Member- Dec 24, 2013
- 933
- Tinnitus Since
- (1956) > 1980 > 2006 > 2012 > (2015)
- Cause of Tinnitus
- Ac. Trauma & Ac.Trauma + Meds.
This really sort of belongs in my initial thread that @Markku "pegged" at the top of the Support Page here, as he must have thought it was important...and refuses to take it down as of yet. *(Hugs Markku!)
https://www.tinnitustalk.com/thread...lks-still-hurting-suffering-and-silent.11457/
Anyway, maybe I also owe people an explanation for some of my more cryptic comments about folks getting way ahead of themselves talking "locations and venues" for a meet-up that, to my mind, was waaaaay getting ahead of the realities of what I had in mind for a "meeting", or the likelihood of any of that even happening.
Indeed, there is nothing wrong with putting up pretty pictures of nice places where it would be cool to actually see and hug other T sufferers, etc. but Geeezuz, when you consider just geographic locations of us all...the logistics alone are daunting! Thus, my interim suggestion for doing new, "Geographical or large metropolitan areas Regional Threads" at a minimum, and thus keeping the main overall thread I had written "on topic" and not side-tracked with only one 'item' and something that would never happen.
My firm opinion (and see how much work @attheedgeofscience has put into this aspect of actually 'doing stuff in the real world v. just posting information about doing stuff), is that a "proper" Meet-up as I envisioned it in the original post - which has the words: long term T folks; still hurting; suffering, etc... is it has to cater to serious T folks who cannot go to cities, or restaurants, or public places, and so forth, without extreme caution or fear. And that is not what we want for a "place" for a winding down of our already stressful existences living with this darn affliction. Just the travel alone could be incredibly daunting, so it is critical to have a place of respite to "recover in". Etc., etc., etc.
So, as the mood seemed to be getting a bit more upbeat and light (which is not how even a simple trip to a grocery store is for me - or others implied above)...I sort of decided to set up an organizing structure "in private" first, with a few other folks plus Markku, then later present that as a starting point.
The premise being, a serious more longer term meet-up, than just getting together for a day in NYC or whatever, would take a tremendous amount of planning and work...and this would all be pure blow-off waste of energy if the initial structure was not enticing, and possible, and REAL enough to draw members into actually committing to it.
I have organized this type of thing before, and if you do not have a pretty darn good list of ideas about why one is having such a meeting, what the hopes are, or even the basic daily outline of how it might look...forget about "place". As one cannot even consider that yet. I mean think about it! What if only 5 people committed to meeting versus say 20 people?! Huge difference in possible venue impact right there, let alone region in the world and so forth.
And how do you get to know how many people might commit??? You have to explain just what you hope to do, achieve, come away with, and so on...notwithstanding simple critical things like: Uhhhhh...what may this cost in monetary terms?!
You seeing this??? If we have the groundwork done, THEN we may even be able to be specific enough to zero in on a region, or request of the wider T community, and maybe even have a millionaire benefactor offer a pro bono spa, or rural estate, or camping site, or god knows...as a "place" to consider.
Apart from informal, "feel good", more local get-togethers - which are totally a cool idea...talking place, is well, a waste of thread space right now. To me.
OK lastly, and somewhat of a "downer" after all that - but also exactly the kinds of limitations I am talking about in the real world of trying to do something like this!!!
I am on hold with any organizing of this "meet-up" due to yet another increase in my tinnitus volume, as of a 3 hour speakerphone-call with a TT member this past Tuesday night. Of course, at the time I did not know I was being "damaged", but after the fact it was obvious. Just like fucking 2012. This shit is so cruel!!!
Anyhow, I have been too freaked out to concentrate on much and have no desire for phone-calls or the dangers of travel, or meeting others, etc., etc. I need to get through this first. Anyone who has had new levels of T that do not go down fairly soon (like my "spikes" always do) know the fear here. However, a bit late (3 days after) I am hammering 40 mg of Prednisone and I think it is helping and bringing the volume down closer to the hellish level it already was...but that at least I was used to, and could finally "ignore" mostly, in my own quiet home. [My sound reactivity and H is the biggest problem].
