Does Anyone Feel Like They Are Frozen in Time?

[missingsilence]

I'm coming up on two years since my permanent increase, three since it started. Yet it feels just like yesterday. Time has frozen and the days fly by, it's hard to tell a regular day from a holiday.

At times I want to cry but my eyes are dry. I feel dead inside. Chronically fatigued and demotivated in my early twenties.

I wonder what's left to do? How to enjoy life's moments again?

 

[Striveon]

I feel the exact same way. Everyday feels like survival. It sucks seeing other young people living a good life. Oh well. I have hopes upcoming machines will help reach a decrease or silence.

 

[Manny]

@missingsilence I don't just feel like this, I feel EXACTLY like this.
I'm aiming to survive till a treatment comes out. Maybe.
Also in my early-mid twenties. It sucks so bad.

 

[jay777]

I am just a passenger now

 

[missingsilence]

@missingsilence I don't just feel like this, I feel EXACTLY like this.
I'm aiming to survive till a treatment comes out. Maybe.
Also in my early-mid twenties. It sucks so bad.

It scares me to think just how much time I'll have to wait for a real treatment. I tried so many different things and nothing helped. Habituation is also nowhere to be found. I'm angry with myself and frustrated to have this at such a young age.

Have you found something that helps you cope?

 

[Zeneth]

I feel you man, we're losing the best years of our lives!

 

[Manny]

Have you found something that helps you cope?

Nope. It's just survival for me. I did reduce my non-necessary activities in order to conserve physical and mental energy. So I've pushed off going to college, dating, social stuff, traveling. Just kept my job with reduced hours, and I do what I can. Sucks bad.

 

[JasonP]

Yes, I have felt like that a lot but recently, I have been off and on taking a supplement called lithium orotate that helps me be able to get out of that.

My sense of time gets way more clear and I can remember things better and become a lot more rational. It is an interesting supplement and have yet figured out how it works. I am wondering if part of it aligns the various peripheral body clocks if they get out of sync with the master body clock.

If anyone knows how this supplement works, please let me know.

I had to temporary get off after some days of using it because of some digestive issues but that could have been due to the timing that I took the supplement or that I took too much.

I'm thinking if I can get my circadian rhythm back on track and aligned, I may be able to get out of this rut.

 

[JasonP]

It scares me to think just how much time I'll have to wait for a real treatment. I tried so many different things and nothing helped. Habituation is also nowhere to be found. I'm angry with myself and frustrated to have this at such a young age.

Have you found something that helps you cope?

I'm just curious. What are all the different things you have tried?

 

[dpdx]

Yupp same here.
30 next year, got T at 27….sad so sad.

 

[Vicki14]

I'm coming up on two years since my permanent increase, three since it started. Yet it feels just like yesterday. Time has frozen and the days fly by, it's hard to tell a regular day from a holiday.

At times I want to cry but my eyes are dry. I feel dead inside. Chronically fatigued and demotivated in my early twenties.

I wonder what's left to do? How to enjoy life's moments again?

Yes. Completely . I feel my life ended the day this started. Big hugs x

 

[Contrast]

I had constant panic attacks, intrusive thoughts, sensory overloads, mania high and lows rapidly cycling, paranoia, suicidal thoughts, developmental problems due to a neglectful fmaily, long before I had otological issues.

 

[carlover]

I'm just curious. What are all the different things you have tried?

Hi..as for me in 32 years I really have tries most things and each time gave it a real good go ,spiritual healing ,acupuncture, sacral therapy ,osteopathy ,cranial osteopathy ,chiropractor,physio therapy,herbs ,chinese herbs. indian medicine.dentist,tmj treatment ,teeth alignment. sound therapy international ,ACR Neuromodulation.audiologists ear popper . neti pot.....some therapies a few times with different practitioners. Vitamins ,minerals high doese...on and on and on ....probably £20.000.00 all in and what have I got out of it apart from an empty wallet? Sod all

...oh and NHS and private ENT drs all the neurootology tests you can shake a stick at........lastly the only thing that ENTs have got in their armoury steroid nasal spray and Serc tablets woopy do...good luck

 

[Jazzer]

It scares me to think just how much time I'll have to wait for a real treatment. I tried so many different things and nothing helped. Habituation is also nowhere to be found. I'm angry with myself and frustrated to have this at such a young age.

