What Are Your Favourite Types of Posts on This Site?
- Thread starter brownbear
- Start date
Member
Supportive posts as well as experiences others have had with different treatments. Since tinnitus has so many causes, it helps to have a very large and diverse group share what did or did not work for them. It's also nice coming here and knowing you're not alone because tinnitus has a way of making you feel like a lonely ghost.
>Habituation stories
By far the worst
>Tinnitus gone away stories
Some of the best
>Research news
Very good stuff too
>Arguments
Not really always ends with me winning.
The best posts I like are my memes/bants, and reply chains with cool people.
- Feb 17, 2017
- 10,400
- Tinnitus Since
- February, 2017
- Cause of Tinnitus
- Acoustic Trauma
Oh you really want to know why?
-They constantly clog the success stories forum (where they don't belong).
-It's bad to the point where actual success stories aren't very common in comparison.
-They usually disguise themselves, because they know they're an inferior product.
-They say they're completely fine with it, but usually linger around when they really should fuck off.
-They then clog up the site and drown out the voices of people who are sane- er, I mean "care about volume reduction only".
-It's always the same gay bullshit we hear all the time and nobody cares about.
- Nov 6, 2017
- 177
- Tinnitus Since
- 26-9-2017
- Cause of Tinnitus
- Unknow possibly noise trauma
So Habituation isn't a succes Story? I think for most people it is, for me it would be. When i am able to habituate i am able to see this as my life. I was able to habituate to moderate hearing loss, and possibly will able to habituate to tinnitus. I would Love to see a cure and support research. Doing the Same support with hearing loss and cancer. There are days i wasn't aware of my hearing loss or didn't think about it. Took me some years to accept it that way. If i will be able to come that far with Tinnitus, i call it a succes story. Maybe not for you, but for me it would be.
Thereisnogod
Member
- Nov 25, 2017
- 10
- Tinnitus Since
- 11/2011 & 02/2017
- Cause of Tinnitus
- Probably headphones
I would have to disagree with you on this one. While I do agree that there is nothing wrong with habituation, I assume that most people looking in the success story section are people who are feeling distressed at that particular time (which would more often than not be people that are fairly new to T most of the time, I know I am/was) and are looking for stories that are about an actual improvement (read: objective reduction of T volume). I remember when I experienced my first permanent spike (that made my T unmanageable for me) I was looking for such stories and while I was scanning through the threads all the habituation stories didn't make me feel better at all and reinforced my thoughts about the T being for life which made me even more depressed and still bothers me till this day.
- Sep 24, 2016
- 272
- Tinnitus Since
- July 2016
- Cause of Tinnitus
- Sudden sensorineural hearing loss ? cochlear hydrops
I agree with @threefirefour about separating habituation stories from T gone away. My reasoning is different though because personally I find the T gone away stories make me feel low as I don't believe there is ANY chance of my horrendous T getting better, so to be honest they just make me feel jealous! I'm not a believer in the psycho-babble that it is all in your reaction to the T. I think unfortunately sometimes T is just loud and shit.
My favourite posts are when I see someone with devastating T come back to say they are doing well. I can think of @Dominic1955 and @snow47 off hand. I'd love to see some of the real heroes on here post that they are doing better. People like @Telis and @GregCA who have immense strength to keep going despite their severe challenges. Come on @Telis. Do it for me! Tell me you are doing well! Seriously I hope you guys are managing as best you can. Also @RaZaH hasn't been around for a long time. Hope he has found a way through this.
My favourite posts are when I see someone with devastating T come back to say they are doing well. I can think of @Dominic1955 and @snow47 off hand. I'd love to see some of the real heroes on here post that they are doing better. People like @Telis and @GregCA who have immense strength to keep going despite their severe challenges. Come on @Telis. Do it for me! Tell me you are doing well! Seriously I hope you guys are managing as best you can. Also @RaZaH hasn't been around for a long time. Hope he has found a way through this.
Rainbowsheep
Member
I personally like habituation stories. They give me hope that even if my spike doesn't go away I'll be able to live a good life anyway (though my spike has calmed a lot since the onset it is still louder and more high pitched than my baseline T). I've had T for 3.5 years so I know that it is very unlikely that it just goes away some day but I want to (and am determined to) be able to live a good life despite the T. It's easy to loose hope on the bad days though which is why I like habituation stories as it is nice to know that someone with T even louder and more high pitched than mine is able to live their life and be truly happy.
But I agree that it would a good idea to split the succes stories forum into a "T gone" and "habituation" succes stories. Mostly because it would be easier for us to find the stories we're looking for
But I agree that it would a good idea to split the succes stories forum into a "T gone" and "habituation" succes stories. Mostly because it would be easier for us to find the stories we're looking for
I'm half half on habituation, part of me feels it great due to suffers can use as way to deal with T. The other half of me knows it is not going to work at all. And that's the half what is upsetting. And thats the half has no proper awareness that it does not work. Success stories are nice, and it's nice to know suffers can deal with life. Research news that I want to hear is the real stuff going in the right direction. We all need arguments, you have to hear different ideas dealing with T.
