Mark,I had really bad sound reactive tinnitus and mild hyperacusis this time last year when my tinnitus relapse occurred. I couldn't drive long distances and couldn't go to cafes etc. It continued for some 9 months for me whilst overtime getting better.
Yes to both. It took around 9-10 months to reach that point and I still have bad days 12 months later.Did you take steps to improve the reactive tinnitus and hyperacusis, or was it a time thing?
Can you drive long distances & go to cafes now without protection?
Did you do TRT, or was it just a matter of time before you were comfortable in cars & cafes?Yes to both. It took around 9-10 months to reach that point and I still have bad days 12 months later.
Now I just do whatever.
It was time more than anything else. As things improved I became aware that I could handle more. Initially there was lots of anxiety being in a cafe or from driving... You know fear of a spike, but as it stopped happening more and more I stopped worrying about it!Did you do TRT, or was it just a matter of time before you were comfortable in cars & cafes?
Hey Marko. Sorry to hear about that. I would recommend taking steps towards avoid the spiking, maybe wearing earmuff / earplugs, or both, for longer car rides.A week and a half ago I noticed I have reactive tinnitus after a long car drive, and after visiting a restaurant after the COVID-19 restrictions eased.
I've been in contact with Mark quite recently and he seems to be doing very fine as the reactivity settled.Can I ask how are you now?
In my first months I still noticed spikes and high and low days. I never found a cause or pattern so I just gave up looking for one. After many more months I got so used to my tinnitus that I don't notice a difference anymore between high and low days. I think there is still a difference in loudness from day to day but since I am not consciously aware of my tinnitus I do not notice the difference anymore.@Stacken77, thank you for your response. Yesterday I ordered custom made earplugs and will use those. Some days higher sounds sound a little bit too loud but not every day. So maybe I have minor hyperacusis.
I still don't understand all aspects that causes spikes. I had friends here last Saturday but the noise level was not high and it did not bother me. A spike still occured when I went to sleep. I'm thinking some foods might cause that (high salt or sugar). I can have almost a full day in silence but in the evening I hear louder sounds. Sometimes during the afternoon.
I think I have habituated at some point but these louder sounds in the evenings suck. Maybe it is still a good sign that it can be quiet from 8:00 to 17:00 or so for many days. And 5 months is a very short time with this condition.
I'd just like to add that my tinnitus behaves in a very similar way. In the evening, it always increases by a notch. I can almost always rely on it being louder by 8 PM, just like clockwork. My initial tinnitus did not behave this way, it started after my tinnitus became very reactive. Although it is very annoying when going to sleep, I have come to accept it as a recurring phenomenon.I can have almost a full day in silence but in the evening I hear louder sounds. Sometimes during the afternoon.
How can you habituate to such an intrusive tinnitus that you hear all the time and very clearly over everything like myself? The kind of tinnitus you don't have to "look for" to hear it. Is it part of accepting the unmaskable intrusive tinnitus monster as a part of you?Yes, you can habituate to reactive tinnitus. If you couldn't, I'd be dead by now.
Hi, @Ava Lugo.How can you habituate to such an intrusive tinnitus that you hear all the time and very clearly over everything like myself? The kind of tinnitus you don't have to "look for" to hear it. Is it part of accepting the unmaskable intrusive tinnitus monster as a part of you?
I find your post highly interesting. May I ask; approximately, at what threshold does your tinnitus react, i.e. what's the smallest noise that makes it go off? Does the sound of your own voice cause a spike for example?Hi, @Ava Lugo.
Yes is the answer to your question I'm afraid, at least if it's me you're asking.
Perhaps there are sufferers who have found other ways of coping: frequent masking and taking medication etc. But the only way I've found that is workable long-term (because it's best to assume one is in it for the long-haul) is to essentially become one with your tinnitus.
