Far Far Far Much Better After 40 Months

[Dive Master]

Hi all! Just a word to give you hope.

I had a severe acoustic blast due to an airbag 3 years and a half ago on my left ear only. I told somewhere in the forum my story till the end of my Retigabine intake (16 monts ago I think).

I'm having 1 rTMS session per month after an initial 1 session per week over 5 weeks. Sounds like I'm fortunate to live in France : 25€ a session taken in charge by healthcare and 46€ the next session from your own pocket, then 25€ and so on.

I can't say if this major improvement is due to time, the load of medication (became wasted, a garbage), or rTMS but today:
- no bad days anymore
- no more headaches
- T is buzzing only at wake up and fades out with everyday sounds
- at wake up sometime (to stay in bed later the WE with my wife) I use 100€ PLT earphones (the sound hits the eardrum and freely goes back to the outside) at a low level. Pink Floyd/Gilmour and Celtic work the best for me
- I'm still taken in charge by my psychiatrist but for a work burn out, T is not the main subject anymore.
- I can't explain why my left ear (the T one) begins to ear again sounds in the lost frequency (ear cells are not supposed to be dead ???)

So that's it! I hope it will last... Take care you all and hang on!

 

[Agrajag364]

Congratulations and long may it continue

 

[vermillion]

I wish we could all have a kind of improvement and find some relief. I'm getting more and more frustrated each day. Congratulations for your success. No living creature on earth deserves to experience chronic tinnitus. I wish you each month to be better and better. Did retigabine helped you when you were on it?

 

[Dive Master]

@Agrajag364: this is my biggest fear, the revenge of T ! I have my survival kit always on me (with my house keys) anti-noise ear plugs, and finger in the the ear as soon as a Harley passes close to my car. Also when fire exercices are scheduled at work I go outside or leave away ASAP when not scheduled.

@vermillion: I think whithout RTG I couln't have make it. BUT my body tolerated it and second effects were really really scarry. I had reached to a point where I didn't gave a sh*t.

For both of you, your T is "young", I was given to myself 5 years to "forget it". I mean my T is still here, at a far lower level, since I can measure it, but now I manage to forget it and I experience some kind of silence. So, be patient, if you need help go to a shrink and/or a neurologist. Don't be afraid of medication if you need it, it really helps. Some kind of BZP and anti-epilepsy drugs are smooth enough to induce no addiction.

 

[Bill Bauer]

Also when fire exercices are scheduled at work I go outside or leave away ASAP when not scheduled.

You could bring Peltor muffs with you to work, in case of a fire alarm or a fire drill.

 

[Dive Master]

In French Murphy's law is translated by "LEM = Loi de l'Emmerdement Maximum", the time you need it, you can't find it or have forgotten it home...