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Hello @dan, how are you? From what I can see, you've been living with this for a long time as well.
dan
I just lost my sense of smell! wow...possibly covid or flu, my T is thru the roof and im sick.
Do you know anybody who lost smell due to a flu?
2049v
@dan, yeah man, it's normal. It happens to me all the time but I meant about the tinnitus :D what was the cause of your tinnitus and is it the severe type?
Hmm this spike seems to be lasting quite a while... Could possibly be a permanent increase but idk. Ugh... What a condition...
Completed 15 rounds of HBOT but no improvement of Level 5T in right ear. LLLT Did not help. Now on 4th day of Lenire unit.
There needs to be more tinnitus support here in Aus, tempted to start a support group for my city so I feel less alone... Selfish maybe. Ha
I remember having covid in August. Couldn't leave my bed, wasn't even able to talk or open my eyes for 2 days. At least no T spike lmao
crescentsky
@Eric N it took my friend 14+ days after symptoms subsided to fully recover her taste. I lost partial taste and it took a few days to come back. I didn't actually realized it and thought it was just Covid being an asshole. I shocked my tastebuds when I ate spicy food and it almost all came back the next day or so.
_Shoto_
Hi @Eric N ! Sorry for the late reply. No, No effect at all. I was so scared about this long term side effect but thankfully it didn't affect my taste and smell. I hope you feel much better now!
Eric N
On day 18 now after a loss of smell it's come back but still only at 50% Taste is almost back to normal I would say 80% fingers crossed it continues to improve
I always wear mask in public, and I leave my apartment only once a week. And I'm still getting covid infections. Unbelievable...
kingsfan
What kind of mask are you wearing? Do you have a proper fit?
Got covid again. I had it less than 2 months ago. Unbelievable. Anyway, it did not spike my T back in August, so... There's a small hope!
crescentsky
covid is shit. if i could, i would burn it to ashes
According to Mayo Clinic, Azithromycin can cause: redness or swelling in the ear, continuing ringing or buzzing in the ears
It's so hard to find a restaurant that doesn't play music at 90 db...I had to eat at Panda Express once again because it's 50-65 db inside
kingsfan
Panda Express is my guilty pleasure. Love that place.
@MindOverMatter I have reactive . At what point did you wear the ear sound generators? Did it not impact your Rt? Thanks.
MindOverMatter
Introducing natural sounds is a good way of getting auditory input @Yellowblue44 I never wore plugs in shower. React. t winding up due to showering is not dangerous imo. What is "dangerous" is your reaction to it. Yes, I drove with reactive t/sound sensitivity. Not easy, by no means, but doable. Find the balance + resting up in between/when needed. I only used musician earplugs on longer travels.
Yellowblue44
@MindOverMatter at the start i was having a showrer without the plugs but had a set back 4 weeks ago and seen no improvment. Somehow will do baby steps to it again. Thank you.
MindOverMatter
If I remember correctly, it took me closer to probably 8-12 months before I saw any major improvements @Yellowblue44 With many days feeling back to square one or even worse. Often its the mind playing tricks with us due to anxiety and being stuck in fight or flight mode. Setbacks will happen, time after time. But you have to look on this in the long run, not week by week. Take it in your own pace.
hi, have you tried any medication since you got T? if so, which medications and how did it go? also, do you have experience with gabapentin?
SarahMLFlemmer
Hi there! I do have prior experience with Gabapentin, but it was used for bladder pain before I developed tinnitus.

After gaining tinnitus I decided to throw all meds out besides my thyroid med.

I do also, however, use Amitriptyline 25mg for sleep now though.
Can people just answer me: can tinnitus reduce in volume and intensity after 1 year? or after 6 months will it stay this way until death?
LukeYoung
It can, it did for me
RunningMan
About 25 years of worsening for me. Hopefully we will get some effective treatments one day.
RunningMan
It hasn't been long for you. It will probably get better. And don't forget the Susan Shore device will probably bring relief.
Has anyone has a sound make your ear muscle tense up and then get aural fullness after? Sound wasn't that loud really. But I felt reaction
How are you dear friend?
Cmspgran
I'm still working and not prepared to quit until I'm bedbound, how about you? So sorry to hear of your other issues Julianne, as you once said when it rains, it pours. What have you tried for calming your nervous system down?
Juliane
Sorry for late reply, I did not see this message. I tried with yoga for a while which helped a little bit but had to stop going to the yoga place as they put too loud music on during the class. Now I try and do it from home.

Do you have any routines for calming down your nervous system?
Cmspgran
Hey, I'm sorry I'm working back through all my missed replies, the only one I've tried is mindfulness meditation but I'm rubbish at sticking to it. I've been told to try yoga as well.
Gabapentin does not help T spike but it does make music sound much better. Ugh. Too bad I can't enjoy it at all :(
I have intermittent morse code which doesn't bother me at all… I wish it would replace my more chronic tones.
Hope you're okay. Morse code is awful! Seems you had habituated at one point?
Hey, please could you tell me how you coped with morse code? I've developed this out of nowhere yesterday and it is unbelievably loud and intrusive. It's there all the time. Prior to this I had been feeling better. I feel like a long car ride maybe caused it (I hadn't left the house in months prior to this)
ErikaS
@Zigs those with facial pain and/or Hyperacusis as well as TTTS, and typewriter/morse code have had varying benefits. Wanted to mention that to you.
Zigs
Funnily enough a neurosurgeon suggested carbamazepine to me this week
ErikaS
@Zigs I would try it! Trileptal is basically the same just less side affect profile and I was told I don't have to get blood draws to check sodium levels or something. So you could start with the oxcarbazepine and If no relief, try the carbamazepine and go from there?
Hey, did your morse code calm down at all?
Cmspgran
It went away and has come back, absolute nightmare. What's your symptoms?
Zigs
Just constant noise in my ear like someone is pressing an alarm button over and over or something. No idea what it's about!
Cmspgran
Was it noise induced initially?
Hey, I think I am dealing with severe TTTS after a few long car drives following months in quiet. I am having a metal banging type noise as well as loads of other horrible sounds. How are you now?
M
I am not well . Total agony. Id take ringing anyday.