About 8 Weeks In — New to the Website

bsimo2213

Member
Author
Mar 17, 2018
16
Tinnitus Since
02/2018
Cause of Tinnitus
Eustachian Tube Dysfunction/Excess fluid
Hello everyone. I'm new to the site, wanted to share my experience with what is possibly Tinnitus to date in hopes it can be used to some of you as a resource or to simply read.

Over this past Thanksgiving of 2017, I was in Spain for a few days. On my return flight back to the states, I noticed that something affected my left ear by the time I landed. It was perfectly fine before takeoff. It felt plugged up behind my eardrum and had a slight feeling of hearing loss. After about a week of hoping it would subside (it did not), I went to the doctor to take a look. Doctor noticed the ear drum had some inflammation and he advised to give it some time to settle back to its regular self. Although it wasn't bothering me, no improvements though.

December and January go by and the slightly plugged feeling is still there. Around beginning of February, ringing in the left ear gradually appeared over a few days (it was real faint the first few days to where it didn't bother me). After that, it finally became very apparent, annoying, agonizing, piercing, you name it. It was virtually impossible to sleep, even if I took sleeping pills such as Zzzquil. It affected me at my job as well. That's when I knew something had to be addressed.

I go to an ear/nose/throat specialist and they noticed a large amount of fluid plugging up the entire left ear. Due to inflammation, the fluid was trapped and kept accumulating. It also looks to be a possible case of ETD. I am prescribed Prednisone (to reduce the inflammation) over a 9 day period, and it was effective. By the time the inflammation subsided, I was able to begin removing fluid day after day by using the steam method, but this requires time and patience to do. Each day, the ringing (tinnitus) reduced little by little as fluid was removed. Taking a maximum power decongestant (like Mucinex D) has helped thin up the fluid and somewhat expedite the draining, as well as temporarily reduce the decibel level of the tinnitus.

I was also informed that during my check up, the doctors let me know that I also developed high blood pressure recently, which has never happened in my life to date. Come to find out, high blood pressure is also a correlation to tinnitus to a degree. It was caused due to excessive consumption of sodium, caffeine, stress, and alcohol.

All of the month of March, I have worked on remedying all of these triggers by changing my diet, staying relaxed, drain fluid daily, drink less coffee/booze, etc. and it has shown improvement as each day passes. Ringing is still there, but it is now manageable, does not affect me as much when I am out socializing, and can sleep longer. There are also a good amount of instances where essentially no ringing is there, but comes back. Sometimes, I forget it's even there. I do another check up with the ear specialist soon to review the progress and possibly look further to see if there is a deeper cause if necessary. Hoping that this doesn't turn into a long term issue. Not out of the woods yet but have found relief.

Thanks for reading.
 
Thanks for reading.

Welcome to the forum. That for posting to the forum. The one thing that stands out is that you don't seem to be very negatively impacted by your T. You just deal with it one step at a time and one thing at a time. This calmer approach is very helpful to tame T because by so doing you avoid the limbic nerve system and the fight or flight response from kicking in. These if kicked in would have made T a lot more prominent to ignore. Thanks for dropping by to share you story. Hope you will continue to improve. Take good care. God bless.
 
Hi @billie48 thanks for your read and comments. There is a lot more to the story, but tried my best to not make it a novel. Actually saw 3 different doctors until I was able to gather enough data to make some sort of effective action plan and pinpoint triggers. Getting the data was key. There was about one week where there was extreme uneasiness, anxiety, easily aggravated, negative thoughts, etc, but was determined to figure something out. Staying calm, and having relaxing sounds or a sports game in the background as a distraction is a good quick fix since the sound has gone down a bit. Sleeping is still the hurdle. Perhaps in a few short months time it will be hopefully 95% resolved.
All the best
 
Thanks @Bill Bauer for the additional resources. I took a quick skim (will read more in depth following this reply) and information around plane rides and occasional spikes stuck out to me initially. Perhaps I can find something that I may not have discovered yet in your thread. Take care.
 
Hi @ericdking1010 , thanks for the message and welcome. Feel free to share your story as well or if you have already made a post, share it with me and I'd love to read it.
All the best in your road to recovery
 
Hi everyone. Current update: it's been about 3-4 weeks since I have seen the ENT specialists' assistants to do initial test/diagnostics, etc., prior to seeing the actual ENT which is tomorrow. I've been using CVS brand of Mucinex D every day, and Nasacort nose spray every few days, mixed with 1-2 daily sessions of applying steam to my affected ear everyday in hopes to clear some built up fluid. Sticking with the change in diet too has also helped in my opinion.

