have a meltdown. Does yours come and go or is it constant? Does your T get louder or remain the same?

@Telis Have you found anything to help with the pressure? I'm going a bit crazy right now because I had been doing fairly well living with reactive T, and HL, and the head pressure was only occasional so I had coping skills I had developed. It seems now that the pressure is almost daily and...

Glynis, We're all in this together so let all this positive support help you to know you're not alone and we're all rooting for you.

@Bumps You can read my earlier posts concerning TT. Long story short . . .don't waste your money. I ordered it, did the program, no difference in my tinnitus. They don't (won't) send you a CD, its all downloaded to your computer so there is no cost to return the item. I had a real hassle...

Well, I agree for the most part with this advice but you have to realize that tinnitus can range from mild to unbearable. I doubt any doctor would say "learn to live with it" if his patient was exhibiting signs of extreme anxiety, depression, or thoughts of suicide. I have reactive tinnitus...

@MerkinBill I think there will always be individuals who will prey on people who are desperate. I know when I'm having a really bad day it affects my internal 'scam meter' and I start thinking, "well maybe this will work and it sounds like a good rap, etc., etc. I fell for the Tinnitus...

@EricB It's a waste of time to have anything to do with Tinnitus Terminator. My personal opinion is that its a scam. I tried it and no change at all. It took me awhile but I finally got my money back. Read my post on page 3 of this forum. The My Noise site is exceptional and you can...

I have the same tingling feeling which can extend all the way down to my feet at times. I think it may be nerve entrapment or impingement so tomorrow I go in for my first osteopathic treatment. I've tried a chiropractor, but the treatment didn't change anything. I stayed with it for a couple...

@Hdun97 I''m seeing an osteopath next week and would like to know how your treatment is going. I've been to several ENT and they don't seem to realize how debilitating this condition is. I think because I look normal they think I should just keep a 'stiff upper lip' and ignore it . . . .if...

Hi, I have the same type of reactive T. Any sound sets it off, even ones that I can't hear (I wear hearing aids) but the noise vibration in my ears gets louder so I know something has caused it. I watch TV with closed caption as its painful otherwise and no more music as it doesn't sound much...

When my condition first happened in 2008 I had mild tinnitus in one ear and hearing loss. I had a white noise machine that masked the T so I was not too upset or focused on the T. I still had good hearing in one ear with no T in that ear but over the next few months I noticed that noises that...

I am also going to see an osteopath for my T, and H in a couple of weeks. Will your osteopath be working in the neck area? Very interested in your treatment. At this point I'm not overly optimistic but I have to keep an open and positive mind. If I'm exposed for too long to noise of any type...

I tried it and it did lower T in one ear but the T that really gives me trouble wasn't affected by the drug at all. Even if it was all positive I wouldn't have continued because of the side effects. For me I had horrible dry mouth and I was still in a stupor when I woke up in the morning. It...

@Tigo I have hearing loss and T also. I used to just have T in one ear, but now it is in both but the right ear T is still what gives me the most trouble. The good news :) is that things finally settled down as I was in a panic too when the changes kept happening. I have hearing aids in both...

Dr. Quinton Gopen. Try to find the video on 'Kerri' with Dr. Gopen. She had Superior Canal Dehiscence Syndrome and was going crazy. I thought that might be what I had but it wasn't.

@Bobbinapples You are the first person I've found here that has the exact problem I do. If a person turns their head even a little bit I'm unable to decipher the words. I am constantly asking "what?", or cupping my hands behind my ears, and I also have jumped into the middle of a conversation...

Because I never wear my hearing aids at home, I forgot that when I'm out with people I have to wear them otherwise I cannot understand anything. That being said, I wouldn't be able to use the custom earplugs in a social situation because of the hearing aids. :( Darn, thought I was onto something.

If you can concentrate now on helping your OCD and anxiety issues that will have a direct effect on your future. Right now you're assuming that nothing will change and it probably won't unless you work on the issues that are limiting you. Your future could be much different than you imagine it...

@Della I had no idea that such earplugs existed . . . .thanks so much for the tip.:)

You are creating so much anxiety for yourself worrying about the future that you really don't have any control over. Try to stay focused on the here and now and ask yourself what you can do to feel better mentally right now. Your physical ailments may or may not improve, so how you deal with...

@Mike TerMaaten I agree with you that getting out around sound is very important for healing and making the condition less sensitive. When I first got T, nature was the soothing salve to help me mentally cope. However, the condition got worse and I eventually also developed HL and H. Where...

@Della Yes, our situation sounds so similar with how we deal with social situations. I would say that my new normal is pretty good. Of course, there are good days and bad days but like you, my friends are very understanding and we still carry on pretty much the same. If we do happen to go...

@Vaba I don't know how that movie got past me. Now after seeing both those clips I'm going to watch the entire movie . . . .too funny. thanks!

@Della That's clip is pretty funny. Thanks for posting it. I think that is a great attitude. I just spent the week-end with friends in a condo on the coast of California. I usually don't put myself in social situations like that because it is just so stressful with participating in...

Sure wish I had words of comfort but don't know what to say.

None of us accept it. We all hold out hope that there will be a cure. In the meantime try to be proactive and do something, anything, that will lessen its hold on you. I'm not talking about big changes, but just something small that shows yourself that you will try, no matter how badly you...

