What Happened to snow86 and Vaba?

[Alue]

Anyone know happened to @snow86 and @Vaba?

 

[Samantha R]

No.....
Vaba was last seen on 20 Dec 2016.
I remember @Christian78 said Snow86 was in a bad way....
I hope they are OK....

 

[Alue]

No.....
Vaba was last seen on 20 Dec 2016.
I remember @Christian78 said Snow86 was in a bad way....
I hope they are OK....

Yeah I hope so. I know Snow86 suffers from catastrophic T, and Vaba has multiple challenges including T. Both had talked about ending it.

 

[Lex]

I also wonder what happened to @Lesky and @Geo, though I think both said they'll fight this until the end.

 

[Christian78]

Yeah I hope so. I know Snow86 suffers from catastrophic T, and Vaba has multiple challenges including T. Both had talked about ending it.

I am also finished i dont know what to do, it is got worse 30% IN LAST 2 MONTHS I dont have hopes, nor dreams, nor dreams or fantasises what would i do if there was no t... it had defeted me

 

[Alue]

I am also finished i dont know what to do, it is got worse 30% IN LAST 2 MONTHS I dont have hopes, nor dreams, nor dreams or fantasises what would i do if there was no t... it had defeted me

I feel for you. I have pretty bad T and H, but not as bad as a few people on here. Trobalt helps but it's temporary and risky. The is just no good long term solution for relief.

 

[JasonP]

I am also finished i dont know what to do, it is got worse 30% IN LAST 2 MONTHS I dont have hopes, nor dreams, nor dreams or fantasises what would i do if there was no t... it had defeted me

This could be a crazy idea but I found a medicine called Riluzole that is supposed to remove excess glutamate. I wanted to try to get it prescribed for me but the doctor would not do it. Maybe you could look it up and ask your doctor about it. I say this because you are suffering so much. I honestly don't know if it would hurt or help but is also used off label for ocd and depression. Most doctors won't prescribe this though because it is only approved for ALS. Again though I don't know what it would do. Could be bad or do nothing. I sure hope you can get relief somehow by something.

 

[Christian78]

This could be a crazy idea but I found a medicine called Riluzole that is supposed to remove excess glutamate. I wanted to try to get it prescribed for me but the doctor would not do it. Maybe you could look it up and ask your doctor about it. I say this because you are suffering so much. I honestly don't know if it would hurt or help but is also used off label for ocd and depression. Most doctors won't prescribe this though because it is only approved for ALS. Again though I don't know what it would do. Could be bad or do nothing. I sure hope you can get relief somehow by something.

Is it dangerous for hearing, i have rapid hearing loss on left ear. Do you want me to try to bet it for you?

 

[bill 112]

I also wonder what happened to @Lesky and @Geo, though I think both said they'll fight this until the end.

Lesky is still kicking and fighting last I heard, poor guy can only have a conversation at whispering level for a maximum of 10 minutes per day, I'm not much better mind you.

 

[JasonP]

Is it dangerous for hearing, i have rapid hearing loss on left ear. Do you want me to try to bet it for you?

No, I don't want anything worse to happen to you. I want you to get better. Forget I even mentioned it to you.

 

[Alue]

You can add @SilverSpiral to that list... hope he's alright.

I hope they're all okay...

 

[GregCA]

And @bill 112 and @monacco and so many others... hopefully they found something that works for them.

 

[Jake007]

Amen to all. And hope they are ok.

 

[Alue]

And @bill 112 and @monacco and so many others... hopefully they found something that works for them.

Yeah @bill 112 and @monacco were going to do stem cell treatments then they fell off the face of the earth if I remember correctly.

I mainly wonder about the people that have it bad, frequently talk about suicide, and then just disappear. When the people with mild/moderate tinnitus and the people that are new to tinnitus stop posting I assume they just got on with their lives.

 

[PaulBe]

Bill 112 was hospitalized, and I suspect that part of treatment may have involved stepping away from here.

 

[GregCA]

I mainly wonder about the people that have it bad, frequently talk about suicide, and then just disappear.

Yeah that's why I brought up @bill 112 and @monacco as they were indeed ready to cross the Rubicon with an experimental treatment.