Next Thursday it will be 6 months with the onset of T. Time flies, when you are having fun
First I want to thank this forum and all of you guys! This forum is very encouraging and people here are so lovely, I have warm feelings for every each person here. I have seen desperate Newbies getting advice from the "Oldies" and then I have seen the new people turning to help the latest in the Forum. I really want to give a virtual hug for everyone. I have been here reading these stories like a crazy person for 6 months and now it is my time to try to contribute or at least tell my story.
How did I got the T
It was a really bad night out in a lousy club, horrible loud music played by the most miserable drunken band ever. I was there with my friends - there are okay lol. Looked back on my history with loud noises and the history was indeed impressive; I have always loved dancing – it has been my thing when I was younger, done aerobics, giving classes myself and done loud sport hobbies, night clubs – you name it. It is cumulative for me and appeared after that stupid night.
Feelings
I felt like nearly everyone here at the beginning: angry, panic, frustration, sadness... And I lost some weight, didn't see any light in the tunnel, I was counting, how many years I still "have to be here" etc. I am a mother and I felt sad for my kids – they would have to deal with a very depressive mom. My husband tried to comfort me (BTW I found out that he has a T, but he has never even mentioned about that and he don't care about it at all lol)
Time for action – things I did (my new hobby was trying to ease my pain)
- HBO x 6 times at the Tinnitus clinic (It was after the new year's fires and many people in the chamber got T from the fireworks. It was good to talk with the others before the treatment)
- Physiotherapy x 10 (Was more relaxing than anything, very empathetic guy)
- Sound therapy (got the music files from the clinic, started to listen them at work every day, my frequency was edited off the files, I still use the files)
- Saw doctors, psychologist, fellow t-people etc, took some time off from work (I first had T in my left ear only, or that was how I felt, they wanted to do a MRI, Warning: it was SOOOOO loud, I panicked and I think it made my right ear worse, I was so angry after that, also after "they" syringed my ears, "just in case" before the hearing test OMG. The hearing test showed a hearing loss in the left ear, even 30 db, but later on it disappeared (another test) Go figure…But I know I can't here the most highest frequencies, that are not shown in the normal test
- Started to take vitamins: Magnesium, Zink, B 12, fish oil etc. Ginko "what ever that is" bilboa
- I changed my hobbies: Bodycombat activities to outdoor sport, I haven't been in the night club since etc.
- And finally I made "them" prescribe me Betaserc. My doctor said: "it is not going to help". I had the recipe in my purse for week and then after one desperate week I started to take that. And you know what: It helped me immediately. I had a bad migraine, I sat in the bath tub crying at night, but I could immediately feel that the medicine that I just took did "something". Was I one of the lucky ones with this medicine? It made a big hizz to my brain, but I got used to it. The PEEEP-sound started to faint away. I ate that medicine at least 3 months
- I made custom made ear plugs in case of I know there is going to be a lot of noise, I started to protect my ears
- I talked with some people that I knew had T, and really bad ones, (I couldn't understand why my T that was not loud was bothering me so much and they were okay)
- I looked for the succes stories from TT, (in my country not many positive things in the internet)
Where I am now
My T is now very very mild there has been a big change towards better! T is lower in frequency and I can detect it only of I plug my ears really well with my fingers. Sometimes I even think it is totally gone – but I know it isn't. It doesn't bother my sleep. In the mornings it can be a little bit more noticeable, but I have to kind of find it and I am not that angry to it any more.
I have fear of loud noises, but not that much as in the beginning. I have had a lot of good days. Sometimes the fear of the future messes my mind, but I try to work on that too. I have another more serious health issue in the family (also with the ears) and maybe that is why I react so strongly to this condition. I have been depressed, but I think I can see the light. I enjoy the happy moments more, I actually live healthier life etc.
I respect you all!
First I want to thank this forum and all of you guys! This forum is very encouraging and people here are so lovely, I have warm feelings for every each person here. I have seen desperate Newbies getting advice from the "Oldies" and then I have seen the new people turning to help the latest in the Forum. I really want to give a virtual hug for everyone. I have been here reading these stories like a crazy person for 6 months and now it is my time to try to contribute or at least tell my story.
How did I got the T
It was a really bad night out in a lousy club, horrible loud music played by the most miserable drunken band ever. I was there with my friends - there are okay lol. Looked back on my history with loud noises and the history was indeed impressive; I have always loved dancing – it has been my thing when I was younger, done aerobics, giving classes myself and done loud sport hobbies, night clubs – you name it. It is cumulative for me and appeared after that stupid night.
Feelings
I felt like nearly everyone here at the beginning: angry, panic, frustration, sadness... And I lost some weight, didn't see any light in the tunnel, I was counting, how many years I still "have to be here" etc. I am a mother and I felt sad for my kids – they would have to deal with a very depressive mom. My husband tried to comfort me (BTW I found out that he has a T, but he has never even mentioned about that and he don't care about it at all lol)
Time for action – things I did (my new hobby was trying to ease my pain)
- HBO x 6 times at the Tinnitus clinic (It was after the new year's fires and many people in the chamber got T from the fireworks. It was good to talk with the others before the treatment)
- Physiotherapy x 10 (Was more relaxing than anything, very empathetic guy)
- Sound therapy (got the music files from the clinic, started to listen them at work every day, my frequency was edited off the files, I still use the files)
- Saw doctors, psychologist, fellow t-people etc, took some time off from work (I first had T in my left ear only, or that was how I felt, they wanted to do a MRI, Warning: it was SOOOOO loud, I panicked and I think it made my right ear worse, I was so angry after that, also after "they" syringed my ears, "just in case" before the hearing test OMG. The hearing test showed a hearing loss in the left ear, even 30 db, but later on it disappeared (another test) Go figure…But I know I can't here the most highest frequencies, that are not shown in the normal test
- Started to take vitamins: Magnesium, Zink, B 12, fish oil etc. Ginko "what ever that is" bilboa
- I changed my hobbies: Bodycombat activities to outdoor sport, I haven't been in the night club since etc.
- And finally I made "them" prescribe me Betaserc. My doctor said: "it is not going to help". I had the recipe in my purse for week and then after one desperate week I started to take that. And you know what: It helped me immediately. I had a bad migraine, I sat in the bath tub crying at night, but I could immediately feel that the medicine that I just took did "something". Was I one of the lucky ones with this medicine? It made a big hizz to my brain, but I got used to it. The PEEEP-sound started to faint away. I ate that medicine at least 3 months
- I made custom made ear plugs in case of I know there is going to be a lot of noise, I started to protect my ears
- I talked with some people that I knew had T, and really bad ones, (I couldn't understand why my T that was not loud was bothering me so much and they were okay)
- I looked for the succes stories from TT, (in my country not many positive things in the internet)
Where I am now
My T is now very very mild there has been a big change towards better! T is lower in frequency and I can detect it only of I plug my ears really well with my fingers. Sometimes I even think it is totally gone – but I know it isn't. It doesn't bother my sleep. In the mornings it can be a little bit more noticeable, but I have to kind of find it and I am not that angry to it any more.
I have fear of loud noises, but not that much as in the beginning. I have had a lot of good days. Sometimes the fear of the future messes my mind, but I try to work on that too. I have another more serious health issue in the family (also with the ears) and maybe that is why I react so strongly to this condition. I have been depressed, but I think I can see the light. I enjoy the happy moments more, I actually live healthier life etc.
I respect you all!