Does anyones t actually sound like that sample in the movie? Sounds absolutely frigging awful.
First, a stupid question... What IS his tinnitus sound? I've listened to the entire video 3x now at max volume, and I can't even tell where it is demonstrated... Is it just the quick moment of what sounds like "feedback" when his earphones are tapped?
If so then yeah, mine is like that, too... I have somewhere between 4-6 constant high pitched tones between both ears (one of them pulses a bit, but the rest are just static ringing); some are higher in pitch than his, some a tad lower. Not quite as loud as the video with everything at full volume, but close. (I didn't even hear the pitch the first two times...)
That said, I've had tinnitus since I was a young child (otosclerosis + near constant ear infections), so I have literally no idea what silence sounds like. As a result, I've just gotten used to it I guess, it doesn't really bother me all that much in and of itself. The effects bother me (having to ask people to repeat themselves because I didn't hear them, for example), but I honestly don't even hear the sounds most of the time... (Though they've been getting louder since I hit my mid-30s.)
------------
But... I don't believe in good or bad publication... if there is an opportunity to reach the attention of millions this will give awareness a new boost.
If a butterfly can cause a hurricane, maybe this movie can do more
Secondarily, I have to wonder if it's just going to promote the "its not that bad" mentality that I've seen other groups have to deal with...
For example, Rainman (which actually wasn't based on a man with autism (it was based on Kim Peek), though people think it is), Scorpion (the boy in the main cast was said to have autism in the beginning, though it turns out he was intellectually gifted, instead), Touch, House of Cards (the Lifetime movie special, not the television series), and others... These television and movie depictions have seemed to promote the "everyone with autism has a gift" -- whether it be numbers, architecture, intelligence, art, etc -- which simply isn't true. To the point where when parents or people with ASD have said that they/their child have/has autism, and the first question they get asked is "so what do you/does he do?"
Unless they go into the fact that the teen is
(negatively) affected by this condition (not just his situation of "driving for bad people"), I'm not sure that this is the type of awareness that will do anyone any good... (I've already seen someone with tinnitus who came into a chronic pain chat channel, and was told that the channel was for people who were "actually suffering"...)
I feel like this level of awareness will come with confusion, so we should be ready to explain stuff to set things straight. A friend already sent me the link to the trailer of this movie and told me that I should try listening to loud music like the lead character to drown out the ringing. He also told me he didn't know T could be so bad ass. Ooooh boy. I had my work cut out for me. This on top of dealing with people I know who already came up with various superhero names for me because of my H. They all mean well but they don't see the severity of these ear conditions.
Whoopsie doodle. That's what I get for not reading the entire thread before responding.
But yeah, so much this...