So apologies. I was not just blowing smoke about a serious meet-up. But for now, I am not doing much about it...If anyone else wants to, FEEL TOTALLY FREE TO DO SO!!!
Fingers crossed for corticosteroids! Zimichael
https://www.tinnitustalk.com/thread...lks-still-hurting-suffering-and-silent.11457/
Anyway, maybe I also owe people an explanation for some of my more cryptic comments about folks getting way ahead of themselves talking "locations and venues" for a meet-up that, to my mind, was waaaaay getting ahead of the realities of what I had in mind for a "meeting", or the likelihood of any of that even happening.
Indeed, there is nothing wrong with putting up pretty pictures of nice places where it would be cool to actually see and hug other T sufferers, etc. but Geeezuz, when you consider just geographic locations of us all...the logistics alone are daunting! Thus, my interim suggestion for doing new, "Geographical or large metropolitan areas Regional Threads" at a minimum, and thus keeping the main overall thread I had written "on topic" and not side-tracked with only one 'item' and something that would never happen.
My firm opinion (and see how much work @attheedgeofscience has put into this aspect of actually 'doing stuff in the real world v. just posting information about doing stuff), is that a "proper" Meet-up as I envisioned it in the original post - which has the words: long term T folks; still hurting; suffering, etc... is it has to cater to serious T folks who cannot go to cities, or restaurants, or public places, and so forth, without extreme caution or fear. And that is not what we want for a "place" for a winding down of our already stressful existences living with this darn affliction. Just the travel alone could be incredibly daunting, so it is critical to have a place of respite to "recover in". Etc., etc., etc.
So, as the mood seemed to be getting a bit more upbeat and light (which is not how even a simple trip to a grocery store is for me - or others implied above)...I sort of decided to set up an organizing structure "in private" first, with a few other folks plus Markku, then later present that as a starting point.
The premise being, a serious more longer term meet-up, than just getting together for a day in NYC or whatever, would take a tremendous amount of planning and work...and this would all be pure blow-off waste of energy if the initial structure was not enticing, and possible, and REAL enough to draw members into actually committing to it.
I have organized this type of thing before, and if you do not have a pretty darn good list of ideas about why one is having such a meeting, what the hopes are, or even the basic daily outline of how it might look...forget about "place". As one cannot even consider that yet. I mean think about it! What if only 5 people committed to meeting versus say 20 people?! Huge difference in possible venue impact right there, let alone region in the world and so forth.
And how do you get to know how many people might commit??? You have to explain just what you hope to do, achieve, come away with, and so on...notwithstanding simple critical things like: Uhhhhh...what may this cost in monetary terms?!
You seeing this??? If we have the groundwork done, THEN we may even be able to be specific enough to zero in on a region, or request of the wider T community, and maybe even have a millionaire benefactor offer a pro bono spa, or rural estate, or camping site, or god knows...as a "place" to consider.
Apart from informal, "feel good", more local get-togethers - which are totally a cool idea...talking place, is well, a waste of thread space right now. To me.
OK lastly, and somewhat of a "downer" after all that - but also exactly the kinds of limitations I am talking about in the real world of trying to do something like this!!!
I am on hold with any organizing of this "meet-up" due to yet another increase in my tinnitus volume, as of a 3 hour speakerphone-call with a TT member this past Tuesday night. Of course, at the time I did not know I was being "damaged", but after the fact it was obvious. Just like fucking 2012. This shit is so cruel!!!
Anyhow, I have been too freaked out to concentrate on much and have no desire for phone-calls or the dangers of travel, or meeting others, etc., etc. I need to get through this first. Anyone who has had new levels of T that do not go down fairly soon (like my "spikes" always do) know the fear here. However, a bit late (3 days after) I am hammering 40 mg of Prednisone and I think it is helping and bringing the volume down closer to the hellish level it already was...but that at least I was used to, and could finally "ignore" mostly, in my own quiet home. [My sound reactivity and H is the biggest problem].
So apologies. I was not just blowing smoke about a serious meet-up. But for now, I am not doing much about it...If anyone else wants to, FEEL TOTALLY FREE TO DO SO!!!
Fingers crossed for corticosteroids! Zimichael