Matt, you're hurting, that goes without saying. Wish I could take a walk with you to just break the pattern of having your condition stop your life completely. YOU have to try to do something different, out of character, no matter how bad you feel. I've been where you are and this morning...

@Kairamasonmommy Your world has been turned upside down and you're still in transition from before you had this condition and your new life in dealing with it and everything else in your life. Everyone's experience is different but for me I was a complete basket case who could hardly function...

You are so right. I'd still be living my 'old' life if it were possible but I had to give up those things that I enjoyed before but can't do now. Yeah, it sucks big time and sometimes I'm ok with my new life, other times I just want to scream and give up.

Sure wish I could find someone to do an Indian head massage in my area but I'm in rural northern California and no chance of that being here. I just watched a video on this technique and sure liked what I saw. I am, however, going to an Osteopath in a couple of weeks. She said that cranial...

@patwalsh How are you feeling these days? Do you think the osteopathic work helped? I am going to see an osteopath for my T and HL in a couple of weeks. I'm sure hoping that I can get some relief as it has changed my life so much. I think that I eat pretty well, but I could still do some...

The tinnitus combined with a hearing loss can be daunting at times. I was embarrassed at first when asking people to repeat themselves or cupping my hands behind my ears because I couldn't decipher their words. I still struggle with the embarrassment at times but it's one of the little things...

@Sen You're right, other people's suggestions are coming from the right place, but usually don't amount to much but I know from my own experience that inside you, and only you, is the answer for coping and finding some enjoyment in your life. Don't give up on trying to get to that place where...

What was your life like before your anxiety and ear problems?

Yeah, I wonder that too but don't want to dwell on it.

@Sen Maybe just sitting outside in the sunshine would help you.

Yes! I get headaches all the time but the pressure inside my head is constant.

@Sen, If you had anxiety before your ear problems it's going to be a tough go, but you might surprise yourself. When I finally decided I had to get out instead of being a recluse in my home, I would go shopping for groceries. There was no personal interaction and I only went to grocery stores...

I'm right there with you Matt. Right side of my face feels numb and right eye tears and twitches at times. I force myself to interact with people even though I'm much more comfortable being alone but that's no way to live. It has been a challenge with hearing loss in both ears and hyperacusis...

Yes, I agree with Glynis, see if you can get some temporary relief with an anxiety medication. Your regular doc may be able to prescribe that for you.

I had that same revving motor when my tinnitus first started. I actually got out of bed to go yell at my neighbor to turn off the motor to his car but after I went outside realized that the sound was coming from somewhere in my head/ear. Try to stay positive as the revving in my case finally...

Ears Hurt, I have tried Tegretol (anti seizure), Amitriptyline which is a anti depressant but the ear docs at UCLA found out that it was a amazing cross-over drug in treating tinnitus, meaning it was developed for one thing but found that a side effect of treating for depression was eliminating...

Wow, I hate to say that misery loves company but everyone who has posted here is echoing what I've been going through since 2008 when my HL, T, and H started after a whiplash incident. . .at least I think that is what caused it but not sure. It has been a long journey in learning how to...

Tinnitustalk really keeps us all informed of advancements being made so stay in the loop to know what research and procedures seem helpful. People don't understand that socializing can be exhausting with tinnitus but I hope that you go on vacation and do the best you can. I tell friends and...

Talking on the phone can be a challenge at times. It's not that I need the volume louder rather the voices sound muffled and its hard to distinguish words. Also, I don't think people without this condition realize how exhausting it can be to be around people for long periods of time. I'm...

I've posted this article a couple other places but for people with Lyme's Disease and tinnitus it is a must read. The bacteria in Lyme's can affect the inner ear. A young man's tinnitus that was from Lyme's disease was treated and cured. The article is written by a doctor...

In some cases Lymes Disease can cause tinnitus. Read the following article. The ENT doctor who wrote this article was going to dismiss his patient's ear noises as run-of-the-mill tinnitus but saw an i v line in his patient's arm. The patient explained that he was being treated for Lyme's...

Yes, I totally agree that the tinnitus noise can totally stop you from enjoying certain activities that you did before you had it. Unless a person is experiencing constant intrusive noise they cannot possibly know what you're going through. It's a life changer but luckily this site is full of...

Yes, I have bilateral hearing loss and it is sensorineural but the tinnitus that is so distracting is on the right side. I'm hoping that since your tinnitus and hearing loss are relatively recent, in time you will be able to manage the 'new normal' better. I was a basket case learning to deal...

Since August, 2008. It was mild at first and I could still listen to music and the noise of my car was very soothing. I did know that the condition was slowly getting worse and tried to get my ENT find out why it was changing but he wasn't able to find the cause. By mid 2009 I could no longer...

Hi, My hearing loss and tinnitus came on pretty suddenly after a whiplash incident. I'm not sure that was the cause, but my life was normal up to that point. Not a day goes by that I don't arrange my day around the tinnitus. The tinnitus can be so bad at times that it makes my right eye...

I started my long journey trying to find out what was causing my horrible tinnitus and came across this excellent article in which a young man was not doing well with the unwanted sounds in his ears. The doctor was about to dismiss it as 'garden variety' tinnitus when he noticed an iv line on...

I can't explain it but this neuromodulation sound is very calming. I somehow feel like I'm in some sort of a space odyssey altered dimension. Sure glad this collaboration produced such a wonderful cornucopia of out of this world sound. :headphone: