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Zigs
Since this morning my left ear is making a vibrating type sound every time I move. Even chewing, moving my head.
MindOverMatter
This is most likely TTTS @Zigs It is a condition that is very much related to high anxiety and stress. When stuck in fight or flight mode, this is very common. At least to my own experience. This will ease up with time, but unfortunately this rollercoaster can be unpredictable and totally un-linear.
Zigs
The thing is, I have been feeling better! So I don't understand why it would strike now
MindOverMatter
@Zigs That is the nature of this condition. Unpredictable.
Pinhead
Still doing terribly. So bad. Three years and six months. No improvement. Utter horror. Destined for suicide.
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2049v
@Pinhead, I'm thinking the same thing. All the plans and goals I had right before this event are gone. I want my old peace back, but there's nothing I can do.
4Grace
A friend of mine. He has it bad. He just lives. He says he does not care anymore. What ever happens, happens. I really need to know if there is a limit. There does not seem to be one. Reactive T sucks. Sooner or later I will try Benzo's full time.
4Grace
@Pinhead / I am so sorry you are feeling this way. I understand and pray for you. Sooner or later .. I have seen it done.
marqualler
At ENT audiology and they asked to do a 85-95 db "loud beep" to start that "doesn't damage hearing". I declined. lol
_Shoto_
Any noise above 75 db is damaging, especially if a person has already damaged ears...what are they smoking in there!??
HighleyTall
I'm self employed and have to explain customers they cannot visit me at my office and I cannot speak to them on the phone...
2049v
I'm one of the those in the world with inner ear damage that has led to the most diseases and symptoms. Nice to meet you.
L along the way
Suffering :( unwellbeing :( i'm longing for the opposites of these things, the natural way
2049v
L along the way
@2049v well it hasn't been just a straight line 1 thing experience in that sense.. but indeed.. the general sense of all these past years have been enduring the days.. instead of enjoying the days.. :( i hope we can experience more joy, aliveness and health in the days to come
D
You have my complete understanding. Kids love to scream. But they can be coaxed out of it. It's awful, I truly empathize. Tough ages. Tell them about your ears , and get. Help when possible .Massive hugs..you have been awarded a gold medal. 10 of them. Hugs
Zigs
I just spotted that you are in the Merseyside area - same! Not the quietest place to live haha. Hope you're doing okay today :)
Cmspgran
Hi fellow Merseysider, sorry we're meeting in this scenario but hope you're doing ok as well. Would much prefer to be in the countryside!
Zigs
Same!
_Shoto_
I hope moderate vibration is not dangerous to ears... uncomfortable as hell but not dangerous
_Shoto_
My new apartment has a huge HVAC unit right above my bedroom. The whole room is vibrating 24/7... But I love my bedroom :c
Ngo13
Double outer ear infection likely from earplug use ..prescribed ofloxacin ear drops which are ototoxic. What do I do?!
BB23
Ask for anything other than fluoroquinolones.
kingsfan
@BB23 Aminoglycosides are also ototoxic, so no Neomycin
Zigs
There is a natural alternative people on here recommend. I can't remember the name now but I think it includes garlic
Juliane
If I have said in the past that I'd rather have cancer than tinnitus, I did not mean that. Tinnitus is horrible but I do not want cancer
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Lurius
Often, but not always. Both my parents had cancer in 2019. They got an operation. No chemo. Chemo is usually the last resort these days. For those who are in life-threatening condition.
4Grace
We can surely understand the sentiment when it was first said. Depending how bad someone has it ….
Juliane
Thank you for your understanding. Tinnitus has definitely made me despair and wish for bad things. But lately it has made me feel guilty to do so. It is not easy.
2049v
While everything around me moves at full speed, my life feels like it's come to a standstill. It's like I'm watching from behind a glass.
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ECP
My tinnitus used to be much louder and more reactive. There were also many more different sounds that changed throughout the day. My pain level and brain fog and depression were also much worse. I still have all these symptoms, just at a lower level. The improvement isn't obvious from one day to the next. It's observable only when comparing different points in time that are several months apart.
ECP
I still fall into the Mariana Trench sometimes. Quiet hobbies and distractions help because they keep my mind from thinking about my problems. It's a conundrum, though, because the worse my symptoms are, the harder it is to distract myself and feel like I'm climbing out of the trench. Then I get even more upset. I've had to teach myself how to relax and patiently wait for something to improve.
ECP
For what it's worth, I read somewhere that a water lily has roots in muddy water. It can't blossom until it grows tall enough to break the surface of the water. The mud fertilizes the water lily plant, and ultimately that mud is what makes the plant grow tall enough to transcend the water and bloom. I try to meditate on that when I'm depressed, so I'm sharing that in the hope that it helps you too. Big hugs to you.
Katarinacl
5mo update: Mid ring 99% gone, only comes back for a few mins every few days. Now just high hiss that fluctuates in vol from 2/10 - 6/10
weehiru
E.g. My tinnitus I hear over 50db easily, it's the hissing static kind. But I'm able to tune it out enough. I consider myself mild, really.
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weehiru
What @BrOKeN_1 says here is true, @2049v. The vets and long time sufferers on boards like these with objectively louder tinnitus than my own have reinstated a lot of hope for me with their experiences.
2049v
Anyway guys, I hope you guys get even better. That's what I wish.
weehiru
I've stopped hoping for it to go away at this point - because holding desperately onto that wish made me feel in surreal limbo of life on hold. What I hope for you is that in a few months you'll look back and notice the progress you've made. Cheers mate
weehiru
What do you guys consider "mild tinnitus"? Only hearing it in a quiet room, or is it how you handle the distress/habituate to it?
ECP
It could be either of those things, but I believe the quiet kind is more likely to be perceived as mild. Stability helps too. When mine is both loud and reactive, it's harder to ignore.
weehiru
I'd agree with that. Initially I wouldn't have described my T as mild from how little I could habituate from it. It's nuanced. @ECP
2049v
Oh my dear ACRN, what would I do without you? When nothing else helps, you're by my side. I'm so glad you're here.
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Yellowblue44
Do you play it on low volume? And it doesnt make your h worse ?
Yellowblue44
Just played. Can i ask, how does playing another T type tone help? It was horrible just like my T
2049v
@Yellowblue44, I prefer the sound to come from an external source rather than inside my brain. It partially helps me. It needs to be played at a frequency close to the ringing frequency, with an adjustment to the sequence.
ECP
The only positive thing I have to say is that summer is over, which means there will be no more AC noise for another 8 or 9 months.
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kingsfan
If you live in a climate with colder winters - no motorcycles for a few months
ECP
@2049v Fans and AC noises cause pain for me, and it sometimes makes my tinnitus louder afterward. I've spent all summer wearing earmuffs while running the AC at home.
2049v
@ECP, It must be a really tough situation. I also have severe tinnitus, balance problems, hyperacusis, and hearing damage. One morning I woke up and it was as if I had become disabled. I've been struggling for 4 months. Your situation is also very difficult. Were you able to work at all during this time? How has it been from the beginning?
ECP
The same for my keyboard and sheet music collection. Keep= living in denial. Donate= defeat.
ECP
If I donate my hairdryer to Goodwill, it means I'm a pessimist. If I keep my hairdryer, it means I'm delusional about my sound tolerance.
ErikaS
Scared that my only option to stopping the current spike I have & seeing improvement would be leaving my job for good. Very upset right now.
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ErikaS
We may @ECP but it's just not that easy especially in the beginning of the school year and I already had a year and a half off. I wouldn't feel right doing that knowing I cannot guarantee any type of permanent improvement to come back again.
ErikaS
Not sure if anyone else has experienced this during a spike, but some subtle beeps I had that weren't too bothersome or even noticeable have now significantly picked up in speed and intensity level so much and are some of the most distressing sounds. It's so weird and annoying ;(
N
Hi @ErikaS I spiked after a night out for my 50th 10 days ago. 3 hours in town across 3 bars. Used ear plugs and had breaks. How can we live normally? Its beyond me. Did you visit any bars, clubs or festivals with music over the summer?
4Grace
I carry Benzo's in my pkt everyday. Sooner or later I'm going to give in.
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streifzug
@2049v I wish I had never taken them.
2049v
@streifzug, i'm so sorry man :(
Some people say this about benzo's and AD's. Can you tell me why you regret? How was the effect?
4Grace
@2094v - I carry them because there is not a moment that goes by that I don't think about taking them for the rest of my life.
4Grace
Hey - I see your on … man I'm having a bad two days. I found a place to be happy. When I find it, I live a little more then boom! Gets worse. How are you?
streifzug
I fight. I get a couple of OK days. Then it gets even worse than before. T is winning.
4Grace
@streifzug - I feel like I have a chance when I'm living a little. So I handle the volume, I do a little more in life, still the basics then worsen. Once again I habituate to some degree, live a little more, worsen. I can hear mine clearly in the shower no ear plugs. Honest. Loud. I tell my family if you heard this level all at ounce … you would die of a heart attach.
4Grace
@streifzug - you know when I feel better. When I try to do simple things. Ride my bike. I'll ride for a few days thinking at least I can do that…. Then worsen. A lot. Honest. I've been worsening constantly.
just1morething
So far my tinnitus hasn't gotten better since my Total Jaw Replacement. It does hurt in my left jaw/ear when using an EarPopper.
D
Foam ear plugs, ear muffs. And consistent teaching and patience. I raised three boys. I would tickle them with ear muffs. Your kids are a tough age. You have all my sympathy. Dont give up Mom. Your a star
Zigs
Thank you :)
Zigs
My toddler only has one setting (loud!) trying to teach her about inside voices haha
2049v
I have suicidal tinnitus. No one can understand this apart from those who actually took their lives over it.
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2049v
@Yellowblue44, Yes, I have hyperacusis. The biggest obstacle to going outside is that as I am exposed to sound, I start to lose my balance, feel like I'm drunk, and experience confusion. I experience this when I'm outside, at the market; it doesn't have to be a very loud sound for me to feel this way. On some days, I can't cope without masking sounds. As that fucking sound screams in my ear, I want to kill myself.
Yellowblue44
Sounds like you may have merines which could be causing dizzyness. Medication for that should help. Have you seen an ent yet? If you can mask your T then that is a bonus to. I have servere T which means I can never mask it as its reactive and even if I tried it would make my H worse.
2049v
@Yellowblue44, No, I don't have Meniere's disease. My tinnitus doesn't get masked; I just feel partially relieved with some methods. Neither of the two ENT specialists applied any treatment. One of them just said that my complaints would decrease over time. Since the MRI and other tests came out clean, the problem is in the inner ear.
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