I Will Not Live with My Tinnitus

[foliefortuna]

I have been diagnosed TMJ disorder induced tinnitus. I am very sure this is what it is because my audiogram revealed no hearing loss and my jaw makes funny popping noises.

My TMJ issues started when I was 13 and the tinnitus began when I was 15. I have been dealing with it for about a year now.

I am going to a doctor to see what can be done about my TMJ disorder. If my tinnitus cannot be gone completely, I do not want to be alive.

I cannot stand it, I don't want to die but I refuse to live with this ringing.

 

[just1morething]

I am going to a doctor to see what can be done about my TMJ disorder. If my tinnitus cannot be gone completely, I do not want to be alive.

You are only 17 or so according to your timeline and TMJ disorder can be fixable, so see what a TMJ specialist has to say. My left jaw clicks too. Your tiny ear muscles/Eustachian tubes could be affected by TMD making it seem so loud. Do you have hissing or ringing or both?
Here's a link:

https://managebackpain.com/tmj-pain/tmj-tinnitus

This is where I went:

http://mncranio.com/

 

[foliefortuna]

What do you mean?

 

[MBH]

Threefirefour also has Tmj and is working on lowering T you can look at his posts he talks about his Tmj and how he deals with it.

 

[fishbone]

Your attitude determines how you will act/re-act and live. Tinnitus is not pleasant at all, but you can still live your life.

We need to take caution when our ears ring, but we can still enjoy our lives. It just takes mental discipline and a positive attitude. It takes time to adjust to the tinnitus. It can be done. I have gone through the low hiss/horrible hyperacusis to now having it being VERY loud and I still live a life I can enjoy.

Living a life we can enjoy, does not mean that we need to be around loud noises and places either. Do something safe (for your ears) and just distract yourself from the noise. Try not to listen for the noise and try not to focus if you hear the ringing or not. I have full empathy for all that suffer, because I am part of the club too. My mentality is just different and i lean on positivity.

This forum will support you, don't ever give up

 

[Bill Bauer]

I cannot stand it, I don't want to die but I refuse to live with this ringing.

Give yourself at least a year or two, before doing anything irreversible. Ears take forever to heal. But T fades for many people.

Check out the thread below for studies that might give you a sense of what fraction of people experience their T falling silent
https://www.tinnitustalk.com/threads/spontaneous-recovery-stats-many-recover-3-studies.21441/

 

[Carlyi]

I have also ringing due to TMJ, it truly is hard to live with and jaw pain and ringing in the ears. You are young and your TMJ can go away. What helps me is doing jaw exercises everyday.

 

[glynis]

Jaw exercises and wearing a mouth guard and cutting food up small and apples in half and no crunching sweets etc can help.
We are all here to give round the clock support.
Love glynis x

 

[Billlf]

Was in exact same place a year ago. Stopped sleeping, stopped eating. Thought I might have to end it myself. Chased after a hundred solutions. Time was all I needed. It will get better. im 99% better. Trust in time. Your brain is an incredible thing. Habituation will happen. You will be ok.

 

[foliefortuna]

I have also ringing due to TMJ, it truly is hard to live with and jaw pain and ringing in the ears. You are young and your TMJ can go away. What helps me is doing jaw exercises everyday.

But your ringing has not gone away?

 

[foliefortuna]

Give yourself at least a year or two, before doing anything irreversible. Ears take forever to heal. But T fades for many people.

Check out the thread below for studies that might give you a sense of what fraction of people experience their T falling silent
https://www.tinnitustalk.com/threads/spontaneous-recovery-stats-many-recover-3-studies.21441/

Irreversible as in killing myself or getting some risky surgery?

 

[threefirefour]

Was in exact same place a year ago. Stopped sleeping, stopped eating. Thought I might have to end it myself. Chased after a hundred solutions. Time was all I needed. It will get better. im 99% better. Trust in time. Your brain is an incredible thing. Habituation will happen. You will be ok.

>Says the fella who is still here

 

[foliefortuna]

To that dilemma experienced by all those who have tinnitus is called habituation: The middle point between not being able to die or live with this.

I can die but I do not want to. I would prefer death to living with it.

 

[Raphael7713]

To that dilemma experienced by all those who have tinnitus is called habituation: The middle point between not being able to die or live with this.

When/if you get 100% habituated as I did (until my setback), trust me, u start living again as if you dont have T.

 

[Bill Bauer]

Irreversible as in killing myself or getting some risky surgery?

I was talking about suicide.

As you weight the costs and benefits of a risky surgery, take into account the fact that your T might eventually (i.e., in one year) fade without any surgery.

 

[foliefortuna]

When/if you get 100% habituated as I did (until my setback), trust me, u start living again as if you dont have T.

