Introducing Tinnitus Quest

[Nick47]

I also had to stop taking Gabapentin because my kidneys could not tolerate it.

Did your eGFR drop, or are you experiencing kidney pain?

 

[Fightthearmy]

I still cannot wrap my head around the results reported by Dr. Pulec. Over his career, he treated 151 patients, achieving complete relief of tinnitus in 101 of them and worthwhile improvement in 43 others…

@HighleyTall, obviously, a resolution on this procedure is long overdue. I only recently heard about this treatment, which supposedly reduces tinnitus in the majority of subjects. However, the only person who could perform it was a surgeon who passed away 22 years ago—and he is not mentioned even once on the ATA's website.

Do you realize how bizarre and unsettling that sounds?

I'm not suggesting that Dr. Pulec's procedure is unsound. It is certainly invasive, but given the lack of near-term options and the severity of our suffering, we need answers now.

 

[HighleyTall]

Did your eGFR drop, or are you experiencing kidney pain?

I experienced kidney pain, so I started hydrating more, but the pain persisted. However, after stopping Gabapentin, it went away.

Now, the only thing that provides me with any relief is opioids.

@HighleyTall, obviously, a resolution on this procedure is long overdue. I only recently heard about this treatment, which supposedly reduces tinnitus in the majority of subjects. However, the only person who could perform it was a surgeon who passed away 22 years ago—and he is not mentioned even once on the ATA's website.

Do you realize how bizarre and unsettling that sounds?

I'm not suggesting that Dr. Pulec's procedure is unsound. It is certainly invasive, but given the lack of near-term options and the severity of our suffering, we need answers now.

Bizarre? Did you read his study? No. He saved lives. Is it invasive? Yes. But if you are tortured with burning ears, sensations on your face and skull, migraines 24/7, and every sound is unbearable; this is just plain inhuman.

Jack was an outstanding figure in modern clinical neuro-otology.

 

[Fightthearmy]

I experienced kidney pain, so I started hydrating more, but the pain persisted. However, after stopping Gabapentin, it went away.

Now, the only thing that provides me with any relief is opioids.

Bizarre? Did you read his study? No. He saved lives. Is it invasive? Yes. But if you are tortured with burning ears, sensations on your face and skull, migraines 24/7, and every sound is unbearable; this is just plain inhuman.

Jack was an outstanding figure in modern clinical neuro-otology.

Yes, if a life-saving treatment had been around for decades, there would surely be a doctor capable of offering it despite Dr. Pulec's passing. You'd also expect it to be actively researched, with experts like Dr. Rauschecker or Dr. de Ridder involved. Additionally, there should be numerous entries about Dr. Pulec on this site.

The fact that none of this applies—I find that bizarre.