I'm not a fan of people who join these forums and share posts to the effect of: "After developing tinnitus x amount of years ago, it no longer bothers me". My tinnitus always bothers me; in the sense that I can no longer live the life I desire to live.
I can't travel on planes; hence I can't travel to certain countries I'd like to travel to. I can't spend hours outdoors in my city enjoying time with my friends (I can enjoy time out with my friends, but with hearing protection on, there's a limit to how much time I can spend with them). I can't even enjoy the summer this year with all the windows open in my apartment, feeling a cool breeze and enjoying all the noise of seagulls squawking and children playing; because despite my fondness for them, those things have and will, spike my tinnitus.
But I have habituated to the noise. I no longer spend every waking hour in fear and anxiety distracted by the noise in my head like I did when I was in my first year.
I'm able to read, study, sleep perfectly well despite this horrible condition, and my tinnitus is by no stretch of the imagination "mild".
So yes, you can absolutely habituate to it (especially well, if your tinnitus is non-reactive). But as others have said, you can't run from it, habituation means not masking it and just trying to do normal activities that distract you from it while it plays in the background: like watching TV, playing video-games and reading etc.
Believe it or not, I read more books (with this screaming noise in my head) in my first 2 years with tinnitus, than I have at any other time in my life.
Hi again @Stacken77 my friend,May I ask; approximately, at what threshold does your tinnitus react, i.e. what's the smallest noise that makes it go off? Does the sound of your own voice cause a spike for example?
Yes, absolutely. For me, use of earplugs and ear-defenders completely prevents: small fluctuations when exposed to everyday noise (from people talking and plates clattering etc.), spikes (as in, significant temporary increases caused by being exposed to children screaming and car horns etc.) and permanent increases in my baseline volume (from being exposed to some w*nker revving his Harley Davidson next to me on a street while I'm shopping, for example).From what I can read in your post, you are actually able to mitigate spiking with hearing protection.
Yes, unfortunately, several times over the last 12 years.have your baseline increased significantly over time due to reactive tinnitus?
In my case, it doesn't matter if I have single or double protection, about any sound that hits my eardrum gives me a spike. Most of the spikes are temporary, but I feel like the baseline is on a slow but steady upwards trend.
I am so sorry to hear about the onset of your highly reactive tinnitus, but take my word for it, over time this will settle. I can see you're doing all the right things (wearing your hearing protection to enjoy a nice "fika" despite those noisy roosters!). Just keep looking after your hearing the way you're doing and over time your body will heal (enough that you, like me, will be able to endure until a decent treatment makes itself known, and we can live our lives to the fullest once again).I lived approximately 1 month with tinnitus that reacted immediately, and always receded to baseline after some time; I was totally habituated, but after an incident which caused a hyperacusis setback, my spikes have become more prolonged and permanent.
So one more question. There is tinnitus that spikes and is louder for awhile after being exposed to noise, but I know there is also tinnitus that reacts instantly to external noises, so I'm guessing not only does your tinnitus spike after the noise exposure but it also rides on top of every external noise?Hi again @Stacken77 my friend,
Apologies in advance for the boring and formulaic answer: but my reactivity changes on a day-to-day basis. It'll be dependent on factors mostly such as; how much sleep I've had and if I've already worn hearing protection that day. If I haven't slept much, then just a conversation in a quiet room with one of my parents will cause a fluctuation in my tinnitus each time their voice hits my eardrum. However, on good days, this isn't the case.
Same for if I've been out that day with hearing protection for a couple of hours; while with hearing protection in, I become more attuned and less aware of my tinnitus. However, when the earplugs or ear defenders come out/off, my ears become hyper-sensitive and the same scenario as I documented above will occur.
What's important to note (and please understand I am not playing our condition down, and never would), over time you do become used to this. Even on bad days when my tinnitus is hyper-reactive, it becomes like an ache in the back that worsens when you bend over for example; it just becomes too familiar to pay any attention to. So while it might not fit the traditional idea of habituation (as in, becoming completely unaware of ones own tinnitus), it only affects my life in as much as the restrictions that tinnitus has placed on me, in order to prevent it from becoming worse.
