Seeking Serious Help — Severe Tinnitus and Hyperacusis — Can't Sleep without Benzos

[AndySop]

Hi.

I have severe hyperacusis and tinnitus - I can't fall into sleep w/o benzos at night - 0 sleep

I have had it for 2 months after concert and I'm only 20 years old and already feeling suicidal.

I have a family member - who is willing to put millions to help to find a cure - where should he put it in?

I could never imagine this nightmare. I'm not enjoying anything in life.

 

[Autumnly]

I have had it for 2 months after concert and I'm only 20 years old and already feeling suicidal.

You're still new to tinnitus, for many people, it improves over time! If loud noise exposure is the cause then chances are that your hyperacusis and tinnitus will improve over time.

Some things you could try

• give your ears a break, protect them from loud noises, don't attend loud events
• don't listen to anything through headphones
• use a mouthguard if you grind your teeth at night
• see a physical/massage therapist if you have issues with your neck, jaw or cervical spine
• listen to white noise or natural sounds during the day and at night so that your brain can focus on something else
• try your best to stay calm to give your body the best chance to recover

Supplements you could try

• Magnesium or Magnesium Citrate
• N-Acetylcysteine (NAC)
• Nicotinamide Riboside
• Vitamin D, Vitamin B12

Donation Options

• Dr. Rauschecker's Tinnitus Research, Georgetown University
• Prof. Tzounopoulos, University of Pittsburgh
• Tinnitus Research Initiative
• Hearing Health Foundation
• Action On Hearing Loss
• British Tinnitus Association
• TinnitusTalk

I have a family member - who is willing to put millions to help to find a cure - where should he put it in?

Please donate to research even if tinnitus and hyperacusis improve for you (which I'm pretty sure they will... I don't want to make empty promises but many people improve over time)!

@Ed209 @Markku @Steve @David Tagging all of you, do you have any other research donation suggestions?

 

[IAmCalifornia]

You're still new to tinnitus, for many people, it improves over time! If loud noise exposure is the cause then chances are that your hyperacusis and tinnitus will improve over time.

Some things you could try

• give your ears a break, protect them from loud noises, don't attend loud events
• don't listen to anything through headphones
• use a mouthguard if you grind your teeth at night
• see a physical/massage therapist if you have issues with your neck, jaw or cervical spine
• listen to white noise or natural sounds during the day and at night so that your brain can focus on something else
• try your best to stay calm to give your body the best chance to recover

Supplements you could try

• Magnesium or Magnesium Citrate
• N-Acetylcysteine (NAC)
• Nicotinamide Riboside
• Vitamin D, Vitamin B12

Donation Options

• Dr. Rauschecker's Tinnitus Research, Georgetown University
• Prof. Tzounopoulos, University of Pittsburgh
• Tinnitus Research Initiative
• Hearing Health Foundation
• Action On Hearing Loss
• British Tinnitus Association
• TinnitusTalk

Please donate to research even if tinnitus and hyperacusis improve for you!
@Ed209 @Markku @Steve @David Tagging all of you, do you have any other research donation suggestions?

Is there a big difference between Citrate and other magnesium?
I tried Citrate and it would wake me up in the middle of the night, but I want to give magnesium another shot.

 

[Deamon22]

@AndySop I am very sorry that you have a hard time with hyperacusis and tinnitus. Since you have it just a short time there is still a big chance it will fade or at least settle to a lower volume. Hyperacusis fades for many people after a while.

In any case to give you a bit of hope, go to the research news section and read the thread from the University of Minnesota. Also a similar device from Neuromod will be released early next year. So maybe a valid treatment is around the corner.

In case you or your family member wants to help with research, contact the site owners @Markku or @Steve

 

[Leoglobe]

If you have a family member that could give quite a lot of money for a cure I think as well that you could get in touch with the admins of this great forum, @Markku and @Steve, that Autumnly mentioned previously. @JohnAdams input is also very interesting and so I would like to put him in the loop as well.

 

[Deamon22]

In any case I'll also quote @kelpiemsp's post. If I sometimes need hope, I just go back and read it again and again

Hey All,

Just a quick update: I will have another session this Friday, and will continue every other Friday. I am entering the part of the trial where I will be blinded from the results. Thus I do not feel it would be fair for me to continue providing bi-weekly updates. Since I (and you) will all be blinded throughout the rest of the study I don't want to help introduce any bias or have people get their hopes down while (or if) I am in a control.

However, I will leave you with this nugget: I have been sleeping with my ears against a pillow and no masking required (10 days now).

Signal timing will provide much relief to many of us.

 

[vinceVv]

Be careful with benzos, they can be very addictive.

 

[AndySop]

Thanks for your replies.

After I take acupuncture and also medication like Zhi Bai Di Huang Wan (知柏地黄丸) and 夏桑菊颗粒, both Chinese Herbal Medicines, my ear pain found some relief.

People can not get treatment for tinnitus at the hospitals in Denmark and I went to local Chinese clinic for acupuncture and medication. I will continue the treatment.

Of course better to consult your local Chinese clinic for overall assessment of your body and medication. As tinnitus is a reflection of overall health and caused by different reasons.

 

[GregCA]

Hi.

I have severe hyperacusis and tinnitus - I can't fall into sleep w/o benzos at night - 0 sleep

I have had it for 2 months after concert and I'm only 20 years old and already feeling suicidal.

Welcome,

I'm confused: you list "referee whistle" in your "Cause of Tinnitus" profile, but then you say it's due to a concert. Which is it?

I have a family member - who is willing to put millions to help to find a cure - where should he put it in?

There are various research efforts that take donations. @Ed209 had made a list when we were debating where Danny Boy's funds would be allocated. Our pick made sense for the amount we had raised, and if you are talking about millions, then perhaps another pick would make more sense.

Good luck, and take it easy with your hearing for a while. Things can get better in time, and they often do.

 

[AndySop]

I'm confused: you list "referee whistle" in your "Cause of Tinnitus" profile, but then you say it's due to a concert. Which is it?

I think is the referee whistle, since I bought a new one and only used that twice, and 5 days afterwards I went to a concert with earfoams and then suddenly a day after the ringing came.

 

[GregCA]

I think is the referee whistle, since I bought a new one and only used that twice, and 5 days afterwards I went to a concert with earfoams and then suddenly a day after the ringing came.

Have you had a hearing test done at an audiologist?

 

[Robban]

Try a laser at Amon Kasier in Germany, it can help. I got better from laser in the ear but I am not tinnitus free.

 

[AndySop]

Have you had a hearing test done at an audiologist?

Yes I have done a hearing test. They couldn't see any hearing loss, and I was in the normal range.