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Tinnitus has taught me that life is shit and the hell is here on the earth and it can be never-ending torment :( Hell exists and is in our heads :(

Has someone of you healed this horrible condition? :(

It's probably middle ear myoclonus. I have the same vibration feeling in my right ear.

Stapedius muscle myoclonus doesn't cause a fluttering of eardrum as far as I know. The term "middle ear myoclonus" contains both tensor tympani myoclonus (fluttering of the eardrum) and stapedius muscle myoclonus.

@felinefine - do you experience fluttering of your eardrum or middle ear myoclonus?

@Ricky81 - How do you know they are still present? I made a DPOAE test last year and I was told that the lines going down on the graph are the sight of the death (eventually irreversible damage) of the hair cells and not of their weakness.

@Brianna - I didn't mean cochlear implants are perfect and flawless, I had simply on my mind that nowadays the medical world is able to do such advanced surgeries as implanting the cochlear implants etc., but it isn't able to solve the problems with seemingly "silly" thing as middle ear...

@Chelles - yes, I know that we don't have the typical palatal myoclonus which produces a clicking sound while contracting rhythmically, but I'm wondering if the palatal myoclonus could be so subtle that no doctor can see the movement of palate but we sufferer can feel it in the area of our...

@Chelles - I'm thinking about it so strong and intensive, because maybe what we both have isn't middle ear myoclonus but palatal myoclonus, which is so subtle that almost impossible to be seen by the doctors but it causes the twitching of our eardrums. I wish it would be one of the palatal...

@PaulBe - hi, a big thanks for the answer! :thankyousign:Can I ask you one more question, cause you seem to be familiar with the anatomy of ear - well, as I've lately written in this thread since my myoclonus began I'm able to move my eardrum voluntary. I was convinced I can move my tensor...

Yes, I'm afraid it wouldn't and that sucks! Life is a bitch!:mad: I'm so sad. I'm so tired. F...k it all!

@PaulBe - I don't know if I've understood you in the right way - in order to paralyze the tensor tympani muscle it's enough to inject with botox only the roof of the mouth (palate) without cutting the eardrum but in case of the stapedius muscle must be the eardrum cut to access this muscle, right?

@Street Spirit - Ohhh I thought you did have botox. I've read some dentists make botox injections into the chewing muscles (musculus masseter) to weaken these muscles and this procedure should help for tmj and maybe for TTTS too...

@Chelles - I think your symptoms are caused by manual irritation of trigeminal nerve or/and facial nerve while touching/moving the face and eye area. These nerves innervate the tensor tympani and stapedius muscle in the ear. I have sometimes similar symptoms too, now not so often as in the past...

When I mentioned acoustic shock I meant that: http://www.hyperacusis.net/hyperacusis/acoustic+shock+disorder/default.asp TTTS as a result of an acoustic shock disorder...

@Street Spirit - where are these "trigger points" you've written about exactly? I have problems with my tmj too. Are you sure that it is tmj for sure which caused your fluttering in ear? Btw. - what kind of ear myoclonus do you have - strong rapid spasms, fast fluttering etc.? Could you describe...

I have my wisdom teeth removed, but the ear spasm remaines the same as it used to be.

@Chelles - I know your pain! My ear spasm drives me nuts too! :mad: Have you ever experienced a tooth pain on the side of spasming ear? Two of my teeth (6 and 7) on the side of my twitching ear hurt and I wonder if it can be caused by the nerve irritation from my spasming ear. I think the nerves...

No, my myoclonus is only in my right ear. And no, I didn't have my cyst removed. The doctors were of the opinion that there is no need to do that kind of surgery. They have never connected my symptoms with this cyst, though I suggested them that possibility. But they were all ENTs or...

Hello girls :) I have a new trail to determine what could be a possible cause of my myoclonus/burning pain in my ear. Three years ago I did MRI of my brain and it showed a 12/14 mm cyst of pineal gland. The doctors I met didn't connect my symptoms with the cyst of pineal but as I've recently...

@Street Spirit - I have the same myoclonus as you. I developed it 3 years ago. I've taken a lot of neurogical pills and until now no pill has resolved my problem, only valium brings a little bit of relief. Have you ever wondered if your ear myoclonus is somehow related to atypical trigeminal...

@Chelles Well, in my country it is possible to inject with botox the muscles of soft palate and that's no problem. There are clinics which practise that kind of procedure but it's all about soft palate muscles and not middle ear muscles! What's a bad luck! What's a paradox - the medicine is so...

Yes, I'm thinking about surgery, but this is the last thing I want to do. In my opinion it's too serious procedure and I want to avoid it. The tensor tympani and stapedius muscles protect the ear from loud noises and without them (because during the surgery they are cut) becomes the ear somehow...

Chelles - yes, my is 24/7 and I doubt mine is related to hyperacusis, because I have it in complete silence too. I had some degree of hyperacusis once in the past but then my hyperacusis improved and finally went away. Now I am even able to listen to the music on headphones without feeling any...

Hi, everyone! I’m newbie on the board and I want to send warm greetings to you all! Besides I want to apologise in advance for my bad English. My grammar sucks, I hope you'll forgive me ;-) Well, my problem is middle ear myoclonus in right ear (maybe it is Tonic Tensor Tympani Syndrome). I have...