I don't ever want to get used to this lower quality of life. It is worse than the chronic ache in my legs or any disease/disorder I have had. I would rather be dead. I will not accept hearing a ringing in my ears for the next 60 years of my life.

 

[dpdx]

I don't ever want to get used to this lower quality of life. It is worse than the chronic ache in my legs or any disease/disorder I have had. I would rather be dead. I will not accept hearing a ringing in my ears for the next 60 years of my life.

When you open your jaw does it click? Do you have jaw pain?

 

[Dginobile]

@Raphael7713 what set you back if you don't mind me asking

 

[Bill Bauer]

Habituation does not exist, there is only the point at which all (the majority) realize it is not capable of killing itself and that only remains to live with this nightmare.

I think that everything depends on the volume and on one's personality. Some people are not bothered by sound. Others are more sensitive. I believe it is possible to habituate to moderately loud T and to quieter T.

 

[foliefortuna]

When you open your jaw does it click? Do you have jaw pain?

I have a clicking and crackling jaw and shots of pain through my ears.

 

[attheedgeofscience]

I have been diagnosed TMJ disorder induced tinnitus. I am very sure this is what it is because my audiogram revealed no hearing loss and my jaw makes funny popping noises.

The absence of hearing loss ‒ or even observable hearing loss ‒ has little value for determining the cause of tinnitus. Patient history (e.g. prior medication usage, a history of noise exposure, illnesses, etc.) is what can help you elucidate your etiology.

By simple empirical observation among the population, noise exposure is likely your cause (simply because that is the case for as many as 90% of those who develop tinnitus...).

Hope that helps.

 

[Bill Bauer]

I will not accept hearing a ringing in my ears for the next 60 years of my life.

T tends to change. Often, it fades. The sound you are being tormented by now is likely not the sound that you will be stuck with.

 

[Raphael7713]

@Raphael7713 what set you back if you don't mind me asking

Well I got my tinnitus in january last year. So more or less exactly a year ago. By november last year, approx 9-10 months after my T, I reached a point where it never bothered me at all, only sometimes in the mornings when I was newly awake. Even my friends said "hey you dont talk about your T anymore, is everything better?". I can honestly say I reached a point where I felt and lived exactly the way I did before T. This was until exactly 1 week ago when Im sitting at home and watching Black mirror at 03 in the morning. This sudden high pitched "peep" appears and I thought it would go away. One week later its still here and I can hear this one everywhere. Over tv, music, outdoors....from absolutely nowhere.

 

[dpdx]

T tends to change. Often, it fades. The sound you are being tormented by now is likely not the sound that you will be stuck with.

this is true, my T sounds different every day

 

[Raphael7713]

I am living life as before, like you, with the difference, that now I think I am living in a endless nightmare, that my birth was actually a condemnation and that this world is hell, before I had my doubts about this, now I am sure.

Habituation does not exist, there is only the point at which all (the majority) realize it is not capable of killing itself and that only remains to live with this nightmare. If you want you could call this, habituation, which is not that you do not notice the noise, it is simply the middle point, and without escape, between not being able to live or die with this.

Thats bullshit cause I'm a living proof of it existing, and so are many other. Like I've said a couple of times, if you would ask me before this setback, I would say Im feeling and living exactly the way I did before T. It took me 10 months, but I got there.

 

[just1morething]

I have a clicking and crackling jaw and shots of pain through my ears.

You need to get a circular cone beam scan like @Greg Sacramento says in this post. I'm going to get another one in a week or so. I'm seeing a different TMJ Dr. than in the past. My noise is brutal today, but you must be proactive. What is our choice?

https://www.tinnitustalk.com/threads/new-to-tinnitus-and-falling-into-depression.22172/#post-254252

 

[threefirefour]

Thats bullshit cause I'm a living proof of it existing, and so are many other. Like I've said a couple of times, if you would ask me before this setback, I would say Im feeling and living exactly the way I did before T. It took me 10 months, but I got there.

Well I'm sure we can't wait for you to finish so you can go back to not being here -_-

 

[Raphael7713]

Well I'm sure we can't wait for you to finish so you can go back to not being here -_-

I actually didn't visit this site since october. But i've made a promise to myself that IF I someday reach 100% habituation or even get cured, I will still be around here to help others.

 

[threefirefour]

I actually didn't visit this site since october. But i've made a promise to myself that IF I someday reach 100% habituation or even get cured, I will still be around here to help others.

I think we have too many of those but thanks.

 

[Raphael7713]

I think we have too many of those but thanks.

You cant get too many of them. Everyone has something to come with, something the other guy maybe have no clue about etc.