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  1. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Nope im all done as i dont see it getting much better than this! Its almost gone some days and other days its loud so a third treatment to me is alot to go as im not really bothered. Today i took a long nap with my 2 year old and when i woke up my t was completely gone! This is he second time...
  2. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Wanted to give a update. Im roughly 7ish weeks after injections from round 2 and i absolutely got some relief. I do believe i had placebo the first round as it took forever to go back to baseline...over a month and i really didnt see a improvement. Round two tho..i returned to baseline in just...
  3. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    @OddV @Sharpfire @bellringer @Stu I thought id post a update. Im about 6 days post injections (second round/real drug) and im pretty sure i had placebo the first round. My spike this time wasn't close to as bas as it was the first round. I honestly dont think i had much of a spike at all. My...
  4. shantelle

    Loud Tone for a Few Seconds — Fleeting / Transient Spontaneous Tinnitus

    You know how everyone usually gets the odd spike that lasts like 8-10 seconds than goes away. Before my tinnitus this would only happen to me like once a month...now i get them 2-3 times a day..does this eventually slow down? Are my ears still adjusting or since t is this part of it now? Who...
  5. shantelle

    Acamprosate (Campral)

    Can we start a poll too see how many people tried and if it worked. Anyone have any positive results on taking campral?
  6. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    We will wait and see...the first round wasnt fun so im not sure if i will continue or not
  7. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Ask your family doctor. The sooner the better. Try something like 50 mg for 10 days
  8. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    3 weeks is still pretty early..i would try a round of prednisone and if that doesnt help than you could go forward with am 101. Its totally a personal decision but id definitely wait a few weeks as yours is still pretty early.
  9. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Im just over 3 weeks after first round injections. So far no change
  10. shantelle

    3 Months In and I Am MUCH BETTER!

    I cant wait to get to this point too..im so glad your doing well
  11. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Im 3 weeks post injections and not sure if im back to my baseline as my t is fluctuating so much its actually more anoying now...so far im not too happy with the results. Ive read that some people started to notice a difference around 24 days, 30 days, 4 weeks, 40 days....so maybe its early...
  12. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Ok very good point. I hope that on the second round they allow or dont care if we take something for anxiety..i dont think i can go through another spike for 2 weeks..i almost lost it. Im still early I think to notice a change..ive heard around 4 weeks people started noticing a reduction?
  13. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Did anyone have any positive results the first round? We couldn't of all gotten placebo?!
  14. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    @OddV @Romain B. I have a question for anyone that has the second round. Between the first and second did you notice a better or quicker difference the second time as thats the real drug. OddV..i was reading your updates for the first round was the second simular or was there a noticeable...
  15. shantelle

    This anxiety is the worst

    This anxiety is the worst
  16. shantelle

    Went to Audiologist

    Can you report back when you know what the medication is called. Im curious.
  17. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Did you have leakage the second round? @Romain B.
  18. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Do you know if you got the real drug the first round? Sounds like you may have! After injections when did you start noticing the improvement? Im about 1.5 weeks after injections and only the last 2 days my t calmed down a bit but not at pre injections yet. Also in still clogged..about 40%.
  19. shantelle

    Cutting Earplugs

    Yes exactly all of that stuff that's too loud.
  20. shantelle

    Cutting Earplugs

    No i dont have h
  21. shantelle

    Cutting Earplugs

    They are just foam ones from wallgreens
  22. shantelle

    Cutting Earplugs

    Oh really! these ones are 33dbs protection. I have weird ears..i cant get them in deep.
  23. shantelle

    Cutting Earplugs

    Im curious if anyone cuts the little bit of the earplug that sticks out so that they are more hidden...i have skin colored ones and with the tip cut they aren't really noticeable...which makes me happy and doesn't draw attention. Does cutting them shorter make them less protective?
  24. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Well in my opinion i wouldn't put yourself through it again if you haven't noticed a big enough benefit. Its alot to go through and having the spike after injections made my anxiety go crazy. To me i felt like it was 2 steps forward than 10 back aftetr the injections. I know we are all pretty...
  25. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Have you gotten any relief from the first 2 rounds?
  26. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    I think my right ear has calmed a bit but the left is still screaming...anybody have this? Maybe my eardrum isnt healed on the left?
  27. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Great news! Have you decided on the 4th round?
  28. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Im also wondering if the second round if your allowed anti-depressants...why are we not allowed to take them first round? Does it interfere with the actual drug working properly? My trial nurse told me to take advil as my ear was probably inflamed. Well why couldn't prednisone help? Why do they...
  29. shantelle

