MemberFor certain reasons I have had doubts whether I should write about this or not, but I decided I will. I need this off my heart and I also want to tell you that there is hope, there are treatments that actually do work.
After my T has started in July, for reasons unknown, I have turned the internet upside down searching for a cure. I read everything on those forums, I became an active member, my first posts are really embarassing now that I read them today...
I cannot count how many meds or supplements I have tried. Finally, after few weeks, I found about AM-101 medical study. Luckily enough they were recruiting for phase II study in my country so I have decided to take a risk and joined it. Why was I reluctant to talk about this? They had strict inclusion criteria, tinnitus had to be caused either by noise trauma, otitis media or a sudden sensorineural hearing loss and be no longer than 3 months. My T was 1 month at the time, but the truth is I had no idea why did I get it. I did attend a loud concert before it has started but I still had a week of silence between the concert and T onset.
In the document I signed there was no clause that lying about my health is a punishable offense, so I will admit it - I have lied about my tinnitus cause to get accepted for those trials. You have right to blame me, judge me, I did it out of desperation. It was literally a matter of life and death to me.
There was 1/3 chance of getting a placebo and 2/3 chance to get a real drug. It was injected directly into the middle ear. I was extremally scared of it and almost gave up, but finally one person from these forums convinced me to try.
First injection was painless, also it did pretty much nothing, or so I thought. Thankfully I didn't have any problems with my hearing nor any side-effects.
Second injection was painful. Then the hell broke loose. Later that day my T became much, much louder to the point I had to go back to the hospital and had my ear checked out. The T went back to the acceptable volume after few days. I decided not to have a 3rd one.
Right after that I started using betahistine again (this is also against the study but my ears are more important to me) + spine exercises (I have confirmed mild lordosis).
Now the part you are probably waiting for - before, during and after the study I have had my T extensively measured with numerous tests repeated over and over again. I did get a bit better.
T in my left ear comes and goes, but most of the time I don't hear it. T in my right ear has permanently went down in volume. I did not see (hear) the difference until very recently. T is still there when I look for it, but it is no longer a problem to me and there have been few days now I have not even thought about T at all. I guess this is "habituation". The only situation I hear my T is when going to sleep but I use a white noise mp3 at minimum volume to cancel it out.
Those last 4 months was quite a ride, but I am glad I got better and I don't regret anything. I wish my T was gone completely of course, but this will do. Also, there is still few things I can try. We'll see what happens.
After my T has started in July, for reasons unknown, I have turned the internet upside down searching for a cure. I read everything on those forums, I became an active member, my first posts are really embarassing now that I read them today...
I cannot count how many meds or supplements I have tried. Finally, after few weeks, I found about AM-101 medical study. Luckily enough they were recruiting for phase II study in my country so I have decided to take a risk and joined it. Why was I reluctant to talk about this? They had strict inclusion criteria, tinnitus had to be caused either by noise trauma, otitis media or a sudden sensorineural hearing loss and be no longer than 3 months. My T was 1 month at the time, but the truth is I had no idea why did I get it. I did attend a loud concert before it has started but I still had a week of silence between the concert and T onset.
In the document I signed there was no clause that lying about my health is a punishable offense, so I will admit it - I have lied about my tinnitus cause to get accepted for those trials. You have right to blame me, judge me, I did it out of desperation. It was literally a matter of life and death to me.
There was 1/3 chance of getting a placebo and 2/3 chance to get a real drug. It was injected directly into the middle ear. I was extremally scared of it and almost gave up, but finally one person from these forums convinced me to try.
First injection was painless, also it did pretty much nothing, or so I thought. Thankfully I didn't have any problems with my hearing nor any side-effects.
Second injection was painful. Then the hell broke loose. Later that day my T became much, much louder to the point I had to go back to the hospital and had my ear checked out. The T went back to the acceptable volume after few days. I decided not to have a 3rd one.
Right after that I started using betahistine again (this is also against the study but my ears are more important to me) + spine exercises (I have confirmed mild lordosis).
Now the part you are probably waiting for - before, during and after the study I have had my T extensively measured with numerous tests repeated over and over again. I did get a bit better.
T in my left ear comes and goes, but most of the time I don't hear it. T in my right ear has permanently went down in volume. I did not see (hear) the difference until very recently. T is still there when I look for it, but it is no longer a problem to me and there have been few days now I have not even thought about T at all. I guess this is "habituation". The only situation I hear my T is when going to sleep but I use a white noise mp3 at minimum volume to cancel it out.
Those last 4 months was quite a ride, but I am glad I got better and I don't regret anything. I wish my T was gone completely of course, but this will do. Also, there is still few things I can try. We'll see what happens.
I can only hope it's understandable!