Have you found something that helps you cope?

I am reluctant to join this thread - you are all so young - and I am an old bastard of 76.
I am so upset by all of these heart wrenching life stories.
My experience of tinnitus noise is likely similar to yours. About 60 dbs of constant noise.
But I have had the opportunity of a life, and I realise of course that you are trying to cope with the terrible experience of crippled potential and lost hopes and dreams.
I am so so sorry.
I so hope a real answer can be found one day.

Obviously I don't have any curative answers, but you ask:
"Have you found something that helps you cope?"

Every morning for the last four years I have left my bed and slipped into a warm bath to do my meditation.
Having surrendered to involuntary tummy breathing I drift into a meditation where I occasionally 'think' the words:
'I hear it - and I'm okay.'

For most of the day those words follow me round and prevent the experience of too much stress.

We all want a cure, at least a treatment, and this is neither - but it does help me.

Best wishes everybody.
Dave x

 

[missingsilence]

I'm just curious. What are all the different things you have tried?

I've tried a full range of supplements (NAC, Quercetin, Ginko, Vitamin D, Vit B, Vit C, Vit A, magnesium, zinc, Lipoflavinoids, melatonin, other vitamin supplements, drinking green teas, ginger, garlic), completely cutting out diary products for the last 6+ months. I've tried masking using different sounds. I've tried TMJ therapy (massage + laser + ultrasonic) and getting a brace for bruxism. I've had a consistently stuffy nose (almost constantly for the last 1.5 years or so) and I've tried a variety of nose sprays (Nasonex, and a bunch I don't remember). I've tried antihistamines, Betaserc, anti allergy meds. I've tried prednisone and another form of steroid I can't remember.

I've also tried homeopathic therapies and supplements prescribed by a doctor. I've added a lot of cur cumin to my diet, completely cut out caffeine, salts and any milk based products.

I am now down to LLLT (which seems to have added a new low frequency rumble tone, which I hope is just temporary) and I am considering stem cell treatments.


It feels like the end of the road. I've tried to habituate, I've gone back to my studies, I've tried exercising and leading a normal life. In the end, I feel the same. It scares me, as I also have other chronic conditions (not curable) that have started alongside this and they also impact quality of life.

Has any treatment helped you?

 

[JasonP]

I had constant panic attacks, intrusive thoughts, sensory overloads, mania high and lows rapidly cycling, paranoia, suicidal thoughts, developmental problems due to a neglectful fmaily, long before I had otological issues.

That sounds terrible. Have you ever tried the supplement Lithium Orotate? Sometimes that supplement can help me with panic attack feelings within like 15 minutes of taking a half of a tablet.

 

[JasonP]

I had constant panic attacks, intrusive thoughts, sensory overloads, mania high and lows rapidly cycling, paranoia, suicidal thoughts, developmental problems due to a neglectful fmaily, long before I had otological issues.

I almost forgot...many people also take lithium orotate for bipolar.

 

[Lane]

Have you ever tried the supplement Lithium Orotate? Sometimes that supplement can help me with panic attack feelings within like 15 minutes of taking a half of a tablet.

I've mentioned lithium a number of times in my posts. Below is a link to an article, followed by the conclusion. -- The reference to lithium "modulating" glutmate is particularly important, as excess glutamate causes excitotoxicity, which is often present in people with tinnitus.

EDIT to ADD: -- The "modulation" of GABA could be just as or even more important. Who knows, maybe lithium could be even more effective than benzodiazapines to help relieve the intensity of tinnitus. -- @Bill Bauer @ruben ruiz @humptydumpty69 @Bam@Greg Sacramento

Lithium's Mechanism of Action: An Illustrated Review

The key points are the following:

• Lithium acts on multiple levels, from the macroscopic anatomy to microscopic intracellular signaling.
• Lithium use is associated with a neuroprotective effect, factors such as BDNF and BCL2 have been implicated in this effect.
• There are changes in brain structure associated with lithium use, some of these structures are the anterior cingulate cortex, the ventral prefrontal cortex, the hippocampus and the amygdala.
• At the neurotransmitter level, lihium modulates dopamine, glutamate and GABA neurotransmission.
• At the intracellular signaling level lithium inhibits proteins such as PKC, MARCKS, GSK-3, IPPase and IMPase

 

[GlennS]

Have you found something that helps you cope?