- Aug 14, 2013
- 2,455
- Tinnitus Since
- Resolved since 2016
- Cause of Tinnitus
- Unknown (medication, head injury)
"Back in the day" (that is to say: 2013-2015), TinnitusTalk had a lot of interesting posts:
Team Trobalt was the hidden section where the few members of the team would "hang out".
But that was then – and – this is now. For a number of reasons, I don't check in with TinnitusTalk so much any longer, but to the extent I follow some of the threads, it seems there is somewhat more "doom and gloom" than there was back then. Probably the "doom and gloom" was always there, it was just that all the research activities and clinical trials did a good job of "covering up" all the tragedy that sometimes comes along with tinnitus.
- The AM-101 trial was still ongoing
- AUT00063 was pending the phase-II efficacy trial
- Team Trobalt was active and trying to pioneer some early input on the efficacy of Kv7-channel openers
Team Trobalt was the hidden section where the few members of the team would "hang out".
But that was then – and – this is now. For a number of reasons, I don't check in with TinnitusTalk so much any longer, but to the extent I follow some of the threads, it seems there is somewhat more "doom and gloom" than there was back then. Probably the "doom and gloom" was always there, it was just that all the research activities and clinical trials did a good job of "covering up" all the tragedy that sometimes comes along with tinnitus.
- Feb 17, 2017
- 10,400
- Tinnitus Since
- February, 2017
- Cause of Tinnitus
- Acoustic Trauma
It's ok to hate bad things, to be scared of scary things, and to feel doom and gloom when one has a chronic condition like tinnitus. Nothing worse than being fake and pretending to be cheerful in an attempt to fool yourself.
So true Bill, pretending to be cheerful is futile;
we never manage to fool ourselves.
Like your very astute posts always suggest, we have to accept reality for exactly what it is, and then find the best way to live.
For me:
"Easy Dave - hiss normal...."
- Feb 17, 2017
- 10,400
- Tinnitus Since
- February, 2017
- Cause of Tinnitus
- Acoustic Trauma
Horror stories that help me learn what objects and situations I ought to be weary of.
Some people get bitter because they haven't managed to habituate. Don't get like that, because the bitterness, along with anger and frustration ends up preventing or prolonging the process.
My favourite posts are the success stories and the helpful adviseand coping methods.
1) Dont read them often. You can habituate to tinnitus if not intrusive.
2) Dont read them very rare and give me false hope that mine will go away.
3) Yea
4) Nope
I disagree with this point. I have loud (multiple noise) tinnitus that I can hear almost anywhere. We'll never know what other people hear in their heads but I know what I hear could very well be someone else's idea of catastrophic or very severe. It's hard to compare a subjective condition but you can't use a blanket statement like that because it's not true. However, louder is definitely more difficult without a doubt. So much of what habituation is and can be comes down to personality and how one learns to cope and adapt. Just like if someone becomes paralysed some will never get over it and some will, and not only get over it but thrive as well. Personality plays a huge factor in any disability. I believe people who are obsessive, anxiety prone, and have perfectionist traits struggle the most. Letting go can be almost impossible for some.
I dont think I will be able to habituate with this high pitched dentist drill in my head. It is too loud and I can hear it all the time. When I had Mild T it was tolerable and I habituated eventually my mind filtered it out.
I had mild T since I was 18/19. I also have a high pitch dentist drill in my head that cuts through almost everything. At the same time I've got a tone in my right ear, a new high (sometimes intermittent morse code-like) tone in my left ear which is on top of the low drone that's also in that ear. Alongside all of this are various hissing noises and occasional zaps around my head (like electrical sounds).
My head is swirling with noise. It's noise on top of noise and it's loud. A recent MRI set me back to square one, but I'm slowly doing better (I think). I've had some absolutely horrendous days recently and I'm still not over the worst of it I'm sure. All I know is that I've overcome it once and it'll happen again. Getting sucked into a negative mindset helps no-one. I was going to stop posting because I know it has a huge affect on the habituation process but I had a good day so I just took a look to see what was happening on here. Couldn't help but get drawn into some discussions.
Habituation is real.
I developed something very similar in my right (previously good) ear. Some times it's morse code, but if I'm tired or have been around loud noise it can spike to a constant tone.
I think the worst is progressive T/H that reacts to loud noise. Hyperacusis can make tinnitus much harder to deal with and habituate to, and you can't exactly habituate to hyperacusis. H can go away for some people, but for others it can be permanent and debilitating.
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