Yes, absolutely. For me, use of earplugs and ear-defenders completely prevents: small fluctuations when exposed to everyday noise (from people talking and plates clattering etc.), spikes (as in, significant temporary increases caused by being exposed to children screaming and car horns etc.) and permanent increases in my baseline volume (from being exposed to some w*nker revving his Harley Davidson next to me on a street while I'm shopping, for example).
Yes, unfortunately, several times over the last 12 years.
The most prolific being from an MRI scan I had to have for an unrelated health scare.
On the one hand I was devastated by the permanent increase in my tinnitus, but on the other, I was just so relieved I wasn't going to die (given the negative result), that I was able to handle it relatively well.
I am so sorry to hear about the onset of your highly reactive tinnitus, but take my word for it, over time this will settle. I can see you're doing all the right things (wearing your hearing protection to enjoy a nice "fika" despite those noisy roosters!). Just keep looking after your hearing the way you're doing and over time your body will heal (enough that you, like me, will be able to endure until a decent treatment makes itself known, and we can live our lives to the fullest once again).
Yes that's correct @Ava Lugo, my tinnitus does indeed "ride on top of" many external noises, as you say. But not all.So one more question. There is tinnitus that spikes and is louder for awhile after being exposed to noise, but I know there is also tinnitus that reacts instantly to external noises, so I'm guessing not only does your tinnitus spike after the noise exposure but it also rides on top of every external noise?
I'm guessing it does so on bad days because you said on good days you can be unaware of it because you wear hearing protection and stuff.
I do see your problem. The requirement for you to use hearing aids, will annoyingly add a further complication to the mix, I'm certain.I am worried I am legitimately screwed because mine wasn't noise-induced and I can't wear earplugs since I was born with an ear that's 80 percent deaf and the other ear has a closed ear canal so I usually turn my bone anchored hearing aid off if it gets too noisy but that means I hear pretty much only my tinnitus at that point or I might play some chimes on my phone if the living room next to my bedroom is noisy.
Thank you for writing this detailed post.Hi again @Stacken77 my friend,
Apologies in advance for the boring and formulaic answer: but my reactivity changes on a day-to-day basis. It'll be dependent on factors mostly such as; how much sleep I've had and if I've already worn hearing protection that day. If I haven't slept much, then just a conversation in a quiet room with one of my parents will cause a fluctuation in my tinnitus each time their voice hits my eardrum. However, on good days, this isn't the case.
Same for if I've been out that day with hearing protection for a couple of hours; while with hearing protection in, I become more attuned and less aware of my tinnitus. However, when the earplugs or ear defenders come out/off, my ears become hyper-sensitive and the same scenario as I documented above will occur.
What's important to note (and please understand I am not playing our condition down, and never would), over time you do become used to this. Even on bad days when my tinnitus is hyper-reactive, it becomes like an ache in the back that worsens when you bend over for example; it just becomes too familiar to pay any attention to. So while it might not fit the traditional idea of habituation (as in, becoming completely unaware of ones own tinnitus), it only affects my life in as much as the restrictions that tinnitus has placed on me, in order to prevent it from becoming worse.
Yes, absolutely. For me, use of earplugs and ear-defenders completely prevents: small fluctuations when exposed to everyday noise (from people talking and plates clattering etc.), spikes (as in, significant temporary increases caused by being exposed to children screaming and car horns etc.) and permanent increases in my baseline volume (from being exposed to some w*nker revving his Harley Davidson next to me on a street while I'm shopping, for example).
Yes, unfortunately, several times over the last 12 years.
The most prolific being from an MRI scan I had to have for an unrelated health scare.
On the one hand I was devastated by the permanent increase in my tinnitus, but on the other, I was just so relieved I wasn't going to die (given the negative result), that I was able to handle it relatively well.