Each day, fluid has been able to escape, not as much as I'd like to but that is because of inflammation not 100% gone yet. Either way, progress was made and I feel the ringing still going down little by little every few days. Periodically, such as right now as I type, I barely even hear a very light whistle rather than a piercing high pitch. It's been like this all afternoon. Let's see how long this goes for.

The only hurdle I deal with is sleeping. Although I use noises like rain, white noise, etc in the background, it doesn't do me much merit, so still slightly fatigued overall.

Wish me luck on the ENT appt tomorrow, hoping for good news, and I'm definitely not getting a syringe (sp?) done on my ear, as I see lots of negative outcomes on this website from other experiences.
 
NEW UPDATE:

It's been about another 3 weeks since my 2nd appointment with the ENT doctor, and all signs were positive. Although the Eustachian tube is still not fully recovered, Hearing ability in my left ear that has T has recovered by at least 50%, the negative pressure has decreased by about 66%, and overall I think the volume of my T has slightly decreased. Went back on Prednisone for one more cycle to continue reducing inflammation in the Eustachian tube. I've finished this batch, and it's not yet fully recovered but helped a bit (feels like there's really THICK fluid or ear wax stuck in there, so that may be the final hurdle). ENT doctor wants me to do an MRI next to make sure every possibility has been taken into consideration; this is being scheduled now.

Nevertheless, the journey is not over. One day last week, my GF and I were out and about for the day and we had a lot of caffeine (coffee, cafe con leche, cortadito, starbucks espresso drink). Even though I knew caffeine was a catalyst to T spikes, I was careless that day, and my T became so unbearable that I could not sleep that night. Ringing started in the other ear too. We went to the ER at 7 in the morning but they didn't really do anything to help. Everything eventually subsided, including no more T in the other ear that never had it initially. Took me until after I left the ER to realize that I took way too much caffeine. It's been ginger tea for me ever since LOL.

Still draining fluid from the ear (sounds gross, I know). I went from having a "lake" of fluid to almost nothing visible after a month of efforts. It has correlated to the T volume decreasing. Sleeping is still the largest issue for me since I'm indoors and T is more noticeable. I listen to different sounds on YouTube and take Zzzquil but they don't help much. If I'm lucky I'll sleep 4 hours at night.

Good news is that I know essentially all of my T triggers (fluid, caffeine, stress, etc.) so I can manage it all until full recovery. Symptoms have been very minimal today and feel very upbeat, so hopefully I can get some sleep tonight.

Stay tuned...
 
@bsimo2213 I remember at my 3 month mark, before I went to bed, my T was at the usual low to moderate level. When I went to bed and trying to fall asleep, I noticed my T ear progressed to a very loud level that I have never experienced and my whole ear feels muffled. I went to ER although I already knew there is nothing they can do besides running tests. It did start to subside early next morning and almost back to baseline by the evening. However, I dont recall anything out of the ordinary that I ate or did the day prior. My point is, maybe your reaction to caffeine is coincident? maybe its just your up and down? I never had any bad reaction to coffee or any type of food that I'm aware of.

Anyway, thanks for sharing your updates.
 
Hey @daiso Thanks for your reply, sorry mine took a month lol! Waited another 30 days to log any kind of progression with the symptoms.

Now that I look back on it, I am almost 100% positive now that the huge spike in T and ending up in the ER was caffeine induced. I literally had way too much that day and symptoms were never that bad previously. I've totally cut back on all caffeine consumption by at least 75%, and the symptoms have actually been better since.
Thanks for reading and input!
 
NEW UPDATE:
~30 days after the last post, I've made more progress in the right direction. Just sticking to the plan (ginger tea for inflammation, max power nasal decongestants, drain fluid from ear, repeat). I've reduced caffeine consumption even more since my ER incident, and it has really helped. In fact, the T is even more calm overall throughout the day. I probably have about half a cup of coffee in the morning just to get me going and that will be it for the day.
I can sleep for longer periods now. Average sleep is around 6+ hours. Still waking up about 30 minutes naturally before my morning alarm goes off though.
Took an MRI 2-3 weeks ago, and confirmed there are no abnormalities, cancer or tumors from the report. So with that last piece of data, I feel more confident that congestion and air pressure from flying was the primary root issue of my T.