One thing I do is I've kind of rewired my brain so that there's always a sound going through my brain. I don't just mean listening to music or talking heads. I do that. But when I can't do that, like when I'm trying to sleep, I am imagining sounds (really words mostly) in my head. It sucks because it starts to feel like I'm hallucinating, but that's what I have to do. I have to create voices, thoughts, narrative, daydream stories, all to occupy myself even when I'm trying to go to bed. I can't really quiet my mind completely because that's when the T drives me crazy.

The worst period is when I first wake up. There is this transition point between when the mind has shut off external stimuli back to letting it in and it sounds like someone is cranking up static on the radio. True REM state sleep is the only period when I feel like I'm really free of the T but it's hard to achieve.

 

[Lee T]

I'm coming up on two years since my permanent increase, three since it started. Yet it feels just like yesterday. Time has frozen and the days fly by, it's hard to tell a regular day from a holiday.

At times I want to cry but my eyes are dry. I feel dead inside. Chronically fatigued and demotivated in my early twenties.

I wonder what's left to do? How to enjoy life's moments again?

Have been suffering for over 4 months since I used Otex to clear wax (didn't work, had to have it suctioned at the hospital) ear infection & perforated eardrum followed, seen an ENT specialist, hearing tests were fine, eardrum movement was zero but then 5 weeks later (tinnitus still aggressive & ear still feeling wrong) eardrum movement reported as normal?? heard a very weird flapping sound when this test was carried out too.

My life stopped over 4 months ago, I honestly have no idea how I have coped with this over this period, the noise is so severe it is impossible to describe to anyone who cannot hear it though I will give it a go, loud high pitched sound, whooshing, hissing, piercing at times, like an out of tune radio, this noise travels from my left ear, envelops my entire head & into my right ear, I now have one day out of 5 when the noise decreases, when it does, it is pure heaven.

Cannot see an end to it, at my wits end.

 

[RaZaH]

What I have done is force myself to do things, I started a small company , make/design products , work in Blender , Vegas Video, Afterfx and I even force myself to make music every now and then.
Not easy , but better then just sitting around and feeling miserable.

I feel that If I can steal a moment here and there ,that it accumulates , 3% feeling better here , 5% there etc.

 

[Don Tinny]

My tinnitus fluctuates and nearly 3 days per week I live nearly normal. But the general feeling is bad. It is difficult after 1 or 2 "moderate" days to suffer severe again. My tinnitus had almost disappeared and I made it worse after a stupid concert.

I recently saw a picture of a girl on Facebook, smiling on a beach in the early hours of the morning after going to a nightclub. She always seems to repeat that routine on holidays. Alcohol, noise ... she is really young (I am an "old young") and does not pay that with tinnitus! I can not even be a full family man. I choose to go out to eat with my wife and daughter those days where my tinnitus is more moderate, otherwise I am very affected and I am more quiet and depressed.

Honestly, I hate those drunks with guitars that left my ears like this. And I hate myself for being a heavy metal fan. If I had not gone to so many concerts my ears would be fine.

 

[GlennS]

"I hate myself for being a heavy metal fan."

Music is one of the joys of life. Don't hate it. Also, you could pick up T from other genres too, like electronica or country. Pretty much all concerts are too damn loud.

 

[linearb]

No, but I remember the feeling pretty well. At some point I just started moving forward with things because life doesn't wait.

I wish I was frozen in time when all this nonsense got real bad a decade ago, my knees and elbows and cervical spine all worked a lot better than they do now...

 

[Paulmanlike]

Hi..as for me in 32 years I really have tries most things and each time gave it a real good go ,spiritual healing ,acupuncture, sacral therapy ,osteopathy ,cranial osteopathy ,chiropractor,physio therapy,herbs ,chinese herbs. indian medicine.dentist,tmj treatment ,teeth alignment. sound therapy international ,ACR Neuromodulation.audiologists ear popper . neti pot.....some therapies a few times with different practitioners. Vitamins ,minerals high doese...on and on and on ....probably £20.000.00 all in and what have I got out of it apart from an empty wallet? Sod all

...oh and NHS and private ENT drs all the neurootology tests you can shake a stick at........lastly the only thing that ENTs have got in their armoury steroid nasal spray and Serc tablets woopy do...good luck

Just wondering, yourself being a long term tinnitus survivor, and tried all the supposed treatment, especially ACRN, are you hopeful in Neuromod?

