Poll: Did ACRN (Acoustic Coordinated Reset Neuromodulation) Help You?

[threefirefour]

Did ACRN (Acoustic Coordinated Reset Neuromodulation) help your tinnitus?

If so, how, and for how long was it helpful if not permanently.

If it "helped you live with it", then it didn't help you and please don't comment it; just say no.

Oh and if you haven't done it don't vote.

 

[Shem]

Haven't done it, but would like to know the results of the poll. Will it be visible at some point?

 

[threefirefour]

Haven't done it, but would like to know the results of the poll. Will it be visible at some point?

I thought it was. Oh well. As of 3:39, october 17 2017:

73.3% said no
20% said it helped lower MML
6.7% said it reduced tinnitus for a day
0% said it permanently reduced it.

 

[Shem]

Thank you.

 

[Lane]

Oh and if you haven't done it don't vote.

But you can't see the results until you vote. I voted "no", even though I've never done it, just so I could see the results. I'm guessing most of the "no's" fall in the same category. Which likely skews the results dramatically.​

 

[threefirefour]

But you can't see the results until you vote. I voted "no", even though I've never done it, just so I could see the results. I'm guessing most of the "no's" fall in the same category. Which likely skews the results dramatically.​

Lowkey me too

 

[Frédéric]

If I understand correctly, it is "funny" to see that the owner of the "patent" of the Acoustic Coordinated Reset Neuromodulation changed twice :
first, it was Adaptive Neuromodulation Medical GmbH,
second, it was Neurotherapies Reset GmbH: http://www.neurotherapiesreset.com/ (domain expired)
third (now), it is Desyncra Opeerating GmbH: https://www.desyncra.com/neuromodulation/

See a recent study on this device: https://www.frontiersin.org/articles/10.3389/fmed.2018.00288/abstract
I don't know what to think about it. What are your opinions?

 

[Steve]

I voted no because I was on the UK trial. It made mine worse.

Other potential factors than just the treatment:

• In-ear earphones not comfortable for me, sound not nice
• Listened for too long at times, I don't believe any audio without much variability should be listened to for an extended period
• Matching to the most prominent tone potentially flawed, maybe it is only suitable for single tone tinnitus rather than for people with multiple tones
• Tone matching not precise enough, although the methodology seemed good at the time

 

[threefirefour]

I voted no because I was on the UK trial. It made mine worse.

Other potential factors than just the treatment:

• In-ear earphones not comfortable for me, sound not nice
• Listened for too long at times, I don't believe any audio without much variability should be listened to for an extended period
• Matching to the most prominent tone potentially flawed, maybe it is only suitable for single tone tinnitus rather than for people with multiple tones
• Tone matching not precise enough, although the methodology seemed good at the time

Sucks it made it worse. Was it temporary? Thanks for being on the trial by the way.

 

[Steve]

Sucks it made it worse. Was it temporary? Thanks for being on the trial by the way.

Nope, it made it permanently worse. I kind of wish I hadn't bothered. I ended up with more tones after using the device.

Just like the recent (tentative) research presented questioning use of white noise, I believe that continued exposure to any sound source that is relatively unchanging is bad, maybe just bad for the damaged auditory system as we have a lot more that a healthy system to contend with.

 

[PortalNaut]

It has definitely helped. Once the physical trauma (if any) is healed up, then I moved to reprogramming steps.

In my experience, it is not so much find a frequency then play T for hours and hours. My T varies a fair bit, from 8k-12k. And so I would adjust the main T frequency several times a day. Usually I would listen to it, when using in depth, for 5 minutes at a time, for 3-8 times a day....not hours at a time.

 

[Frédéric]

For the big fans of Mathematics, see this dissertation of a student on a abstract model of tinnitus (why it is sustained) and its potential suppression via ACRN. The full article in pdf is open access but is too large to be uploaded here.

https://smartech.gatech.edu/handle/1853/62845

 

[DaveFromChicago]

I have reiterated at least six times that my 5 hour per day, 36 month usage of Desyncra (at a cost of $5,269.00) was as useless as shining a flashlight on my head would have been.

 

[Thuan]

Just to chime in my experience. The ACRN tool at generalfuzz.net/acrn/ somewhat worked for me. My tinnitus volume is the same but the frequency changed. My constant tinnitus sound like an "eeeeee" all the time but after playing it at 4000Hz (it doesn't work for other frequencies), it changed it to a "sshhhh" static sound. I tried this in a quiet room, with windows and doors all closed at the early morning hours.

However, this effect gets broken with any moderate noise. Whenever I open the window which lets in a lot of background noise, the "shhhh" static sound resets back to a high pitched "eeeee". Replayed the sequence tone in a quiet room, it changed it back into a static "shhhh". Another note is that it resets back to an "eeee" sound after awhile even with no interruption. So it is temporary and I'll have to replay the sequence tone again to change it back to "shhhh" static sound.

Hell, I'll take a static shhhh than a high pitched eeee. It's much more tolerable for me. I just wished it doesn't reset so easily! I'm actually kind of blown away by this.

I just hope my head doesn't acclimate like it does with sound maskers. Sound maskers doesn't work after awhile.

Note: You really gotta find the correctly frequency. I tried 3000Hz, 3500Hz, 4500Hz, 5000Hz, 6000Hz, and etc, and it didn't work. Only 4000Hz works for me...