Saddest Thing About Your Tinnitus?

[ifilip]

The saddest thing for is that when I went first time to the ENT about my tinnitus she only gave me Betaserc and some Magnesium vitamins. She told me if Beteserc will not help in 2 weeks then nothing will. How foolish!

She did not tell me about other treatments such as Cortisone injection or Hyperbaric oxygen treatment. Because of that it was too late when I took those treatments (1 month after tinnitus started) and they didn't help.

Generally I think basic ENTs have very little knowledge about tinnitus and do not understand how important it is to have treatment fast. They usually just prescribe some medicine and tell to wait, when waiting is something you should not do.

 

[JohnnyMx]

I visited "the best ENT of the city", and 70 years old doctor. Hundreds of Californians come to see this ENT.

I discovered he was most of a Hearing Aids seller... he was completely un able to treat, or make any valueble advise about Tinnitus.

So, sad to tell this, but most of ENTs does not have a clue more than diagnosing sore throats.

 

[jimH]

The anxiety and wearing down of the mind and spirit that occurs when it's bad for a number of consecutive days. It can sabotage the joy in one's life when it's bad. However, I am grateful that I no longer have H. Although, I suppose that it could return.

So many years of having to endure it without anyone understanding me, made me feel so isolated and alone. I just stopped talking about it to my family.

Additionally, that three ENT's that I went to see over the years told me that there weren't any treatments for it nor was there anything that was being developed or tested that could have given me some hope. (that was years ago).

 

[Raphael7713]

Saddest thing about tinnitus is the most obvious things that come along with tinnitus. Lack of enjoyment and happiness (thou I must admit, I often feel very good...but now im in a valley at the moment).

 

[Tami Jean]

Saddest thing......the days you can't focus on anything else but the tinnitus (like today....sigh)

 

[sanj100]

The anxiety and wearing down of the mind and spirit that occurs when it's bad for a number of consecutive days. It can sabotage the joy in one's life when it's bad. However, I am grateful that I no longer have H. Although, I suppose that it could return.

So many years of having to endure it without anyone understanding me, made me feel so isolated and alone. I just stopped talking about it to my family.

Additionally, that three ENT's that I went to see over the years told me that there weren't any treatments for it nor was there anything that was being developed or tested that could have given me some hope. (that was years ago).

This sounds so sad. I noticed in your bio that it says you've had tinnitus for 30 plus years. Im curious, how did you get tinnitus? Has it always been as bad as it is now? Did you not habituate/get used to it over time?

 

[jimH]

@sanj100 ...There's someone else that wrote to me before you that I have to answer first. I'll answer your questions in a PM tomorrow.

 

[Bill Bauer]

She did not tell me about other treatments such as Cortisone injection or Hyperbaric oxygen treatment.

I was able to see an ENT four days after onset. He didn't tell me about Cortisone injections, and I know that that could have been effective...

 

[Alue]

I was able to see an ENT four days after onset. He didn't tell me about Cortisone injections, and I know that that could have been effective...

I saw an ENT a couple days after onset. She told me she could do IT injections in addition to the oral prednisone. Thinking that my T would probably go away or subside and not knowing any better I decided to hold off on the ear injections.

I have no idea if it would have helped or not. There is not a lot of evidence that it is effective for noise induced tinnitus. I think a lot of times there isn't much you can do. If you are in the first week or so it's worth a shot for sure, but at the end of the day I think a lot of it comes down to luck of the draw.

 

[Kolisar]

The saddest thing about my tinnitus?:

The fact that the relentless torture caused by something that everyone in your life thinks is "just a little ringing" can drive you to considering taking your own life on a daily basis, and because no one thinks that tinnitus is a real problem no one cares enough to even see that you are struggling, let alone help.

 

[Fangen]

Like the people above, I was never told about the stereoids. I called an ENT a few days after the concert as I knew something was off. The nurse told me about stereoids and when I was booking a meeting with the ENT (not same person), the ENT denied that there were stereoids for NIHL and that there were NO medicine that could possible help. Was really pissed to know afterwards that she lied or was oblivious. Will never know if it would have helped.

Second sad thing is that I am always on edge. Any sudden loud noise makes me jumpy. Also being scared of subways, flying, unknown restaurants or any new place I dont know how loud it is.

 

[vermillion]

the ENT denied that there were stereoids for NIHL

Those doctors have to burn in hell, or just end up with chronic tinnitus. In general there's no awareness. Who has been told that if you develop ringing in the ears you have to RUN to the hospital and get a round of steroids ASAP, in case you can evade hell for the rest of your life?

 

[Jomo]

I dont really think any of the "treatments" would help to be honest. I took prednisone for a day and that was a week after my tinnitus started. It probably helped the hyperacusis but T wise the sound became a hiss and then returned to normal once i stopped. I have accepted the fact that in life there is only so many things we can control. I used to keep going back saying why wasnt i more careful or why did i do this, etc. I am lucky enough that I am doing better these days but regardless from what I have read throughout the forums who knows how long that will last. Anyways here is a song that helps me with the regret when I do question my life. Enjoy !