I live off the east coast near the beach, and I can feel the allergens across the intercoastal, which may be one factor as well. I'm moving apartments next weekend, so maybe heading further from the water may help too.

Anyways, I don't feel as plugged in the ear/tube as I did when this all first happened, and the T volume level has gradually decreased since the start by sticking to treatment. Things kind of stalled for a bit, but back on track. Gonna give it another 30 days before making another assessment. Hopefully this will turn into a complete success story for the site eventually. Thanks for reading.
 
Thanks for posting more positive updates. Great to hear your progress. Keep doing the right thing and repeat. Stay positive and calm. I suggest if in another 30 days you are making much more progress, then yes, it may be a good time to post a great success story for others to find hope and comfort from your experiences. Take good care. God bless.
 
Hey @billie48 thanks again for checking in, it is much appreciated! Made lots of unexpected progress in the past 5 days! Symptoms are exponentially better, and the T's sound intensity has significantly dropped.
 
Hi @Chris M ! Closing in on 4 months now. The T is a high frequency pitch for me, was a gradual increase and now the past month it has been gradually decreasing. Trying to think of a comparison of sound to help you gauge how loud it got. I'd say at its peak, I'd have to drive with the windows down and let the wind noise mask the sound. Anything quieter than that, I could easily hear the T.

Now, I can barely hear it. It fluctuates periodically and gets a bit louder but then settles down. In fact, yesterday I heard silence for the first time in a while. When stable, it's a very faint pitch that can easily be ignored with watching TV, playing games, etc.

What are you experiencing? Thanks for reading!
 
Hi @Chris M ! Closing in on 4 months now. The T is a high frequency pitch for me, was a gradual increase and now the past month it has been gradually decreasing. Trying to think of a comparison of sound to help you gauge how loud it got. I'd say at its peak, I'd have to drive with the windows down and let the wind noise mask the sound. Anything quieter than that, I could easily hear the T.

Now, I can barely hear it. It fluctuates periodically and gets a bit louder but then settles down. In fact, yesterday I heard silence for the first time in a while. When stable, it's a very faint pitch that can easily be ignored with watching TV, playing games, etc.

What are you experiencing? Thanks for reading!

Dude, you're improving, but don't overthink it. I drink lots of Coffee, the ocasional alcohol, and so on. Just do what you like as any normal human being would. The more you think about it, the more you focus on it.

You're in a very good shape, and you're not too long into it. As time passes you'll feel better, but it's not a linear thing, there will be ups and downs, so try not to worry too much (easier said than done, I know).

Best,
Zug
 
@bsimo2213
So my t sounds high pitched as well. It sounds like white noise as if a television is on in another room but the volume is all the way down on the television. It also sounds like it's in my head more than my ears until I close my ears. At first, it seemed super loud and I had to sleep with white noise on my computer. I was having a hard time sleeping in the first month and eating because I didn't want to do anything at all. Now, I sleep through the whole night to realize my laptop battery died and I didn't need any maskers.

It is constant and can be masked with tv and my car radio. I think it's getting better but I can't tell ignorant I'm just ignoring it versus it decreasing in volume. I make two months on June 8th. I wonder if I have a chance of it leaving completely?
 
@Chris M Hey there! Sorry, I've been a busy bee this month. Still try to get on here every few days while I can.

I found your other thread where you laid out your symptoms. Seems like you have a milder case, especially if it's getting better as fast as you say. The best thing that helped me out throughout the process is making sure you have a good action plan on your road to recovery, rather than just waiting for something to happen. That will help you remain calm about the situation.

I had negative ear pressure as well, and after 3 visits to the ENT it gradually improved until it went almost back to normal (I'm still not 100% recovered yet). Give it time. Glad you were able to identify that a sinus infection and ETD could be some of the primary causes. You might just have a lot of fluid lodged in there because of ETD. Maybe try to take a max power nasal decongestant (I get mine from CVS and it works like a champ). I did the steam method once the fluid broke down and it did me wonders after a few weeks.

Did the ENT say anything about possible factors other than the negative ear pressure?
 

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