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A
We just got a gas fireplace installed & immediately my tinnitus was affected! The pitch goes way up and my ears are so stuffy. Anyone else?
Sammy0225
Hi guys :) still have T and it's still reactive probably will have it till the day I die unfortunately. Hope yall are doing okay
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Sammy0225
@Zigs well during my worst days I couldn't help my partner with the kids unfortunately as anything above whisper level really bothered my ears it took several months to builds small tolerance and eventually I built more and more.
Sammy0225
@Zigs Now I can handle all my children in one room again at normal conversation levels. Took roughly two years! Lots of ups and downs. As for the beach house it definitely helped during my onset! Any place you can find that relaxes you well help the mental aspect :)
Zigs
Thanks for replying! That's basically what I'm doing but I feel really guilty about it!
_Shoto_
On the other hand I found a new doctor who is able to prescribe me gabapentin. Thank got I didn't order it from India illegally for $50...
_Shoto_
While acoustic trauma occured yesterday at 10:05 pm, my T spiked only today at 1:22 pm. This means you can get spike even a day or two later
_Shoto_
Yayyyy. I got a T spike in my left ear today! Yaaay! And all of this because I took off headphones for A SECOND when mom was at home. Yay!!!
Yellowblue44
Zigs
Thank you. No, I haven't been for a walk or left the house in over two weeks. I am in silence most of the time apart from when my little ones come home, I'm around them for an hour or so. Unfortunately a couple of very loud screams from my baby last week seem to have caused some increased sensitisation and I'm not doing well right now. How are you doing?
Zigs
I've been doing a lot of Alan's work and think it's really good, I'm just in a hyper-sensitive state right now (after thinking I was improving ironically)
Yellowblue44
Im sorry you are struggling. I am to . But please go for a walk when uts quite with ear plugs. Or pop into your garden. Menrally it will so you good and start to help wirh the H. I too have stayed in the quite and have found it slightly improved the T but worsened the H. You need to do little sound exposures for 10 seconds every day otherwise quite will not really help.
Yellowblue44
Have you ever tried sound therapy did it help?
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Yellowblue44
@ECP Can you please advise how you and your husband deal with this? So does he now go on holidays/restaurants/activities by himself or with friends?
ECP
I don't wear ear protection 24/7. I've slowly reintroduced sounds in the past 2 years. However, my husband vacuums our apartment only when I am at the supermarket, and he uses the coffee grinder only when I am upstairs with the door closed.
ECP
I don't go out with my husband as much as I used to. If I'm not feeling up to it, I stay home. It's not worth a setback. I will eat at a restaurant only if they aren't playing music and it's not crowded.
Yellowblue44
@ECP hello. Your story gives me hope as i think we have similar things. You had very loud multi tonal reactive tinnitus and hyperacusis. Which i know you still do. But you said its better. Can i ask in your old posts you mentioned getting a mri scan. Did you ever get one?
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Yellowblue44
Have you considered CT scan, thats meant to be quite?
Can I also ask when you were at your worse, how did you keep going with this, day after day, week after week, month after month, year after year?
ECP
I have not improved that much in 24 months. On a scale of 1 to 10 where 10 was the original severity, I feel like a 7. You're probably wasting your time asking me for so much advice. :(
ECP
Yes, I've had a CT scan.
L along the way
And truly, my only hope is that with enough time, the body can rejuvinate and restore wellbeing with time. Wellbeing is the highest weallth
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L along the way
@4Grace wow.. intriguing/hopeful to read that. I'm not sure i understand, but still.. i find it positive too, the peace part. As for here... yesterday i went to sleep at 11, still were awake at 4am. This sort of thing has been plaguing me for months. My ears basically really feel injured, and then sometimes i get so many negative thoughts while laying there, waiting to fall asleep.
L along the way
Acoustic harm has caused a physical injury, which i can hear as the t... invisible.. it's a scary thing frankly. Still i live on the hope that it can get better over time. But allow me to complain.. it really has been hard and enduring so much. Better days to come i keep telling myself.
L along the way
There are moments of peace, but real more lasting peace is what i long for. Following a natural lifestyle & praying for wellbeing indeed. Wishing a good day brother, cool and ease
L along the way
I'm repeating.. but well.. i try to live a healthy lifestyle, give it time, sleep when i can, distract with comedy something, calming sounds
L along the way
I find tinniituss really a harsh reality of acoustic torture, caused by acoustic harm/damage. It's so disruptive in many ways to me..
_Shoto_
The worst thing is to sleep in earmuffs for construction workers. My head and neck hurts. But my mom is so damn loud. I want peace...
_Shoto_
Why did I take off my headphones for a minute knowing damn well I'm with my mom and she can do something horrible. What whas I thinking...
_Shoto_
Okay, I took off my headphones for 2 seconds and this happened. I am not taking them off when she is at home or I am outside. Fuck it
_Shoto_
Mom dropped a glass vase in a new apartment without carpets and furniture. The sound was INTENSE. Smartwatch showed 91 db. Why._.
twa
Hope you all are doing well! I just started my 4th year teaching college and hopefully, I'm working on the last year of my dissertation!
BrOKeN_1
Well enough. Glad to see you pushing through and continuing to live to the best of your ability. Good luck with finalizing your dissertation :)
Heal82
@twa I need to undergo an oral surgery. A cyst in the upper roof of my mouth needs to be removed. They will be sedating me. After that I will need to take antibiotics as well as pain killers. Did you too take either of these post your surgery? If yes, what was the impact on H/T ?
twa
@Heal82 I took antibiotics, I believe and pain meds for a week. I don't remember them causing issues, but I did develop dizziness that I'm still dealing with 6 months out.
Zigs
Also when you first got pain and said that even talking was too painful, how did you recover?
Andrei88
Yes that was immediately after I got T from acoustic trauma. it was horrible, but it got better after a few weeks. till the point where I had pretty much no pain.
Zigs
Hey, hope you are well. Could you let me know how your pain is these days? Thanks
Andrei88
Hallo, I still have pain, at times its worse than other times, sometimes I dont really feel pain, it really depends if I have been exposed to certain sounds.
Ngo13
ENT made me feel like absolute shit because I refused tympanometry since it caused be almost a year of pain last year. Didn't believe me.
Zigs
Had been feeling cautiously optimistic the last few days and now this. I don't know what to don:(
_Shoto_
The dead silence about Auricle device is so unfair to people who are suffering on a daily basis for many months and years :c
2049v
I have the worst addiction in the world, there's nothing worse than this: masking sounds, I wish I could die from an overdose.
L along the way
I also listen to calming sounds a lot. And am trying to sleep a lot. The difficulty with T is that I had troubles sleeping. But yeah.. plenty of sleep when it's possible seems like a good thing.. but pffft.. it has been harsh.. hoping for a better day
2049v
@L along the way, Most of the time, I can't live without ACRN and masking sounds. It's inevitable that I will have to work remotely but I haven't found a job yet. Even if I did, can life even be called life like this? Fuck this BS man. I'm so tired.
Zigs
Hey! Would love some advice on dealing with pain and TTTS if you are able to share? Thank you!
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