Also here are the lyrics

Nothing that has happened so far has
Been anything we could control
I have just been waiting for the perfect
Time to tell you I don't know
Maybe I'm just reading into it a
Little deeper than I should
We would make it easy we would take
It slowly if only we could

"Hey, what are you doing out here?
You're thinking about everything, aren't you?
I know it's crazy, but just don't think of it like that
Nothing has to mean anything
Come on, come back inside"

Elodie
Look at me
Unless you're trying to hurt me
Heavy blow
Down I go
Now I just want to let go

Is it right?
Is it wrong?
I don't know
It's not the cause I'm fighting for
Anymore
But it sucks to keep on running
Eventually
There will be
A time for clearer thinking
For now I weep
Can't get to sleep
I try to hold a good feeling
I just get one
Here it comes
There it goes
And we just might
Lose the fight, yeah
But it's alright
It wasn't our decision

Nothing that has happened so far
Has been anything we could control
I have just been waiting for the perfect
Time to tell you that I don't know
Every man is happy until
Happiness is suddenly a goal
I'll just be here waiting till the
Doctor calls and then I'll let you know

 

[Alue]

I dont really think any of the "treatments" would help to be honest. I took prednisone for a day and that was a week after my tinnitus started. It probably helped the hyperacusis but T wise the sound became a hiss and then returned to normal once i stopped. I have accepted the fact that in life there is only so many things we can control. I used to keep going back saying why wasnt i more careful or why did i do this, etc. I am lucky enough that I am doing better these days but regardless from what I have read throughout the forums who knows how long that will last. Anyways here is a song that helps me with the regret when I do question my life. Enjoy !

I think there is a very narrow window for it to be possibly helpful, but once the damage is done it's done. When I had my acoustic trauma I knew something was very off with my hearing. I went into urgent care the next day and they told me everything was fine and sent me on my way. I may have had a very small amount of ringing that day, but nothing compared to what I would experience days later. I woke up to this loud very high pitched ringing three days later and it has been there ever since. I started on prednisone on day 5 (approximately two days after the ringing started), but I honestly believe the only time it would have helped me was immediately following the acoustic trauma before the loud tinnitus set in.

What I think happened was the nerve connections were damaged immediately, but they died off days after the acoustic trauma.

 

[Jomo]

I think there is a very narrow window for it to be possibly helpful, but once the damage is done it's done. When I had my acoustic trauma I knew something was very off with my hearing. I went into urgent care the next day and they told me everything was fine and sent me on my way. I may have had a very small amount of ringing that day, but nothing compared to what I would experience days later. I woke up to this loud very high pitched ringing three days later and it has been there ever since. I started on prednisone on day 5 (approximately two days after the ringing started), but I honestly believe the only time it would have helped me was immediately following the acoustic trauma before the loud tinnitus set in.

What I think happened was the nerve connections were damaged immediately, but they died off days after the acoustic trauma.

Yeah man for me I noticed was something off in my hearing as i was playing that day. I stopped immediately...had a slight ring but i figured that was normal. I only played for 15 minutes i said to myself...i will be fine. I didnt notice anything wrong that night...had some champagne with my fiance and was relaxing with the fan on...i even was consoling my fiance on some difficult situation she was dealing with and the crazy part is it was almost like a foreshadowing of what advice i would need to tell myself. i stayed up till 4 in the morning that night playing video games and went to sleep...i still did not notice a thing...i woke up at 7 or 8 oclock to the awful ringing. I couldnt reach my doctor because it was a sunday and i figured it would prob go away on its own. As days passed I tried reaching an ENT but of course i had to wait a week. My own doctor was a waste when i finally reached him...he tried to treat it like i may have had some stuffiness in my head. I told him I needed prednisone and he said you need an ENT...HA shaking my head.

 

[CrazyT]

My ENT told me to wait 2 months before I see her again. I don't know if I wasted my time, or they can actually help you. I feel the answer will be there was nothing that could have been done anyways.

 

[Pleasure_Paulie]

While I agree ENT's and doctors need to be more caring in how they support new Tinnitus patients, the truth of the matter is HBOT, Cortisone injections and the other 1000 options "discussed" here are not regular treatment options for Tinnitus. Their efficacy is not proven, so to assume they would work or improve your Tinnitus is not proven in a proper clinical environment.

I know when I got Tinnitus, I was angry and mad that I didn't try "everything" possible but the reality is thats impossible. This is one of the problems with TinnitusTalk forums; most of the things discussed here are not proven science or treatments.. yet.

 

[Bill Bauer]

While I agree ENT's and doctors need to be more caring in how they support new Tinnitus patients, the truth of the matter is HBOT, Cortisone injections and the other 1000 options "discussed" here are not regular treatment options for Tinnitus. Their efficacy is not proven, so to assume they would work or improve your Tinnitus is not proven in a proper clinical environments.

I know when I got Tinnitus, I was angry and mad that I didn't try "everything" possible but the reality is thats impossible. This is one of the problems with TinnitusTalk forums; most of the things discussed here is not proven science or treatments.. yet.

I've seen published research providing evidence of steroid injections being effective early on.

 

[Pleasure_Paulie]

I've seen published research providing evidence of steroid injections being effective early on.

There is a difference between something being published and being a peer reviewed treatment and accepted as treatment for a condition by the medical community. There is probably over 100 clinical trials of various drugs (Benzos, Anticonvulsants, Parkinson etc) and treatments (RTMS, Sound Therapies etc) that suggest they may assist in Tinnitus in a small number of patients.

 

[Fangen]

Those doctors have to burn in hell, or just end up with chronic tinnitus. In general there's no awareness. Who has been told that if you develop ringing in the ears you have to RUN to the hospital and get a round of steroids ASAP, in case you can evade hell for the rest of your life?

Pretty much yes
On the other hand, no one can say for sure if it would have been too late, or would have helped at all. It would have been great to at least try it, but too late for regrets now anyway

 

[Jake007]

The saddest thing

The saddest thing for me is it's loud.

 

[brownbear]

When I first got my tinnitus I wanted to leave no stone unturned in getting treatment. I am an Otologist so I had endless access to options. I did almost everything possible! Unfortunately this lead me into a frenzied cycle of disappointments. I wish I could go back and try to calm myself down in those early days.

The saddest thing for me is that it has taken me so long to accept that it isn't that sad.

 

[Elfin]

The saddest thing for me is that it has taken me so long to accept that it isn't that sad.

great attitude!

praying i get there!