Seeking Advice for Reactive Tinnitus and Sound Distortion: What's the Best Way to Proceed?

[ScG2023]

I first developed mild unilateral tinnitus before Christmas. A few attempts to clear wax from my ear, along with some ill-considered use of a rolled-up handkerchief, led to ear inflammation, which was treated with Otomize. A wax removal clinic confirmed that my ears were clear, but it looked like I had retracted eardrums.

Following advice for ETD, my GP prescribed a steroid spray, but there was no improvement. My tinnitus now reacts to any sound, though it stays fairly quiet in silence. In the early stages, I was still using earbuds, especially for masking sounds, but I now realize that wasn't wise either. I have an ENT appointment later this month.

What's the best way to manage my situation? Should I avoid all sound? Even music sounds distorted, with a tinny quality. Or should I listen to low-level sounds? How can I reduce this reactivity? It's making me very depressed.

 

[Alba]

Hi @ScG2023,

I've had tinnitus for 28 years. Mine was caused by exposure to loud music, so it was self-inflicted. I didn't really know about ear conditions or the damage I was doing until I started experiencing problems. I have the same symptoms as you, though I did have a long respite from the reactive hyperacusis aspect of it for a while. Unfortunately, that reactive component has now returned with a vengeance.

Like yours, my tinnitus is considerably quieter when there is no mechanical sound or background noise. However, if I'm in a coffee shop, surrounded by people talking, or even just outside in a noisy environment, the atmosphere makes my tinnitus react. The hissing in my head then becomes as loud or even louder than the background noise. I completely understand how you feel about the reactive component.

My approach is to avoid overprotecting my ears in everyday situations and just get on with my day, but I always carry earplugs and use them when I can't avoid loud environments. For me, poor sleep and stress make this condition worse, so I try to have some quiet time every day to give my mind and ears a break. I hope things calm down for you soon.

When I first developed tinnitus, I constantly listened for it, which only kept my anxiety levels high. Try not to do that—staying occupied helps. Many people here are on the same journey, and they will tell you that this condition can wax and wane, playing tricks on your mind, especially in the early stages.

I also find that nasal sprays make my tinnitus louder, though I'm not sure why or if I'm just imagining it. I have a stuffy nose, and my right Eustachian tube is inflamed most of the time. I wonder if that could be contributing as well.

On a positive note, habituation will happen, but it takes time for your brain to stop being on high alert. It's important to relax and be kind to yourself. Good luck!

P.S. One thing I've done for many years is play a very low level of violet noise through my laptop speakers. There's a guy on YouTube named Dale Snale who creates all kinds of sound colors. I find violet noise very helpful. Please see the link below.