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    I emailed the company asking if they will expand and this was their reply
  30. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Ok good to know. I have a pretty bad spike and i just wish it would calm down already.
  31. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    I completely understand and so far i wish i wouldn't have proceeded as well.
  32. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Delayed healing of eardrum...my eardrum still hasn't closed up. Tomorrow is day 5. Is this a indication that i got placebo? Anyone else have a slow healing earbrum? Mine was cut with a small slit. @Watermelonhead how are you doing?
  33. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Wish anyone would give any updates ..no change or change? Its still pretty early for me...4 days after last injection but i can tell you that im hating every minute of this. Im scared it wont calm down and my ears are still just as cloggedas the first day.
  34. shantelle

    Here we go again

    Here we go again
  35. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    The fluttering is more of a clicking or popping..i think fluttering is maybe the wrong word to use...my trial nurse seems clueless. Im their first person that they have ever got so it's new to them too.
  36. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    My left ear is fluttering or clicking..maybe sorta snapping...is this normal? Anyone experience this?
  37. shantelle

    Exactly.

    Exactly.
  38. shantelle

    Ya im so done with this..why isn't there anything to help us...its 2015 :(

    Ya im so done with this..why isn't there anything to help us...its 2015 :(
  39. shantelle

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Is this for age related hearing loss or tinnitus? https://clinicaltrials.gov/ct2/show/NCT02345031
  40. shantelle

    Feeling pretty down today

    Feeling pretty down today
  41. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    It seems like alot to go through for a possible lower t. Having to sit back for 2 weeks with clogged ears and loud t. Not sure im happy about this so far.
  42. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Thats not good..so am 101 might only be a temporary fix. Thats horrible..are you stressed or do you think anything else made your t level go up?
  43. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Another thing that bothered me about the procedure is that i was suppose to sit at 45 degree angle...well my doc had my laying flat with a pillow under my head.
  44. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    I made the accident of blowing my nose to have hot air come out my ears..
  45. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    They numbed my ear with needles pokes. Than cut a small slit and stuck the injections in the slit...the little slit stayed open. I think its still open actually
  46. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Oh really..people thought that the real drug was a bit thinner. Could be the stucture of our ears.
  47. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    I feel like i got placebo due to how plugged my ears still are.
  48. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Thats not good news about your hearing. Mine test dropped right after injections but that was due to the gell. What i mean about freeze is the numb/anesthesic they use before they injected. They used needles to numb my earbrum. @Romain B. Says they used a cream than suctioned it out.
  49. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Oh so glad to hear that papu!!!!!
  50. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Still dont know why only 10% reported it louder. Its definitely more than 10%
  51. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Thanks papu. Mine spiked pretty bad. Mostly ive read its a bit louder like ear plugs in ear..mine is definitely way louder
  52. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    How is it that only 10% of people according to the side affects experience louder tinnitus after injections..when it seems everyone experiences louder tinnitus. Im trying to stay calm and keep telling myself its only temporary but omg..im starting to lose it.
  53. shantelle

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Oh i see. Ya id definitely take this if it was available in canada
  54. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    @Sharpfire ...i really dont know what to do..im sorta freaking out. Im not sure that i want to continue as my good ear is now worse with t than my bad t ear. When they froze also they used needles to freeze and in the contract it says worsening is usually from the procedure. How did they freeze...
  55. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Some days i think i am starting to get use to it too but some days when im stressed its back to square one..i have a very stressful life. Can anyone report a difference between first round and second round (real drug)? Can anyone tag anyone for this reponce as im not sure who had all had second...
  56. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    I wish i knew any signs or symptoms that we could try and determine placebo or real drug. Are your ears unclogged now and has your t returned to pre t levels? @Sharpfire
  57. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Just had my first injection i think everything went well..i cant seem to clear my throat @Sharpfire my right ear is more clogged than the left...i made the mistake of trying to blow my nose as im still sorta sick from a cold and i had hot air come out of my left ear..felt so weird. No side...
  58. shantelle

    Im so over it already

    Im so over it already
  59. shantelle

    AM-101 Clinical Trial — Participants Updates and Discussion

    Yes 7 weeks with t..the only issue is if i turn away now im basically disqualified. Im not habituated at all..ive just had points were its extremely quiet..right now tho its seems to be a 4/10..for whatever reason its loud again..so im not sure if thats a sign of it getting better or if thats...