 

[carlover]

Just wondering, yourself being a long term tinnitus survivor, and tried all the supposed treatment, especially ACRN, are you hopeful in Neuromod?

Hello buddy...I dont believe any of it works buddy ...sorry.

 

[JasonP]

I've mentioned lithium a number of times in my posts. Below is a link to an article, followed by the conclusion. -- The reference to lithium "modulating" glutmate is particularly important, as excess glutamate causes excitotoxicity, which is often present in people with tinnitus.

Lithium's Mechanism of Action: An Illustrated Review

The key points are the following:

• Lithium acts on multiple levels, from the macroscopic anatomy to microscopic intracellular signaling.
• Lithium use is associated with a neuroprotective effect, factors such as BDNF and BCL2 have been implicated in this effect.
• There are changes in brain structure associated with lithium use, some of these structures are the anterior cingulate cortex, the ventral prefrontal cortex, the hippocampus and the amygdala.
• At the neurotransmitter level, lihium modulates dopamine, glutamate and GABA neurotransmission.
• At the intracellular signaling level lithium inhibits proteins such as PKC, MARCKS, GSK-3, IPPase and IMPase

It really is amazing how the stuff works. Sometimes I get bad gas and nausea from it though. What's you

I've mentioned lithium a number of times in my posts. Below is a link to an article, followed by the conclusion. -- The reference to lithium "modulating" glutmate is particularly important, as excess glutamate causes excitotoxicity, which is often present in people with tinnitus.

EDIT to ADD: -- The "modulation" of GABA could be just as or even more important. Who knows, maybe lithium could be even more effective than benzodiazapines to help relieve the intensity of tinnitus. -- @Bill Bauer @ruben ruiz @humptydumpty69 @Bam@Greg Sacramento

Lithium's Mechanism of Action: An Illustrated Review

The key points are the following:

• Lithium acts on multiple levels, from the macroscopic anatomy to microscopic intracellular signaling.
• Lithium use is associated with a neuroprotective effect, factors such as BDNF and BCL2 have been implicated in this effect.
• There are changes in brain structure associated with lithium use, some of these structures are the anterior cingulate cortex, the ventral prefrontal cortex, the hippocampus and the amygdala.
• At the neurotransmitter level, lihium modulates dopamine, glutamate and GABA neurotransmission.
• At the intracellular signaling level lithium inhibits proteins such as PKC, MARCKS, GSK-3, IPPase and IMPase

What type of lithium do you take and how often do you take it and when? Also, do you take it with food?

 

[New Guy]

Yup.

 

[dpdx]

I feel you man, we're losing the best years of our lives!

Yup, I got it when I was 27 now I am 29. Life ruined.

 

[Holly1987]

I am reluctant to join this thread - you are all so young - and I am an old bastard of 76.
I am so upset by all of these heart wrenching life stories.
My experience of tinnitus noise is likely similar to yours. About 60 dbs of constant noise.
But I have had the opportunity of a life, and I realise of course that you are trying to cope with the terrible experience of crippled potential and lost hopes and dreams.
I am so so sorry.
I so hope a real answer can be found one day.

Obviously I don't have any curative answers, but you ask:
"Have you found something that helps you cope?"

Every morning for the last four years I have left my bed and slipped into a warm bath to do my meditation.
Having surrendered to involuntary tummy breathing I drift into a meditation where I occasionally 'think' the words:
'I hear it - and I'm okay.'

For most of the day those words follow me round and prevent the experience of too much stress.

We all want a cure, at least a treatment, and this is neither - but it does help me.

Best wishes everybody.
Dave x

Dave I'm doing something very similar and it really does work. I'm currently going through a spike, yesterday rather than panicking I lay in my bed and thought "wow it's loud today! This is shit but I'll be ok, I'm ok"

Sounds so simple but it really helps.