I am so sorry to hear about the onset of your highly reactive tinnitus, but take my word for it, over time this will settle. I can see you're doing all the right things (wearing your hearing protection to enjoy a nice "fika" despite those noisy roosters!). Just keep looking after your hearing the way you're doing and over time your body will heal (enough that you, like me, will be able to endure until a decent treatment makes itself known, and we can live our lives to the fullest once again).
Have you experienced a ringing competing with every word spoken to you? How do you mentally deal with it when it happens? Are you able to enjoy music or does it sound distorted?Yes that's correct @Ava Lugo, my tinnitus does indeed "ride on top of" many external noises, as you say. But not all.
Unfortunately I can't tell you which noises it does and which noises it doesn't "ride", as, appropriate to the thread's subject, I just don't monitor my tinnitus enough to be aware of where noises fall on my internal white-list and black-list anymore.
I do see your problem. The requirement for you to use hearing aids, will annoyingly add a further complication to the mix, I'm certain.
This is because, for me, if we say on a scale of 1 to 10 my tinnitus is usually a 6 (it isn't, but for argument's sake let's just go with this number). When I'm indoors it's a 6, and then, when I'm outdoors, with the use of hearing protection, it remains 6. Therefore my tinnitus (as long as I avoid spikes) is always at 6, and so despite fluctuations due to my reactive tinnitus, I can still become acclimatised to it.
In your case, let's say yours is also 6 with your hearing aids on, but then you need to turn them off at some point, and it jumps to a 9; we have inconsistency and so a much more difficult task of acclimatisation.
My advice to you would be to seek out other tinnitus sufferers on the board who also use hearing aids, as this just isn't my terrain. But some people swear by them and I'm sure are living well, having habituated alongside their use of a hearing-aid.
With regards to not being able to use earplugs; use ear defenders when you have to. I don't like when I have to wear mine in public, as they're less subtle, but most people just assume they're headphones anyway.
How does one have an MRI without damaging their ears? Using earplugs and earmuffs?Thank you for writing this detailed post.
Did the MRI increase your baseline tinnitus? I don't need an MRI, but just curious.
Hi @Sean,Thank you for writing this detailed post.
Did the MRI increase your baseline tinnitus? I don't need an MRI, but just curious.
Yep @Ava Lugo, there are days I experience this. Not every day, but often.Have you experienced a ringing competing with every word spoken to you? How do you mentally deal with it when it happens?
Well, this is a tougher question. When I listen to music, I rarely experience any distortion, except with certain instruments playing; like electric guitars.Are you able to enjoy music or does it sound distorted?
Yes that's right. Earplugs + Ear Defenders is the safest you can make an MRI scan as someone whose hearing is already compromised.How does one have an MRI without damaging their ears? Using earplugs and earmuffs?
Hey, thanks for reaching out, I appreciate it. I'm going to reach out to my doctor to see about my next steps. Hope all is well with you.Hey @Wrfortiscue,
Hope you're doing alright.
Yes that's right. Earplugs + Ear Defenders is the safest you can make an MRI scan as someone whose hearing is already compromised.
I can't remember who posted it (it was over 2 years ago now), either @Alue or maybe @linearb (but suspect the former). Anyway, they posted a link to a pair of MRI-safe ear defenders which they had worn (in a stand up MRI, I think?)
These are absolutely necessary; because what the radiologist is going to give you (or gave me, at least) are a pair of flimsy plastic cups that don't even create a seal around your ears.
Thank god, I was wearing earplugs (albeit an inadequate SNR rating) otherwise I would seriously not have a morsel of life to live now.
Also, couldn't find the thread I was referring to with the link to the MRI-safe ear defenders so here's one:
(For the Brits)
Ear Protection - Safety Gear (oxtools.co.uk)
(And for the Americans)
MRI Non-Magnetic Ear Muffs - Passive Hearing Protection (mriequip.com)